Totally agree with what you have heard here. I just thought that maybe you could make use of some info I put together for another member who was also having trouble with a doctor with the "Immaculate TSH Belief". Have a look at this link.
http://www.medhelp.org/posts/Thyroid-Disorders/is-there-a-certain-time-of-day-when-the-TSH-is-higher/show/2514142#post_12238244
"If it's up to him, you could go on like this forever. After all, HE feels fine." what Goolarra said made me laugh and is so true.
I have a TSH .01 (.27-4.20) and a confusing list of symptoms that made me unsure (including being tired) until I got my labs done. My FT3 is 4.1 (4-6.8), FT4 14.1 (12-22). I am not hyper despite my TSH and seeing these results have helped me put my symptoms into perspective.
You're not doing yourself any favours not getting your FT3/FT4 - the information you need to help you with the big picture which needs to include Frees and symptoms as well as taking into account other conditions you may have and are taking medications for.
Just because your TSH goes down doesn't mean you are hyper. TSH can be affected by any number of factors. You HAVE to stop putting so much emphasis on TSH. It's relatively unimportant compared to the actual thyroid hormones, FT3 and FT4.
Get your FT3 and FT4 results with reference ranges. Without those, you are flying blind. The other alternative is to just wait six weeks as your doctor advises and be miserable until then. If it's up to him, you could go on like this forever. After all, HE feels fine.
So i came off the effexor and my tsh went down making me hyper and i tested at .25 tsh. Then i wrnt back on th effexor and my tsh would go back up and i wouldnt be hyper anymore. Then thw doctor lowered my dose because of the .25 tsh result .
This is of course all conjecture I dont know hat to do . I guess wait 6 weeks for latest labs.
Thanks, gimel, I saw that.
My first question would be why the big jump from 112 to 88? 100 mcg would seem the logical step if you feel hypo at 88 and hyper at 112. If you're "almost there" (meds properly adjusted), small changes can sometimes make a big difference.
SSRIs can affect thyroid levels, but they typically inhibit thyroid function, which would raise your TSH, not lower it. Depression is also a hypo symptom. If you got your thyroid meds adjusted right, you might not need to take Effexor.
Concerning your post that gimel copied and pasted: You have Hashi's. So, the antibodies are going to keep destroying more and more of your thyroid function until your thyroid is functionally "dead". Sometimes this happens quickly, sometimes it takes decades, and it almost always happens in fits and starts, with plateaus along the way. During that process, meds adjustments have to keep pace with loss of function, but they can't go overboard.
Anyway, it's all a process, but you can't give up. You are not being treated properly. I suspect your doctor reacts to TSH and not much else. I assume that, living in a Third World country (I've spent a lot of time there myself), you probably have access to a lot of meds without a script?
Yeah just low energy, tired, since I cut down from 112 to 88 which was just a few days ago. No joint pain or other hypo symptoms.
Prior to lowering my synthroid (7days ago) I had more energy and I did feel "wired" when I got in bed and a little chest palpitations.
The thing is, I had come off a low dose of effexor right before I got tested at .25 tsh and I think that coming off the effexor caused my thyorid to get better again. Then I went back on it, and I think the effexor caused it to slow dow again.
ando35 post copied and pasted here
I would not recommend getting treatment for subclinical hypothyroidism Hashimoto's. I had a tsh of 6.1 and went on synthroid and it has been a disaster. It just made my situation worse. Now, every 6 months my thyroid crashes , they increase my dose and I get hyper and then hypo again in 6 months.
Will they mail them to you?
It's not pointless to try to figure it out. You're on a rollercoaster because your doctor is fixated on TSH. TSH goes up, your doctor increases your meds. It goes down, and he decreases them. Meanwhile FT3 and FT4 might very well have stayed the same. You have to commit to taking control and not letting this happen.
Please tell us about your current symptoms. You said you were feeling low and tired. Anything else?
I called to get the free t3 and free t4 and they told me to come get my labs, which is an hour away. I will call back but...
I realize there is no point. I have been on synthroid almost two years and it is constantly up and down. I go from hypo to hyper constantly and trying to figure it out os pointless.
Oh and I cannot see a real doctor because we live in a third world country, I see a nurse.
K i will. Thanks for the help.
Will look forward to seeing them...be sure to ask for reference ranges, too. Ranges vary lab to lab and have to come from your own lab report.
Hm i am on synthroid 112 . I will call monday to get my t3 and t4
Yes, I'm sorry, but you can very well be hypo with a TSH of 0.25. Some meds suppress TSH, and it can go to zero while FT3 and FT4 remain hypo and you have hypo symptoms.
If you don't feel hyper, you are not hyper, no matter what your TSH is. TSH is a pituitary hormone, and it can be affected by any disturbance in the thyroid/hypothalamus/pituitary axis.
Yes, you can be tired and hyper. If you have insomnia (a hyper symptom), you will feel tired during the day. When hypo, you typically feel tired despite (more than) enough sleep.
Once again, what are you on for thyroid meds? Some suppress TSH more than others.
I do not have my t3 and t4 right now. But you don't need to know that to answer if you can be tired and hyper.
I am sure I am not hypo if my tsh was .25. There is no way.
Do you have any hyper symptoms?
What were your FT3 and FT4 when your TSH was 0.25? Please post them with reference ranges.
What are you on for meds?