Hyperthyroidism /bppv?/sick flu like extreamweakness/ faint felling etc

[Chris1863]

Really strange and nightmare health turn. all stated during trip to Cincinnati Ohio trip on may 12 I felt really bad and very weak like flu. So bad that took to wheelchair. But did hit back of head in soft spot on table as I was laying back on air mattress. Was fweling bad before though.Went to er on way back one nurse thought one ear was inflamed he had to dig around and looke good and he looked at tonsils said they were still to inlarged from the tonsillitis I had a month before thought body is still fighting it. But doc the actuly doc did not see me tell very end and said was just fatige tests show fine. Need more done but he would not do it.arge .Just wonding if that virus good have went to ear? Any way little bit better with rest

then all the vertigo and real bads nausa could not eat much for weeks lost 20ilbs.which told bppv no one would do eply had to wait a month to see ent.was given prednisone which put me in more daze and gave real cold bad shakes shot bloodpressure up 170 over 100 somthing and was then give after that that put me in complete brain fog/ weak couldn't thank which stoped after off it for a for few weeks but still don't feel right. so medicine may have prolonged this. Also noticed i was geting dizzy after using sinus rinse. Before trip .Was not as dizzy before and after doing them felt like i might have got water in ears so i shook my head alot. Wish i have never used the rinse.this was before trip. Now having still having a little balance issue but mainly truple with eyes thing i see move give bad feeling and they dont seem to want to focus and there alot blurrer then before all this started matter of fact eye doc first time seeing one said near sighted 20.50 but i know i could see clearer before all this. Also main thing still bothering me is eye thing even somtimes hurt and bothers eyes to look at phone. And can't focus and concentrate to whatch tv and light headed have wooshy swimy head fealing when moving at times.weak in daze feel like i going to faint some days and barly stay to myself like out of not conected to world.some Sorry for long story. Just want to get back to myself and well. Before all this went to Florida in 2016 did 3 theme parks one day no problems was well. Also have seen ent did vng thought bppv but it was a month in to symptoms so nysteagmes had stoped he though had slower moving fluid left side and a tiny nystagmus. So did eply sent home with to to do for left side. No ear pressure showed and no hearing loss becouse seen another ent to who done hearing test. But he almost is saying he don't think it's ears possable butsending me to nuraligist and vrt rehab.also all blood work they have done all the basics plus few others show good no high white blood count. Have had that many times due to er visits. Had ct said fine ultra sound of abdominal and ct showed fine other than fatty lever. Only think I have been told is low vita d 13.4 and scored low on pulmonary stress test which showed low lung capicity 60 67 with inhaler but xray chest clear and test for copd says not predposed. Mid you did not have shot of breath before all mentioned I have spent days crying and so stressed out couse I can't do anything tell .also can't take any inhalers for side effects.all of them. Update recent spirometry came back nomal Any one have any ideas or advice just want life back.

now still swimy type headed light headed have trouble focusing eyes watching movement bothers me ever bad felling or almost some sort of disconnect hard to explain. vission has changed during all this as well. But eye doc says eyes fine just need glasses for nearsightedness 1.50 percription. Cant wear caouse throughs more dizzyness and is just to much on top of everything.Eyes were fine or clearer before all this. Also heart rate is up some days when standing and moving can go all the way 136 to 140 pulse rate. Not always though last few days been down around 100 to 115 some time little lower? Extremely weak last few days again and can't stand to look at motion. Very dizzy lightheaded.

Just looked up latest TSH is 0.37 was 0.89 in may then a few months ago was 0.59

Docs just now taking me seriously. StI'll done so may other tests blood work er visits etc. Now heart in and other of rythem cardo heart doc says. Is this sound like hypothyroidism or adrenal problem doc finely doing tests. But can't get me a to endo unless a dignosses is already made???? Also have lost 40lbs still losing. Also mom has had thyroid issues and grandmother and aunt. Buy like said Tsh in around may was 0.89 now it's low at 0.28 matter of fact it was 0.37 the day before. The normal lab range is 0.50 to 4.00?

[gimel]

Will the doctor test you for cortisol and ferritin?  If not, I think you should show her the list of symptoms that are related to being hypocortisol, and push for the tests.  If that doesn't work, for cortisol are you willing to spend about $150 to get a kit for a diurnal saliva test panel of 4 tests from an online lab?  Low ferritin can also cause the following symptoms.

    Minor aches
    Fatigue
    Weakness
    Heart palpitations
    Increased pulse
    Loss of energy
    Loss of libido
    Confusion
    Irritability
    Shortness of breath

Where are you located?  Perhaps someone knows of a good thyroid doctor in your area.

[Chris1863]

Acth was that 101 but random cortasol is normal but the random was done almost a month ago. Im getting referred to a endo on the the 3rd and getting a mri of head the 28th to rule out a pituitarytumer. She did not do ferratan and the more more detailed cortasol test hopefully the endo will.

[Chris1863]

Had ultrasound of thyroid here is results

MI US SOFT TISSUE, HEAD & NECK History: Abnormal weight loss Findings: Multiple longitudinal and transverse images through the thyroid are obtained. The gland is overall enlarged. The right lobe measures 2.2 x 2.9 x 6.4 cm. The left lobe measures 1.7 x 2.2 x 5.6 cm. No dominant nodules are identified. There appear to be tiny bilateral follicles. Impression: Thyromegaly. No suspicious or dominant nodules are identified. Finalized By: Hines, Henry Date: 9/21/2017 8:48 AM

[gimel]

As I understand it, the ACTH test is usually done along with a cortisol test.  Note that A high level of ACTH and a low level of cortisol (or low ACTH and high cortisol levels) could be caused by a problem with the adrenal glands."  Recall that you had a number of symptoms that are often related to being low in cortisol.

You really need to know your cortisol levels.

[Chris1863]

ACTH, PLASMA 101.6 pg/mL High Reference Range 7.2 - 63.3
Just got this results back acth is high?

[gimel]

The ACTH only assesses the functioning of the adrenal glands stress response.  If there is an inadequate signal from the pituitary, the test would not show it.  That is why you also need the cortisol test.  Also, your low TSH could indicate low output from the pituitary gland.  If the doctor cannot find the cortisol test result, then you need to do another.  While waiting for your doctor to do something, if you start feeling really bad, I would just go to the ER and make sure they understand your symptoms and the possibility of hypocortisolism.  

[gimel]

That list of symptoms came from the following link, which is about low cortisol.  You need to get tested for cortisol.  And when you do, be aware that just like with thyroid ranges, just being in the low end of the range does not mean all is well.  Symptoms are the best indicator, not just lab results.

https://blog.udemy.com/low-cortisol/

The best test for cortisol is the diurnal saliva cortisol panel of 4 tests at different times of day.  Those check free cortisol.  The test doctors usually will order is morning serum cortisol, which is total cortisol and not nearly as revealing, but better than nothing.  

Do you think you can get your doctor to test for cortisol?

[Chris1863]

She has ordered a acth test? I have to get in morning between 7 and 10 am. She did do a random cortasol test but has not gotten it back it's been weeks for the random cortasol my doc couldn't figure were it was.

[gimel]

Your Free T4 result of 1.28 is 35% of its range.  Your Free T3 result of 3.87 is at 49% of its range.  Although there are a number of other variables that can cause hypo symptoms, your FT4 and FT3 levels should not be the cause for your severe symptoms.  Also, they clearly do not indicate hyperthyroidism.  Which leads me to ask which of the following symptoms have you had?

    Mental and psychological ailments such as depression
    Faintness and dizziness
    Weakness and fatigue
    Heart palpitations
    Emotional hypersensitivity
    Inability to cope with stress
    Social anxiety
    Muscle weakness
    Headache, scalp ache, or general body ache
    Severe or dull lower back pain
    Extremely sensitive skin
    Nausea, diarrhea, and vomiting
    Abdominal pain and hunger pain despite an empty stomach
    Extreme craving for salty foods
    Anxiety and jitters
    Clumsiness and confusion
    Motion sickness
    Insomnia and dark circles under the eyes
    Low bladder capacity and symptoms of IBS
    Irregular or non-existent menstrual period

[Chris1863]

Faintness and dizzyness
Weakness and fatigue
Muscle weakness
Inability to cope with stress
Have had lower back pain severe but went chriopracter this was past last year it helped was still haveing back pain tell this started in may.know no back pain.
Motion sickness. Can't stand at times to see motion gives woozy feeling. Trouble focusing eyes at times Just started recently some day better.
Heart palpations well really more of high heart rate pulse 100 or more at times just sit in actually almost 140 the other day its up to 140 actuly the dizzyness and lightheaded faint feeling is worse when it's up well at lest the one day I went to er. I as extremlu shaky once I'm up and just standing.
Clumsiness confusion and it's like brain fog or more like my brain is just so overwhelmed I can't thank or it can about make me more dizzy.not exactly but it's like when you have had a extreme amount mental work home work or computer and you just have to stop and rest your mind.

Have some craving for salty food.

Have had eposodes of being hot all of sudden like hot flash

Also after being up and shaky later that night I do feel achy.

But the mucle weakness is the worse after just being up a lititle or walk I am just so weak and legs so heavy like I have ran miles.some days show shaky and weak cant even open doors etc.

Heart doc did say heart is out of rythm beats fast then slow.

[Chris1863]

Also attacks of shortness breath. Like I have been running milles. Or just to weak to breath. But not astma or copd had that tested at my doc she is lung doc too. Then was cheacked at another lung doc.

[Chris1863]

1Triiodothyronine.free:MCnc:Pt:Ser/Plas:Qn 3.87 pg/mL 2.50-5.27

1Thyroxine.free:MCnc:Pt:Ser/Plas:Qn 1.28 ng/dL 0.78-2.19

Total t4 is now 11. 12 is the limit that's set by lab to be high its went up was 10 7

So we're does this leave me??? I am so sick and extremely weak can not even walk. Heart rate keeps going up to 140 all the time just on standing I every time can't even take a shower. I'm am only 26 I was fine last year.

[Chris1863]

Have even found a endo in bowling green ky. That would go ahead and see me but based on what tests show they think I don't need to be seen. Can't they just go by the tsh and symptoms.

[gimel]

Based on my review of your test results, I can see why they might think that at the Endo's office.  Before we discuss further, I need an answer to the post below, regarding those symptoms.    

[gimel]

Can't believe the doctor would not know the TSI test for Graves' Disease.  Also why would she think that this Free T4 should be up and Free T3 down?  I think you are going to need a good thyroid doctor soon.  Please post the Free T4 and Free T3 results and reference ranges shown on the lab report as soon as available, so we can help interpret results.

[Chris1863]

Got the free ts4 and free ts3 but could not get tsi. She did not know what that is said that this free  ts4 should be up and free ts3 down

[gimel]

Sorry, I wrote Thyroxine Stimulating Immunoglobulin.  Should have been Thyroid Stimulating Immunoglobulin.

[Chris1863]

Whats with the cortisol and ferratan? I have just insisted she check adrenals and she ran a random cortasol test. But did not now tsh was low.

[Chris1863]

I well difeently make her run free to and t4 though and tsi. I have read elsewere that needs to be done.

[gimel]

With the symptoms you have and the limited test results it sounds like hyperthyroidism.  So, I think the first thing you need to do is to get tested for the possibility of Graves' Disease.  The definitive test for that is Thyroxine Stimulating Immunoglobulin (TSI).  In addition, you need to be tested for the biologically active thyroid hormones, Free T4 and Free T3 (not the same as Total T4 and Total T3).  For the low Vitamin D you need to supplement with probably 3000 IU of Vitamin D3 daily to get your level to at least 50 ng/mL.  You also need to test for cortisol and ferritin.  

Can you get those tests done?

[Chris1863]

I can insist  my docter does them  my total t4 is 10.7 vita d is low at 13.4 is that a common treat with hyperthyroidism? I have taken 3 50000 iu. Over lat 4 weeks.My doc is just a practicciner she just now taking Me seriously and has said she does not know how to interpret all them.

I'm hoping to get on in to physion who can go ahead and manged treat antithyrod pills tell I see endo. But they all just want to send to endo and that could be months and I don't thank my body well wait that long.
Also does the dizzyness lightheaded ness motion type sickness go away once levals are stable. I cant stand to see things move it times.

[Chris1863]

Also the heart rate jumping up to and over 140 when standing don't know how many more days of that I could survive. Er does nothing.