I found neck swelling at the very end of March and got in to an endo April 3. He did blood and ordered a US. US showed heterogeneous goiter no suspicious areas, US report under my journal. Bloodwork was normal. TSH 1.040; FT4 1.45; TPOab <10. Since then I have had some pretty horrible symptoms, extreme fatigue, gained 12 lbs since the 1st endo appointment and I don' t care what he says, I have not changed a thing (except I eat one of those small bag o chips a day cuz I crave salt) and my right side of the neck swells. I get headaches muscle and joint aches and am very irratible. Elevated temp on and off (last night back to that fever kind of thing, running 99.8 - which is just enough for me to feel really achey) and I wake up with swelling every morning, it goes down some by about 10 am. - noon, starts to return about 3-4 p.m. and I take 2 ibuprofen or advil pm before bed b/c of the swelling, then wake and do it all again. I had a CT done 6/4 that showed shotty nodes, opacification (patchy) of the mastoid air cells, enlarged thyroid with right side predominance. Now I woke up with this swelling tongue. I does not seem as swollen now, but this a.m. you could see the teeth impressions on the sides. I have one spot on it that is kind of sore, like a taste bud irritation on the side.
I take 25 mcg levothyroxine. My last blood level (TSH only b/c endo is a jerk) was 0.557. No doubt from the levo, which is doing nothing for the swelling.
How long after starting the levo did you notice the tongue?
I also get low grade fevers. Only about 99.2 ish, but I usually run 97.something, so I notice when it goes up by a degree or so. I feel a little "off" when I get the mild temp increase.
I have a heterogeneous thyroid with 2 small nodules, just under 1 cm so too small to biopsy. I had some discomfort with shirt collars and especially turtle necks until I was on Synthroid for a few months. Even the seatbelt bothered me.
I originally starting taking levo in April (2 weeks) then stopped it b/c I had numb tingles in my chin. Found out is was really from the chanix I was taking when I stopped them both and resumed the levo in May. I have been on it consistantly (I did miss a dose but just one) since May and just noticed the tongue this a.m. b/c I brush my tongue every morning and night and it hurt this am so I took a look. Not noticably swollen now so maybe it was a fluke.
when i first started on thyroxine i could only tolerate 12.5mcg/day then i went up to 18mcg/day and now im on more than 25mcg. i feel best at a tsh of 1.5. i tried taking no thyroxine and i felt really bad.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.