I was also born without a thyroid!

[Miranda1105]

craziness.


This discussion is related to i was born without a THYROID GLAND, WAS ANY ONE ELSE BORN without one?.

[laura1967]

Hi Miranda....welcome to the thyroid forum.

[Britts_29]

hi i was also born without a thyroid gland

[osas1203]

oh wow i was born w/o a thyroid too :O...hey does anyone have "the neck?" i was just wondering bc i have it...

[Beth1224]

I was also born without a thyroid. Ive never got to talk to anyone in the same situation. What is "the neck"?? I would love to talk to someone about this. Noone in my family has any medicial issues so its hard to talk to them about stuff.

[magpieannie]

Hi Beth, My daughter is almost nine (next week) and was also born without a thyroid gland! You really are not all alone on this, as I know it often seems! I have no idea what "osas1203" was refering to with the "neck" unless she was talking about what a "pain in the neck" it can be, living without this gland! It sounds so simple doesn't it? But we are finding it more and more complicated as time moves on and as the needs of her body begin to change. Do you mind telling me your age/weight and medication used? We have definately had issues with health and meds over the last year. We are working on it and beginning to see some light at the end of the "dark thyroidless tunnel" now! I would love to know more of your experience as it could truly help her and others who are out there and may be younger than you. Any advice or communication would be much appreciated!

[mama51]

Please excuse my ignorance, but what is "the neck?" I know about the "wings" and other such symptoms.
I too was born w/out a thyroid gland.

[magpieannie]

What are "the wings"? Would you mind sharing some of the symptoms/experiences that you have had with being born without a thyroid gland. My daughter is 9 and born withouit a gland. What meds. do you take for thyroid hormone replacement? Also, what suppliments are you taking? I look forward to hearing from you about your experience with this. We can use all the help and advice that we can get! Thanks so much!

[erinne420]

Yep, born without one, it is so funny because you always hear how rare you are ant then you find a site like this and now I don't feel so... out there. I was diagnosed when I was 9 days old. Something about a bone not being where it should be... i was new so I couldnt tell you the events that led up to "you don't have one because you came that way"
I have been taking 150-175 mg synthroid, but I find that the whole female part of lacking the butterfly shaped organ that just so happens to be Hormone Grand Central Station is complicated. Anybody else dealing with this Aunt Flo situation?