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IS THIS HOW YOU FEEL WITH HYPOTHYROIDISM?
Hey guys, lets compare notes.
I was diagnosed with hashimotos a year ago. I was on a small dose of levo, which was increased 9 days ago to .050. The Dr. told me that once my tsh gets to 2.0 i will feel normal. my Tsh last checked 9 days ago was 7.93. T3 was low too.
So I go to bed about 10 pm after I drink about 2 small beers. I wake up about 9 am and My ears are ringing off the hook. I feel horrible. I do not want to get out of bed. I am still exhausted. I take my LEVO and I lay there for about 30 minutes.
9:30 I roll out of bed. I am EXHAUSTED. Im foggy, im shakey. My wife asks me if I want anything to eat, I decline. I grab a water bottle and I drive to the gym. At the gym I feel HORRID. I dont have any energy. I sometimes will stand there and look at a machine and think "next time".
So I get my half hour at the gym, i head home. I go home and eat something small and I lay on the floor for the next two hours and think to myself "I wonder if the 900 doctors I saw missed something".
2:00 PM - I start to feel better, I know have a little energy, I play with my kids as much as i can because I know any minute im going to feel crappy again.
8:00 PM - Ears are now ringing again, im foggy again, im shakey, and I just want to lay down on the floor and I have to tell my wife I dont feel good.
10:00 I finished a glass of beer and im heading to bed. It was a very joyful day, I felt acceptable (not good) for 8 hours.
Am I fooling myself thinking this is one day going to get better? Why Do I feel so crappy in the morning? Should I take my medicine earlier? Am I not taking enough? Is it something else?
BRuce
I was diagnosed with hashimotos a year ago. I was on a small dose of levo, which was increased 9 days ago to .050. The Dr. told me that once my tsh gets to 2.0 i will feel normal. my Tsh last checked 9 days ago was 7.93. T3 was low too.
So I go to bed about 10 pm after I drink about 2 small beers. I wake up about 9 am and My ears are ringing off the hook. I feel horrible. I do not want to get out of bed. I am still exhausted. I take my LEVO and I lay there for about 30 minutes.
9:30 I roll out of bed. I am EXHAUSTED. Im foggy, im shakey. My wife asks me if I want anything to eat, I decline. I grab a water bottle and I drive to the gym. At the gym I feel HORRID. I dont have any energy. I sometimes will stand there and look at a machine and think "next time".
So I get my half hour at the gym, i head home. I go home and eat something small and I lay on the floor for the next two hours and think to myself "I wonder if the 900 doctors I saw missed something".
2:00 PM - I start to feel better, I know have a little energy, I play with my kids as much as i can because I know any minute im going to feel crappy again.
8:00 PM - Ears are now ringing again, im foggy again, im shakey, and I just want to lay down on the floor and I have to tell my wife I dont feel good.
10:00 I finished a glass of beer and im heading to bed. It was a very joyful day, I felt acceptable (not good) for 8 hours.
Am I fooling myself thinking this is one day going to get better? Why Do I feel so crappy in the morning? Should I take my medicine earlier? Am I not taking enough? Is it something else?
BRuce
Just because you are taking 112 mcg of Synthroid does not mean that is adequate. Also, you may not be adequately converting all that T4 to T3. If you will please post your thyroid related test results, along with reference ranges shown on the lab report, we can better assess your status. Also, if tested for Vitamin D, B12 and ferritin, please post those as well.
I feel extremely shaky in the morning too. When I lift my head it shakes for a few seconds and I also have that drunk like feeling. Nearly everything you all mentioned I too experience. I am newly diagnosed with hashimotos and I am on 112 MCG of synthroid. I have noticed that once I am up and functioning I am not nearly as tired as I used to be but around 2:30, I am extremely tired until about 6:00 pm.
I do not lie dealing with this. I want my life back.
I do not lie dealing with this. I want my life back.
It might be better if you start your own thread and post your results there....this one is very old and Bruce's problems are fairly unique. I notice Stella has even said it is closed. Please let us know what testing you have had done : auto-immune, FreeT3 ? Has your doctor suggested adding T3 to your regime ? Tested for Vitamin D, for B-12 ?
Please post your thyroid related test results so that members can better assess the adequacy of your testing and treatment.
Any new up dates on meds. I've been on Levo for about five yrs. felt better in the beginning, but just feel ill most of the time. I've tried four different meds, now on Tirosent. I've felt so sick like I can't try anything new, and. Feel as though I'm dying.
This post is closed. Links of all the conditions discussed will be posted below for reference.
Thank you.
Thank you.
Moose I'm not kidding. I called my wife lost and confused. She had to walk me through getting there. I was delusional.
Wow! poor Bruce ---everyone is really trying to help and that is so awsome
I hope Bruce you will try to help your self and listen to everyone here,
They all seem to know whats up.
My TSH was 67.6 a few months back and boy that was not fun at all. My GP told me she has never seen anyones that high before and said no wonder your not feeling well LOL
I was CRAZY or no I mean NUTTY! cuz Iam the HASHINUTTYLADY forsure!!
Hugz to all, Terri
I hope Bruce you will try to help your self and listen to everyone here,
They all seem to know whats up.
My TSH was 67.6 a few months back and boy that was not fun at all. My GP told me she has never seen anyones that high before and said no wonder your not feeling well LOL
I was CRAZY or no I mean NUTTY! cuz Iam the HASHINUTTYLADY forsure!!
Hugz to all, Terri
"I dont understand also how my tsh is only at 7.50. Why wouldnt it be like 60, or 100 with these symptoms? "
Bruce, I am in poo-land at the moment and my TSH is 2.75. I ALWAYS feel garbage when mine goes up over 1.0
It is all relative. The numbers DO NOT equate how someone will feel. I reckon at 60 I would be dead! Yet at 2.75 I feel dead already!
Having said that, I KNOW it is not JUST the thyroid levels that have me feeling cruddy.
I can't remember if you had your anti-bodies tested? They can sure knock you around too. Mine are still high 3 years after my TT!
I know as Lazymoose suggests that getting even an hour a day of non-health time, can help in not focusing on the bad stuff. I literally FORCE myself outdoors to do some gardening and it helps tremendously on my mental state. Sure, I still feel tired, but it helps me focus on something else!
Cheers!
Bruce, I am in poo-land at the moment and my TSH is 2.75. I ALWAYS feel garbage when mine goes up over 1.0
It is all relative. The numbers DO NOT equate how someone will feel. I reckon at 60 I would be dead! Yet at 2.75 I feel dead already!
Having said that, I KNOW it is not JUST the thyroid levels that have me feeling cruddy.
I can't remember if you had your anti-bodies tested? They can sure knock you around too. Mine are still high 3 years after my TT!
I know as Lazymoose suggests that getting even an hour a day of non-health time, can help in not focusing on the bad stuff. I literally FORCE myself outdoors to do some gardening and it helps tremendously on my mental state. Sure, I still feel tired, but it helps me focus on something else!
Cheers!
Then you needed more than he was capable of doing in office. I thought these were so bad you couldn't drive.
Then see solution # 2.
Then see solution # 2.
Moose, about a month ago I drove to my Endo while one of the attacks were happening. He checked all my vitals and they were fine.
I get the attacks off the thyroid, but on the thyroid they are much worse. The ears start ringing bad, I get dizzier, stiff neck. This is right around 230 every day. I've taken thyroid with propranolol as well.
Maybe I nee a time release t4?
I get the attacks off the thyroid, but on the thyroid they are much worse. The ears start ringing bad, I get dizzier, stiff neck. This is right around 230 every day. I've taken thyroid with propranolol as well.
Maybe I nee a time release t4?
In hypo thyroid males it is common for testosterone to be lower when thyroid is lower. It elevates after thyroid levels are optimal. Been there, done that. : )
Bruce, Didnt the testosterone also make you have the same type symptoms as the thyroid med when you took it? And, are you still having those spells or symptoms everyday around the same time without thyroid meds? Just trying to clarify in my mind some of it. Feel Better.
Solution # 2,, in addition to the one above this.
OK Bruce, I have read your post for a year or more, and remember your situation - most of it. At this point you need some solutions, not people telling you how bad they feel for you. I will be straight forward - its what you need.
You need to figure out these episodes after thyroid med, if that really is the cause. A doc should have thought of this, but docs now days so reliant on lab tests, suck at problem solving. No about placebo testing? Get in touch with a compounding pharmacy in the yellow pages (paper). Find a thyroid doc they work with.
Go to the doc, and ask for placebo thyroid testing. You will be given several compounded prescriptions, one at a time, but you wont know whats in them. One one them will be thyroid med. But they all will look the same since they are put in a compounded capsule. You take med for several days, and record if you had an episode or not. Then on to the next one, repeat. The whole idea idea is your brains hasn't a clue what you ingested, if you have an episode from a placebo capsule, its not from thyroid med, its from with in - and talking with someone will be the presription. If it is from thyroid med, then they will have to find out why.
This will provide valuable information you need to know.
Discuss this idea with health professionals - it WILL work.
OK Bruce, I have read your post for a year or more, and remember your situation - most of it. At this point you need some solutions, not people telling you how bad they feel for you. I will be straight forward - its what you need.
You need to figure out these episodes after thyroid med, if that really is the cause. A doc should have thought of this, but docs now days so reliant on lab tests, suck at problem solving. No about placebo testing? Get in touch with a compounding pharmacy in the yellow pages (paper). Find a thyroid doc they work with.
Go to the doc, and ask for placebo thyroid testing. You will be given several compounded prescriptions, one at a time, but you wont know whats in them. One one them will be thyroid med. But they all will look the same since they are put in a compounded capsule. You take med for several days, and record if you had an episode or not. Then on to the next one, repeat. The whole idea idea is your brains hasn't a clue what you ingested, if you have an episode from a placebo capsule, its not from thyroid med, its from with in - and talking with someone will be the presription. If it is from thyroid med, then they will have to find out why.
This will provide valuable information you need to know.
Discuss this idea with health professionals - it WILL work.
"I dont understand also how my tsh is only at 7.50. Why wouldnt it be like 60, or 100 with these symptoms? "
- your thyroid still does something, its not dead yet........
If you always have these attacks 4 hours after thyroid med - they key to solving this mystery is very simple. OK?
Set up an appointment with some doc that gas monitoring equipment in the office to keep this affordable. The reduced price of Cobra is affordable with the government paying %65 of cost for the unemployed - so I hope you have some type of insurance still. Get there early take med and record all body #'s BP ec, heart, nerves ect. whatever they do. Then leave and come back the third hour for monitoring while the attack happens. After your doc witnesses this, then you might get some order to repeat this in a hospital setting where they can wire you up literally - like they do for sleep studies - it tells a lot in the brain and many organs. I believe I mentioned this last year. You need to find a doc to do this.
- your thyroid still does something, its not dead yet........
If you always have these attacks 4 hours after thyroid med - they key to solving this mystery is very simple. OK?
Set up an appointment with some doc that gas monitoring equipment in the office to keep this affordable. The reduced price of Cobra is affordable with the government paying %65 of cost for the unemployed - so I hope you have some type of insurance still. Get there early take med and record all body #'s BP ec, heart, nerves ect. whatever they do. Then leave and come back the third hour for monitoring while the attack happens. After your doc witnesses this, then you might get some order to repeat this in a hospital setting where they can wire you up literally - like they do for sleep studies - it tells a lot in the brain and many organs. I believe I mentioned this last year. You need to find a doc to do this.
Whats really hard is, i got on .13 for 6 weeks. This was the tirosint. It was the very smallest amount they make. I usually started off in the morning pretty well. But after about 4 hours from taking it, i got these weird attacks. They were brutal. I couldnt do anything but sit down. I would be at the mall with my wife, and she would have to help me back to the car so she could drive me home. Its almost as someone gave me a hypnotic. I couldnt speak, i couldnt think, i was basically like a body with no mind walking around. I felt nauseas, my ears rung really hard, It felt as though a posionous snake but me and I was feeling the effects of its venom. My joints would pop, my back would hurt, i could not lift my legs to get up. My body had electricity going though it. My left foot felt like it was stuck in an electrical outlet and was being shocked. I couldnt get up enough strength to say "help me" to my wife.
I am waiting for the ZRT test to come back. Not sure if this will help me but im being told it will.
I know for a fact ive been hypo my whole life. I never really knew about it until now whereas im thinking about it in hindsight. But something happened to me Nov 2009 that changed everything. It just happened one day, out of the blue. I didnt do anything different that day, didnt eat, drink, fall, take drugs, etc.
I dont understand also how my tsh is only at 7.50. Why wouldnt it be like 60, or 100 with these symptoms?
I am waiting for the ZRT test to come back. Not sure if this will help me but im being told it will.
I know for a fact ive been hypo my whole life. I never really knew about it until now whereas im thinking about it in hindsight. But something happened to me Nov 2009 that changed everything. It just happened one day, out of the blue. I didnt do anything different that day, didnt eat, drink, fall, take drugs, etc.
I dont understand also how my tsh is only at 7.50. Why wouldnt it be like 60, or 100 with these symptoms?
you have to get with the program or any program. why did you stop?? one doctor had you on a plan to gradually WORK you BACK INTO THYROID MEDS AND YOU STOPPED???? YOUR TESTS IF the info you post are TRUE?? CLEARLY SHOW YOUR HYPOTHRYOID. ALL THE SYMTOMS ARE HYPOTHYROID , WE ALL HAD THEM, YET You fail to treat it , but continue to post your symptoms??/ why bother???? maybe you are depressed and don't have the motivation to get on the road to help yourself. i understand ! maybe counselor can help you. in the meantime some exercise such as walking might help you. maybe counseling first will help you make the right decisions about your health. i will pray for you. i hope you get the help you need! .
I agree with everything Lizzie Lou stated above. You have self-prescribed yourself by going against what the doctors are saying making the problems even worse. That is why I mentioned earlier you should seek help for depression. Until you decide to find a doctor, stay with the treatment plan the doctor sets to give it a chance to work, and get any other underlying issues (such as possible depression) dealth with, you will not feel better.
You mentioned that you took thyroid medication for 6 weeks. Does that mean you took the same brand for 6 weeks or you jumped between, for example, Armour and Synthroid?
I was in high school the first time I heard cancer mentioned as a possibility, meaning thyroid cancer. I had a TT and I still to this day deal with issues relating to the hypo caused by the TT, however, I know that the problems are not permanent...it gets better by follwoing what my dr. recommends. I went through a period of depression/grief not very long ago due to the death of my mom...during that time my thyroid levels were out of control...I was too hyper or too hypo. Now, whether that is from not properly taking the medication for a brief time or if it was because the stress had such an impact, I do not know.
My point is, once I made the conscious decision that I was not going to sit home feeling sorry for myself any longer, get my thyroid issues back under control, and realize that only I can choose to make myself feel better (yes, my dr. can tell me what I need to do but it is my decision to follow through or not), did things actually improve.
You mentioned that you took thyroid medication for 6 weeks. Does that mean you took the same brand for 6 weeks or you jumped between, for example, Armour and Synthroid?
I was in high school the first time I heard cancer mentioned as a possibility, meaning thyroid cancer. I had a TT and I still to this day deal with issues relating to the hypo caused by the TT, however, I know that the problems are not permanent...it gets better by follwoing what my dr. recommends. I went through a period of depression/grief not very long ago due to the death of my mom...during that time my thyroid levels were out of control...I was too hyper or too hypo. Now, whether that is from not properly taking the medication for a brief time or if it was because the stress had such an impact, I do not know.
My point is, once I made the conscious decision that I was not going to sit home feeling sorry for myself any longer, get my thyroid issues back under control, and realize that only I can choose to make myself feel better (yes, my dr. can tell me what I need to do but it is my decision to follow through or not), did things actually improve.
what i see is a VICIOUS cycle...
thyroid issues = poor health = depression and anxiety = self medicating = thyroid issues = poor health = depression and anxiety = self medicating....................
my daughter in law suffers from depression and is bi-polar. she would go to the dr...get put on a med...and if it didnt work in 3-4 days, she would come off of it, swearing it "didnt work". on to another dr. because the first one didnt know what he was doing. he would change her med because she told him that xxx didnt work on her...of course, NEVER telling him that she only took it for 3-4 days. the new meds would be short lived too because they "didnt work" in 3-4 days and the new dr didnt know what he was doing either. this cycle went on for YEARS due to her self medicating and not working with her dr.
all of this cycling was causing a large amount of anxiety in her life. it wasnt until she met me that things began to get better for her. what i was able to finally make her understand is that it takes TIME for these drugs to work...they are not like a tylenol that would give her pain relief in 20 minutes.
her depression and anxiety had gotten out of control and she was no longer able to leave the house...her migraines were debilitating...her blood pressure was very high...and she was dizzy all the time all this was a result of HER refusing to "work with" her dr.
my daughter in law is now very healthy...both mentally and physically. she no longer takes migraine meds, blood pressure meds, or klonopin for her anxiety. WHY? she finally WORKED WITH her dr and not against him.
i have read most of your posts since joining this forum and what i saw FROM THE GET GO was depression and anxiety. what i saw at the forefront though, was your inability to WORK WITH a dr. and a HELLUVA lot of self diagnosing and self medicating. what i want you to try and understand is that anxiety can AND does cause very real physical symptoms. "i" understand where your anxiety and depression are coming from...you want to feel better...but at the same time your feeling bad is causing your anxiety and depression to worsen. can you see the cycle???????
i just had a TT a few weeks ago because of cancer. i dont feel good AT ALL...and even though i dont...i continue to take my prescribed med KNOWING that in time...and maybe having to WORK WITH my doctor, my dosage and/or meds...that i will eventually pull through this rough time.
you CAN feel better bruce. please stop this cycle...get on the band wagon of good health...and find a dr who YOU will work with and will work with you. give him a chance and dont bail out because you dont find instant relief. going to repeat that...GIVE HIM A CHANCE AND DONT BAIL OUT BECAUSE YOU DONT FIND INSTANT RELIEF ! !
ROME WASNT BUILT IN A DAY...
thyroid issues = poor health = depression and anxiety = self medicating = thyroid issues = poor health = depression and anxiety = self medicating....................
my daughter in law suffers from depression and is bi-polar. she would go to the dr...get put on a med...and if it didnt work in 3-4 days, she would come off of it, swearing it "didnt work". on to another dr. because the first one didnt know what he was doing. he would change her med because she told him that xxx didnt work on her...of course, NEVER telling him that she only took it for 3-4 days. the new meds would be short lived too because they "didnt work" in 3-4 days and the new dr didnt know what he was doing either. this cycle went on for YEARS due to her self medicating and not working with her dr.
all of this cycling was causing a large amount of anxiety in her life. it wasnt until she met me that things began to get better for her. what i was able to finally make her understand is that it takes TIME for these drugs to work...they are not like a tylenol that would give her pain relief in 20 minutes.
her depression and anxiety had gotten out of control and she was no longer able to leave the house...her migraines were debilitating...her blood pressure was very high...and she was dizzy all the time all this was a result of HER refusing to "work with" her dr.
my daughter in law is now very healthy...both mentally and physically. she no longer takes migraine meds, blood pressure meds, or klonopin for her anxiety. WHY? she finally WORKED WITH her dr and not against him.
i have read most of your posts since joining this forum and what i saw FROM THE GET GO was depression and anxiety. what i saw at the forefront though, was your inability to WORK WITH a dr. and a HELLUVA lot of self diagnosing and self medicating. what i want you to try and understand is that anxiety can AND does cause very real physical symptoms. "i" understand where your anxiety and depression are coming from...you want to feel better...but at the same time your feeling bad is causing your anxiety and depression to worsen. can you see the cycle???????
i just had a TT a few weeks ago because of cancer. i dont feel good AT ALL...and even though i dont...i continue to take my prescribed med KNOWING that in time...and maybe having to WORK WITH my doctor, my dosage and/or meds...that i will eventually pull through this rough time.
you CAN feel better bruce. please stop this cycle...get on the band wagon of good health...and find a dr who YOU will work with and will work with you. give him a chance and dont bail out because you dont find instant relief. going to repeat that...GIVE HIM A CHANCE AND DONT BAIL OUT BECAUSE YOU DONT FIND INSTANT RELIEF ! !
ROME WASNT BUILT IN A DAY...
But you said last week that you still get the episodes even with out thyroid med for the last month. Than its not from the thyroid med , is it?
No need to be sorry. try what I mentioned, it might just work. And needing work while sick is stressful - fuel for the adrenals.
Break the day into small parts of things to do. Including some sort of stress relief, outdoors, water, music whatever your gig is. Time out to turn your brain off. Easier said than done I know.
With the right approach, I bet you can tolerate thyroid medication. Right now just the thought of it seems to freak you out, seriously this might be part of the challenge.
A question for yourself- Has taking other non thyroid meds ever caused 'med anxiety' in your past ?(there is a certain name for a condition like this, they name everything now of course).
No need to be sorry. try what I mentioned, it might just work. And needing work while sick is stressful - fuel for the adrenals.
Break the day into small parts of things to do. Including some sort of stress relief, outdoors, water, music whatever your gig is. Time out to turn your brain off. Easier said than done I know.
With the right approach, I bet you can tolerate thyroid medication. Right now just the thought of it seems to freak you out, seriously this might be part of the challenge.
A question for yourself- Has taking other non thyroid meds ever caused 'med anxiety' in your past ?(there is a certain name for a condition like this, they name everything now of course).
Bruce, just last week I read in one of your zillion posts that you still get your eposodes even though your not taking any thyroid med at the moment. So you said, after all it was not the med doing it to you.
Bruce, it is possible for the body to get 'programmed' to feel or have symptoms of something like abby said. That is how nightime reflux works. Yep. Happened to me in the past. Once the cycle starts, its on time every night like a train!! Once the routine is broken it gets better much faster. The brain is the subconcious controller of the whole body weather we like it or not, even if illness started the cycle, the brain can continue it for no reason.
Another thing : When I was very deep into 'hypo land' last spring / early summer, I felt terrible even 30 min after taking Erfa. I dont know if when your very hypo the body just reacts very odd to the thyroid it needs or what, but I would feel hot, sweaty , shakey hands, hot face and feet. I just told myself its what my body needed and I will get better. I did feel better very slowly - months of feeling crappy after med..
You have to endure it and be positive. Walks in the park are a positive thing to do. Re posting the same post every day sitting infront of the computer is not doing you any good. That might be the answer. Take your med and tell yourself you will get better. But you have to believe it yourself and turn your thinking around. If your still reading this - good. At this point you have nothing to lose. Try it. No. I'm not joking.
: )
Bruce, it is possible for the body to get 'programmed' to feel or have symptoms of something like abby said. That is how nightime reflux works. Yep. Happened to me in the past. Once the cycle starts, its on time every night like a train!! Once the routine is broken it gets better much faster. The brain is the subconcious controller of the whole body weather we like it or not, even if illness started the cycle, the brain can continue it for no reason.
Another thing : When I was very deep into 'hypo land' last spring / early summer, I felt terrible even 30 min after taking Erfa. I dont know if when your very hypo the body just reacts very odd to the thyroid it needs or what, but I would feel hot, sweaty , shakey hands, hot face and feet. I just told myself its what my body needed and I will get better. I did feel better very slowly - months of feeling crappy after med..
You have to endure it and be positive. Walks in the park are a positive thing to do. Re posting the same post every day sitting infront of the computer is not doing you any good. That might be the answer. Take your med and tell yourself you will get better. But you have to believe it yourself and turn your thinking around. If your still reading this - good. At this point you have nothing to lose. Try it. No. I'm not joking.
: )
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