Then you needed more than he was capable of doing in office. I thought these were so bad you couldn't drive.
Then see solution # 2.
Moose, about a month ago I drove to my Endo while one of the attacks were happening. He checked all my vitals and they were fine.
I get the attacks off the thyroid, but on the thyroid they are much worse. The ears start ringing bad, I get dizzier, stiff neck. This is right around 230 every day. I've taken thyroid with propranolol as well.
Maybe I nee a time release t4?
In hypo thyroid males it is common for testosterone to be lower when thyroid is lower. It elevates after thyroid levels are optimal. Been there, done that. : )
Bruce, Didnt the testosterone also make you have the same type symptoms as the thyroid med when you took it? And, are you still having those spells or symptoms everyday around the same time without thyroid meds? Just trying to clarify in my mind some of it. Feel Better.
Solution # 2,, in addition to the one above this.
OK Bruce, I have read your post for a year or more, and remember your situation - most of it. At this point you need some solutions, not people telling you how bad they feel for you. I will be straight forward - its what you need.
You need to figure out these episodes after thyroid med, if that really is the cause. A doc should have thought of this, but docs now days so reliant on lab tests, suck at problem solving. No about placebo testing? Get in touch with a compounding pharmacy in the yellow pages (paper). Find a thyroid doc they work with.
Go to the doc, and ask for placebo thyroid testing. You will be given several compounded prescriptions, one at a time, but you wont know whats in them. One one them will be thyroid med. But they all will look the same since they are put in a compounded capsule. You take med for several days, and record if you had an episode or not. Then on to the next one, repeat. The whole idea idea is your brains hasn't a clue what you ingested, if you have an episode from a placebo capsule, its not from thyroid med, its from with in - and talking with someone will be the presription. If it is from thyroid med, then they will have to find out why.
This will provide valuable information you need to know.
Discuss this idea with health professionals - it WILL work.
"I dont understand also how my tsh is only at 7.50. Why wouldnt it be like 60, or 100 with these symptoms? "
- your thyroid still does something, its not dead yet........
If you always have these attacks 4 hours after thyroid med - they key to solving this mystery is very simple. OK?
Set up an appointment with some doc that gas monitoring equipment in the office to keep this affordable. The reduced price of Cobra is affordable with the government paying %65 of cost for the unemployed - so I hope you have some type of insurance still. Get there early take med and record all body #'s BP ec, heart, nerves ect. whatever they do. Then leave and come back the third hour for monitoring while the attack happens. After your doc witnesses this, then you might get some order to repeat this in a hospital setting where they can wire you up literally - like they do for sleep studies - it tells a lot in the brain and many organs. I believe I mentioned this last year. You need to find a doc to do this.