IS THIS HOW YOU FEEL WITH HYPOTHYROIDISM?

[Brucergoldberg]

Hey guys,  lets compare notes.

I was diagnosed with hashimotos a year ago.  I was on a small dose of levo, which was increased 9 days ago to .050.  The Dr. told me that once my tsh gets to 2.0 i will feel normal. my Tsh last checked 9 days ago was 7.93.  T3 was low too.

So I go to bed about 10 pm after I drink about 2 small beers.  I wake up about 9 am and My ears are ringing off the hook.  I feel horrible. I do not want to get out of bed.  I am still exhausted. I take my LEVO and I lay there for about 30 minutes.

9:30 I roll out of bed.  I am EXHAUSTED.   Im foggy, im shakey.  My wife asks me if I want anything to eat, I decline.  I grab a water bottle and I drive to the gym.  At the gym I feel HORRID.  I dont have any energy.  I sometimes will stand there and look at a machine and think "next time".

So I get my half hour at the gym, i head home. I go home and eat something small and I lay on the floor for the next two hours and think to myself "I wonder if the 900 doctors I saw missed something".

2:00 PM -  I start to feel better, I know have a little energy, I play with my kids as much as i can because I know any minute im going to feel crappy again.

8:00 PM -  Ears are now ringing again, im foggy again, im shakey, and I just want to lay down on the floor and I have to tell my wife I dont feel good.

10:00  I finished a glass of beer and im heading to bed.   It was a very joyful day, I felt acceptable (not good) for 8 hours.

Am I fooling myself thinking this is one day going to get better?  Why Do I feel so crappy in the morning?  Should I take my medicine earlier?  Am I not taking enough? Is it something else?

BRuce

[Brucergoldberg]

Whats really hard is, i got on .13 for 6 weeks.  This was the tirosint.  It was the very smallest amount they make.  I usually started off in the morning pretty well.  But after about 4 hours from taking it, i got these weird attacks.   They were brutal.  I couldnt do anything but sit down.  I would be at the mall with my wife, and she would have to help me back to the car so she could drive me home.  Its almost as someone gave me a hypnotic.  I couldnt speak, i couldnt think, i was basically like a body with no mind walking around.  I felt nauseas, my ears rung really hard,  It felt as though a posionous snake but me and I was feeling the effects of its venom.  My joints would pop, my back would hurt, i could not lift my legs to get up.  My body had electricity going though it.  My left foot felt like it was stuck in an electrical outlet and was being shocked.  I couldnt get up enough strength to say "help me" to my wife.  

I am waiting for the ZRT test to come back.  Not sure if this will help me but im being told it will.  

I know for a fact ive been hypo my whole life.  I never really knew about it until now whereas im thinking about it in hindsight.  But something happened to me Nov 2009 that changed everything.  It just happened one day, out of the blue.  I didnt do anything different that day, didnt eat, drink, fall, take drugs, etc.  

I dont understand also how my tsh is only at 7.50.  Why wouldnt it be like 60, or 100 with these symptoms?

[kl42]

you have to get with the program or any program. why did you stop?? one doctor had you on a plan to gradually WORK you BACK INTO THYROID MEDS AND YOU STOPPED???? YOUR TESTS IF the info you post are  TRUE??  CLEARLY SHOW YOUR HYPOTHRYOID. ALL THE SYMTOMS ARE HYPOTHYROID , WE ALL HAD THEM, YET You fail to treat it , but continue to post your symptoms??/ why bother???? maybe you are depressed and don't have the motivation to get on the road to help yourself.  i understand !  maybe counselor can help you. in the meantime some exercise such as walking might help you.  maybe counseling first will help you make the right decisions about your health.   i will pray for you. i hope you get the help you need! .

[abby51]

I agree with everything Lizzie Lou stated above. You have self-prescribed yourself by going against what the doctors are saying making the problems even worse. That is why I mentioned earlier you should seek help for depression. Until you decide to find a doctor, stay with the treatment plan the doctor sets to give it a chance to work, and get any other underlying issues (such as possible depression) dealth with, you will not feel better.

You mentioned that you took thyroid medication for 6 weeks. Does that mean you took the same brand for 6 weeks or you jumped between, for example, Armour and Synthroid?

I was in high school the first time I heard cancer mentioned as a possibility, meaning thyroid cancer. I had a TT and I still to this day deal with issues relating to the hypo caused by the TT, however, I know that the problems are not permanent...it gets better by follwoing what my dr. recommends. I went through a period of depression/grief not very long ago due to the death of my mom...during that time my thyroid levels were out of control...I was too hyper or too hypo. Now, whether that is from not properly taking the medication for a brief time or if it was because the stress had such an impact, I do not know.

My point is, once I made the conscious decision that I was not going to sit home feeling sorry for myself any longer, get my thyroid issues back under control, and realize that only I can choose to make myself feel better (yes, my dr. can tell me what I need to do but it is my decision to follow through or not), did things actually improve.

[LIZZIE LOU]

what i see is a VICIOUS cycle...

thyroid issues = poor health = depression and anxiety = self medicating = thyroid issues = poor health = depression and anxiety = self medicating....................

my daughter in law suffers from depression and is bi-polar.  she would go to the dr...get put on a med...and if it didnt work in 3-4 days, she would come off of it, swearing it "didnt work".  on to another dr. because the first one didnt know what he was doing.   he would change her med because she told him that xxx didnt work on her...of course, NEVER telling him that she only took it for 3-4 days.  the new meds would be short lived too because they "didnt work" in 3-4 days and the new dr didnt know what he was doing either.   this cycle went on for YEARS due to her self medicating and not working with her dr.  

all of this cycling was causing a large amount of anxiety in her life.  it wasnt until she met me that things began to get better for her.  what i was able to finally make her understand is that it takes TIME for these drugs to work...they are not like a tylenol that would give her pain relief in 20 minutes.

her depression and anxiety had gotten out of control and she was no longer able to leave the house...her migraines were debilitating...her blood pressure was very high...and she was dizzy all the time  all this was a result of HER refusing to "work with" her dr.

my daughter in law is now very healthy...both mentally and physically.  she no longer takes migraine meds, blood pressure meds, or klonopin for her anxiety.  WHY?  she finally WORKED WITH her dr and not against him.  

i have read most of your posts since joining this forum and what i saw FROM THE GET GO was depression and anxiety.  what i saw at the forefront though, was your inability to WORK WITH a dr. and a HELLUVA lot of self diagnosing and self medicating.  what i want you to try and understand is that anxiety can AND does cause very real physical symptoms.  "i" understand where your anxiety and depression are coming from...you want to feel better...but at the same time your feeling bad is causing your anxiety and depression to worsen.  can you see the cycle???????

i just had a TT a few weeks ago because of cancer.  i dont feel good AT ALL...and even though i dont...i continue to take my prescribed med KNOWING that in time...and maybe having to WORK WITH my doctor, my dosage and/or meds...that i will eventually pull through this rough time.  

you CAN feel better bruce.   please stop this cycle...get on the band wagon of good health...and find a dr who YOU will work with and will work with you.  give him a chance and dont bail out because you dont find instant relief.   going to repeat that...GIVE HIM A CHANCE AND DONT BAIL OUT BECAUSE YOU DONT FIND INSTANT RELIEF ! !

ROME WASNT BUILT IN A DAY...

[LazyMoose]

But you said last week that you still get the episodes even with out thyroid med for the last month. Than its not from the thyroid med , is it?

No need to be sorry. try what I mentioned, it might just work. And needing work while sick is stressful - fuel for the adrenals.

Break the day into small parts of things to do. Including some sort of stress relief, outdoors, water, music whatever your gig is. Time out to turn  your brain off. Easier said than done I know.

With the right approach, I bet you can tolerate thyroid medication. Right now just the thought of it seems to freak you out, seriously this might be part of the challenge.

A question for yourself- Has taking other non thyroid meds ever caused 'med anxiety' in your past ?(there is a certain name for a condition like this, they name everything now of course).

[LazyMoose]

Bruce, just last week I read in one of your zillion posts that you still get your eposodes even though your not taking any thyroid med at the moment. So you said, after all it was not the med doing it to you.

Bruce, it is possible for the body to get 'programmed' to feel or have symptoms of something like abby said. That is how nightime reflux works. Yep. Happened to me in the past. Once the cycle starts, its on time every night like a train!! Once the routine is broken it gets better much faster. The brain is the subconcious controller of the whole body weather we like it or not, even if illness started the cycle, the brain can continue it for no reason.

Another thing : When I was very deep into 'hypo land' last spring / early summer, I felt terrible even 30 min after taking Erfa. I dont know if when your very hypo the body just reacts very odd to the thyroid it needs or what, but I would feel hot, sweaty , shakey hands, hot face and feet. I just told myself its what my body needed and I will get better. I did feel better very slowly - months of feeling crappy after med..

You have to endure it and be positive. Walks in the park are a positive thing to do. Re posting the same  post every day sitting infront of the computer is not doing you any good. That might be the answer. Take your med and tell yourself you will get better. But you have to believe it yourself and turn your thinking around. If your still reading this - good.  At this point you have nothing to lose. Try it. No. I'm not joking.

: )