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611475 tn?1221240855

Is Dizziness related?

Just really really confused about what i feel. I had mentioned earlier my symptoms in a post last week, i am going back again for bloodwork this week, but, have recently been feeling very dizzy (off and on) I have always had low blood pressure, even throughout my pregnancy. Anyways, any input would be helpful, i dont get to see a Dr. till the 18th but feel as though i am falling apart and have a 9mth old to take care off. Thanks!
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Avatar universal
I'd say that the most important thing for you to do is to find a good thyroid doctor, difficult as that seems to be.  For over 4 years, I have been collecting a list of doctors recommended by other members, and also tracking down other prospects.  My list is a bit lacking for your area, and I know how bad traffic can be, but would Pasadena be close enough to interest you?
Helpful - 0
4450882 tn?1354763137
Hi ladies, here is short version of my long years with thyroid, I was diagnosed back in 1998 just after giving birth to my twin boys. I had a partial thyroidectomy done as the goider was they found was so enlargered. Recently (pass 4 months) I have been feeling worse than ever, tired, depressed, dizzy, heat palpatations , pain in the right side of my neck and throat, send me to a endocrinologist, a specialist for the thyroid, I thouhgt maybe I would get some relief or someone that cared or understood my urgency for some answers. NOPE!  Oh I have hyperthyroid. my issue right now is the Dr I am dealing with is showing little or no concern However I think I know my body better than she does and I am not getting the care or medical advice that is needed. I am at a lost and am so very frustrated. I feel it is taking over my life. I am usually a very happy energetic woman. Not anymore. My TSH levels came back .01. Had an ultrasound done waiting on test results and took me off the levothyroxine a few weeks ago. I just had a very bad dizzy spell. So I grabbed my computer and that is how I found this site. Any words of hope or encouragment are very much appreciated. Di Marshall
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1670226 tn?1334252274
thank you for answering that..i appreciate it..
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Avatar universal
When you're hypo, it's not pleasant, either.  However, I find hyper (overmediacted in my case because I have Hashi's) much more uncomfortable.  When hyper, I feel like I'm about to buzz off the planet, have tachycardia, can't sleep.  As I said, hypo isn't pleasant, but at least you can enjoy a nice, long nap and the anxiety level is much less.  Neither is ideal, obviously, but given the choice, I'll go for hypo.
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1670226 tn?1334252274
im just curious..why would you prefer to be hypo than hyper..,i was just diagnosed to be hyper..so im new to this..
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Avatar universal
Thanks for listening.  It's nice to know someone is out there.
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Avatar universal
It will take a bit of time, but you'll start feeling a little better every day.  I'm hypo, but have been overmedicated and therefore hyper briefly...I'll take hypo and day!!!
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Avatar universal
Yes, I feel like I'm crashing.  I was being treated for 3 months, I was HYPER, but had the antibodies for Hashi's, then when I went for routine labs in October, she called and said she was starting me on Synthroid that my thyroid had slowed down.  So, I never got to experience hypo symptoms ever, and now I am.  I mean I feel so down and physically tired, I feel the worst ever in my life, all over bad.
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Avatar universal
You must have started your Synthroid back in October before you had any serious symptoms.  Or back then, you were used to not feeling well from being slightly hypo for a while, and you started feeling progressively better after the Synthroid.  Now, you're "crashing" from the lack of thyroid support.
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Avatar universal
I was off my synthroid  1 week.  But when I had labs that showed my TSH being normal it was 5 days later.  So yes the synthroid was totally out of my system, and had labs at my Primary after being back on my synthroid 1 week cutting it in half showed my TSH was then HIGH.  I don't rember going through this when I first got on my synthroid back in October I guess she caught it before symptoms started.
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Avatar universal
You don't say how long you were off your Synthroid.  It takes about a week to purge it from your system, at which point you are going to start going hypo.  Now you've been back on your full dose for 11 days.  After your meds "vacation", it's probably going to take five to six weeks for the Synthroid to stabilize in your system again.  After four or five weeks, you should have labwork again, which will help you figure out if your current dose is adequate or if you need an increase.  There's nothing you can do but wait until your surrent dose stabilizes.
Helpful - 0
Avatar universal
I am glad I am not crazy.  My thyroid got thrown off when I had a steroid shot for alergies, it supressed my TSH instantly, not knowing this until after the fact I continued on my synthroid, causing shortness of breath severely.  My Endo had me stop my synthroid, by the time I had labs again it showed my TSH was normal.  She told me to start my medication back, but I was afraid of it being to much that I started cutting it in half for the first 11 days.  My TSH rose fast, and now I am having the affects of HYPO, bad, tired, low blood pressure, very dizzy at times, like being tipsy after having a drink, cry on and off through the day, no energy.  I have been on my full dose 11 days now, and don't think it's working yet or might not be enough, but I am a mother of 6 kids, thank God for helpful teenage son's to help me with the babies.  WHEN WHEN IS THE SYNTHROID GOING TO WORK????  I've never been this run down, and for a month!
Helpful - 0
Avatar universal
The theory is this:  the part of your inner ear that controls balance has a bunch of little crystals in it.  Normally, these crystals respond to gravity, and our brain interprets where they settle as “down”.  With BPV, these crystals get themselves all in a tempest, like when you shake up one of those snow globes.  Brain now has no idea where “down” is, so you get dizzy.

This exercise is totally noninvasive…it may not help you, but it’s probably worth the try.

Lie down on a flat surface (e.g. bed without pillow).  Drop your head toward your left shoulder.  Stay in that position until any dizziness disappears.  Now, bring your head back up to center.  Once again, stay there until the dizziness passes.  Repeat this to the right side.

For this next part, you might want to get someone to “spot” for you if you are feeling very dizzy.  Sit up, and immediately drop your chin to your chest.  You guessed it, stay there until the dizziness goes away, then slowly lift your head.

One of the keys to this exercise is to move slowly throughout…you’re trying to calm those crystals down.

Especially at first, you may have to do this several times a day, but it gets to be less and less.  I had one bout of BPV that sent me to the ER.  Since then, I do this whenever I get the slightest twinge of dizziness, and it’s always taken care of it in one exercise (knocking wood).
Helpful - 0
865758 tn?1285952904
No I don't know the exercises.  I was offered Vestibular rehab but I heard it makes you really sick so NO THANK YOU!
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570004 tn?1226980196
I had a problem with dizziness when I was first diagnosed, too.  It felt sort of like the earth was falling out from underneath of me (?).  I would get nauseous too, sort of like motion sickness even though there was no motion other than walking involved.  It improved once I'd been on levothyroxine for a while.  

Good luck!
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Avatar universal
Have you tried the BPV maneuver that stops the spins?  Do you know it?  If not, I'll describe.
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865758 tn?1285952904
I have had the room spins about 3 times and several docs have said it is BPPV but not the daily woozy feeling.  Yes it feels like I've had 10 too many, lol and it does not help if I keep my head still or lay down.  I have had all the inner ear tests done by my ENT and everything is negative.  My endo said it could be my thyroid (but not the room spinning one) but another said it's allergies and another said it's from my TMJ that I just found out I have.  I tell you no 2 docs agree!!!!
Helpful - 0
Avatar universal
Have you ever googled BPV (benign positional vertigo) to see if that sounds like what you have?  Dizzy like you've had about 10 too many!?  Spins?  Feel better if you keep your head absolutely still?
Helpful - 0
865758 tn?1285952904
I have been diagnosed with Hashi's since April and have the same problem (and then some) with all of you with the dizzy but not dizzy.  The best way I can describe it is that I feel like I am drunk!  I hate the feeling but I have a long ways to get stabalized so I hope this too will stop.  It ranks on the very high end of my list of worst symptoms! My TSH is elevated but only at 4.33 (which is obviously too high for me) but my Free T4 is WAY to low.
Helpful - 0
Avatar universal
It takes four to five weeks for Synthroid to reach a stable level in your system.  During that time you can expect symptoms to start improving, but to persist.  Also, you might find after your next labs (four to five weeks after starting Synthroid) that you need an adjustment in dosage.  If that's the case, some symptoms might persist until you get closer to the correct dose.  Unfortunately, finding the optimal dose and reaching euthyroid (neither hypo nor hyper) can be an exercise in patience.  Best of luck and keep in mind that you will be feeling better all the time!  
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976606 tn?1263667593
I have been diagnosed with hypothyroid in the past two months and have experienced dizzy spells also. I have been on synthroid almost two weeks and still experience them every now and then except they aren't quite as bad.
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Avatar universal
Google BPV (Benign Positional Vertigo) and see if this sounds like what you are experiencing.
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Avatar universal
i had a baby in june 08 and my tsh level has been low and that mean high i have been dizzness  for nine month every day and i have went to every doctor and they not able to find out whaqt wrong with me
Helpful - 0
314892 tn?1264623903
Just for perspective, my TSH never went over 5.96 and I am currently on 88 mcg, most likely going to 100 mcg next week.

So to say that the dose can't be too high due to Subclinical hypoT is not necessarily true. We are all different and our bodies each require a unique amount of medication to return to normal.

Make sure you get a free t4 next time. The T4 can be falsly elevated sometimes. The free t4 is the newer more accurate test.
Helpful - 0
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