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173351 tn?1201214057

Is it too late to test for autoantibodies?

I am 27 and just has a TT for multinodular goitre on 30th November and was started on 100mcg Thyroxine which was put up to 150mcg already because instead of beginning to pick up some energy I have only been getting more tired and TSH was 15.5.  Immediately prior to surgery I was clinically euthyroid but felt sluggish and tired most of the time. I am about 30kg overweight.
My thyroid troubles began when I was 18 and not in a very good place in life - I was freaked out by it all and did't get an understanding of a definative diagnosis at the time.  On two occasions over a period of months, I was admitted from ED because over a short period of time my neck swelled considerably.  It was mentioned that my body was attacking itself and at the time I was started on propranolol (beta blocker) for palpitations for a few months. Up until a few years ago I had never had weight problems - I was always thin and ate whatever I wanted.  
After surgery the surgeon said that the gland was very sticky and adhered to other structures which he said indicates that I may have had thyroiditis at some stage!  Now I am older and studying nursing I am trying to find out as much as possible.  I wonder if MAYBE I am affected by hashimoto's?  Would it be too late to test now that I have no thyroid gland?
Would my mother's cousin's hypothyroidism count as family history? Any insight would be sincerely appreciated!!
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173351 tn?1201214057
I pressed post before I meant to and wanted to say Good luck Susie, waiting is the hardest part.

Use this time to arm yourself with as much info as possible and write down any questions you have for your specialist

Happy New Year!

Cheers!
Helpful - 0
173351 tn?1201214057
Hi Susie

Google just 'euthyroid' for an accurate result.  It basically means that all you lab results have fallen within the accepted range.  Not everyone feels okay even if their labs are within range, it is an individual thing and takes a long time to work out where you function best according to your specific condition, especially when trying to get dosing right.

Are you newly diagnosed or suspect thyroid?  Did you get a copy of the lab results?  Good idea to keep track of.

Take a look at the following article;
http://www.mja.com.au/public/issues/180_04_160204/top10414_fm.htmly

especially under
1: Interpretation matrix for thyroid function results

Remember every lab has different references ranges due to different machines and the way they calibrate them -
Helpful - 0
Avatar universal
Can anyone explain what it means to be Biochemically Euthyroid?  It was on my blood test reuslts but I can't see the specialist for another 7 weeks.

I can't seem to find an explanation on the internet.

Thanks!
Helpful - 0
Avatar universal
My best advise for post OP recovery is just be patient!!!!  I've learned from my own experience is that everyone recovers at their own pace in their own time.

Before surgery, I was originally told that the average person is off from work for a week. But here I am at the end of my 2nd week and I am still experiencing issues in which the doctor won't release me to go back to work yet.  And yes, I do feel some frustrations reading about those who recovered quickly.

But I have to "listen" to my own body and needs and do what is best for me.  It won't be rushed. So I sit here and rest and try to wait patiently.

Hopefully you will do the same!!!!  :-)
Helpful - 0
173351 tn?1201214057
Thank-you Graveslady for your response, of course antibodies don't go away (I should have known that! I'll blame it on my post surgery state! ha he - gotta be useful for something! :)

As you stated because I have no thyroid now (except for any remnant cells) if there are autoantibodies they can't attack anything - but I wonder if I am positive to autoantibodies will this affect dosages of thyroxine?  

I think I need to make an appointment to see the doctor! Thanks for helping me refine my questions before I get there!
Helpful - 0
Avatar universal
If there is even just a little thyroid tissue left ("remnant cells"), antibodies still can attack.  That is why after surgery it is recommend to have RAI so as to destroy the left thyroid residue/tissue/cells, however not all doctors feel this necessary, depending on the persons personal thyroid condition.

If the antibodies can still attack the thyroid residue, it may change thyroid levels. Besides, you will need to have thyroid test on a regular bases, until your thyroid is totally dysfunctional, which may be when you have reached med. doses of 300 or more.  Where then, you would need an annual thyroid test once a year thereafter, to see if there are any level changes.  

If you are positive for antibodies doesn't make a difference - they don't treat antibodies and there is no cure!  They treat according to TSH and F/Ts.  Unless you want to know personally if you are thyroid autoimmuine Hashi and don't care about paying the extra  expense.  Normally the TSH and both F/Ts can related autoimmune thyroid.

Labs are done 6 to 8 weeks and up to 12 weeks for med. full effects, after each dose change.  It takes that amount of time for the meds to reflect in thyroid levels.  So if you haven't had Lads done per above, then its time to do so.

Good Luck!
Helpful - 0
Avatar universal
From my understanding, once we have the antibodies we will always have the antibodies because there is no cure for them.   There is just nothing for them to attack anymore, except perhaps the little throid tissues that was left do to being to close and dangerous to the voice box and parathyroid's.  So if there is even just a little thyroid residue left, the antibodies can still attack.

The TSH, and both F/Ts, sometimes can show  hashi by how they related to each other.

I would think that your mothers cousin would count as family history.  I think that sometimes antibodies go dormant and skip a generation or two or take a turn to another direction like your mothers cousin, before it pops up again.


Good Luck!
Helpful - 0
173351 tn?1201214057
Also has anyone got any recovery tips after TT surgery? Patience isn't usually my best forte! LOL
I just want to be feel 'normal', not tired with brain fog and having to have multiple nanna naps every day!
Helpful - 0
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