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I have low ACTH and low cortisol levels as well, and also have a strange disorder that has caused several thyroid nodules to grow on one side of my thyroid and two fairly large benign tumors on my other side with normal thyroid levels except my free t3and some of the signs of hyperthyroidism. My endocrinologist is stumped after doing the ACTH stimulation test and finding that my results make no sense. I had previously been at the lowest level of normal on cortisol, but at the stimulation test a month later, I was found to have even lower cortisol levels and at that time it was discovered that my ACTH levels were really low too. I also have a problem called galactorrhea which indicates a small pituitary tumor that causes breast milk production without having a child. Have you seen a good endocrinologist? Mine just told me to go to one of the top University endocrine clinics in the Chicago area because I am so atypical. If you haven't had the ACTH stimulation test yet, talk to your doctor and insist on it. You could have a serious adrenal problem or even addison's disease. Have you had any other strange symptoms, like unexplained weight loss or strange menstrual cycle problems? Under any extreme stress? Hope you are doin alright
Tiff
Lisa
Tiff