I was diagnosed with Graves Disease 15 months ago and since have had 2 orbital, 1 muscle, 1 eye-retraction operations. For my last operation, the post-op blood work indicated high calcium levels.
My TSH levels were balanced by June 2008 and my endocrinologist took me off the PTU meds. But my levels starting rising again and in October 2008 I took a radioactive pill to kill the thyroid --- it didn't work. My levels were as high as 30. After unsuccessfully waiting for the levels to drop, I was put back on PTU in January and the dosage was increased in February .... my levels were 28.
Now my pre-op blood work in mid-February showed very high calcium levels; but the parathryoid levels were normal.
I took more bloodwork and a urine sample today and is scheduled to return for the results in a month.
My daily meds include PTU, Benicar HCT and Metoprolol plus 2 eye drops.
Hi there and welcome! Are they doing a 24 hour urine catch?
Are you seeing an endocrinologist? If this is endocrine related, then you really need someone who specializes in parathyroid. Has anyone done a sestambi test on you? Even these are not foolproof unfortunately.
A fantastic website to learn about parathyroid disease is parathyroid.com
Dr Norman is very knowledgeable of thyroid and parathyroid disease and his website is most imformative. Maybe it will give you some ideas or thoughts on tests you feel you need.
What is your dr suggestion for the Graves? I would suggest talking to Stella5349 one of the other co-leaders here, as she was a graves patient. I myself am a hashi patient.
I hope you get to the bottom of the high calcium levels....I think the website will be a wealth of info for you. :)
What are your free T4 values? How much levothyroxin are you taking?
Probably the urine analyses are for calcium determination, that will tell if you have familial hypocalciuric hypercalcemia , primary hyperparathyroidism or secondary. Did yor doctor asked for phosphatemia (inorganic) , vit D (1,25 (0H)2D)?, for what I can see your doctor knows what he is doing.
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