Not a question. Share your experiences for others. You might learn something. Many thyroid 'newbies' are unaware (docs too) of how thyroid hormones effect body tissue. Some get this as a severe symptom, some almost never. Back, feet, legs, shoulder, wrists (carpel tunnel) , all. A reminder that symptoms vary with autoimmune.
I have self learned a lot on this subject - I had too. And learned acupressure muscle release (trigger point therapy is another name) from books and PT's, that has saved me thousands of dollars, and relived pain, (this is different from acupuncture). I since learned I needed T3, as many do with continuing pain on a T4 only med. Still have some, its a long healing process (years).
I recently spoke to very experienced physical therapist / massage therapist on this subject as she has experience working with Fibro patients and noted some mentioned they had 'wacked' thyroids. She was interested in how thyroid hormones work, symptoms , and, well, now she knows some of what I know, which is better than not knowing.
Many do not realize that what they think is joint pain may not be caused from within the joint, unless there is physical joint damage or Rheumatoid. Referred pain simply means pain felt in a different area from its true origin. Knee, ankle and shoulder pain is usually from tight muscles (nearby or far) pulling on a joint, so that's where you feel it. Loosening the muscle (if it wont stretch) via acupressure or trigger point release can relieve joint and muscle pain.
What brings this up was a recent experience of "burning feet" (new to me and very wierd) from FT4 under the range (totally off) which resulted in a 58 tsh. Another member mentioned burning feet to me with low thyroid levels. At tsh of 24 now, my feet feel better.
So this thread is about others thyoid body pain experience and relieving it, if they have anything to share for others to learn. If you had or still have thyroid body pain, you know how miserable it can be. (Dont get alarmed of my tsh, that is being worked on slowly - another subject altogether).
I had severe tendonitis in my elbows...I thought it was due to playing too much golf. I quit golf, still had pain four years later. Then I had my thyroid removed due to cancer. Almost immediately the pain in my elbows went away, and I haven't had any since. Coincidence? I think not.
I have Hashi's but had my thyroid partially removed May 4 2007 and the rest on Dec 14 200. I still have anti-bodies to the Hashi's.....bleurgh!
The one thing I have noticed is that whenever I get run down, from an infection or what have you, I tend to get aches and pains. My nose had been bleeding earlier this month like a tap. Got it cauterised and discovered an infection up there. Since having the 'goop' up the nostril to get rid of the infection, I find my old knee problem has flared up again. So naughty infection has moved from one part of the body to another...( I can see it now, Rocky and Bullwinkle style...Aha! I'll get you yet!, says the evil infection)
I tend to get arthritic pains in my little finger on my right hand, but I put that down to having been a knitter, crotcheter, cross stitcher, gardener and a writer for over 40 years!
So having my thyroid out hasn't helped me one bit! Sorry guys...it might work for you, but I am just a delicate little snowflake who is cursed with rotten illnesses all my life!
My thyroid levels are within normal ranges. but I do have Hashimoto's and I have severe hip pain and achiness. I also get severe back and neck pain. I do believe that Hashimoto's can cause other autoimmune symptoms all over the body as I have dealt with this for 12 years now.
Just being somewhere within the "normal" ranges does not assure symptom relief because the ranges are far too broad, since they have never been purged of suspect hypo patient data and revised as was done for TSH 7 years ago. I believe that is why we hear so often from patients that their symptoms were not relieved until their FT3 was moved into the upper part of its range and FT4 was adjusted to at least midpoint of its range.
How about posting your test results and related reference ranges used by your lab, so that members can help interpret your current status?
Recently as some of you already know I went slightly hypo due to a medication change. It didn't take much my TSH went from 0.26 to 1.68 and it was debilitating to me. It began with muscle soreness Flu like symptoms it hurt to move. Then~
Toes went on fire and I mean on fire cramped and were yet numb (Tarsal Tunnel) arches fell (Plantar Fasiitisis) heals hurt. Could barely walk from room to room felt like the padding was gone from my feet.
Fingers went numb/burned in the night (carpal tunnel) both hands
Lower back and hips began to ache, Thigh's ached/burned/cramped/ and yet there was a weakness kind of feeling. I felt like I had a toothache deep within in my bones at times. Cramping/drawing like pains to.
Joints became tender stiff and sore and also ached. The worse of it was the sharp shooting pains that stabbed me though out my body. (Fibromyalgia) I felt like 200 lbs were on my shoulders when walking..
Heartburn, blurred vision, sweating, hotness at times. Hands and feet felt froze at times. Skin turned red like a sunburn. Stomach knotted and hurt/cramped felt nauseated. The worse part.. It's been 3 months and some symptoms are still lingering because now I've gone hyper. Meds are being reduced I can only pray I have no effects. The best part Endo told me yesterday that all my symptoms were indeed caused by my levels.
I've had thyroid disease for over 10 years and I have NEVER experienced such debilitation from this disease until now. Did I mention depression? My life stopped and I was very active running 2 miles a day I was in good shape before all this started.. oh yeah I've gained 10 pounds to.
I was diagnosed with Hashimoto this past Jan. I was experiencing palpitations, dizziness and diarrhea. I had a miscarriage in Nov. and all these symptoms followed shortly after. My endo. said I was Hyper w hich explained my palpitations. I was also beginning to experience body pains. I was then asked to take blood work 3 weeks later and I was hypo now. 10.2 was my level. My endo started me with Synthroid 25mcg. I was on it for 6wks. My body pains were still there. Really bad lower back pain, shooting pain going down my legs and hip pain. Stomach pain and feeling moody. My endo said the body pain was not coming from my Thyroid. But I told her it has to be because I never felt this way until I was diagnosed with Hashimoto. But she insists it is not related. I think she is wrong. I just had my blood work taken and my thyroid went down to 2.6 which is great. She increased my Syntrhoid to 75mcg. SHe wants my levels to go down so that I can hopefully get pregnant again. Body pains are making me miserable. I have to take Advil PM to sleep every night.
You were DX'd this Jan? It can take a while for symptoms to go away. And if your body pain does not diminish on Synthroid, you may need some additional T3 med (cytomel). Additional t3 relieves most body pain in many people. Give the synthroid a try for at least 4 months, to get the lab levels correct. You might want to post the levels hear, as most docs go just by TSH- wrong.
THis is my kind of post. My biggest problem in the last 5 years has been muscle pain. Mostly it's in my low back and hips. I do have 2 mild bulging discs L4-L5-S1 the area most of us get that problem. However, I know the pain from the discs when I overdo it, but I have daily stiffness/aches behind my hips up high around the sacum and I suppose near those bulges, but I get it around 3-5pm when I'm a bit more stressed maybe with afterschool homework and getting dinner ready,etc. I also will get it if I'm under any type of emotional stress for some reason earlier in the day.
I get a very tired, fatigued pain all over my lower back just from standing or walking 15 minutes. I feel like I've walked 100 miles, it's a really bad fatigue, burning pain. I also found I had tender or trigger knots in my glutes and around the sides of my hips as well.
I've found a therapist who does acupuncture and acupressure on those points (trained with Janet Travell, who found these issues) and so far I haven't had too much of a problem with the glute pains any more, but I still get the late in the day burning/aching around the sacrum and behind the hips up high.
I also continue to get knee pain and leg pain. Today my low back, hips, thighs, and knees hurt awful. Some days it doesn't hurt at all. It's just strange.
The chronic pain is the one from standing more than 15 minutes and the burning/aching behind the hips.
I also can't exercise as well as I used to before all this started. I'm now up to 3 grains of Erfa and still on 15mg Cortef and I have stable daily temps, but my waking basal still is 97.2-97.6 most days. So I think I may still be hypo???
I have D levels up there, ferritin too, and I take a lot of magnesium and Malic acid, and other trace minerals, etc. but I'm still having pain issues.
Mentally I'm better and want to do more, but physically, I'll get sidelined still. I'm able to do more around the house now that I'm higher on the thyroid hormone, but today, I'm back in my chair b/c of all over pain.
For me, I have Reverse T3 issues. It was high again on 2.5 grains, and now it may be higher still. I will test it again in a week or so, and if RT3 is even high, I think I have to do Cytomel only and forget the T4 because somehow I'm not converting it all the correct way and maybe this is why I'm still having muscle pain symptoms???
Of all the symptoms, this one is the worst for me, but anxiety and depression are right up there with it. I can deal with dry skin and having to wear sweaters, and pulling my thinning hair back, but pain, it causes even more depression.
Hey Corky21. If you still have all over body pain as you do, you need to start fixing it at the core- your back. Once the back gets better, other areas can follow, but this process can take a few years. Remember, you didn't get this way over night. Inflammation spreads outward from the lower back. The lower back has trigger point areas too, but they are hard to find when the whole area is tight.
If lower back muscles are strenghtend, then the weak discs can be less bothersome. And if the tension is removed - bulging discs can sometimes heal. Surgury is not the only answer for wacked lower discs.
I researched back strengthening programs that many physical therapists use. Many use generic machines that are the same in gyms - dont work for beans. One brand on PT equipment that works for backs and necks is called Med-X. If you have ins that covers Physical Therapy, you need to do this. Call around and ask if they use Med-X brand equipment. That is the brand that pro sports teams fix there teams on - it really is the only one that works. I tried the others-waist of money.
Once the lower back is strong the sacrum - Illiac joint will start to heal. No more burning! Right now your glute muscles are stronger than you back and that is pulling on the SI joints (tail bone area). The you can move on to other areas of the body, with trigger point therapy. Been there, better now.
But you also need to get the thyroid meds figure out for muscles to heal.
Thank you. I will look into those machines. The problem I had was doing physical therapy. When I'd go and do the back exercises they gave me I'd be worse after and get bad spasms. I'd have to wait one week before going back for more treatment. I eventually stopped it and tried a chiropractor and that didn't do much either after 12 treatments.
I'm now with a Janet Travell trained trigger therapist. She uses acupuncture and acupressure on the knots in my glutes and legs. So far I'm not having as many problems with the glutes, but that sacrum, middle area is still a big problem.
I have all the back exercises still and I suppose I could try them again. I will look into the Med-x Equipment too.
Using the Med - X twice a week, you will be sore for the first month. And then a slow recovery will happen. At the same time they will have you do low impact crunches on one of those exercise balls, way easier on the back than the floor! If you do this simultaneously with Trigger Point therapy, all the better.
The weekly home or gym exercise after the PT is lumbar extensions on an inclined bench using just your body weight.
If you have inc, its well worth it to find a PT with the black Med-X machines. They will try to get you in even if they dont use Med-X, but its just not the same- dont fall for it.
Diagnosed with Graves in 2008, had total thyroidectomy in 2010. Been placed on Levothyroxine and Propanalol. Started 150mg Levo, increased to £175mg (which was when they introduced the propanalol also as the levo caused panic attacks and high blood pressure). Dropped me back down to 100mg then increased to 125mg....still feel awful, can't cope with the pains in wrists, ankles, neck, shoulders and back much more. They have sent me to physiotherapy which is rubbish as they just have me doing exercises with a latex strip (which aggrevates the pain even more). Feel at a loose end. The pains in my wrist keep me awake at night, i can't even open a jar anymore, carry shopping and as i drive a manual car the gears and clutch are getting harder to manover. Painkillers knock me out and gel pain relief does nothing. can ANYONE please suggest anything i can take to my gp as they really dont have a clue what they are doing. I feel like im a guinea pig for them.
I have learned a lot about hypo muscle pain since this 2010 post.
There are several more of my posts about muscle pain since 2010 if one choses to search.
Melaniejayne73 : Many people with thyroid removal dont do very well on T4 meds only. (Just so someone does not get confused I believe your levo is measured in mcg.)The thyroid gland is partially responsible for converting T4 to T3.
T3 levels in the upper third of the range are known to help people with muscle pain. Magnessium glycinate and magnessium tourate are most effective for muscle pain as well and easier on the stomach than mag citrate- take this night away from thy meds. Malic acid capsules remove lactic acid in muscle fiber, which is the cause of the pain.
To get things rolling after all of the above is completed you need to manually force the lactic acid out of the effected muscle tissue - to heal the damage. Trigger piont therapy, trigger point release, myofacial release and the best of all - Active Release Technique works for this. A limited amount of new age Chiropractors offer this, books are available as well as videos on u-tube.
This post is about thyroid pain while on thyroid meds.
If meds are at the right level for you(not just in range) or you are maxed out (almost hyper) and you still have muscle pain then further action is needed. - Thats what this post is about.
I personally had bad muscle pain even after being on levothyroxine and the synthroid brand for 10 years, clearly more treatment of a different type was needed. This is where Drs are baffled - and I refuse to be on pain meds, which is what Drs wanted to push. Following the treatment plan I devised ( posted above) I am slowly getting better. Hopfully others can use this coupled with ideas of their own when / if the medical community fails them.
Dont forget listening to your gut. Many hypo people cant eat what they used to eat. I'm not focussing on the gluten free band wagon either - look at many foods and just try to eat better and eliminat what does not go well with you.
??? My big question is: Why is it that the majority of members did not start having Muscle, joint, hip, and lower back pain until after starting thyroid meds, Levo and Synthroid in particular, Doctors tell you the same old thing "Your pain is not caused by the medication" I really think a connection exists here. I was on a very low dose of Levo for a year, like 10 or 15mg per day, I never had any symptoms at all, then I had a lab done and the GP put me on 50mg Levo, after that increase I had a little trouble sleeping, I complained to the GP, so he states it is my thyroid causing the insomnia, so he raises it to 75mg, then the insomnia was worse, I could not sleep at all, and became depressed, and started to have some muscle pain starting in my hips at night while in bed, So the quack puts me on anti-depressants and sleeping pills, now 6 months has gone by since I
Had my first increase in Levo, so since my TSH (Yes he was one of those idiots that only knows TSH) did not budge, he put me on Synthroid 100mg, now the crap hits the fan, I had muscle pain everywhere, lower back, hips, calves and real bad neck pain and stiffness. That is when I found this web-site, trying to find out why I was in so much pain, and the other symptom that I think was caused by the medication, and I know some of you members have complained of the same issue is, sinus issues, like you have a terrible cold. I wonder if either the medication or the Hashimoto's is the cause of the nerve damage that is causing the pain issues I have now.
My Neurologist seems like he is stumped as to the cause. And with the attitude of most MD's that it is not thyroid related, I doubt he will find the cause. FTB4
" ??? My big question is: Why is it that the majority of members did not start having Muscle, joint, hip, and lower back pain until after starting thyroid meds, Levo and Synthroid in particular, Doctors tell you the same old thing "Your pain is not caused by the medication" "
- FTB4, I have noticed among other posters what you are saying. In my case I had increasing muscle pain starting in my hands and neck with other hypo symptoms 12 to 15 years before my diagnosis with Hashimoto and starting Levo. It was there before Levo and just got worse for another 10 years until I discovered T3 med a few years ago. So I attributed easing my pain not from discontinuing Levo, but from adding T3 and eventually changing to natural dessicated T3/T4 combo med. And then the other stuff I've done seems to be working slowly towards getting better.
I do know that if people need moreT3 in them, but only get T4 from their Dr, muscle pain, digestive difficulties and insomnia can be the result.
On the other hand I know hypothyroid people in real life that never had unusual levels of body pain , before or after med - this baffles me.
I still believe the cause of pain in most people with hypo is muscle related , since its known that hypothyroid causes a build up of lactic acid in the muscles. This in turn causes muscle knotting and can compress on surrounding nerves sometimes causing tingling and weakness in the limbs. Fixing the muscle tissue can end further nerve damage. In time, nerves can also heal, which is what seems to be slowly improving now in my case. I'm still looking for the end of the tunnel.
I am getting ready to try armour because for past 12 years cytomel/levothyroid not working. I have severe tendinitis all over which is very common with hypothyroid but mainly in women. It appears that since women produce more estrogen than men that it may be related to fluctuations of estrogen and or DHEA. I know with me having Addison disease (primary adrenal insufficiency) that I struggle to keep all my hormones up. They were all low. And we (Endo's) can not seem to raise my DHEA. We have tried many different supplements, creams, you name i have tried it.
The body is so complex that doctors just do not know nor does the medical community have any definitive testing to determine what is really going on, thyroid tests are not 100% accurate. I hope the armour will work better.
I take 88mcg levoxyl and 7.5mcg of cytomel so we are staring with 1 1/2 grain of armour. This sounds a bit high since the T3 in 1 grain of armour (60)
is 9mcg. However, since I am starting at 11/2 that would be 13.5 mcg of T3.
Plus, I heard the new armour had more cellulose and a coating on outside so it was hard to diagnose or absorb. People are crushing it up and adding honey and getting great results for absorption with the new formulated armour.
I was wondering if this was true and were other people having problems with the new formulated armour. I am tired of muscle pain. Tired of test, MRI CT and EmG, blood test that show nothing. I have had trigger point,magnesium
Acupuncture, compounded meds ..you name. Nothing works much except when I go off synthetic Thyroidis meds for a day or two some of it goes away ...so maybe I just can not take synthetic thyroid meds.
It is tricky for me to increase my thyroid because it could push me into adrenal crisis due to Addison's. I wear a medical bracelet for this. I normally have to increase my steriods some to tolerate increase in thyroid. :(
This thyroid/ adrenal thing is a pain and very depressing trying to manage it. Both can cause so much pain. I pray we all get some relief soon. And hopefully one day we will have better thyroid testing and much better meds.
[ "I have severe tendinitis all over which is very common with hypothyroid but mainly in women. It appears that since women produce more estrogen than men that it may be related to fluctuations of estrogen and or DHEA." ]
There are are plenty of men who have muscle / tendon pain with hypothyroid. In your statement above it looks like your pointing to lower estrogen and DHEA from your hypothyroid as the reason for pain. Men can get lower testosterone from low thyroid, I dont think it causes more muscle pain though, dont really know for sure.
What I do know is hypo will upset the chemical balance in tendon and muscle tissue in both genders. ATP chemical process for rebuilding soft tissue can be unbalanced from magnessium deplettion while taking thyroid meds and a build up of lactic acid, a bi-product of muscle breakdown and contraction. Lactic acid does not deplete while hypo
Malic acid pills can push out the lactic acid, and you musct stretch to help this. trigger point therapy and active release techniqu help out a lot to. This plan is working great so far for me while at the same dose of Canadian erfa thyroid for almost 2 years. I was in pain for many years. I do not take testosterone or DHEA. I do exercise, not exercising made it worse.
Yes, Armour does not work as well as it used to for some people. Supposedly the new NP thyroid from Acella is like the older Armour and ERFA thyroid.
If you have actual Addisons, that itself can cause muscle issues. Are you able to get that under control? And if you have had your adrenals (Addison's disease) under control in the past, was your DHEA improved then (they usually parallel each other to some extent.
In men with hypothyroid and low free testosterone under about 50 yrs old, they can see an improvement in testosterone levels when thyroid levels are improved. I would imagine this is somewhat similar with women's estrogen levels, although I have not seen the later mentioned anywhere.
I want to mention the trademarked technique called Active Release Technique or ART. It works better than trigger point therapy. There are a lot of younger chiropractors to do much , much more that the traditional cracking of joints. ART is quite amazing I must say. Some physical therapist do ART, but its rare to them and they charge a lot more.
But it works best once you stop accumulating new muscle pains, this means your hormones are in balance. Once that occurs, then its easier to fix the painful muscles, and they will get better.
[ "Is there a treatment or a medication for dealing with this lactic acid?" ]
I am a firm believer in natural medicine to some point, meaning natural supplements. Because many, over time (sometimes months) really do work.
Natural flushing of lactic acid is part of the ATP muscle rebuilding process. Under treated hypo thyroid can disrupt this. Possibly other hormone deficiencies can cause this too - limited information available. Just walking up stairs requires muscles to rebuild. If they cant rebuild correctly from trapped lactic acid, scar tissue forms, disrupting the fiber alignment, shortening muscles and tendons making even more pain. Unless corrected the problem escalates. Google away.
**One really needs to be able to distinguish existing pain from new pain.**
The thyroid hormone level needs to first be corrected to stop new muscle damage (new pain areas) from occurring, meaning experimenting with different thyroid meds until other hypo symptoms improve. Once this is achieved, the muscle damaged from the past has a higher possibility of being corrected. As to how much will vary person to person.
It is known , although not very well in the medical field, that malic acid in addition to very high quality magnesium helps remove lactic acid from muscle tissue. Malic acid is in our bodies already, a little more helps some people.Max suggested is 1600-2400mg day. I take less than that, being an acid, I dont want to bring my acid reflux back (fixed that naturally as well). I will try to up it gradually and take with food.
The top professional athletic trainers (think Olympics) seem to know muscle chemistry better than anyone in the medical field. These people as well as naturalpaths that treat fibro patients, seem to understand muscle chemistry, lactic acid, ATP muscle rebuilding and pain. A major block in body builders goals is lactic acid - or removing it sooner. Glutamine and creatien ,which are also in our bodies, will also speed up the ATP process but is really only noticeable after exercise - lactic acid can work any time.
For best results with mag and malic acid are best coupled with physically pushing the muscle fluid out (with lactic acid) of the effected muscles, in order for new blood and nutrients to flow in.. This is what pro trainers do for there athletes because it gets results. Those of us in pain are no different - we want results. Physically pushing the muscle fluid out is done using these techniques : Active Release Technique and Grasston Technique seem to do the job along a lot better than just myofacial release and trigger point therapy. Someone who knows all 4 is your best shot. Drs do not know what this is. They may try to do steriod injections but that doesnt work and you cant inject your whole body. So to find someone that does this requires goggling and talking on the phone. Once you get this done and understand how it works by watching, you can learn to do some yourself. I do this thought the week, its a long process, my whole body was twisted from about 20 years of untreated and under-treated Hashimoto.
Using my "plan" I am getting better every month, how far it will continue I do not know.
Always open to more info on this. There is a somewhat new medical treatment called prolotherapy injections. I know it costs a lot and is painful.
I had sever muscle issues...especially the posterior tibial tendons and calf muslces and burning tenosynovitis until I was put on Armour and the right dose of hydrocortisone. I also take calcium, magnesium, and zinc plus 10,000 iu of vitamin D3 every day. The burning (tenosynovitis) was caused from a conversion issue where levothyroxine was being converted to RT3 instead of FT3. Armour has gotten rid of that issue.
I'm in no wise an expert on thyroid disease. I'm not regulated at all but I just wanted to know if you've tried a different brand of thyroid medicine. Levothyroxine caused issues with me. Synthroid caused me anxiety. I'm now on levoxyl and cytomel which seems to be better but not completely. In fact I have a ways to go but it's better. I didn't believe that different meds could have different physical responses. Just a thought.
I did not know that hypo causes lactic acid in muscles. That is very interesting. I have these bumps all in my thigh muscles and I was wondering about where it came from. I don't have much muscle pain but t have very bad pain in my shins. I went through so many test before I realized it was hypo related.
What you are calling Muscle bumps might be knots or "ropeing" as body workers call it where the tissue fiber is laying in all different directions and has a build up of lactic acid. A good hands on body worker will notice this.
T3 in the upper third of the range help prevent new areas from developing this, as well as getting all the 'hypo' important vitamins and minerals tested. If the existing areas dont improve, the other info I mentioned has been known to help, but it can take a while.
For years I had pain in different body parts. As I was given T3 medication it really seemed to help.But the problem was also getting the right balance of T3 and T4 .....which has been a 4 year journey for me.
What I began to notice was...when my T4 was higher than the T3 on my blood tests....that was also when my pain in the hands, feet, and later shoulder, numbness in the hands and arms etc were the worst.
I think the unbalance effects my nerve system as well.
I believe my thyroid problems started in my early teens, by my late 20s I was having hearing problems. Now in my mid fifties I can say, when I am going though different dose changes I hit a point where all my symptoms DISAPPEAR.....but I can't seem to maintain that place!
I am finally at a point where my T3 Test came back higher then the T4....
But too high...I do not want T3 toxicosis so I am now dropping the dose of T3 med a quarter. And then wait...but my pain is better and my plantar fasciitis is gone...I can bend my figures with out stiffness and I can hear a little bit better
I do seem to blame anything wrong with my body (and the weather) on my thyroid problem and medication balance.....but if you keep a journal as I do and write down before going to sleep how your day was, your feelings, symptoms etc it will help you to see a pattern and then put the pieces together.
LM, I think I just found a clue as to my shoulder issues, The symptoms, location and pain match "Frozen Shoulder Syndrome" and as far as Mayo Clinic is concerned considers Hypo and Hyper Thyroid as two systemic diseases that can cause this condition. I will try and paste a link here:
If you look at the causes you will note the thyroid connection, there is another site that attributes this condition to possible spurs and disc issues in the neck, So I have both of those possibilities. Regards FTB4
The mayo is getting a lot better with thyroid symptoms/ casing other issues.
Treating the shoulder inclueds about 8 major layered muscles all connecting the shoulder from the upper arm, chest muscles, colar bone atachment, neck, and mid to upper back. ART is effective in this area, takes several months.
When I was first diagnosed with Hypo 2 years ago my TSH was 99.99 and was sent off to hospital, although my blood tests now come back in the so called normal range I still have nearly all the symptoms i had at the very begining and I have also been diagnosed with rhematoid arthritis which started with pain in my feet and hands, because hasi/hypo is a auto immune disease it is very common to get other auto immune diseases such as arthritis, I feel that if my hypo was treated properly the arthritis would also get better, unfortunately in NZ we only get the cheap goverment funded drugs, it is well known these are not going to work for everyone and they diffinitely dont work for me, Ive spent 2 years trying to get help from my doctor who doesnt seem to know how to treat it, I am now waiting to see a specialist.
Did you have a blood test for rhematoid arthritis? Many Drs just say pain is from RA without actually checking for it in blood work. Kind of like Drs saying someone has Hashimoto without checking antibody levels.
There was someone here from NZ (New Zealand right?) a while back that was somehow able to get T3 meds in addition to their T4. T3 does seem to help hypo people with body pain compared to T4 alone.
Hi, everyone I was just told in January that my TSH was high... I have been fighting body aches, tiredness, massive weight gain, my ears itched so badly, I was always in a bad mood. my knees hurt along with my ankles and wrists. my hips and lower back hurt all the time no matter what I do. I am starting to work out again and trying to get my body to start working again but I don't know what is going on. It seems like everything is falling apart. Here are my labs.
Hi foxycat (that's cute).
Your t4 levels are still very low. What meds are you taking? You need to get a little higher. Also did they test your free t3 levels? That's important to know also. I will say that when I was on levothyroxine my mood was so bad. Crying all the time, angry and so forth. I switched to levoxyl and boom, it is so much much. Just recently the pharmacy did the old switch a roo and gave me levothyroxine again and it happened again. The crying, anger and so forth. Got my levoxyl back and I feel so much better. You would be surprised how different thyroid meds affect us differently. However I think you need to get your t4 levels better and your t3 levels tested.
Hey there. I had 2 rear-end car accidents in 11 months when I was stationary which exacerbated a previous neck injury from another v. bad rear end accident (again I was stationary) 7 years prior. Do not drive with me, I am obviously some kind of s***magnet. I had multiple herniated discs in neck and spine, subluxation, as well as torn tendon in shoulder, partially torn meniscus in knees....not pretty. There was severe whiplash and concussion and looking back, I attribute hypo symptoms all the way back to the first accident. My TSH has never been elevated but both my Free's are low without thyroid medication. I went to PT and chiropractic including applied kinesiology for the accidents.
After a year of PT three times a week for a year and a half (included Pilates as well as home exercises and TENS machine and manual massage) for the last accidents with no cessation of pain, my neurologist stated in a report that he thought I might have "fibromyalgia", a suspect diagnosis back in 2000...and even suspect now since it seems to relate to hypothyroidism so much that some literature suggests it is long-term untreated or under-treated hypo. As far as I know, the jury is still out. In any case, I was told I would be in chronic pain for the rest of my life. Just shoot me.
I found out about Rolfing technique and found a practitioner trained at the Rolf Center in Boulder and practicing in Santa Monica where I live. I figured it couldn't hurt and signed up for the 10 sessions. This technique involves very deep muscle massage as well as manipulation to remove adhesions that can develop in the fascia between the muscles. It also deals with trigger points and sounds like it might be similar to ART. I don't want to go into it too much except to say that after the 3rd session I began to feel better after experiencing extreme muscle tremor and release and by the end I had gotten an inch of my height back to normal, was no longer rotated in the pelvis and was virtually pain free. I would imagine that these techniques also work on the endocrine system and calm the adrenals.
Because Rolfing is so intense, some people find it painful and some people experience bruising. My pain from the accidents, including sciatica, was so intense that any "pain" from Rolfing was insignificant in comparison, and in fact because I had long been a yoga practitioner, I found yoga breathing was all I needed during the sessions. But I was also counseled to take Calcium Lactate before the treatment to buffer the lactic acid released from the muscles by manipulation. I guess this would be similar to you taking Malic Acid. But beyond that, I was also counseled to go home after the session and immediately take a 20 minute soak in a tub of warm water with 4 cups of epsom salts and 2 cups of REAL 4% solution apple cider vinegar (you have to check, because some stuff sold as cider vinegar is in fact only "flavored" and colored with caramel) In the US you can buy cider vinegar cheaply by the gallon at Smart & Final stores. Epsom salts is basically providing magnesium. I did this religiously and never was sore and only had a very slight bruising when he worked on the tender area of my inner thighs.
The few times I wasn't able to immediately do the soak, I had more stiffness the following day but I'm convinced that the Calcium Lactate buffering the lactic acid was really helpful on it's own. I recommend doing both.
As far as Hypo goes, I had significant exposure to environmental toxins and to chemicals known to be endocrine disruptors due to a pipe break and mold in my home....I think that really pushed me over the edge and I got ALL the hypo symptoms, though still with normal (1.89 was the highest) TSH. I experience more muscle pain if my meds are too low and was put in arch supports I didn't need (actually made me worse) and told I had foot and postural problems I apparently didn't have because the foot pain went away when I got my FREE levels up in the higher parts of the ranges. My sister has Hashi's and before she was correctly diagnosed, she could hardly get out of bed she was so debilitated with joint and muscle pain....her doctor actually thought she had rheumatoid arthritis or lupus. But no, she had a gluten allergy and Hashi's. Pain mostly went away with thyroid meds, but she's been having foot pain again along with unusual weight gain and her new doc tested her FREE T3 finally....low. So she's now adding Cytomel and lowering her T4 and being monitored for adjusting her meds to her Free levels. She says she already has an increase in energy and lessening of foot pain after not quite 2 months.
In response to your second paragraph. I have learned that whenever your dose is lowered or raised, you will feel well for awhile. I believe that it takes six weeks for the body to adjust to the new raise/lowered dose. After that period, the body will demand that the dose either be raised or lowered, depending on the symptoms. If you are hypo, it is more likely that you will need to raise the dose. This is basically for people who are on natural thyroid hormone, i.e., Armour, Naturethroid.....The recommendation is to raise by 1/2 grain every 1-2 weeks when symptoms return until you hit 2 grains or so. Then raise by 1/2 grain every 4 weeks. You will raise if/when hypo symptoms return. If they don't show up, then stay at the dose. If you start having heart palpitations and anxiety or insomnia then you might need to back down to address adrenals or iron first.
One Dr told me I fit the fibro description when he didn't know what else to say. Several Drs said I'd most likely be in pain my whole life. Fact is 95% of Drs are clueless when it comes to muscle and tendon pain.
Well, I'm a lot better now after learning about trigger point therapy, ART and muscle supplement needs, plus added T3 intake. I think Rolfing could be the icing on the cake, now that my limbs no longer feel like logs LOL.
Spray magnesium is also great. Spay on, let dry, wipe salty residue off or shower. Calms down hurting muscles after loosening them up.
The thing that is different about rolfing is the release of the adhesions between the muscles. As I understand it, if the injury is severe enough then the fascia can develop what amounts to scar tissue....the same way one can get adhesions in the gut. The muscles basically stick to each other in an unnatural position, so that where manipulation and trigger point release can have a temporary local effect, they'll come back because the adhesions are holding muscles and bones in an unnatural posture. That certainly seemed to be the case with me....I'd get chiropractic adjustments that would go right back out, especially in the lumbar spine and rotated pelvis (documented by x-ray) and postural photos show me kind of hunched over and twisted but after I completed rolfing, straight and one inch taller back to my original height. I think the hunching thing is a typical defensive posture after an injury that can become habitual.
Anyway, worked for me. I go back for touch-ups from time to time, but the original adjustments left me relatively pain free for 10 years, as long as I remember to always lift with my legs and abdominals and not with my back !
Not anymore though, not since the thyroid /rT3 went south....although nothing like what I experienced before, no sciatica etc. Now I have muscle tension, muscle spasms and foot pain when my thyroid medication is off. It's confusing because the car accidents sort of segue'd into an issue of criminal harassment in my home by a new resident who turned out to be a psychopath while I was laid up with the back injury and then a pipe break in the ceiling that resulted in a multiplicity of molds in my loft as well as false mold abatements and real mold abatements with chemicals that are known endocrine disruptors.I had the whole top floor of a beach-adjacent building under rent control and my landlord was trying to force me to move out by not attending to these problems. It was very very stressful and then I got symptoms of hypo but with low TSH and low-in-the-range Free's ...so who knows ? And I also had a bicycle accident due to a road hazard that resulted in a puncture wound and a head injury with 20 stitches....and ALL those things had imaging done without protecting the thyroid and stressful lawsuits attached. Complicated. After a gap of 10 years, I just went back and had some more weekly treatment for a problem with my knee that may be coming from the bad disc at L-5 as well as me falling on it at a full run playing badminton.
But what I can tell you is that my posture is straight and yes, for 10 years I had very little pain (unless I was dumb and lifted something too heavy, and then I might have had a bad day like anyone else) and had NONE of the knots in the muscles that indicate trigger points, no referred pain, no sciatica, none of that deep penetrating achy-ness or sharp pain whenever I moved or even when just lying in bed ( try to turn over, try to sleep ! ) that I couldn't get rid of before. In getting well with Rolfing there were two specific sessions that were memorable for muscle release so powerful that my limbs started shaking and then thrashing around as though I was having a seizure. Not kidding. This happened first at about session 3 or 4, and then the following session.....and then I rapidly was healed by the end of 10. This release was accompanied by spontaneous, unexpected weeping. It was an incredibly powerful experience and had I not, at that point, trusted my practitioner so much (very skeptical after so much failure with other modalities) and had he not warned me that something of the like happened to some people and that if I started shaking to just relax into it....I think I might have been frightened.
I sounds like everything you've done has been really beneficial to you and I appreciate you starting this thread and sharing all this information. ART sounds very very similar. In Rolfing, what some people find the most painful (but I didn't) is that the practitioner uses his elbow to go between the muscles to work on the adhesions...but he also works on trigger points, rotations, leg length etc. I've had a lot of chiropractic, applied kinesiology, acupuncture and all that PT and while much of it was helpful, it was the Rolfing that was the most effective in the least amount of time and pushed me through to recovery. In fact, my Rolfer recommended that I alternate seeing him so that the muscles were loose, and then seeing my chiropractor for the adjustment to my neck and pelvis for the subluxations and rotations. That way, the chiropractic adjustments started to hold where previously the knotted muscles were just pulling the skeletal structure right back out of alignment. Anyway, it worked for me and remains my first choice for treatment.
The thyroid problem is a WHOLE nother ball of wax, and whatever pain is associated with it is different than the pain I was experiencing before. HA, I don't know about you, but I always have trouble answering those questions in the doctor's office....rate your pain on a scale of 1 - 10. Ten being WHAT, exactly ? Gnawed on by rats ? The Catherine Wheel ? These are the jokes.
Hi, i have been diagnosed with an underactive thyroid, i started taking Eutirox medication and within a week i had terrible lower back pain, I already have three herniated discs but for some years now have been able to manage my pain with yoga pilates ect. The doctors deny any connection between my thyroid meds and my crippling lower back pain but i stopped taking the medication and the pain has gone away. I need to take thyroid meds to sort out my problem. has anybody heard of this? or can anybody recommend a pain relief for my back which I can take at the same time as the thyroid meds????
I'm not going to assume it works for everyone, but as soon as I was diagnosed, I went into a health food store and she said to stop eating gluten because it triggers the immune response, or exacerbates it. My antibodies were 7000. I ate gluten free for 6 weeks and blood work was back to normal. Ate pasta, felt really bad. Stopped eating gluten, felt far less joint pain. Who knows if it would work for you, but just throwing it out there (read the other comments on gluten).
There have been numerous posts on the gluten thing here, some people feel better without it. How it effects the thyroid no one knows for sure, just theories out there.
But gluten, sugar, startch all feed digestional bacteria and digestive yeast. We all have this, but overgrowth in the digestive tract leads to all body discomfort in some people, which is one reason why some feel better removeing or reduceing gluten, sugar and starch from their diet.
Gluten does not effect my hashimoto symptoms or lab values. I actualy started eating more gluten and one of my antibodies DEcreased from 600 to 70. Just goes to show, thyroid antibodies can fluctuate on their own. The decreased antibodies do not make me feel any different symptom wise though, whish it did.
Have you read DR. David Brownstein's "Iodine why you need it, why you can't live without it" book. Also read the reviews for "Iodoral" on Amazon.com and iherb.com.
I have severe muscle pain. It was so bad I could not walk across a room for 4 years. Only started driving end of last year. I Still have a lot of pain which worsens every time my thyroid fluctuates. My skin is extremely dry and gets itchy when I open the fridge and expose to the cold. My eyes are dry too.
I have no idea if this is related but one of the previous posts mentioned it and a light bulb went off. About 2.5 yrs ago (6 months post natal and ironically when my symptoms of hypo really started showing) I started getting extreme itching in my ears. So bad it wakes me up at night. It has never gone away since. I also get really achy ankles. They just well, ache. I also get extreme toe crams, where they completely lock up and I cannot move them at all. It is extremely painful and I just have to wait for it to pass. I am now wondering if all this is related to ???
I hope someone can answer this for me. I have all over muscle pain? That starts almost immediately upon any movement. For instance, moving my arm caises yge entire limb to feel intense (and i do mean intense) pain and the fatiguecequal to lifting your maximum weighted barbells to your absolute point of not being able to complete one more lift. Except, this happens to me within seconds of simply moving my arm, or the same for my leg, even chewing food (neck and tongue muscles) but all of it goes away within seconds to approximately two mins of complete inactivity. Is this the type of pain associated with your thyroids? I have no thyroid, it was removed due to Graves disease.
I do not know if this tread is too old for anyone to be reading, but I would like to add: Hypothyroidism will cause a retention mucin/mucus in the muscle sheaths. It was once thought that Guaifenesin would help this. It does not. I know of no way to reduce this except in the hope that becoming optimize on thyroid medications. Which leads me to this: Imo, being treated with t4 only even with t3 in addition, will only make things worse. The correct treatment is to replace what you no longer get and that the full spectrum of hormones a normal thyroid produces. The only way do this is with Dessicated thyroid. There are at least 4 brands of this medication.
After almost 30 years of fighting this condition, I have only found this medication 10 years ago. And only found that I have not been optimized (because of doctor's dependance on the TSH test) ever! I am working on that. However, in order to relieve my muscle of the musus and lactic acid that has already accumulated in my body, I think I will begin the magnesium/malic acid as soon as I can purchases some.
I have severe myopathy doe to GD and therefore severe walking difficulties and after 12 months on meds the pain has lessened but walking has yet to be improved and I really do need to get the legs working properly so that I can think about returning to work (as an event manager who stays on her feet for up to and more than 12 hours at events)
PS my meds are
Prpranolol 80mg slow release
DX Severe Graves/TED/Myopathy Nov 2012
I understand everything you have said. My feet burn at times, my vision gets blurry, and my joints hurt to the point of being unbearable. I can't run, squat, or kneel. My knees are the worst, but my shoulders, hips, and low back hurt as well. My TSH is low normal and my doctor does not "get it." This is not normal for me. Nothing is improving. It is worsening. He blames it all on my weight. My weight issue is due to the thyroid. It is a vicious circle. I am at my wits end. I have never had a weight problem, and now I can't do anything I used to. It is depressing!
Have you been tested for anything other than TSH? If so, please post those results and their reference ranges shown on the lab report. If not, then you need to be tested for the biologically active thyroid hormones, Free T3 and Free T4 (not the same as Total T3 and T4). While you are at it I would also suggest tests for Vitamin D, B12, ferritin, and magnesium. Are you taking any thyroid med right now? If so, what type and daily dosage?
I am curious about this old thread too. I have hypothyroidism and occupational tendinitis. I am not taking any medication. I had 9 months of Physio covered by WSIB (Workplace Safety Insurance Board). I've had the tendinitis in my forearms for about 10 months. While my physiotherapist kept saying she thinks I can make a full recovery I'm not so sure. I'll be 45 in a few days and I've spent my adult life doing jobs and hobbies that highly involve my hands and arms so there's a lot of wear and tear. I never took any time off work for this injury. I did change positions though. I was doing a lot of heavy lifting, but now it is the pushing and pulling that continues to cause some strain though to a lesser degree.
Thought you might be interested in this particular section taken from the very long list of symptoms that can be related to hypothyroidism.
Chronic back and loin pain
Muscles and joint pain
Carpal Tunnel Syndrome (hands or forearms)
Tarsal Tunnel syndrome (legs)
Painful soles of feet
It might also be of interest to know that I during a period when I was hypo, and doing a lot of typing on this Forum, I started having carpal tunnel symptoms in my right wrist. There are other members with similar experience. Eventually, when Armour Thyroid became available again, I found that my wrist pain went away after only few days of getting some T3 and raising my Free T3 level. Knock on wood, I have not had any such problem since that time.
Thank you for the list and sharing your own experience.
I am going for bloodwork on Monday (TSH, Free T4, Tree T3 and other tests).
I'm waiting to find out if WSIB will recommend I see a specialist re: the tendinitis or a return to my physiotherapist or both. I informed my case manager that I still need medical support.
About muscle and tendon pain. I have purchased Tom Brimeyer's "Hypothyroidism Revolution" program and he explains A LOT about the hows, and whys of many of the symptoms of hypothyroidism. He says that if your blood sugar is not balanced (which can be caused by low thyroid function) and is low, and you have insufficient stores of sugar in your liver, your body will go to your muscles to get the fuel your body needs and the by-product of breaking down the muscle is lactic acid, hence the muscle or tendon pain. That is a simplified version, but when you read all the material available it makes sense.
He talks about symptoms, causes, testing, treatment, foods, life-style, hormones and more and includes a diet and other programs geared to treat hypothyroidism.
His program is aimed at repairing the malfunctioning thyroid and he explains in a lot of detail, some of the causes for hypothyroidism. I have just started the program so can't tell you how well it works, but it sure answers a lot of questions. This program can be found on the web. I am not a paid representative for this program. It just has so much information that has helped me to understand hypothyroidism that I thought I would share it.
I have had a thyroid condition for the past 25 years and was treated with Synthroid, taking everyday, monitoring every 6 months, sometimes would increase or decrease the dosage but minimally according to blood results. I never had any symptoms except a bit of hair loss which started about 10 years ago and stabilized. I am 45. I usually never miss my medication except for a few times when I ragout but no more than a week….Well 2 months ago I started having pain on my left shoulder and right knee almost at the same time, i thought it was from moving boxes but the pain never stopped so I went to the doctor and got blood work and shows a positive ANA and high Smith antibodies, so I am being sent to the rheumatologist, but I am also researching and wondering if it is related to Thyroid. Any input on this? would be greatly appreciated.
All these replies seem to be saying the same thing that you get muscle pain etc. from hypo thryroid. I was first diagnosed with hyperthyroidism about 4 years ago. I had nodules in my neck but no symptoms of problems until 4 years ago. That is when I started getting hot really easily sweating a lot jittery palpatations lost about 10 pounds fairly easily (and I could not lose weight for anything before that). Then I moved away and had to find new docs. It took so long to get in to see one that my new family doc recommended going up a little on the methimazole. Unfortunately I went into hypothyroid then and started having more problems. Burning feet, tightness in thighs , pain in hips also pain in back but have spinal issues as well. Burning prickly hands, they turn red and swell up at night, pain in wrists. So finally got to an endo and they monitored me and got me off methimazole altogether. Then the hyper came back about 1 month later. So had to go back on methimazole. STill having this horrible pain along with migraines and mood changes like crazy. It is all so crazy, because now they say blood work is normal, so why do I still feel so horrible. I sure hope my doc has some answers after my most recent blood work done today. Looks like I am alone in the Hyperthyroid role,
Just because your blood test results fall within the so-called "normal" ranges does not mean they are adequate for you. The ranges are far too broad, due to the erroneous way they are established. Plus people have different levels of thyroid hormones at which they feel best.
Please post those thyroid test results that were supposedly normal, along with their ranges, so that members can have a look.
I have been experiencing a Lump in my throat for the last year. I also have some extreme joint pain in my wrists, knees and elows. I also have a unexplainable itching all over my body from head to toe has anyone here experienced the itching syptoms with your thyroid condition?
I started having SEVERE gluteal pain and thigh joint going down the side of my leg. Pain passed right above my knee and right above my ankle. Also goes down the side of my calf. My feet hurt/ache at night and when my husband rubs them they are ok and my body feels a little better. All this is on the right side except for the feet (it is both). I have had Xrays and MRI's and now the ortho surgeon wants a CAT scan. The person who read the MRI said I had a fractured hip. The ortho surgeon can't see it. He thinks I have "multiple Issues" and that is why I cannot get a diagnosis from anyone. I had my Thyroid Levels checked yesterday and the dr.'s nurse told me today that I had some very low levels. I am on Armour 60 mg.and Synthroid, only 25mcg. I was fine on Armour but low in my T4, thus the Synthroid.
All this happened after about a month and 1/2 on Synthroid. The first doc (an osteopath Sports Injury Dr.) I went to picked up on this immediately and said to have my levels checked right away but it was his MRI/Xray group that called and said I had a fractured hip. As a result, we thought that was the PAIN PROBLEM so I didn't go have levels tested.
It has now been 3 months since this started. I go to my Thyroid Dr. Tuesday. I am so glad to have found this site. At least I went and got it tested and I know that my levels are off. I hope this is the cause of the pain.
We thought I was going to have a hip replacement, then the frustration of no one knowing what it is. Hope I can get some answers on this pain but at least I will be getting the levels straightened out (hopefully).
Thank you for posting!
Well I started out with hyper thyroid, not graves, I had carpol tunnel in both wrists, but felt great for 28 years, then things went haywire, went thru thyroid storm due to eating an over abundance of seaweewraps big mistake, went thru RAI and went hypo even bigger mistake, lets see severe carpol tunnel wrists crack so loud I think the bones will break, water retention shoulder will crack and almost go out of joint, they pop out but pop back in, I'll sit in bed and my feet will sometimes get very warm, and some nights I'll sit in bet and I'll get this ansy feeling in my legs so I'm constantly moving them very disturbing, I'm on Armour thyroid so my t4 is very low .8 my tsh is extremely low due to the high t3 my t3 I still have room to wiggle but my doctor said she doesn't want to raise due to the tsh i asked to get some t4 but she doesn't want to mess with it, wants me to see my endo doc but I said no, because she'll lower my meds due to the tsh, i was lucky to get this doctor to raise them as much as I have, my endo wanted me to stay where I was 3 increases back, that was even worse then it is now, I was so constipated, my digestion was horrible my sleep was horrible, and my skin was so dry my feet had these red lines drawn on them, plus my legs felt like I had weights connected to them, plus my thinking was terrible brain fog, I would start a sentence but would forget a word and get confused or forgot what i was even saying. I tell you the list goes on and one, right now I have cracking wrists, once in awhild cracking shoulders and warm feet sometimes and some water retention, and some restless leg problems, but its so much better then it was before my meds had been increased 3 x's ago, hypo thyroid can be so debilitating, and life consumming, its taken me 3 or 4 years to get where I am today, what i don't understand is how some people can get leveled so fast no problem it baffles me, I asked my endo doctor if other people had the problems I was and she said no, I don't dknow if I believe her crazy
I began having plantar fascittis (PF) two and a half years ago.
I have a heel/bone spur as well.
The PF just came back the beginning of this month. As it continued to get worse I began to get a burning feeling in both of my feet. While looking for help for that I came across this information. Very helpful.
Looking back over the last two years. I have had two cases of frozen shoulder one year apart, I have had elbow pain diagnosed as golfers elbow, don't golf :)
and this PF twice as well as a problem with my knee.
Looking back I realize that I noticed my skin on my arms sagging for the last few years. No matter what I did it did not improve. It looked pretty scary. I see that can be a side effect of the thyroid not working well.
I only knew hypothyroid could cause weight gain, hair loss.
I was not aware that it could destroy my fingernails, cause confusion, I have had a lot of confusion combined with irritability which I have been blaming on something else. I also had to have back surgery Christmas 2013...which I thought had given me PTSD.
I am going to have to work to wrap my brain around this new information.
Thank you all for posting. As my niece says "Sharing is Caring"
Maybe I am not an old woman at 58, maybe this is my thyroid :)
For people reading your post.
Alert: Low thyroid can not only cause miscarriage it can also cause permanent mental disability in the child. My thyroid dose was increased from 1.5 to 2.5 when I was pregnant with twins. The dose should have been increased with my other pregnancies.
When I was originally diagnosed with Hypothyroidism my TSH levels were so high the lab stopped counting. I was told I had been hypo for so long! I had had symptoms for a long time but no doctor ever caught it. Even on thyroid replacement my TSH has fluctuated--my range has been .1 as in point 1 to 30. So my symptoms continue.
My worst symptom is the tendon and muscle and joint pain. Almost debilitating but I learn to push through.
For people reading your post.
Alert: Low thyroid can not only cause miscarriage it can also cause permanent mental disability in the child. My thyroid dose was increased from 1.5 to 2.5 when I was pregnant with twins. The dose should have been increased with my other pregnancies.
When I was originally diagnosed with Hypothyroidism my TSH levels were so high the lab stopped counting. I was told I had been hypo for so long! I had had symptoms for a long time but no doctor ever caught it. Even on thyroid replacement my TSH has fluctuated--my range has been .1 as in point 1 to 30. So my symptoms continue.
My worst symptom is the tendon and muscle and joint pain. Almost debilitating but I learn to push through.
Nerve pain and numbness in feet, toes, calves, forearms, hands-- even elbows and occasionally shoulders an hips. sometimes a zap n the face or scalp. TSH was in the normal renage but free t3 was1.5 (range 1.81-4.06) and free t4 was .97 (1.8-1.97). so obviusly low t3 and t4 n the low of the range- doc put me on synthroid 75mcg/day and compunded t3 (22mcg twice per day). re-eval in 3 weeks. How long, once leveles are properly adjusted, does it take for the nerve pain and muscle pain to abate? Weeks? Months ?
Hi Teresa here. I am 61 years old, partial removal of thyroid at 33. 10 years later got Graves Decease. Got Radio Active tablet to drink, hospitalised and brought out the situation. Got to see a Endocrinologist, and he sorted out the TSH, T3 and T4 levels. I love this dr to bits! I started picking up weight, depressed, sat around all day, no energy , hair falling out, sore muscles, stiff joints. My medication was increased to 2 Eltroxin daily plus 2 Tertroxins. After feeling very bad in beginning, this changed my whole well being. Then comes the weight, 92kg.. Endo put me on medication to loose weight and 3 months later I joined a gym. Did very well, Endo decreased 2 Tetroxin to 1 due to (Blood results) By the way, I weighed the 85kg and that is after a year on diet medication. I weaned myself off this as side affects was getting to me. Anyway I am slowly getting back to 92kg , despite gym and spinning classes, and with latest blood results still on 1 Tertroxin, weak muscles, burning sensation on the bridge of my R foot, stifness in joints, my Endo seems to be happy with treatment. Is there ANYBODY out there that can help patients like us.???? Don't forget the endless dry skin, blurred vision. Or, is this ok to live like this?
I just recently have been diagnosed with Hashimoto's. It started in my legs so at first they thought it was diabetic neuropathy since I am a type 1 diabetic but I wasn't experiencing it in my feet or hands and I wasn't having any swelling. It's like I aged 30 years in a matter of months. Weak muscles, burning muscles, pinching in buttocks, aching burning hips, burning lower back and knees. My bones ache and muscles cramped like crazy. It got to where it was hard to move some days. Couldn't sleep due to the pain. Was a total basketcase. This all happened from Jan 2015 until now. Luckily my Dr got to the bottom of things when he did bloodwork. I have been started on levothyroxin. Have been on it for a little over a month. The burning in my thighs and kneed has decreased alot so I am hoping it only gets better from here. Went back yesterday and they increased my dose to 88mcg. Hopefully it will only bring more relief because this burning in my back and hips can be something aweful and I cannot take pain medicine. I am only 31. I ended up stepping down from my job bc it just became too much for me. This disease is just so frustrating. I see that not everyone experiences the muscle and joint pain. If you don't, consider yourself blessed. I could deal with the anxiety, depression, thinning hair, ears ringing, loss of taste and constipation but the muscle and joint pain will sometimes leave me laid up for two days in pain if I overdo it and it don't take much to do that since I dont have the energy that I used to. I am hoping to get my joy and my life back.
i would like to talk with others living with Hashimotos.
I've been diagnosed about 3 ms. ago with hypothyroidism(not hashi or graves) and as of right now I'm still struggling to find a balance. I have a doctor appointment next week, hope to get some answers. My first symptoms started 16 years ago, and in the last 6 years got really bad, until 6 ms. ago everything came to a complete stop.
Had severe muscle stiffness in my shoulders and hip/back area. About 2 yrs ago I added magnesium (400mg at night) and it helped some. Last year started having really bad pain in the soles of my feet, and when I would get out of bed in the morning I could barely walk, all my joints hurt; like my tendons were gonna snap. I was starting to have carpel tunnel pain, really creepy all these pains coming out of nowhere. I have this pain shooting down my left leg from the hip to the knee in the back side. I've only been on meds for about 2ms. very little stiffness in the back/hip area, the muscle pain is all gone. Before the meds when I would lift weights, I would be sore for 5 days , now is like a normal person should feel. The only one still lingering here and there is the shooting pain in the left leg. The "dumb" people around me were telling me that is normal to feel pain, that's how it is when you're getting old! still 39
Hi. I'm new here and would like to share my story. :) I was just diagnosed with hypothyroidism about 2 1/2 weeks ago, prescribed 25 mcg levothyroxine. Due to my right side of the thyroid being swollen and my voice going hoarse for about 8 months now, I was sent for an ultrasound last week. Still awaiting those results. However, in the meantime I want to share my symptoms that I've struggled with for years to the difference of being on the medication for such a short period.
For years I have struggled with so many health issues. None enough to stop me from pushing forward. But enough to make me feel like complete crap, daily.....for years. I had NO IDEA the thyroid played such an important role in my health, mental state and quality of life. I've suffered many of the symptoms, however the past 8ish months, the symptoms have escalated to an all time high. To a point of me thinking "This is it! This is how life is now". I turned 40 this year and really thought this was just a part of getting older.
-Leg cramps and pains for 15 + years -- Acetephetamine was my best friend (several times daily), it's all that helped
-Fatigue- Barely got through the work day, napped daily
-Woke up sluggish every single day
-Unclear, sluggish thinking, not good for working in accounting. My doctor put me on Adderall about a year and a half ago. Yes, it helped with work but I became completely dependent on the energy it gave me to get through every day. 20mg 3 x day
-Anxiety, I was put on Lexapro and Xanax. The Xanax I was taking 1 MG 3 times daily
-For the past year my acne has been terrible. Developed in the weirdest places. Behind the ears, large puss filled acne. On the butt, lower back and waste, upper thigh. Not only did I have pimples, but thick black heads in the buttock area.
-Severe tailbone pain ( I can't say for sure this is associated with the thyroid. But when I read that it was a symptom I figured it was). The pain was so bad that I had to stand at my daughter's games, I couldn't sit in stands even on cushions, couldn't go to the movies and sit, couldn't sit in hard chairs and driving for a long while caused the pain.
-No appetite but yet gained weight like crazy. Just the past two month I've gained 12 pounds. All together, I have no idea but it is a lot.
-So sore that when I got out of bed, it was all I could do to take my first several steps
-Constipation every day
-Dry skin. My heels on my feet, especially the right was so severely cracked that it always hurt, especially when I drove because of the pressure with my foot resting on the heel. This is with me using the dry skin remover tools and pedis often
-Hoarseness, I noticed around last October that my voice started sounding I had some sort of sinus draining hoarseness. It never went away and in fact got worse. My voice was never clear, and I felt like I was constantly needing to clear my throat.
-Eyebrows. What right eyebrow? Especially on the outer edge.
-Menstrual flow has been about 11 days long
SO, now fast forward to 2 1/2 weeks on Levothyroxine. My symptoms have improved or have gone away! The first thing I noticed in the first 48 hours was my energy level. I am SOOOO much more energetic. No naps needed.
-Adderall taking only about 10 mg day now / was at 60 mg
-Xanax taking only 1 mg daily/ was at 3
-Acne- CLEARING UP. For the first time in a long time I am not so ashamed of my backside
-I wake up, thinking clear, ready for the day with ENERGY
-My cracked heels are healing
-I've lost weight, maybe only water weight (not sure), but within two weeks I am wearing my jeans without needing the ponytail holder I was using to fasten the button together for the extra space. One of my capris are too big now
-Voice is not 100% normal yet, but so much less hoarse. Huge improvement.
-Constipation is gone
I'm sure there are more things that I am forgetting, but the important thing is that my quality of life has improved drastically. I am still in such shock that all of this time my problem has been so simple as a thyroid dysfunction.
Why are people not tested for this on a regular basis? I've been getting treated for symptoms of depression, ADD, anxiety. I've been in pain EVERY.SINGLE.DAY. For me to wake up and go to work, get through my day not being medicated on Xanax and Adderall is still taking some getting used to. I depended on them to live, and to not need them now is very weird. I have the mental urge to pop the pills, but I realize I don't need them.
I have been reading how a lot of people have a hard time getting their meds/levels right before they feel better. And I feel so blessed to have felt like I found a "cure" so quickly.
Oh, I haven't done enough research yet to understand the level readings, etc. All I know is my "level" was a 35 when normal is a 9? This is what my doctor told me. I really don't know what that means. I see her again this Friday and will ask some more about that.
So, I'm waiting for my thyroid ultrasound results now. Hopefully that's all fine and this medication keeps doing it's job. It's been almost like a miracle pill for me.
The other day, we were leaving the store and my 16 year old said "I'll race ya to the car". No, I did not win....but a month ago I would have barely been able to walk, nonetheless run through the parking to my car.
I just wanted to share my story and give anyone reading this some hope that there is help out there!
Again, I don't understand why we don't get thyroid tests as our regular routine yearly check up. I've been on medications that have treated my symptoms but not the core problem. I never had any idea that this is what it could have possibly been. I had to ask to be tested. I googled "hoarse voice" one day, saw hypothyroidism and then read the symptoms. THAT WAS ME. That's when I asked to be tested.
Good luck to all! I will update when I find out about my ultrasound results.
Thank you for taking the time to tell us about your progress, at long last.
Usually doctors will at least run a TSH test for a patient with so many symptoms that are typically related to being hypothyroid. That part is usually less of a problem than inadequate testing beyond TSH and the misinterpretation of test results, and inadequate treatment. The reasons behind all that malpratice are lengthy, so I won't get into it right now.
Suffice to say that a good thyroid doctor will treat a hypo patient clinically by testing and adjusting Free T4 and Free T3 (the biologically active thyroid hormones), as necessary to relieve symptoms, without being constrained by resultant TSH levels. Symptom relief should be all important, not just test results, and especially not TSH results. You can get some good insight from reading this site written by a good thyroid doctor. Note the various other subjects on the left margin.
Also this is a good article written by another good thyroid doctor.
I am happy that you have improved so much but I want to warn you that 25 mcg of T4 med is not very much. Frequently hypo patients starting on thyroid med find that in response their TSH goes down, and that can diminish output from the thyroid gland, with the end result that levels don't change much until the dosage is raised enough to raise levels of Free T4 and Free T3. Free T3 level is especially important because it correlates best with hypo symptoms.
So about 4-5 weeks after starting on the med, it would be a good idea to go back and re-test and confirm if you need a dose increase. Specifically you should request to be tested for Free T4 and free T3, along with TSH. Note that Free T4 and Free T3 are not the same as Total T4 and Total T3, so make sure they test the Frees, not Totals. Since hypo patients are also frequently too low in the ranges for Vitamin D, B12 and ferritin, make sure they test those also. Low levels can cause symptoms that mimic hypothyroidism. D and ferritin also affect metabolism of thyroid hormone. D should be about 55-60, B12 in the upper end of its range and ferritin should be about 60 minimum for ladies.
When you have new test results if you will please post them, along with ranges, we will be glad to help interpret and advise further.
Hi I had Hoshi's as well, had my thyroid removed, then it started the pain was unbearable. Legs, arms, lower back into my thighs.. I went to MASS General in Boston MA and see a Dr. Wiler. She is amazing! She worked with me and we have a great regiment set up with Levothyroxine and Levothyronnie and ALL of my symptoms have gone.. Speak to your Dr. and insist on a T3 med along with your regular Thyroid med believe me it helps. I had massive pooping issues and they did find I have Chrones but ever since the adjusted my meds all that has gone away as well. Seek the T3 meds if you do not take them yet!
Wow, this is eye-opening. I've been on Synthroid with basically no relief in my symptoms for 13 years. I've been treated for tendinitis in my wrist, elbow, and severe IT band pain (hips) by physical therapists and it didn't even help much. I hurt (ache) all over at this point. Feet and hip pain is the worst (no arthritis, met with an ortho and he diagnosed tight it band and sent for pt). Also have lower back issues, mainly the SI joint. If I've been sitting in a chair for any length of time it takes about 4 steps before I can stand up straight and walk without limping.
Finally getting my FT3 checked hopefully soon. Maybe I'm low.
My biggest symptom was joint pains. Second one was sluggish body with mild tiredness. The pain is in knees, heel. Shoulder is stiff but not pain as such. In fact, I have discomfort in every joint of mine.
I went to a doctor assuming I have joint issues. He immediately diagnosed me as having osteo-arithritis. His observation was based on the fact that a slight bone spur was seen. This is the right knee where I hurt years ago due to accident. Since he was an Ortho doctor, he was not even thinking about possibility that my joint problem could be due to something else (Hypothyroid) and my joint not being very good is getting aggravated due to that. He asked me to go for a surgery.
I knew deep inside that this is not specifically a joint issue. Since, I can differentiate between local joint pain and pain due to muscle around the joints.
I went to a general physician who immediately diagnosed me having Hypo issue.
I have been taking Thyroxin for almost an year now but my joint pains continue. I would be visiting Endo Dr soon and will let him know my condition and coax him to go for more tests.
I have experienced increasing muscle issues since I had my thyroid removed. Endocrinologists completely unaware of any such thing. Increasing fascial adhesions, causing pain and bones to go 'out' of place, muscle 'seizing', difficulty stretching out and relaxing muscles, all leading to leg and nerve pain. Recently read an idea to use a rolling pin on my legs to break up adhesions. Bought a used one and I think it'll really help! They also suggested using undenatured whey protein to help get cystein into all the cells, which is supp. to help. I am looking into that, along with comparing taking sulphur with undenatured whey. I have spent a lot of money at the chiropractor and massage therapists, otherwise I don't function too well.
I just started using a book I found called "Healing Back Pain Naturally" that provides a series of exercises and also discusses the emotional aspects. I picked it up for a buck at a dollar store, but that was a while back. Too soon to say if it will help, but the exercises did relieve my lower back stiffness.
LazyMoose, have you tried using un-denatured whey protein? I read about it on a different site, guy claims it helps by getting the proper form of cystein into cells. I haven't tried it yet, just read it.
I have tried a slight increase in my T3 and T4, not to hyper range of course, but did not notice a change in my muscles. My doc wanted me to reduce both again as she said "I had plenty of thyroid hormone circulating in my body".
This is a very old thread and most of the previous posters are no longer active on the forum, so it's hard to say whether any of them will respond or not.
I see you've posted a new thread of your own, so if you'll post your actual thyroid hormone levels (Free T3 and Free T4, along with TSH) there, we'll be better able to see where you are and possibly make some suggestions as to what you might do to help get better...
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.