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Muscle, tendon and joint pain from thyroid, whats your experience?
Not a question. Share your experiences for others. You might learn something. Many thyroid 'newbies' are unaware (docs too) of how thyroid hormones effect body tissue. Some get this as a severe symptom, some almost never. Back, feet, legs, shoulder, wrists (carpel tunnel) , all. A reminder that symptoms vary with autoimmune.
I have self learned a lot on this subject - I had too. And learned acupressure muscle release (trigger point therapy is another name) from books and PT's, that has saved me thousands of dollars, and relived pain, (this is different from acupuncture). I since learned I needed T3, as many do with continuing pain on a T4 only med. Still have some, its a long healing process (years).
I recently spoke to very experienced physical therapist / massage therapist on this subject as she has experience working with Fibro patients and noted some mentioned they had 'wacked' thyroids. She was interested in how thyroid hormones work, symptoms , and, well, now she knows some of what I know, which is better than not knowing.
Many do not realize that what they think is joint pain may not be caused from within the joint, unless there is physical joint damage or Rheumatoid. Referred pain simply means pain felt in a different area from its true origin. Knee, ankle and shoulder pain is usually from tight muscles (nearby or far) pulling on a joint, so that's where you feel it. Loosening the muscle (if it wont stretch) via acupressure or trigger point release can relieve joint and muscle pain.
What brings this up was a recent experience of "burning feet" (new to me and very wierd) from FT4 under the range (totally off) which resulted in a 58 tsh. Another member mentioned burning feet to me with low thyroid levels. At tsh of 24 now, my feet feel better.
So this thread is about others thyoid body pain experience and relieving it, if they have anything to share for others to learn. If you had or still have thyroid body pain, you know how miserable it can be. (Dont get alarmed of my tsh, that is being worked on slowly - another subject altogether).
I have self learned a lot on this subject - I had too. And learned acupressure muscle release (trigger point therapy is another name) from books and PT's, that has saved me thousands of dollars, and relived pain, (this is different from acupuncture). I since learned I needed T3, as many do with continuing pain on a T4 only med. Still have some, its a long healing process (years).
I recently spoke to very experienced physical therapist / massage therapist on this subject as she has experience working with Fibro patients and noted some mentioned they had 'wacked' thyroids. She was interested in how thyroid hormones work, symptoms , and, well, now she knows some of what I know, which is better than not knowing.
Many do not realize that what they think is joint pain may not be caused from within the joint, unless there is physical joint damage or Rheumatoid. Referred pain simply means pain felt in a different area from its true origin. Knee, ankle and shoulder pain is usually from tight muscles (nearby or far) pulling on a joint, so that's where you feel it. Loosening the muscle (if it wont stretch) via acupressure or trigger point release can relieve joint and muscle pain.
What brings this up was a recent experience of "burning feet" (new to me and very wierd) from FT4 under the range (totally off) which resulted in a 58 tsh. Another member mentioned burning feet to me with low thyroid levels. At tsh of 24 now, my feet feel better.
So this thread is about others thyoid body pain experience and relieving it, if they have anything to share for others to learn. If you had or still have thyroid body pain, you know how miserable it can be. (Dont get alarmed of my tsh, that is being worked on slowly - another subject altogether).
Please post your thyroid related test results and reference ranges for the last several times you have been tested. Also, if tested for Vitamin D, B12 and ferritin, please post those as well.
I've been diagnosed about 3 ms. ago with hypothyroidism(not hashi or graves) and as of right now I'm still struggling to find a balance. I have a doctor appointment next week, hope to get some answers. My first symptoms started 16 years ago, and in the last 6 years got really bad, until 6 ms. ago everything came to a complete stop.
Had severe muscle stiffness in my shoulders and hip/back area. About 2 yrs ago I added magnesium (400mg at night) and it helped some. Last year started having really bad pain in the soles of my feet, and when I would get out of bed in the morning I could barely walk, all my joints hurt; like my tendons were gonna snap. I was starting to have carpel tunnel pain, really creepy all these pains coming out of nowhere. I have this pain shooting down my left leg from the hip to the knee in the back side. I've only been on meds for about 2ms. very little stiffness in the back/hip area, the muscle pain is all gone. Before the meds when I would lift weights, I would be sore for 5 days , now is like a normal person should feel. The only one still lingering here and there is the shooting pain in the left leg. The "dumb" people around me were telling me that is normal to feel pain, that's how it is when you're getting old! still 39
Had severe muscle stiffness in my shoulders and hip/back area. About 2 yrs ago I added magnesium (400mg at night) and it helped some. Last year started having really bad pain in the soles of my feet, and when I would get out of bed in the morning I could barely walk, all my joints hurt; like my tendons were gonna snap. I was starting to have carpel tunnel pain, really creepy all these pains coming out of nowhere. I have this pain shooting down my left leg from the hip to the knee in the back side. I've only been on meds for about 2ms. very little stiffness in the back/hip area, the muscle pain is all gone. Before the meds when I would lift weights, I would be sore for 5 days , now is like a normal person should feel. The only one still lingering here and there is the shooting pain in the left leg. The "dumb" people around me were telling me that is normal to feel pain, that's how it is when you're getting old! still 39
I just recently have been diagnosed with Hashimoto's. It started in my legs so at first they thought it was diabetic neuropathy since I am a type 1 diabetic but I wasn't experiencing it in my feet or hands and I wasn't having any swelling. It's like I aged 30 years in a matter of months. Weak muscles, burning muscles, pinching in buttocks, aching burning hips, burning lower back and knees. My bones ache and muscles cramped like crazy. It got to where it was hard to move some days. Couldn't sleep due to the pain. Was a total basketcase. This all happened from Jan 2015 until now. Luckily my Dr got to the bottom of things when he did bloodwork. I have been started on levothyroxin. Have been on it for a little over a month. The burning in my thighs and kneed has decreased alot so I am hoping it only gets better from here. Went back yesterday and they increased my dose to 88mcg. Hopefully it will only bring more relief because this burning in my back and hips can be something aweful and I cannot take pain medicine. I am only 31. I ended up stepping down from my job bc it just became too much for me. This disease is just so frustrating. I see that not everyone experiences the muscle and joint pain. If you don't, consider yourself blessed. I could deal with the anxiety, depression, thinning hair, ears ringing, loss of taste and constipation but the muscle and joint pain will sometimes leave me laid up for two days in pain if I overdo it and it don't take much to do that since I dont have the energy that I used to. I am hoping to get my joy and my life back.
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i would like to talk with others living with Hashimotos.
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i would like to talk with others living with Hashimotos.
Please post your thyroid related test results for the last several times you have been tested. Also, if tested for Vitamin D, B12 and ferritin, please post those as well.
Hi Teresa here. I am 61 years old, partial removal of thyroid at 33. 10 years later got Graves Decease. Got Radio Active tablet to drink, hospitalised and brought out the situation. Got to see a Endocrinologist, and he sorted out the TSH, T3 and T4 levels. I love this dr to bits! I started picking up weight, depressed, sat around all day, no energy , hair falling out, sore muscles, stiff joints. My medication was increased to 2 Eltroxin daily plus 2 Tertroxins. After feeling very bad in beginning, this changed my whole well being. Then comes the weight, 92kg.. Endo put me on medication to loose weight and 3 months later I joined a gym. Did very well, Endo decreased 2 Tetroxin to 1 due to (Blood results) By the way, I weighed the 85kg and that is after a year on diet medication. I weaned myself off this as side affects was getting to me. Anyway I am slowly getting back to 92kg , despite gym and spinning classes, and with latest blood results still on 1 Tertroxin, weak muscles, burning sensation on the bridge of my R foot, stifness in joints, my Endo seems to be happy with treatment. Is there ANYBODY out there that can help patients like us.???? Don't forget the endless dry skin, blurred vision. Or, is this ok to live like this?
2 Comments
Getting off the gluten and lowering my carbs helped me drop from 90kg down to 75kg in the last 12 months. Ph of the blood may be relevant regarding tendonitis. Lots of fruit and vegetables should help.
Getting off the gluten and lowering my carbs helped me drop from 90kg down to 75kg in the last 12 months. Ph of the blood may be relevant regarding tendonitis. Lots of fruit and vegetables should help.
numbness in feet only- nerve pain in the other areas mentioned. t4 range .8-1.97.
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