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My tongue- see picture

by kitty9309, Mar 31, 2008 08:33PM
Hey everybody-

Take a look in my "Photos" and you'll see a picture of my tongue. It is enlarged with scallpos around the edges like a pie crust.

B12 deficiency has been ruled out. My endo says the differential diagnosis is b12 def and hypo.

I am hypo, but TSH has been below 2 since December.

Any thoughts? Anyone else have a tongue like this?
Member Comments (17)

by Luvlaughlin, Mar 31, 2008 08:41PM
To: kitty9309
mine looks like that too - for at least the past 13 years. i have no idea why.

by kitty9309, Mar 31, 2008 08:50PM
Thanks- it is new for me since last summer when I really began to feel bad.

Maybe it is nothing?

by dscoochie, Mar 31, 2008 08:57PM
I have heard something about having a scalloped tongue...I'm sure it was a mineral deficiency of some sort.  I wish I could remember what it was I read.

I've give my non functioning brain a shake and will write again if I remember.  Try googling  it with deficiency to see what comes back.

Sorry you arent feeling that great.  Hopefully you'll feel better soon!

by Luvlaughlin, Mar 31, 2008 08:58PM
To: kitty9309
i hope it's nothing.

by kitty9309, Mar 31, 2008 09:07PM
A dental website says TMJ or hypothyroid.

Another site says it is from pressing the tongue against the teeth without realizing it.

Technically it is called macroglossia.

by borninquisitive, Mar 31, 2008 10:27PM
To: kitty
Darn girl! Are we thinking the same thing!? lol I wanted to post this today, in the other forum but didn't (I know I have mentioned it before). The reason I wanted to post, is yes...it is uncomfortable but silently...amyloidosis worries me. Albeit, it is rare and that much, I find some comfort in.  
See under primary hypothyroidism: http://www.patient.co.uk/showdoc/40000938/

As you know, my tongue isn't near as bad as yours. Recently, it has been worse. The indentions are becoming more pronounced. Yet and as you know, aside from borderline TgAb and T.S.I. my thyroid registers fine.

So, I am bothered with this condition for two reasons: discomfort and...fear. =-/ I wish I knew the answer and  resolve for both of us!

~Kate

by borninquisitive, Mar 31, 2008 10:38PM
As an addition, I have read that TMJ, Bruxism, tongue thrusting and B vitamin deficiencies can cause this.

by ChitChatNine, Apr 01, 2008 05:43AM
To: all
Wow .. this is interesting ... when my #'s were off I was moving my tongue against my front teeth .. something very new to me .. and finding I was getting a canker sore, pimple on the tip that was very sore and ulcerating .. my dentist saw it on my well-care exam, too.  However once we regulated my TSH (I am now 1.3) it has GONE AWAY completely.

If you are able to get on Dr. Lupo's site to ask if this is hypo-related give it a try and maybe even reference back to your photo for him to take a look at .. couldn't hurt.

Cheryl

by dscoochie, Apr 01, 2008 08:34AM
I remember now where I heard about the scalloped enlarged tongue.  It was from my Naturopath.  Sometimes I think she is wacky, but sometimes she gets it right.  

She checked my tongue when I first met her for longer than she checked anything else on me.  When I questioned her about it, she told me about TRADITIONAL CHINESE MEDICINE and that they believe that the tongue has a lot to do with YANG.  

I dont know if you are willing to try alternative medicine, but try looking it up and see what google can find.  It will make for interesting reading, at the very least.

Sorry I couldnt be more helpful.

by mednep, Jan 25, 2009 11:17AM
To: kitty9309
Yes I am also having the same issue !!! If you made the treatment please share with me. I am really worried about this.

by kitty9309, Jan 25, 2009 03:01PM
My tongue is still the same despite a TSH as low as 0.93. (Currently 1.2).

My free t4 and t3, however, hover just above the low end of the normal range.

Still working with endo and Lyme doc to get my levels optimal for me.

If the tongue gets better, I will certainly post about it here!

Good luck with yours. Sorry I don't have more insight for you.

by huscopp, Apr 03, 2009 10:57AM
To: kitty9309
Thanks for posting this.  I read it and looked in the mirror, and my tongue is scalloped now.  It's not as pronounced as your tongue, though.  I'm not sure how long it's been that way (I don't check out my tongue regularly).  Very interesting.  I only started having symptoms of something (hashimoto's?  feel like being strangled, thyroid sore on one side to touch, extreme fatigue) a few months back and am still waiting for the appt. with the endo.  I'll see what I can find out about it.

by skeeterknitwit, Apr 03, 2009 02:11PM
My accupuncture Dr. uses tongue diagnosis.  I think the scalloped edge is accumulated dampness from the liver and spleen.  I'm not sure that I "buy" the alternative explanations.  But I really like the way I feel after accupuncture.  Like a spa treatment that's covered by insurance.

by Smilerdeb, Apr 03, 2009 05:20PM
My tongue is like that (also with ulcerated mouth) when my FT3 and FT4 levels are down.
Hope that helps.

by Autumn1103, Apr 04, 2009 06:07PM
Ok, just because of your post I went and looked at my tongue in the mirror.  It is not as badly scalloped, but pretty close.  I have never noticed my tongue change before.  Either I didn't know to look or today is a bad day for me, but them I'm under a lot of stress right now.

by rickco, Apr 05, 2009 07:10AM
Hi my mum is also having the same looking tongue.
8 years ago she had overeactive thyroid and recover since than.
Recently, she is feeling bad again, but her TSH and Free T4 show normal.
Do all of you feel that the tongue is very uncomfortable?
Feel like it is tremoring?
And always feel like moving your mouth?

by Smilerdeb, Apr 05, 2009 07:15AM
I always felt like I had a swollen tongue...dry mouth, and shocking ulcers in the mouth which made me literally break down and cry.
I havent had it since being on Mega B Vitamin although I tried every remedy going.
Coincidence? I dont know.
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