Aa
Aa
A
A
A
Close
Avatar universal

New mum, new to hypothyroidism and having a hard time, any advice welcomed!

I gave birth to my daughter (first child) in Jan, I had to have an operation 8 weeks later to remove some retained placenta, following which I started to initially feel better having lots of energy then increasingly worse.  I kept thinking it was because I had a new baby and was breast feeding which was why I was so tired.  My symptoms of tiredness, fatigue, weakness, inability to remember things got worse so I had bloods and found my TSH was 80 and my T4 3, I was started on 25 mg of levo which didn't help then raised to 50 then 3 weeks ago had repeat bloods and found my TSH was 35 and T4 was 10 so my dose was doubled to 100, I initially felt like things were improving, I had stopped fainting and had more energy and sounded and felt more like my self and less zombified, but after doing a bit more my symptoms have returned but seem much worse, I can barley get up in the mornings, I have had extreme muscle pain, I feel short of breath and have started fainting and feel anxious.  I don't understand whats going on and have to have more bloods tomorrow and an ECG, and have been told to raise to 125mg, but I just don't understand why I'm feeling worse after a brief period of feeling slightly better, things feel really hard, does anyone have any suggestions as to why I might be feeling worse, and if I should up the dosage?
4 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Thanks everyone, I had all the tests including the ones mentioned by Gimel and am now just waiting for the results which are due in on Fri.  My dose has been increased by 25 so I will see how that goes.  Just a few questions, I have raised antibodies, does this mean that I have an autoimmune disease and if so what does this mean and which one? also I keep seeing different GPs and keep getting slightly different advice, would you recommend seeing a specialist and if so which one, a neurologist, endocrinologist?  Many thanks for all your advice!
Helpful - 0
231441 tn?1333892766
Gimel's advice on the testing is great.

Just want to let you know that you have to be a bit patient with getting thryoid properly treated.  It really does take quite a bit of time.  Please make sure they test FT3 as well as FT4.  It is very important that your FT3 levels are also at least mid-range.

Let us know your results tomorrow.

Helpful - 0
Avatar universal
I'm sure there will be a number of tests done tomorrow, but make sure they test you for the biologically active thyroid hormones, which are Free T3 and Free T4 (not Total T3 and Total T4).  I would even go so far as to make sure the lab people know it is to be Free T3 and Free T4, to avoid any mistakes.  Also suggest that you get tested fo rthe thyroid antibodies, TPO ab and TG ab, to see if Hashimoto's Thyroiditis is involved.  
Helpful - 0
Avatar universal
Hi.
So sorry to hear your story. I wish I could offer advice, but all I can say is I know how you feel!

Do you know if you're condition is permanent? It has been suggested to me that pregnancy can bring on short term in balance...

I had my baby nearly a year ago and had a blood test a few months ago which came back abnormal for thyroid. Was told to re check 8 weeks later which I've done and that's found very high antibody. Dr said not to do anything now, but just keep rechecking levels. Results appaas suggests an autoimmune disease... Well I'm not happy with that so seeing a different dr later today. I'll let you know if I learn anything that might help you too.
Helpful - 0
Have an Answer?

You are reading content posted in the Thyroid Disorders Community

Top Thyroid Answerers
649848 tn?1534633700
FL
Avatar universal
MI
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
We tapped the CDC for information on what you need to know about radiation exposure
Endocrinologist Mark Lupo, MD, answers 10 questions about thyroid disorders and how to treat them
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.