Nyxie, Apple .. & Lyme Disease

[ChitChatNine]

Nyxie .. good luck with HIDA Scan .. let us know when you get results or if they say anything during the test and/or how you feel when they inject the PCK hormone!

Apple .. I am so happy SOMEBODY is listening to you finally!!!!! Also sounds like PA was a blast!

That Lyme Disease is just awful .. I am so so glad you finally have a diagnosis ...... I wonder if it has affected your TSH at all and functions of thyroid .. how could it not!

C~

[Nyxie63]

Well, the scan itself was boooorrriiiinnngg!  

My ocd started to kick in after a few minutes and I had to fight the urge to get up and start scrubbing the scuffs on the machine and walls and to take down the air vent and run it under the sink.  There was a piece of tape on the ceiling that was driving me nuts!  This is why it's not a good idea for me to get bored.

And they didn't give me an injection of CCK.  Instead, they gave me this godawful "ice cream" type stuff that probably didn't contain a single natural ingredient.  Nausea, yes.  Abdominal pain, yes.  Get my results back in a couple of days.  They wouldn't tell me anything.  Phooey!

The funny (or not funny) thing about lyme is that it infects every system in your body.  It's not just joint pain.  Part of the problem is that many lyme symptoms overlap with so many other things.  Thyroid, adrenal, food intolerances, nutritional deficiencies, etc.  There are clinical studies out there (mostly in PubMed) that document lyme's effects on the endocrine system.  Lyme doesn't like a warm body and screws with the hypothalamus and pituitary in order to lower your body temperature.  I'm really hoping once I'm further along in treatment, some of these things will sort themselves out and go back to "normal".

The docs are also testing me for babesia and bartonella, which are also tick borne diseases.  They think I probably have these, but want confirmation before treating.  They're also testing me for all kinds of virusy stuff, since my Western Blot reacted to things other than lyme.

You should see the pile of meds/supplements I now have.  It'd be amusing if it weren't mine.  I'm seriously considering getting one of those under-the-bed storage boxes to keep all these in.  Half the fun is also going to be working out a med/supplement schedule so this thingy doesn't affect the purpose of that thingy.

Finally,I feel vindicated.  Persistance pays off.  It really does.  I'm going to get worse before I get better.  At least now I know what I'm dealing with and have a treatment plan in place.