Poll- cancer survivors- RAI

I have a question, how many of you have had more than one dose of RAI for your cancer?  How long after your initial dose did you have it???  1 year, 5 years??  I am just curious and anxious.........

[amela321]

I was diagnosed 22 years ago.  I had first RAI 2 months after diagnosis, second RAI about 10 months after diagnosis and am now scheduled for a third RAI due to a recent recurrence.  I just had surgery on Friday.  So the third RAI is 22 years after diagnosis.  Geeze, even I can't believe that and it's me, lol.

[utahmomma]

I had RAI three years after my cancer diagnosis due to recurrence.  I had 100mCi.  I'm probably looking at another treatment dose this year due to increasing TSH and Tg levels.  :-(

My sister had three doses of RAI within three years - I think that she started at either 100mCi or 150mCi (sorry, brain fog).  Her last dose was over 225mCi.

Yeah . . . fun.  :-(

[redhed87]

Thanks for the posts.  I figured my one time may not be it.  I hope so.

[Justin1967]

Hi there.. Yeap I reluctantly had RAI 6 months after surgery.. I'm probably due to zap the final remnant tissue sometime soon.. not fun.. Is thyrogen readily availbale for you?  Its not available here, so I have to go cold turkey..

[mersedeh]

6 months ago I did my first RAI, 150 mci, tomorrow  I am going to do my RAI scan........I might need second one as I had metasstase in my lungs...:( on that time they told me that I need to do another surgery and follow up with another RIA treatment.
But my TG reduced from 32 to 3.2, 1 and now is 0 but still They are not sure till I get body scan.
I am so stressed out...I can not till tomorrow aft.
Do you have any experience with 0 TG and positive papillary cancer?

[kazzer838]

Hi i had initial RAi in 2006 was clear, my TG has been coming bacl 0 since 2006 but i now have metasstase in the lung and neck lymph plus thyroid tissiue.

I am due second RAI tomorrow.