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Problems with Levothyroxine

by Bek4680, Apr 03, 2009 10:06AM
For the last year or two I have been having side effects from my Levothyroxine.  Insomnia, flushing, muscle pain, fatique, mood swings, etc.  I have always had problems taking any drugs.  I seem to be pretty sensitive to them.  What would you suggest taking for hypothyroidism that won't give me problems?  What is everyone else taking?
Member Comments (8)

by skeeterknitwit, Apr 03, 2009 10:50AM
To: Bek4680
If you are taking generic, try switching to a name brand Levoxyl.
I am certainly not an authority on the subject.  I'm recently hypo after RAI.  Only been on Levoxyl for 30 days.
I've heard that so many have problems with the generic that I decided to skip that part and request brand name to start with.

by Bek4680, Apr 03, 2009 11:51AM
To: skeeterknitwit
Thanks.  I'll look into that one.

by erika79, Apr 03, 2009 05:23PM
To: problems with levathroxine
I have the underactive and is on the same meds its your thryoid not the medicine is it controlled and the med doesnt give side effects  like that.

by erika79, Apr 03, 2009 05:26PM
the generic is the same im on it and have no side effects it could be your thyroid even when its controlled you can get symptoms check to see if you have a parathyroid problem and take a blood test for that. but your throid can fluh your face tiredness and more and moody you might need more med

by Bek4680, Apr 04, 2009 01:22PM
To: erika79
I have checked into that also.  When I go off the drug for 3 days, I feel tons better.  I have gone off them several times as an experiment.  Levothyroxine does cause those side effects.  I found them on this website http://www.drugs.com/sfx/levothyroxine-side-effects.html and several others.  Belive me, I wish it didn't.  I don't have health insurance and Levo is on the $4 list at most places.

by FTB4, Apr 04, 2009 01:51PM
To: Bek4680
There is a difference in Generic Levothyroxine and Name Brand Like Synthroid, I went from 10mg to 25, 50, 75, and finally 100 mg of Levothyroxine (Generic) At that time I started seeing an Endo, He informed me that when it comes to thyroid meds, Generics are not as consistant as name brand meds, all during this prior period my symptoms were all over the place, they would stop for a few days then reappear and I would feel bad for two days, The Endo put me on a name brand (Synthroid) 100mg, at this time my TSH was just over 6.0, six weeks later my TSH was down to .078, he adjusted the med to 88mg and now I am due for a follow up on the 9th, I still don't know if the medications caused all the symptoms or the thyroid condition itself, I did not start getting the aches, and spasms, and the general crappy feelings until I started taking the boost in meds at 50-75mg of Levothyroxine, and I still had some of the same symptoms after I went on the 100mg of Synthroid, So who knows what came first the chicken or the egg?
Anyway in my case the Name Brand seem to work for me musc better than the Generic and my out of pocket after insurance was only about 2.00 difference. Good Luck FTB4

by Smilerdeb, Apr 05, 2009 07:32AM
I am in Australia and Synthroid isnt sold or prescribed here but I take Thyroxin Sodium (Eutroxzig) which is a brand name and not a generic.
After reading many horror stories here about generic meds, I opted for Thyroxin after RAI in June last year and have done fine on it.
No side effects at all.....although the aches and pains DO come if my levels are not right and I am heading towards Hypo.Maybe this is the case with you
Like you I am very drug sensitive.
Get your levels checked.

by skeeterknitwit, Apr 06, 2009 07:44AM
To: Bek
OK, so you've been having problems with Levo for a year or 2.  How long have you been on the Levo all together?  Have they checked your levels?  Your symptoms are hyper, too much med.
I tried to study up on this one.  The generics can vary from the actul dosage by -25% to +25%.  We're talking micrograms here, not miligrams.  So you know that just a tiny adjustment could have a big impact on the body.  Brand names vary by -5% to +5%.  That's a big difference!
The brand names are a patented formula.  Generics are not.  They can have different fillers that could effect absorbtion.  And how do you know when the pharmacy switched from one generic manufacturer to another?  A few months ago, a national news report said that one foreign generic manufacturer has been banned from exporting to the USA because of cross-contamination of the drugs in their factory.  You know the problem probably existed long before it was found.  
My sister in law has had Hashi for 30 years.  This year she has gone hyper for no apparent reason.  She always takes generics.  Her Dr. just keeps pushing more Ambien so she can sleep.
The generics are $4.  I pay $12.28 for brand name 50 mcg Levoxyl.  That's the full price.  I haven't met my $3000 deductable yet.  The difference in price is only 2 cups of Starbucks per month.
I've only been on Levoxyl for a month.  So far, this has been much easier than what I anticipated.  I started with brand name and I'm sticking to it.  I'm worth it!   And I'm really enjoying my sleep.
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