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Question about a strange (and unnerving) feeling
Two weeks ago, I took the I-131 treatment for my Graves disease and have slowly begun the descent from hyper to hypo. While I'm sure it's far too soon to be feeling any "hypo" effects, I have something strange going on that is starting to concern me. What will happen is I'll start getting a little lightheaded, so I'll check my pulse. It'll be a normal rhythm (around 60-70bpm), but it will feel...weak. After I check it I'll get a full body sensation of like a cold tingling, followed by sweating and a slightly blurred vision. It'll last for a few minutes, but it happens quite a bit (has happened more often ever since I got the treatment). Afterwards I get very anxious. I can't tell if it's an anxiety attack or if it's something medical, but has anyone else had this happen to them? I'm wondering if it's something to dowith my thyroid or something else entirely.
I would book in for labs around the 4-5 week mark.
I wouldnt wait until the 6 weeks is up.
The PTU mustve been because the levels were high (FT3/4) so they will want at least 2 weeks of no PTU to get a proper reading of whats going on thyroid wise.
Stay on the beta blocker until you get no palps or fast heartrate.
I wouldnt wait until the 6 weeks is up.
The PTU mustve been because the levels were high (FT3/4) so they will want at least 2 weeks of no PTU to get a proper reading of whats going on thyroid wise.
Stay on the beta blocker until you get no palps or fast heartrate.
Well the funny thing is I'm already on a beta blocker. I'm still on my PTU as well. What they did was, I took the RAI on a Wednesday, and then the following Monday I went back on my normal regiment (4 PTU 3x a day, 3 Propranolol 2 times a day). I'm supposed to keep this up until Sunday, when I get off of the PTU but stay on the Propranolol. And, my Endo didn't schedule my first blood test until May 14th.
The most safest med to take is a beta blocker while this is going on.
It doesnt last for long...usually a few days...a week at most.
The thyroid releases the most hormone between 3-4am so thats why your not sleeping.This is when your thyroid is dumping.
This is a temporary thing and wont last much longer , I promise.
Even if you took a low dose beta blocker just before going to bed (I did this) and the sweats, night terrors (yes you can get them lol) , the anxiety will disappear.
Word of advice.......take each day as it passes and write EVERY symptom down so you can refer back to this if this happens again due to being dosed too high with the T4 med.
The vitamins should not be taken within 4 hours of any T4 med (when you start) but safe to take at present.
I take mine at night so as not to conflict with the T4 med.
Xander...the worst is over ..Hun :o)
You will NEVER feel the same way as you did with Hyper before RAI and if you do go hyper...its not such severe symptoms.
It doesnt last for long...usually a few days...a week at most.
The thyroid releases the most hormone between 3-4am so thats why your not sleeping.This is when your thyroid is dumping.
This is a temporary thing and wont last much longer , I promise.
Even if you took a low dose beta blocker just before going to bed (I did this) and the sweats, night terrors (yes you can get them lol) , the anxiety will disappear.
Word of advice.......take each day as it passes and write EVERY symptom down so you can refer back to this if this happens again due to being dosed too high with the T4 med.
The vitamins should not be taken within 4 hours of any T4 med (when you start) but safe to take at present.
I take mine at night so as not to conflict with the T4 med.
Xander...the worst is over ..Hun :o)
You will NEVER feel the same way as you did with Hyper before RAI and if you do go hyper...its not such severe symptoms.
Thanks for all the good information. It's nice to know that my body isn't just giving up on me (which is your "Am I still alive?" feeling :P). Unfortunately it's affecting my sleep as well (hence why I'm here posting at nearly 2am). I was given a prescription for Ambien in case this started happening, but for the life of me I'm scared to death of those pills. I'm already a sleep-walker/talker, I don't need something that amplifies that feeling hehe. Anyone have any natural alternatives?
Also, are those one-a-day vitamins safe to take during this transition?
Also, are those one-a-day vitamins safe to take during this transition?
Its basically the start of 'going to the other side' as I call it.
If and it may not be the case just yet ....you are put on a T4 med....it will be a very small dose to start with.
Now is the time to start researching everything about HYPO.
I was so 'used' to having the racing heart...the heartbeat pounding in my head that it felt 'strange' when it was no longer there.
After 20 odd years, its like a "Am I still alive?" feeling lol.
Stella is right...get your labs done.
You may find the TSH has come up and the FT3 has come up but the FT4 lower.
This is due to the fact that the FT3 causes the 'hyper symptoms'.
It will subside as slowly the thyroid slows down production.
Graves is the least of your problems.
HYPERTHYROIDISM is something I wouldnt wish on my worst enemy.
You are at the turning point by the sounds of it and now comes the time to satrt educationing yourself on HYPO and what to expect.
Regardless of being both hyper and hypo after RAI...it was absolute he// BEFORE RAI and the symptoms are not as severe now.
They are easy to manage compared to being Hyper and having a thyroid....way easier.
(((HUGS)))
If and it may not be the case just yet ....you are put on a T4 med....it will be a very small dose to start with.
Now is the time to start researching everything about HYPO.
I was so 'used' to having the racing heart...the heartbeat pounding in my head that it felt 'strange' when it was no longer there.
After 20 odd years, its like a "Am I still alive?" feeling lol.
Stella is right...get your labs done.
You may find the TSH has come up and the FT3 has come up but the FT4 lower.
This is due to the fact that the FT3 causes the 'hyper symptoms'.
It will subside as slowly the thyroid slows down production.
Graves is the least of your problems.
HYPERTHYROIDISM is something I wouldnt wish on my worst enemy.
You are at the turning point by the sounds of it and now comes the time to satrt educationing yourself on HYPO and what to expect.
Regardless of being both hyper and hypo after RAI...it was absolute he// BEFORE RAI and the symptoms are not as severe now.
They are easy to manage compared to being Hyper and having a thyroid....way easier.
(((HUGS)))
the thyroid dumbs are weird to go through
Sure ounds like that to me too.
My feeling is if you have already passed 2 weeks since RAI and moving into week 3? - get you labs done.
It won't hurt to run those now
Just knowthat if you go to get them don nxt week. - You need to also go again in anoher 3-6 weeks -regardless ifthe doctor chooses to start medication on the first initial draw
Sure ounds like that to me too.
My feeling is if you have already passed 2 weeks since RAI and moving into week 3? - get you labs done.
It won't hurt to run those now
Just knowthat if you go to get them don nxt week. - You need to also go again in anoher 3-6 weeks -regardless ifthe doctor chooses to start medication on the first initial draw
It is your thyroid 'dumping....both hyper and hypo symptoms.
You are heading HYPO.
I was hypo after 5 weeks with RAI.
Dont let your Doc/Endo let your levels go over 10.0 with the TSH.
It is your thyroid and is absolutely normal.
Research about RAI and dumping.
Even better...read my journals.
The thyroid will try one last time to 'fire up' and 'spike' just before you go Hypo.
If you have beta blockers...take them for 2-3 days...thats all you will need to stop the racing heart when the thyroid dumps.
The worst is OVER!
(((hugs))))
You are heading HYPO.
I was hypo after 5 weeks with RAI.
Dont let your Doc/Endo let your levels go over 10.0 with the TSH.
It is your thyroid and is absolutely normal.
Research about RAI and dumping.
Even better...read my journals.
The thyroid will try one last time to 'fire up' and 'spike' just before you go Hypo.
If you have beta blockers...take them for 2-3 days...thats all you will need to stop the racing heart when the thyroid dumps.
The worst is OVER!
(((hugs))))
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