Aa
Rant
I know it is TGIF but I am sending this early so not to ruin the mood. I have been so sick recently and my lab work is totally off the wall. I wanted the doctor to realize how terrible I was feeling so my husband sat in for back up. Unfortuately he told the doctor he was ready to commit me to a psychiatric facility because of my mood swings, usually brought on by pain. I convinced the dr to order a CT of my chest and abdomen because I have so much pain. It showed nothing, of course, and his nurse told me the doctor said I should find a new doctor. So much for the Hippocratic oath! Does anyone else out there have a really high CRP (88), Sed rate (121), low Chloride, anemia, and low creatinine. Also, I read that thyroid disease can cause everything to taste like salt, and that is all I can taste 24/7. My mouth just tastes like I have eaten a whole lot of salt! I also have had shingles the past month over the right side of my abdomen. Any suggestions would be welcome!
Hi I also have really high CRP...it was 190 or thereabout before and is now
213, I`m sure the range 9-12, I also have high calcium phospate levels
though don`t know how high as was only told this last week.
I have asked about the CRP on many occasions but was brushed off or
doc just ignored me.
I have googled it but didn`t really understand (some said heart related other
said infection) I have 2nd appt with endo tomorrow and will def be asking again.
I`ve just been released from hospital again
(check "rant" in my journal) and am truly at end of rope with all this, I also would
cut my thyroid and bowel out at the moment. I am chronically constipated
despite laxatives every day, vomit constantly and (new one lol) am passing
water every 10/15mins and wake up at least 5 times a night.
Hope you feel better soon and I`ll post anything I get from endo about the CRP.
ps: also got the metallic taste and extremely dry mouth!
213, I`m sure the range 9-12, I also have high calcium phospate levels
though don`t know how high as was only told this last week.
I have asked about the CRP on many occasions but was brushed off or
doc just ignored me.
I have googled it but didn`t really understand (some said heart related other
said infection) I have 2nd appt with endo tomorrow and will def be asking again.
I`ve just been released from hospital again
(check "rant" in my journal) and am truly at end of rope with all this, I also would
cut my thyroid and bowel out at the moment. I am chronically constipated
despite laxatives every day, vomit constantly and (new one lol) am passing
water every 10/15mins and wake up at least 5 times a night.
Hope you feel better soon and I`ll post anything I get from endo about the CRP.
ps: also got the metallic taste and extremely dry mouth!
COMMUNITY LEADER
My top teeth had to be taken out about 13 yrs ago and I have a full top denture - acrylic - no metal......... Just metal in bottom partial..... but like I said, I've had that for years and no problem, funny it would start all of a sudden like that.
I had no idea that hypo would cause the metallic taste, but, thanks, I will definitely talk to my endo about it when I go in on the 30th......
I had no idea that hypo would cause the metallic taste, but, thanks, I will definitely talk to my endo about it when I go in on the 30th......
Sounds like Hypo and worth noting down too.
I even went to the Dentist and had a full clean because of the taste.
Some idiot technician told me prior to that , that my gums were infected and the taste was from that...DURR.
My teeth are fine and so are my gums and it was Hypo that caused it.
Damn tech advised me to have all my top teeth out.
Good job I took no notice of her.
I mean....why would I want my teeth out if no fillings needed and no pain????
I even went to the Dentist and had a full clean because of the taste.
Some idiot technician told me prior to that , that my gums were infected and the taste was from that...DURR.
My teeth are fine and so are my gums and it was Hypo that caused it.
Damn tech advised me to have all my top teeth out.
Good job I took no notice of her.
I mean....why would I want my teeth out if no fillings needed and no pain????
COMMUNITY LEADER
The metal taste is like the metal in MY partial, but I've had my partial since I was 23 and never had the taste until a little over a year ago - actually it WAS before I was dx'd when, at the time of dx, it turned out my TSH was up to 55+ and Free T4 was about 0.1!!!
It's never gone away, even though my levels WERE in the normal range at last test. Next round of testing is Monday - the 15th - and I don't have high hopes of being "normal" this time. HypO symptoms abound..............
It's never gone away, even though my levels WERE in the normal range at last test. Next round of testing is Monday - the 15th - and I don't have high hopes of being "normal" this time. HypO symptoms abound..............
You will feel a lot better as I do know Hyper is he// :(
Also I noticed that after RAI and TT that the symptoms of hyper and hypo arent as 'full on' as they were when I had a thyroid.
They seem to be 'less' intense.
Dont ask me why but thats the only way to describe it.
Learn all you can about HYPO as you will go hypo after the TT and need to watch for symptoms.
Also get on Calcium after TT and dont leave the Hospital without a T4 med.
Some send you home without it ...dont let that happen.
Have it ready at home to take when the time is right.
I always say T4 should be taken when the TSH hits 6.0 but in the case of a TT, it should be started not long after,.
Redhead is an expert at TT....message her.
Good Luck:)
Also I noticed that after RAI and TT that the symptoms of hyper and hypo arent as 'full on' as they were when I had a thyroid.
They seem to be 'less' intense.
Dont ask me why but thats the only way to describe it.
Learn all you can about HYPO as you will go hypo after the TT and need to watch for symptoms.
Also get on Calcium after TT and dont leave the Hospital without a T4 med.
Some send you home without it ...dont let that happen.
Have it ready at home to take when the time is right.
I always say T4 should be taken when the TSH hits 6.0 but in the case of a TT, it should be started not long after,.
Redhead is an expert at TT....message her.
Good Luck:)
Butcher eh? Good thinking....when I am in full on hyper I want to remove mine myself with anything handy. My thyroid will be removed by a professional in November. :)
My Doc knows all about my Graves Rage lol !
I stormed in his office one day (no appointment, mind you) and told him to get my thyroid out or I was going to get the damn Butcher to take it out! (my butcher joked that day that he would take it out for me lol).
Well....Umm....that was the beginning of a very lovely Doctor taking NOTICE of just how bad I felt and just how sick I was.
From then on, I saw him every 3 days until RAI.
To this day he still thinks I was serious about the Butcher and to be totally honest, at the time I think I wouldve let the Butcher take it out!
Thats Graves Rage for you and something I am not proud of.
BUT it made my Doc sit up and take notice.
Now he says that he never knew which "Deb" was there to see him for the appointment.
The 'nice' Deb or the 'Raging Deb'.
Thyroid illness can be such a debilitating disease and my heart goes out to everyone here as each one of us at some time or another has been to he// and back.
I stormed in his office one day (no appointment, mind you) and told him to get my thyroid out or I was going to get the damn Butcher to take it out! (my butcher joked that day that he would take it out for me lol).
Well....Umm....that was the beginning of a very lovely Doctor taking NOTICE of just how bad I felt and just how sick I was.
From then on, I saw him every 3 days until RAI.
To this day he still thinks I was serious about the Butcher and to be totally honest, at the time I think I wouldve let the Butcher take it out!
Thats Graves Rage for you and something I am not proud of.
BUT it made my Doc sit up and take notice.
Now he says that he never knew which "Deb" was there to see him for the appointment.
The 'nice' Deb or the 'Raging Deb'.
Thyroid illness can be such a debilitating disease and my heart goes out to everyone here as each one of us at some time or another has been to he// and back.
I have never had RAI, although I would think that this may be needed as my trachea is 50% compressed by my thyroid and it is grwoing down into my chest and around my carotids. I do not use salt either and the taste is just so horrible nothing tastes good. I also have just been off the wall this week - everything little thing sets me off. Does anyone else just feel like you are gioing to scream because of rage. Not PMS I'm too old!!! I hate myself for it and sometimes when all of the pain gets so severe I just don't know what to do. I am going to call doctors tomorrow and try to see someone who will listen and do some more tests. Thanks to all of you!
Years ago I commented to both my GP and dentist that I had a metallic/salty taste in my mouth. Neither offered any idea on what it could be. If it is that common with thyroid patients, why isn't it recognized more? I was never diagnosed with any thyroid illness until I had thyroid cancer 3 years ago. My endo said it had been there for a while as the growths(5) were quite large(4.8cm)
Trish
Trish
Yes it could be something to do with zinc. You have to keep in mind - zinc is a hard mineral and you must not overindulge in it.
It doesn't hurt to give it a try - about 60mgs daily is max.
It doesn't hurt to give it a try - about 60mgs daily is max.
Barb...does the metal taste like a filling in yr mouth?
I had that horrible taste and thought it was from the metal on my partial bridge (plate).
I was wrong.
It was from me being Hypo.
As soon as the levels were stable..the taste went.I have never had it back since then to be honest.
Food for thought Barb.....
I had that horrible taste and thought it was from the metal on my partial bridge (plate).
I was wrong.
It was from me being Hypo.
As soon as the levels were stable..the taste went.I have never had it back since then to be honest.
Food for thought Barb.....
Wow what an informative thread and I'm so sorry your doctor dumped on you ... just goes to prove he is NOT the one for you. Use this an empowerment to move on and get a diagnosis .. don't let him get to you. WE are here for you anytime and we never judge!
C~
C~
COMMUNITY LEADER
I don't have the "salt" taste, but DO have the metal taste..... I've had it since I was put on synthroid last June.
I have that salt taste in my mouth too. I thought I was just eating too much salt and I do crave it. I don't even like it. : )
I have had it since RAI. You think zinc, Stella5349?
I have had it since RAI. You think zinc, Stella5349?
No, I wasn't on any antibiotics at all even though I thought I should have been. The reason: my cat bit me when I was trying to give it a pain injection when it had lymphoma. It bit the arm corresponding to breast cancer and lymph node removal in 1993. My arm is still swollen - lymphadedema - which I have never had before and which the doctors are ignoring!
This may be off the wall - but what you indicate - to me - sounds like a zinc deficiency. This happens to many thyroid patients . What locked that thought for me was your shingles and the salt taste. That clearly is an immunity issue and zinc is connected with that.
Were you on a strong antibiotic prior to the shingles?
Were you on a strong antibiotic prior to the shingles?
I too have Graves and had RAI a year ago and remember oh so well, the salt taste in the mouth.
I only got the salt taste when I was hyper. I also had a 'metal' taste in the mouth too and that was a shocker.
Nothing like that since RAI but I know when my meds are too high as I get ulcerated mouth and tongue.
Why such a big gap in labs when you arent well?
If your levels are out then yr Doc should be working with you to get them right by 2-3 weekly blood tests.
Find another Doctor ....he isnt doing his job well enough for my liking.
I only got the salt taste when I was hyper. I also had a 'metal' taste in the mouth too and that was a shocker.
Nothing like that since RAI but I know when my meds are too high as I get ulcerated mouth and tongue.
Why such a big gap in labs when you arent well?
If your levels are out then yr Doc should be working with you to get them right by 2-3 weekly blood tests.
Find another Doctor ....he isnt doing his job well enough for my liking.
My last thyroid tests were in December. I am having them repeated in July. They are never correct. TSH is always too high. Yes I see a rheumatologist who is wonderful but she does not think this is related to fibromyalgia or arthritis. I had Graves disease in 1977 and then after treatment converted to Hashimotos. SO much fun! Right now I am awaiting blood tests to see if I have cancer.
Have you seen a rheumotologist? I would suggest seeing one. Do as much reading as you can on the internet as well.....be your own advocate. Do you have autoimmune thyroid disease? Have you been tested for these....Hashimoto's and Graves?
What were your most recent thyroid lab results?
What were your most recent thyroid lab results?
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