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Regulating TSH after Thyroidectomy

by PurpleKate28, Oct 19, 2008 06:44PM
I was diagnosed with Papillary Cancer when half of my thyroid was removed on 10/17/07.  One week later, the rest of my thyroid was removed, and about 5 weeks later I had RAI.  Since then, we've been playing the game of regulating TSH.  I was getting *close*.... got to .9 in July but it made my heart race; I was on 175 mcg Synthroid at that time, so they decreased it to 150.  I just went for follow-up bloodwork and my TSH has jumped above 11. (I should've known... I've been feeling awful!)  I was shocked that with a decrease of just 25 mcg, my TSH could climb so out of control.

Has anyone had something similar happen?

How long did it take to regulate your TSH after TT?

I'm just SO READY for good news...  enough bumps in the road and setbacks already!!!
Member Comments (1)

by utahmomma, Oct 19, 2008 07:55PM
What is your thyroglobulin (Tg) level?  If they haven't checked it, *insist* on it ASAP.  That is your cancer marker.  If your Tg is off (meaning there is still thyroid tissue or thyroid cancer) your TSH will be very, very difficult to control.

Utahmomma
papillary carcinoma '03, second surgery '04
  recurrence and RAI '06 and '08
three sisters with papillary carcinoma (one with three recurrences/RAI)
another sister and my daughter with precancerous nodules
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