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Results from biopsy

Finally had appt with endo on Wednesday last week.  Was kind of diaappointed, after driving 150 miles in snow, turned out to be about a 5 minute visit.  Did have biopsy of nodules, turned out benign (Yay!).  They call it 'degenerative colloidal cysts', whatever that means.  They also took blood to test for autoimmune disease as that runs in family, don't know those results yet.  Endo did  take me completeley off of Synthroid.  Don't know if this means anything, but the day after I stopped Synthroid my tonsils swelled up & became infected, I had acne on my face suddenly become hugely infected and my period got extremely heavy - to the point I got light-headed.  I was a wreck - crying and shaking, not knowing what was going on with my body.  Is this what they call a 'thyroid storm'?  Going in for Barium swallow on Thursday to find out where compression is.  Ultrasound still showed numerous nodules - largest being 1.5 cm.  When does this end?
17 Responses
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Avatar universal
Roflmao.
Helpful - 0
12758 tn?1201219680
rofl....ok...but I don't think I can sing...gonna have to get someone to dub in the singing for me...oh...we could have an educational course on the site and when completed we could give everyone a smiley sticker with a double smiley...:))
Helpful - 0
Avatar universal
And our National Anthem can be " Our Lump, Our Lump, Our Lovely Thyroid Lumps...Check It Out!!!!!
Helpful - 0
11852 tn?1216841443
New book coming soon to a book store near you..."Welcome to the Double Smile Club - Our Journey From Hyperhell to Hypohell and Back"...featuring a drive down I-131: The Road Less Traveled"
Helpful - 0
12758 tn?1201219680
hey, that sounds like a great idea!
Helpful - 0
168348 tn?1379357075
We could get together and do a website ...... ?

C~
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Avatar universal
utahmomma is right, there is a book out titled
'Thyroids for dummies' By Alan L. Rubin, MD
http://www.drrubin.com/books/Thyroid_For_Dummies

From what I understand, Thyroid Cyst is just a fluid filled swelling, which is of no significance. It can be drained by sticking a needle into it and withdrawing the fluid. If it recurs several times then surgery may be needed.
Multiple Cysts (Colloid) is a collection of many small cysts, and is of no importance. If very large it may require surgery to remove it.

Just my personal opinion and/or experience. Always discuss your health issue with your doctor , always adhere to your doctors advise and, you always have the right to a second opinion. Nothing is a 100% or a 100%, 100% of the time. However, we are not all alike!

GL,
1990 - Hyper/Graves'
1997 - Dia/RAI
1997 - MVP - Mitral Valve Prolapse
1999 - TED - slight Thyroid Eye Disease
1999 - Visible Nodule (suspect Marine-Lenhart-Syndrom/hyperfunctioning nodule)
2000 - SAS  - Short Attention Span (short, spaced paragraphs, sweet and to the point helps)
2002 -  IED  - Intermittent Explosive Disorder (Graves' Range)
2007 -  A/ITP (suspect)
Helpful - 0
12758 tn?1201219680
I don't believe it! rofl...
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158939 tn?1274915197
Um, yeah . . . your wish is Amazon's command:  
http://www.amazon.com/Thyroid-Dummies-Health-Fitness/dp/0471787558/ref=sr_1_1/002-5282457-1713664?ie=UTF8&s=books&qid=1173150592&sr=1-1

I haven't read it so no recommendations from me.  I just remembered seeing it at Barnes & Nobel and thought "yeah, they will need a second version after MY family"  :-)

Cheers all
Helpful - 0
12758 tn?1201219680
well they have a "blank for dummies" on every other subject :) why not this one. unfortunately probably has nothing we don't already know in it lol...maybe for the families ....as you suggested utah...
Helpful - 0
158939 tn?1274915197
I think we all should get together and write OUR OWN collective book.  Everyone here has been more informative and supportive than any book or doctor I've come across!!

Love to y'all!
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12758 tn?1201219680
if you find that book, I want a copy, too
Helpful - 0
Avatar universal
No you are not having a thyroid storm  which is a hyperthyroid issue and very rare.  
For hypos its Myxedema Coma - life-threatening complication of untreated hypothyroidism which is also very rare.

It might take 6 to 8 weeks for synthroid to get completely out of our system.
I don't know why you are suffering from those type of symptoms. It might be that  you are slowly going hypo.  Is your doctor planning on other test, perhaps is why your doctor took you off meds.?

The active ingredient in Synthroid and the other replacement hormones is chemically identical to our body's own thyroxin (T4). Levothyroxine - Synthroid , Unithroid, Levoxyl and Levothroid thyroid hormone medications are not a chemical meant to trick our system in any way.  It is not toxic like other medications since it is made the same as our naturally occurring thyroid hormone. Our bodies are designed to use this chemical, every day of our lives. In a way, this synthetic product is the most natural of all our treatment options.  ATDs are another matter.

If you start to feel very lethargic, especially to the point of slurring your words and sleeping more than normal, call your doctor or go to ER.  

I think, you should be ok, but just want you to be aware. Like I mentioned, this is very rare. Btter saffe than sorry later ;)

Feel better soon!


Just my personal opinion and/or experience. Always discuss your health issue with your doctor , always adhere to your doctors advise and, you always have the right to a second opinion. Nothing is a 100% or a 100%, 100% of the time. However, we are not all alike!

GL,
1990 - Hyper/Graves'
1997 - Dia/RAI
1997 - MVP - Mitral Valve Prolapse
1999 - TED - slight Thyroid Eye Disease
1999 - Visible Nodule (suspect Marine-Lenhart-Syndrom/hyperfunctioning nodule)
2000 - SAS  - Short Attention Span (short, spaced paragraphs, sweet and to the point helps)
2002 -  IED  - Intermittent Explosive Disorder (Graves' Range)
2007 -  A/ITP (suspect)
Helpful - 0
Avatar universal
Yeah, regular doctor put me on Synthroid because of nodules & trouble swallowing.   I was up to 200 mcg but couldn't sleep, so doc took me down to 100 mcg when endo took me completely off.  Endo's reason - wasn't doing anything for me so just stop taking.  On the second day Synthroid-free I was shaking and crying and couldn't remember what day it was - and I'm usually a very anal person.  I don't like the feeling of being out of control.  I can't wait for this stuff to be completely out of my system.  But was just wondering if anyone knew what 'degenerative colloidal cyst' meant?  Having a hard time finding anything on the internet - they should write a book 'Thyroids for dummies' or something like that.
Helpful - 0
12758 tn?1201219680
I would have thought tapering off would be a better approach...but why did the endo take you off in the first place? did you get some blood work back...even if it is normal...that doesn't make sense to me??? So if you don't have the antibody test results back you don't know if you have Hashimoto's or not, right? were you put on the synthroid because of the nodules? or other symptoms?
Helpful - 0
Avatar universal
yahoo on the benign results.but why did endo take you off the synthroid?Your reaction was coming off the syntroid will do that .It messes with all your body systems.I have got the worst breakouts in the oddest places since I am in hypohell till next week.
Let us know how it goes.
Love Venora
Helpful - 0
176838 tn?1211460374
I'm sorry it wasn't a really helpful visit - I've had those kind of visits myself.  But I am glad that your biopsy results were benign.  I don't believe you're having a thyroid storm, that usually ends up with you passing out or becoming so sick you *know* you're having one.  But as synthroid is a synthetic hormone and women's bodies are so sensitive to hormones I'm not surprised that your body went out of whack at the change.  What I've heard many times on the forums (I don't have much experience as I've only been on synthroid less than a week) is that a lot of peoples' bodies react in changes to synthroid (up or down) and that it takes several days to a week or two for everything to straighten out.  So hopefully after some times passes your body will sort itself out but in the mean time if you continue to get worse I would call your endo back & see if he wants to maybe taper you off the synthroid instead of cold turkey.  Just my 2 cents.

Rayne
Helpful - 0
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