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1355431 tn?1369975306

So confused!!

Ok here is the scoop! I am 28 now  and was diagnosed with gravesdisease/hyperthyroidism  when I was 26. Ok I had my total thyroidectomy in april 2010. My TSH levels are now 0.01. That would still be considered hyper right? Ok here is the weird part. After the surgery  I am constantly gaining weight despite my healthy diet and exercise rountine. I have muscle spasms and aches. Cold feet/ hands and Im always tired no matter how much sleep I get. Now to me that sounds like hypothyroidism not hyper. My synthroid level is 125 mg. So confused how my syptoms completly changed but my TSH is still saying I am hyper. This stuff is so confusing I just want to feel like myself again. :(   Help please!!! Thanks
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Avatar universal
this is so true. I  had hypothyroidism and I was taking sythroid. I felt bad would gain 5 pounds on something small. I could not eat normal. I bought and read the thyroid diet book and it gave me some new insite. I asked the doc for some t3 and up my synthroid. He did and I feel great. Well I had my tests done and my tsh was low which showed i was in hyper thyroidism. The doc said well as long as you feel good and are not exhibiting hyperthyroidism then we will keep you on the meds. and he did. Also I always had low good cholesterol. I read in the book the t3 could bring it up and it did. It is a good book .. READ IT
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1355431 tn?1369975306
Gimel wow thanks for all the great info! I did the whole hyper/graves thing for so long and now everything is the exact opposite. Anyway I wont get my blood tested for another 6 weeks , but I will post the results then. Also my endo has never tested for FT3 or FT4 only TSH, so thats kinda weird. I am gunna ask her to test next time, now that I know how important it is. Also great link! Thanks again
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Avatar universal
It is not at all unusual for a patient taking a significant dosage of thyroid meds to have TSH suppressed to low end of range and below.  My own TSH has been less than .05 for over 25 years with no hyper symptoms.  In my opinion you should be considered hyper only if you have hyper symptoms caused by excessive levels of the biologically active thyroid hormones, free T3 and free T4.

TSH is a pituitary hormone that is affected by so many variables that it is inadequate as a diagnostic for thyroid problems.  At best it should be used as an indicator, along with more important indicators such as symptoms and also levels of FT3 and FT4.  FT3 is the most important because it is four times as active as FT4, plus studies have shown that FT3 correlates best with hypo symptoms.  Symptom relief should be all important, not TSH level.  Frequently we hear from members that symptom relief for them required that FT3 was adjusted into the upper part of its range and FT4 was adjusted to at least midpoint of its range.  

I think the first thing you need to do is to get the doctor to test for FT3 and FT4 (not total T3 and total T4) , along with TSH.  If the doctor resists, then you should insist on it.  You are the customer, so don't take no for an answer.  When test results are back, make sure to get a copy and note on there the dosage of medication and how you were feeling at the time.  Doctors are required to provide a copy upon your request and these copies are an invaluable reference for the future.  When you have results, please post results and reference ranges from the lab report and members will be happy to help interpret and advise further.

One thing to do also, is to find out if your current doctor is going to be willing to treat your symptoms as I've described.  If not, then you will need to find a good thyroid doctor that will do so.

While you are thinking about all this, I think you will benefit from reading the article in this link, written by a doctor.

http://www.hormonerestoration.com/Thyroid.html
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