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Spin off question about Mary Shomon
I'm just wondering, where does everyone get their information? What books/authors do you feel are legit? Which do you find not to be legit? Why? Do you listen to a lot of what your Dr. says?
Just thought this could be an interesting subject considering all the information that is out there (or sometimes the lack of information).
Just thought this could be an interesting subject considering all the information that is out there (or sometimes the lack of information).
COMMUNITY LEADER
AR-10 has not been active on the forum for several years, so it's unlikely that you will receive a response to your comments.
It's very unfortunate that you had an unpleasant experience with T3 med.
There are those of us that really need it and there are those who only do well with a desiccated hormone. On this forum, we don't advocate one form of medication over any other... we're all different and we don't all need the same medication or dosages.
Unfortunately, the AACE and many endocrinologists are not working for the good of the patients, when they recommend and test only TSH and insist that Synthroid is the only med to be used. Many endos specialize in diabetes and are not good thyroid doctors. Likewise, many so-called "experts" keep their patients ill by refusing to do adequate testing and/or consider all types of thyroid hormones.
We don't hear from people who are receiving adequate treatment for their thyroid condition. We hear from the ones whose doctors, mostly, adhere to the TSH belief or the ones whose doctors believe that any results "in range" are fine, when that's not the case.
I'm glad you're doing well on Synthroid.
It's very unfortunate that you had an unpleasant experience with T3 med.
There are those of us that really need it and there are those who only do well with a desiccated hormone. On this forum, we don't advocate one form of medication over any other... we're all different and we don't all need the same medication or dosages.
Unfortunately, the AACE and many endocrinologists are not working for the good of the patients, when they recommend and test only TSH and insist that Synthroid is the only med to be used. Many endos specialize in diabetes and are not good thyroid doctors. Likewise, many so-called "experts" keep their patients ill by refusing to do adequate testing and/or consider all types of thyroid hormones.
We don't hear from people who are receiving adequate treatment for their thyroid condition. We hear from the ones whose doctors, mostly, adhere to the TSH belief or the ones whose doctors believe that any results "in range" are fine, when that's not the case.
I'm glad you're doing well on Synthroid.
I agree. I was blocked and publicly berated by Janie B. on STTM for sharing my very scary story with T3 and Naturethroid and find Mary Shomon to be the same hack. I simply asked if someone out there had the bad experiences I did. I sadly tried their recommendations and ended up in the hospital with atrial fibrillation after strong arming my poor doctor. She humiliated me on her forum for speaking up against her protocol and that it doesn't help everyone, then she banned me. Nice, right? I think it is dangerous to say that an MD is the same as an M.Ed as Ms. STTM states she is. Well good. You're a teacher, I'm a nurse and doctors are doctors who spend a large portion of their lives dedicated to caring for us and researching the best way to do no harm. I find these two sites to be incredibly dangerous. Here is another thing- there are an estimated 24 million people in the US alone with thyroid issues. That is about 7-8%. We only hear from a VERY small fraction of those people on the internet complaining and speaking against the AACE and Endocrinologists. I find this interesting. My mother in law has been on synthroid for hashi for over 35 years and the woman at 70 looks AMAZING. I'm also on synthroid and I'm staying put after those three hospitalizations for cardiac issues related to T3 supplementation or natural thyroid. I haven't had many issues since going back on synthroid except a minor palp here and there... Yikes. I'd recommend listening to your doctor. He or she is the expert.
I've read two of Mary Shomon's books because they were the only two the library had. Both books pretty much said the exact same thing and the only thing I got out of either of them was that eating 30 grams of fiber a day would help me get regular!
I'm on the waiting list now for a book called "The Thyroid Solution" by Ridha Arem. I met a friend of a friend who said it was the best book she's read about thyroid issues. Anyone heard of it?
I'm on the waiting list now for a book called "The Thyroid Solution" by Ridha Arem. I met a friend of a friend who said it was the best book she's read about thyroid issues. Anyone heard of it?
AR-10: Oh great! What next, voodoo dolls? One, or both of these, has authored letters to take to your dr to instruct him/her on how to proceed (to do it their way). Apparently, we’re all incompetent adults who need this. In my work I’m greeted with such letters too, but the presenter is usually yah-high and around 5 yrs old - a bit more appropriate.
About the selenium, I can believe it….
katekos: I don’t want to be a guinea pig to anyone’s agenda either; I also don’t want to pay into it.
Take care.
About the selenium, I can believe it….
katekos: I don’t want to be a guinea pig to anyone’s agenda either; I also don’t want to pay into it.
Take care.
Thank you guys for putting your info out there. And for the books that you have read. I'll admit I do have one of Mary Shomon's books - I bought last year I thought some of what she said was interesting and I have learned a bit from her books - of course the last time I bought a thyroid book was in 1998 so...
I remember reading the part about Selenium and even though I like some "natural" supplements I am also always a bit careful (or leary) because I would prefer not to be a guinea pig to anyones agenda, know what I mean? I am looking for some other books though (before my next endo. appointment) to get some other perspectives.
Although, I get some great perspectives and info. here so who needs those darn book anyway. Hehe!
I remember reading the part about Selenium and even though I like some "natural" supplements I am also always a bit careful (or leary) because I would prefer not to be a guinea pig to anyones agenda, know what I mean? I am looking for some other books though (before my next endo. appointment) to get some other perspectives.
Although, I get some great perspectives and info. here so who needs those darn book anyway. Hehe!
You are right. The website I referred to is run by someone named Janie. Thanks for the correction.
I see she's selling a book and t-shirts and bumperstickers!
I should spend more time with Mary, but I'm afraid of losing brain cells. I had a small todo with a member last week over study he pulled off of her site implying that Selenium could possibly lower you TPOab to zero.
When I looked at the study referenced, it was flawed and meaningless, but Mary is using it to give advice with. And people are believing it.
I found 4 more studies on the subject, and it made her claims look overzealous. She could have found those studies, too. She chose the study that had the most dramatic results, and the poorest test protocols.
I see she's selling a book and t-shirts and bumperstickers!
I should spend more time with Mary, but I'm afraid of losing brain cells. I had a small todo with a member last week over study he pulled off of her site implying that Selenium could possibly lower you TPOab to zero.
When I looked at the study referenced, it was flawed and meaningless, but Mary is using it to give advice with. And people are believing it.
I found 4 more studies on the subject, and it made her claims look overzealous. She could have found those studies, too. She chose the study that had the most dramatic results, and the poorest test protocols.
Before I got sick I never really had any reason to search medical stuff. After diagnosis the first thing I came across was Mary Shomon. Right off the bat I thought she was rather strange and she hasn’t let me down since. One of the first things I read was when describing endocrinologists she threw in that they are ‘mostly men.’ While I thought this was pretty funny, I also thought it was a bit off. Well, it only degenerated from there and I could take up lots of space with even wackier subtleties.
As if meandering through the world of thyroid isn’t difficult enough, she communicates a message that there lies a horrendous medical conspiracy against those with thyroid problems. And everyone will fall victim to it every single time. So she’s become the self-appointed advocate for all (apparently dumb) patients. That would seem harmless except she persuades people to believe their only answers come after they’ve purchased something from her. Most amusing among things to buy is phone time with her. Can you imagine?
The thing that puzzles about this person is how popular she is.
I have purchased several books on thyroid. But they are at least from people who, on a scale, seem more qualified. And seem more original. From what I’ve seen, if she does say something legit, it’s probably not an original idea. For instance, she has neck check steps to help detect thyroid problems. But those were lifted from a trademarked list the AACE created. Only she changed the last step, removing ‘see an endocrinologist,’ with ‘see a doctor’ - perhaps that’s because they were written by ‘mostly men.’
AR-10: Honestly, I think the ‘stop the madness’ is yet a different one, but on the par with Mary Shomon. Her site is an ‘about dot com’ site. Probably these two attend the same ‘there’s a conspiracy here somewhere’ meetings.
In addition to getting info from my doctors, I’ve learned a lot from medical center and thyroid association websites. Here’s citations from books I’ve purchased after signing them out from the library so many times:
“Your thyroid: a home reference” (4th ed.) by Lawrence C. Wood, M.D., Ballantine Books, 2006.
“Thyroid for dummies” (2nd ed.) by Alan Rubin, M.D., Wiley Publishing, Inc., c2006.
“The Harvard Medical School guide to overcoming thyroid problems” by Jeffrey R. Garber, M.D., McGraw-Hill, c2005.
“Thyroid disorders: a Cleveland clinic guide” by Mario Skugor, M.D., Cleveland Clinic Press, 2006.
As if meandering through the world of thyroid isn’t difficult enough, she communicates a message that there lies a horrendous medical conspiracy against those with thyroid problems. And everyone will fall victim to it every single time. So she’s become the self-appointed advocate for all (apparently dumb) patients. That would seem harmless except she persuades people to believe their only answers come after they’ve purchased something from her. Most amusing among things to buy is phone time with her. Can you imagine?
The thing that puzzles about this person is how popular she is.
I have purchased several books on thyroid. But they are at least from people who, on a scale, seem more qualified. And seem more original. From what I’ve seen, if she does say something legit, it’s probably not an original idea. For instance, she has neck check steps to help detect thyroid problems. But those were lifted from a trademarked list the AACE created. Only she changed the last step, removing ‘see an endocrinologist,’ with ‘see a doctor’ - perhaps that’s because they were written by ‘mostly men.’
AR-10: Honestly, I think the ‘stop the madness’ is yet a different one, but on the par with Mary Shomon. Her site is an ‘about dot com’ site. Probably these two attend the same ‘there’s a conspiracy here somewhere’ meetings.
In addition to getting info from my doctors, I’ve learned a lot from medical center and thyroid association websites. Here’s citations from books I’ve purchased after signing them out from the library so many times:
“Your thyroid: a home reference” (4th ed.) by Lawrence C. Wood, M.D., Ballantine Books, 2006.
“Thyroid for dummies” (2nd ed.) by Alan Rubin, M.D., Wiley Publishing, Inc., c2006.
“The Harvard Medical School guide to overcoming thyroid problems” by Jeffrey R. Garber, M.D., McGraw-Hill, c2005.
“Thyroid disorders: a Cleveland clinic guide” by Mario Skugor, M.D., Cleveland Clinic Press, 2006.
I have information from my thyca group that I attend. I have books from the Endocrine Society as well. I also have a few books- not Mary SHomon. I also use the web as well as this site.
My Endo gave me actual copies from Endrocine Society and highlighted aspects that were appropriate for my condition .... I used that as a search tool and found so much more online but UTAH was my saviour back then ...........................3 Cheers for her and everybody here ..............she taught me so much more than any textbook and then I was able to stand up for myself and tell my Dr's I'm not 100% comfortable with my decision not to have a TT .. I am only 80% ... but 80 vs. 20 will do ... so as I go off on a tangent I would say THIS COMMUNITY gives me the info and I do some more research thru articles by authenticated sources and I've posted quite a few to our health pages.
Cheryl
Cheryl
Too many people get their info from Mary Shomon.
I get mine from thyroid boards, and Google.
You can Google almost any medical paper, journal, or study on the planet.
I do not find Mary Shomon legit for several reasons. She pushes an agenda, which requires her to wrap half truths in a bow and call them facts. She twists studies to say what she wants, and endorses fringe elements of the medical community, even if the doctor has been disbarred. As long as he agrees with her, he is an expert. Every once in a while she waves a big, fat lie around and swears it's the truth.
Google her home page, Stop the Thyroid Madness. It is a screen full of lies.
I get mine from thyroid boards, and Google.
You can Google almost any medical paper, journal, or study on the planet.
I do not find Mary Shomon legit for several reasons. She pushes an agenda, which requires her to wrap half truths in a bow and call them facts. She twists studies to say what she wants, and endorses fringe elements of the medical community, even if the doctor has been disbarred. As long as he agrees with her, he is an expert. Every once in a while she waves a big, fat lie around and swears it's the truth.
Google her home page, Stop the Thyroid Madness. It is a screen full of lies.
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