Aa
Sweating--RE: discussion with ideaofmarch
Hi,
I had been participating in a conversation on sweating, thyroid disease, and fibromyagia syndrome. I am curious if anyone found any answers yet. Also, while I found info on the net when searching for Thyroid and fibro, I would like the exact like idesofmarch was talking about. I have yet to see anything about more expensive testing for thyroid disease. If idesofmarch or anyone has any info on this topic, I would be interested.
Thanks,
Cheryl
I had been participating in a conversation on sweating, thyroid disease, and fibromyagia syndrome. I am curious if anyone found any answers yet. Also, while I found info on the net when searching for Thyroid and fibro, I would like the exact like idesofmarch was talking about. I have yet to see anything about more expensive testing for thyroid disease. If idesofmarch or anyone has any info on this topic, I would be interested.
Thanks,
Cheryl
Don't know if anybody told you, but, when you want to follow a particular thread or conversation, at the bottom of your post click on "add to watch list" and then you can click on your watchlist from your home page...
PS I am sweating my a$$ off too!
PS I am sweating my a$$ off too!
I am sorry to do this, but it shows the thread of the discussion below. I was diagnosed with fms in 1994 and had great pain with it. I firmly believe that there is a connection between fibro, thyroid disease, and sweating. There was a person that said there were more expensive tests that could be run on fms patients. You will notice in down in the thread. She also says that there is a site that shows a relationship between fibro and thyroid disease. I never was able to find it, and I happen to see your post today, so I thought I would respond.
I was formally diagnosed with thyroid disease in 2003, but I am positive that I had been experiencing thyroid disease many years prior to diagnosis. It is my feeling that I suffered from this disease in some form since early childhood and possibly even as an infant. There are many reasons I believe this, but it is not important.
You have Hashi's, another autoimmune disorder. One doctor I saw suggested that I probably had both Graves' and Hashi's. He was bothered that no one had done a fine needle aspiration, because he maintained that this was the best way to identify autoantibodies. I wish that this procedure had been done, but I wish that a lot of things had been done. It is amazing to me the amount of people with fms that also experience sweating; and more amazing, the number of people that experience fms, thyroid disease and sweating. You mentioned that you had sweats last year. Can you tell me what other symptoms you experienced, if you can remember? Were you hot and cold? Did you get chills and goosebumps with the sweats? Now you are cold. I would be interested to know what your if you still have a thyroid, what your TSH, free T4, free T3 with ranges are? If you are cold, it leads me to believe that you might be hypothyroid. I know I am cold a lot of the time. People are shocked by the amount of layers I wear and by my weight, which is around 95 pounds at this point. I have no thyroid. I know I am asking a lot of questions, but I was glad to see a response to my post and also, even though we suffer from different disorders, some of the effects seem similar. Please take your time to review the series of posts in the discussion and write back. If you want, you can start a new thread and just name it Sweating update with foursavages. It is so hard to find this post, because it has made its way down the list. It was like trying to find a needle in a haystack when I went back to find it. Hopefully, we can find some answers. I hope you are well and am curious for a response. Sorry for the lengthy discussion that follows. You can ignore some of it, but it isn't as bad as it looks.
Cheryl
I have posted pretty much the same message on the fibromyalgia board. But, I'm wondering if anyone here has this sweating problem that has a thyroid problem. I will add this to this post. I have a goiter with a large nodule on my right lobe, also with a small cluster of nodules on my right side, with the larger side of my thyroid actually being the left side. My bloodwork came back positive on two antibody thyroid tests, I don't remember what the first one was, but it was only about 60, the second test thought was a TPO and that number was 1000 I believe. I am scheduled to have the right lobe of my thyroid removed in a couple of weeks, with the possibility of my left lobe also. I tend to have hypo and hyper symptoms. AND, if this will give me some relief, I will gladly take the scar to get rid of some of the symptoms-mainly the food getting stuck, the night time choking, the swelling in my neck, etc. Here is the post I have asked for help for on the other board. I love cut and paste.
My worst pain, pain to just have is about an inch above my wrists, about an inch above my ankles, above my elbows and I have swelling on the inside of my legs across from my knees. I woke up several times last night with cold sweats, sheets wet, but the water just pours from the back of my legs from the bends of my knees up. Pretty much where the swelling is. And my neck had some sweating last night also. And, this is not hot flashes. THis all started after mono last spring. Actually mono/thyroiditis-now fibro. I know several people in my area with fibro, but no one has pain where i do. And I have severe pain/tenderness when you touch the fibro points, even if its just to brush against them, but they don't hurt like these other places. These places just ache without touching. My hips have started getting this way too. Sometimes I almost can't walk. I'm always afraid I'm being misdiagnosed. Recent bloodwork came back with a deficiency in vitamin d, they put me on 1200mg a day of vit d and calcium, and really i have felt very good up until 4 days ago. and now it is worse than ever. i do hope someone else tells me that they have the sweating also. NOT that I want someone else to be going through it, i just want to think that this is a fibro symptom and not something else. Any help is appreciated.
The "Comments" posted below are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! Med Help International and our partners, sponsors and affiliates have no obligation to monitor any "Comments" posted on this site, or the content and/or accuracy of such exchanges. Med Help International does not endorse the views of any user.
Spyder9
01/07/2007
C1 . I've been diagnosed with thyroiditis and I sweat every night. I wear practically nothing and I'm dying while the husband is under thick covers. I turn on the fan and it bothers him. For the longest time I thought I was going through early menopause because i couldn't figure out why I felt this way. I'm only 35. For me, I get hot, then I'm normal, and then I'm hot again....and only at night.
4savages
01/07/2007
C2 . I didn't have thyroiditis, but I had thyroid disease. It was believed to be Graves', but I had symptoms of both. The docs disagree on this one. However, I had severe sweating problems with thyroid dysfunction. I also had pain in my joints, and I didn't have to touch them to experience this pain. My FMS was not like this, and the nurse practitioner at OHSU caught onto it as unusual for FMS. I believe there is some sort of connection between thyroid function, FMS, and several other things, but I can't prove it.
I still have spells of sweating and I am freezing when I wake to them at night. I too can hardly wear anything to bed nor can I have a lot of covers, while my husband has them piled on and is still cold. I am 95 pounds and supposed euthyroid. But my heart pounds, the sweats are off and on, and temperature regulation is a problem.
Hope this helps. I feel for you.
MJ13
01/08/2007
C3 . I had a TT on 13 Dec. Since surgery I have woke up in the middle of night drenched with sweat numerous nights but not every night. I even have to change all my clothing. I keep my house around 60 - 62 degrees at night and sleep with a fan blowing on me even in winter. I'm currently off all thyroid meds awaiting RAI. These night sweats occurred while I was on thryroid hormone and since I've been off them for the last 5 days.
idesofmarch
01/08/2007
C4 . I think that I responded to your other site post. But I need to add that most people with fibromyalgia are also found tro have hypothyroid disease. Also get the expensive blood work up done because "our" blood work usually comes back as normal.
4savages
01/08/2007
C5 . Please elaborate on the expensive blood work, because I have fibromyalgia and my bloodwork always came back normal even when I was sicker than heck with Graves'. Doctors didn't believe me.
With regard to sweating, I am only going to state my opinion and experience. After RAI, I had extreme sweating that is exact to what you describe. In fact, I couldn't dry my body off some nights. I wasn't on replacement meds, but my thyroid was throwing massive amount of thyroxine into my body. The doctors said that it was normal. It did taper off. I do have a tendency to still sweat, and it seems related to my thyroid levels or increased illnesses. But it has gotten better. The only difference in my sweating was that when I sweat, still, I become freezing and have goosebumps. I think I saw that RAI is scheduled. Good luck and I hope this helped.
Cheryl
4savages
01/08/2007
C6 MJ13 One more thing. I found that if I wear very little clothing to bed and use a sheet, it helps control the sweating. Also, keep a towel near the bed. I feel for you.
Cheryl
utahmomma
01/09/2007
C7 buggymama Had total thyroidectomy a few years ago - major "hot flashes" and sweats after the 2nd half was removed. Had RAI two months ago, sweating worse and still going through it.
I will go from freezing (hey, it's Utah and it's COLD) to drenched in sweat in a flash. Night is crazy, shivering under three blankets then laying on top of the sheets drenched in sweat 5 minutes later. Hot coffee will make me have a hot flash, a warm bath will do the same thing. It's insane. I've been sweating through hypothyroidism (TSH over 70) to my now hyperthyroidism (TSH .17)
I'm also taking myself off HRT but this doesn't feel like menopause hot flashes (had them bad after my ovarian surgery) - it feels thyroid. I'm seeing my endo this week and it's on my list of things to discuss. I'll see if I can get us all some answers.
4savages
01/09/2007
C8 Buggymama That is exactly what I have gone through off and on since RAI. Today, I started with the sweats again. I always have to go to bed dressed lightly, often waking to dry myself off, and I am freezing. I am not in menopause. It has been over 3 years since I had RAI. How long must this persist? I think it has something to do with being precisely regulated. But I don't know. I feel helpless. I put a post up tonight to see what others thought about a switch to Thyrolar. I don't want to repost the whole thing. I feel awful tonight. I am just at tears. Between the sweating and movement, I feel like I am going to lose my mind.
Sorry to hear of others experiencing the same symptoms, but I also wonder. There must be a connection.
Cheryl
idesofmarch
01/09/2007
C9 . Look up fibromyalgia and thyroid(just like you see it here) It will give you the proof you need that thyroid and fibro do seem to go hand in hand. I don't know the proper name for the expensive test but most doctors know which test is more expensive when doing bloodwork up for thyroid disease. Maybe the site I gave will name the test and you will have something to bring to your doctor. RA doctors are good for your fibro. and Endo doctors are good for thyroid. Good luck to all of you.
idesofmarch
01/09/2007
C10 . Sorry other way around, (Thyroid and fibromyalgia )will give you the site that gives some proof that they go hand in hand
4savages
01/10/2007
C11 ideasofmarch I don't know if it me or what, but I am having trouble finding the link that gives the info on thyroid and fibromyalgia. I hate to ask, but if you could find it and post it, that would be great. I have so much problems with my doc that I need info. I actually need to find a doctor as well. But it is challenging from where I am right now.
Thanks for any help.
Cheryl
I was formally diagnosed with thyroid disease in 2003, but I am positive that I had been experiencing thyroid disease many years prior to diagnosis. It is my feeling that I suffered from this disease in some form since early childhood and possibly even as an infant. There are many reasons I believe this, but it is not important.
You have Hashi's, another autoimmune disorder. One doctor I saw suggested that I probably had both Graves' and Hashi's. He was bothered that no one had done a fine needle aspiration, because he maintained that this was the best way to identify autoantibodies. I wish that this procedure had been done, but I wish that a lot of things had been done. It is amazing to me the amount of people with fms that also experience sweating; and more amazing, the number of people that experience fms, thyroid disease and sweating. You mentioned that you had sweats last year. Can you tell me what other symptoms you experienced, if you can remember? Were you hot and cold? Did you get chills and goosebumps with the sweats? Now you are cold. I would be interested to know what your if you still have a thyroid, what your TSH, free T4, free T3 with ranges are? If you are cold, it leads me to believe that you might be hypothyroid. I know I am cold a lot of the time. People are shocked by the amount of layers I wear and by my weight, which is around 95 pounds at this point. I have no thyroid. I know I am asking a lot of questions, but I was glad to see a response to my post and also, even though we suffer from different disorders, some of the effects seem similar. Please take your time to review the series of posts in the discussion and write back. If you want, you can start a new thread and just name it Sweating update with foursavages. It is so hard to find this post, because it has made its way down the list. It was like trying to find a needle in a haystack when I went back to find it. Hopefully, we can find some answers. I hope you are well and am curious for a response. Sorry for the lengthy discussion that follows. You can ignore some of it, but it isn't as bad as it looks.
Cheryl
I have posted pretty much the same message on the fibromyalgia board. But, I'm wondering if anyone here has this sweating problem that has a thyroid problem. I will add this to this post. I have a goiter with a large nodule on my right lobe, also with a small cluster of nodules on my right side, with the larger side of my thyroid actually being the left side. My bloodwork came back positive on two antibody thyroid tests, I don't remember what the first one was, but it was only about 60, the second test thought was a TPO and that number was 1000 I believe. I am scheduled to have the right lobe of my thyroid removed in a couple of weeks, with the possibility of my left lobe also. I tend to have hypo and hyper symptoms. AND, if this will give me some relief, I will gladly take the scar to get rid of some of the symptoms-mainly the food getting stuck, the night time choking, the swelling in my neck, etc. Here is the post I have asked for help for on the other board. I love cut and paste.
My worst pain, pain to just have is about an inch above my wrists, about an inch above my ankles, above my elbows and I have swelling on the inside of my legs across from my knees. I woke up several times last night with cold sweats, sheets wet, but the water just pours from the back of my legs from the bends of my knees up. Pretty much where the swelling is. And my neck had some sweating last night also. And, this is not hot flashes. THis all started after mono last spring. Actually mono/thyroiditis-now fibro. I know several people in my area with fibro, but no one has pain where i do. And I have severe pain/tenderness when you touch the fibro points, even if its just to brush against them, but they don't hurt like these other places. These places just ache without touching. My hips have started getting this way too. Sometimes I almost can't walk. I'm always afraid I'm being misdiagnosed. Recent bloodwork came back with a deficiency in vitamin d, they put me on 1200mg a day of vit d and calcium, and really i have felt very good up until 4 days ago. and now it is worse than ever. i do hope someone else tells me that they have the sweating also. NOT that I want someone else to be going through it, i just want to think that this is a fibro symptom and not something else. Any help is appreciated.
The "Comments" posted below are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! Med Help International and our partners, sponsors and affiliates have no obligation to monitor any "Comments" posted on this site, or the content and/or accuracy of such exchanges. Med Help International does not endorse the views of any user.
Spyder9
01/07/2007
C1 . I've been diagnosed with thyroiditis and I sweat every night. I wear practically nothing and I'm dying while the husband is under thick covers. I turn on the fan and it bothers him. For the longest time I thought I was going through early menopause because i couldn't figure out why I felt this way. I'm only 35. For me, I get hot, then I'm normal, and then I'm hot again....and only at night.
4savages
01/07/2007
C2 . I didn't have thyroiditis, but I had thyroid disease. It was believed to be Graves', but I had symptoms of both. The docs disagree on this one. However, I had severe sweating problems with thyroid dysfunction. I also had pain in my joints, and I didn't have to touch them to experience this pain. My FMS was not like this, and the nurse practitioner at OHSU caught onto it as unusual for FMS. I believe there is some sort of connection between thyroid function, FMS, and several other things, but I can't prove it.
I still have spells of sweating and I am freezing when I wake to them at night. I too can hardly wear anything to bed nor can I have a lot of covers, while my husband has them piled on and is still cold. I am 95 pounds and supposed euthyroid. But my heart pounds, the sweats are off and on, and temperature regulation is a problem.
Hope this helps. I feel for you.
MJ13
01/08/2007
C3 . I had a TT on 13 Dec. Since surgery I have woke up in the middle of night drenched with sweat numerous nights but not every night. I even have to change all my clothing. I keep my house around 60 - 62 degrees at night and sleep with a fan blowing on me even in winter. I'm currently off all thyroid meds awaiting RAI. These night sweats occurred while I was on thryroid hormone and since I've been off them for the last 5 days.
idesofmarch
01/08/2007
C4 . I think that I responded to your other site post. But I need to add that most people with fibromyalgia are also found tro have hypothyroid disease. Also get the expensive blood work up done because "our" blood work usually comes back as normal.
4savages
01/08/2007
C5 . Please elaborate on the expensive blood work, because I have fibromyalgia and my bloodwork always came back normal even when I was sicker than heck with Graves'. Doctors didn't believe me.
With regard to sweating, I am only going to state my opinion and experience. After RAI, I had extreme sweating that is exact to what you describe. In fact, I couldn't dry my body off some nights. I wasn't on replacement meds, but my thyroid was throwing massive amount of thyroxine into my body. The doctors said that it was normal. It did taper off. I do have a tendency to still sweat, and it seems related to my thyroid levels or increased illnesses. But it has gotten better. The only difference in my sweating was that when I sweat, still, I become freezing and have goosebumps. I think I saw that RAI is scheduled. Good luck and I hope this helped.
Cheryl
4savages
01/08/2007
C6 MJ13 One more thing. I found that if I wear very little clothing to bed and use a sheet, it helps control the sweating. Also, keep a towel near the bed. I feel for you.
Cheryl
utahmomma
01/09/2007
C7 buggymama Had total thyroidectomy a few years ago - major "hot flashes" and sweats after the 2nd half was removed. Had RAI two months ago, sweating worse and still going through it.
I will go from freezing (hey, it's Utah and it's COLD) to drenched in sweat in a flash. Night is crazy, shivering under three blankets then laying on top of the sheets drenched in sweat 5 minutes later. Hot coffee will make me have a hot flash, a warm bath will do the same thing. It's insane. I've been sweating through hypothyroidism (TSH over 70) to my now hyperthyroidism (TSH .17)
I'm also taking myself off HRT but this doesn't feel like menopause hot flashes (had them bad after my ovarian surgery) - it feels thyroid. I'm seeing my endo this week and it's on my list of things to discuss. I'll see if I can get us all some answers.
4savages
01/09/2007
C8 Buggymama That is exactly what I have gone through off and on since RAI. Today, I started with the sweats again. I always have to go to bed dressed lightly, often waking to dry myself off, and I am freezing. I am not in menopause. It has been over 3 years since I had RAI. How long must this persist? I think it has something to do with being precisely regulated. But I don't know. I feel helpless. I put a post up tonight to see what others thought about a switch to Thyrolar. I don't want to repost the whole thing. I feel awful tonight. I am just at tears. Between the sweating and movement, I feel like I am going to lose my mind.
Sorry to hear of others experiencing the same symptoms, but I also wonder. There must be a connection.
Cheryl
idesofmarch
01/09/2007
C9 . Look up fibromyalgia and thyroid(just like you see it here) It will give you the proof you need that thyroid and fibro do seem to go hand in hand. I don't know the proper name for the expensive test but most doctors know which test is more expensive when doing bloodwork up for thyroid disease. Maybe the site I gave will name the test and you will have something to bring to your doctor. RA doctors are good for your fibro. and Endo doctors are good for thyroid. Good luck to all of you.
idesofmarch
01/09/2007
C10 . Sorry other way around, (Thyroid and fibromyalgia )will give you the site that gives some proof that they go hand in hand
4savages
01/10/2007
C11 ideasofmarch I don't know if it me or what, but I am having trouble finding the link that gives the info on thyroid and fibromyalgia. I hate to ask, but if you could find it and post it, that would be great. I have so much problems with my doc that I need info. I actually need to find a doctor as well. But it is challenging from where I am right now.
Thanks for any help.
Cheryl
Hi Cheryl..I am not sure what your original post was...but I also have tyroid disease (hasi) and fibro. Last year I had severe sweating and now I am cold all the time. Can u tell me about original posted question/comment?
thanks
thanks
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