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TIROSINT (

I had blood work and the TSH was 3.0 the free T3 was 2.38 so said they would try snthroid .025 after two weeks got really badk pain in all my muslces, hip and back pain, it went away after stopping the meds, but results still off adn I have always had normal cholestrol and it has went from 138 to 297 said due ot thryoid. I exercise the same eat the same but have managed to gain 24 pounds, I am also in menopause, have RA and take methotrexate and enbrel.  Now on Tirosint 13mg after day 4 extreme neck pain, low back pain and headaces, why cna't I seem to take these meds, is this normal? What else can I take?
Becky
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649848 tn?1534633700
COMMUNITY LEADER
The most feasible option for you is to ask your pharmacy for the generic levo made by a different manufacturer.  Sometimes, people have allergic reactions to the fillers/binders or dyes, in the pills and simply switching to a different manufacturer will resolve the issue.  You could also need an adjustment in your dosage.

Tirosint is extremely expensive and if covered by insurance, it's the highest tier, which means you pay maximum out of pocket.  My last script was over $100/month and I expect the price to continue going higher.

There are other considerations to take into account, as well, such as whether or not you changed laundry detergent, bath soap, shampoo, make up, etc.
Helpful - 0
4121079 tn?1400268794
Hello everyone I hope someone can give me some feedback, I am like so miserable, I am on levothyroxine the generic of synthroid I had to I'm not working right now so I have to take what my insurance will cover, but I had switched back to synthroid because I started itching a a month and half ago, but it didn't relief me from the itch, so I went to see my endo twice now we thought maybe the large doses of the vitamin d was causing but no, I stopped taking it and im still itching, I wont miss a dose because I don't know if it would harm me, I called my endo to switch me to another one, his ma says there is no alternate well well, I called the pharmacy myself she told me about the Tirosint, so now I am waiting to call my doctor back if he isnt willing to help im finding another endo, plus he never remembers anything he has to keep looking through my file, so I think its time to find a new endo doctore...
Helpful - 0
5946397 tn?1391451733
Well...I stopped Tirosint!  And thankful I did!  Those debilitating electrical-like impulses have stopped!  My body cannot tolerate a gel cap delivery method.  I have to take a levothyroxine pill.  I also took 100 mg L-Theanine to reduce the anxiety and tension brought on by the Tirosint reaction.  It helped me tremendously!

I am going to talk to a pharmacist who specializes in finding the right medications for people.  He considers a person's symptoms.  Does blood draws, etc, and sends to the lab.  He also does compounding.  He has a relationship with a medical research facility and its doctors. This is good news for me!

I feel like I am finally on the right track!
Helpful - 0
5946397 tn?1391451733
I also have upset stomach with Tirosint.  Still have little appetite.  I actually starting taking my leftover Levoxyl two days ago.  The 'zapping' sensation has already calmed down. My labs on Tirosint were all in 'normal' ranges, but that does not tell the whole picture.  How a person feels is the best gauge. Another forum member said my FT3 is still somewhat low.  I might need to lower Tirosint dose and add a T3 like Cytomel.  It's overwhelming sifting through info and making decisions.  I guess I better go to a specialist and get some help with this.  But for now, I am still not sure if I will take the Synthroid.  I can always switch it with something else at the pharmacy.  
Helpful - 0
Avatar universal
I switched from synthroid to tirosint and found that with tirosint it required a much lower dose as it didn't have the fillers that synthroid had and is better absorbed. If you are having problems with tirosint you need to have your FreeT3 and FreeT4 levels checked and adjust as needed. I also had reactions to synthroid because of sensitivity to the fillers. Tirosint works much better for me.
Helpful - 0
5946397 tn?1391451733
I hope you can reply to my message here about trying Tirosint and going back to Synthroid.  Are you still on Synthroid and how is it going for you?  I started on Tirosint a couple months ago and started having episodes of cold chills, high BP, feeling miserable.  Comes in waves.  Very odd.  Only thing I've changed was starting taking Tirosint.  I'm also perimenopausal.  But had not had those symptoms until after Tirosint.  
Helpful - 0
Avatar universal
Hi.  I also can tend to get a nervous feeling shortly after taking
Tirosint.  Could be from minutes after taking it to two hours later,
like you said.  Tirosint has been helpful to me in a lot of ways
that the other drugs haven't been, though, so I'm trying to stick
it out with this drug, even though it can be hard.

I really have to be flexible with how I work Tirosint, to get the least
amount of side-effects because it can hit me so strongly, sometimes.
The doctors have let me take my dose using the smalles gelcap,
the 13mcg. ones, to make up my dose....which really should be
about eight of them a day....I spread them out at intervals all day,
and try to figure out how to get some food in me without interfering
with the medicine too much.  It is a challenge.  It has taken me
over a year to build up to almost the correct dose, and some days
are still too hard with this drug, and I end up taking a reduced amount.
Yet it is the only one that helps me more closely to the way
Old Synthroid did (made before 1982 reformulation), so I'm trying
to stick it out.  But it IS hard!
Helpful - 0
Avatar universal
I have no been on tirnosint since June, they just added a time relased T3, my achilles are bad, my hips hurt my legs ache, but the dr says not the tirnosint, I didn't take it for one day and it felt better, but I am thinking it would take longer than that to rid it from your body, so who knows. I am so tired of not know ing what to do, since i have started this I have gained yet another 15 pounds I can not afford to gain weight and I need to find an answer, I am at my wits end as to what to do.
Thinking of going for a second opinion on it,
Thanks
Becky
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
I've never seen that headache is, specifically, a side effect of Tirosint; in fact, the website: http://www.drugs.com/sfx/tirosint-side-effects.html

actually says there are no common side effects to Tirosint.  Most side effects are actually the result of over medication.

hapigirl - If you start the Tirosint, I would start at, no more than 100 mcg, but maybe even 75 mcg to see how it works for you; you can always increase the dosage once your body gets used to it. What symptoms do you have?
Helpful - 0
Avatar universal
I had problems with Tirosint. Really strong headache...this is a side effect of the medication. Also severe hip and joint pain. Began physical therapy, discovered it was medication!! Pain went away when I discontinued Tirosint. I would also experience nervousness about two hours after taking it. I went back to Synthroid which I have been on for 10 years.
Helpful - 0
Avatar universal
WOW !!! I just discovered tirosint.... I wonder if I can go from
100 & 112 every other day and 10 cytomel x2 daily to tirosint?
Am having trouble getting the correct amounts of medication.

Helpful - 0
499534 tn?1328704178
Tirosint is about as hypoallergenic as you will find.  I think you may need to give your body time to adjust. Getting headaches when first starting meds is actually common.  You are starting on an extremely low dosage too, so if it was me I would give it some time for your body to adjust.
Helpful - 0
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