I was diagnosed with papillary carcinoma with a follicular variant in 2003. Had my thyroid and isthmus removed leaving one parathyroid. I had radiation and sat in a lead room for 4 days. A year later it metastasized to my lymph nodes. Had 2 more radical dysections removing the lymph nodes and did well for a while. Now the lymph nodes are back in my neck causing pressure on the carotid and lots of pain. I have lymph nodes on my left hip that hurt and go all the way down to the top of my left thigh. I have been told that I know longer have thyroid cancer and it looks like a low grade lymphoma. The oncologist I'm seeing says he's not convinced it's cancer.
I was in the hospital a couple of days ago with a pain level of 7/8 from my neck. I thought I had tonsillitis. The Er doc said my tonsils had atrophied and that it felt like there may be a blockage or some kind of abscess. So they told me to go over the hill to a larger hospital that could do a mri. I went to the other hospital. They're thoughts were the same and they did some blood work and a CAT scan. The scan showed several lymph nodes and they were not in the carotid this time. Just behind it pushing and causing the pain. My airways are fine at this time so they sent me home and told me to follow up with my oncologist whom I don't see until May.
You seem to have really been thru it! I am sorry for your pain and that I don't have the answers to your question. I am just starting out on this forum and starting to learn. Did the docs say why your WBC was high?? -sass-
No...they haven't said anything. I was scheduled for a I131 uptake in June. But now they have postponed it for 3 months beyond because I had the cat scan and they used contrast. I told the radiologist that I couldn't have contrast that would effect the I131 test and they said this was a different contrast and it wouldn't affect it...he lied! On top of that...I have now had 7 courses of antibiotics over that last 6/7 months. I am discouraged. My neck and whole left side is riddled with swollen lymph nodes and I'm getting nowhere with the docs because I have no insurance and not enough money to do the tests they want to do. Now my left breast feels like it's bruised I have swollen nodes on the side of both breasts and 2 small hard lumps in my left breast. I am really scared! I am tired all of the time. Night sweats are getting worse. I feel like I'm gonna die and noone cares unless I have money! It really ***** right now. I hope when I get the increase in thyroid meds that I can deal with this a little easier cause right now...all I want to do is cry.
okay, you gotta get your chin up!! no more cying!! hopefully someone here will see your numbers and address them. I really understand the sweating issue. I do that all day long. Truly frustrating!! I wonder if I am having an adrenal problem, gone hyper or just plain crazy?!? Probably the latter. I do have insurance, but it has a huge deductible!! so I am paying as I go too. I had the breast scare again this year too. have had a lumpectomy years back. But my ultrasound says it is okay this time. I have had a pituitary tumor removed, A Parotid Gland issue, the breast tumor, cervical dysplasia, and now they found a tumor on my retina!! Joy!! But, this ole world just keeps spinning and spinning. Wish somebody slow it down, I'm getting dizzy!!!!!!! lol -sass-
LOL! You know how to put a smile on someone's face! I'm sorry you are going through soo much! I hope you also get some answers! It is frustrating knowing something is wrong and not knowing how to fix it! I know there are no quick fixes in life. But it sure would be nice to have the tools to fight it and at least try to make things better! Thanks again Sass!
Thank you! Wanted to make sure my thoughts on the values were right. I've known in my gut that the cancer is back for a long time. It's just getting my doctors to get it has been the problem. MH has been my only outlet as my family listens to the docs and think I'm fine. They don't get just how sick I really am. So I keep looking for answers. I want the tools I need to fight this!
Yes...but he is not helping me and because I don't have money or insurance...he is only seeing me every three months. A lot of good that is doing. I'm getting worse and don't get to see him until May. He also said that even if I do have cancer that it is a low grad lymphoma and there is nothing that can be done anyway. It doesn't feel like he gives a damn whether I live or die. Soo comforting!
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