Thyroid levels

[Dibs42]

My 6 year old daughter was diagnosed with Graves on June 4th.  She is on 15 mg of methimazole a day and propranolol 4 times a day.  At first the levels were not coming down.  At our last visit her T3 has moved from a 15.9 to a 7.1.  We were very excited to finally see the levels coming down.  If her levels are coming down, why does she demonstrate such strong Graves symptoms still...tremors, heat intolorance, eating a lot, nightmares, very moody, joint pain, staring, inability to focus..... I think the only reason the pulse rate is under control is because of the propranolol.  We thought by now she should be at normal levels (we get bloodwork done next week and back to the doctor on the 13th.)  School starts in a few weeks and I'm worried.  Can levels go up and down to cause this?

[Dibs42]

Thank you for your comments.  I guess that I was thinking that once they had her levels to normal, it was a matter of taking meds and all would be good.  I'm very concerned about her beginning school in a few weeks.  We go in for blood this week and back to the doctor the following week.  Since you've had RAI, do you have any of the Graves symptoms or did it all go away???

[Smilerdeb]

She has the Graves antibodies and whilst she has a thyroid, these can flare up at anytime of the day or not.
Getting sick, stress etc will flare them up.
I was on Carbimazole for nearly a year and couldnt get my levels right so just be careful with her and watch for change of symptoms.
Also be aware that Anti-thyroid meds can change your levels very quickly so that you go from hyper to hypo in no time at all.
Get her tested every 2 weeks if I was you until things start to stabilise.

I had RAI done in June 08 and havent looked back.
I too have Graves and was hyperthyroid.