Thyroid?

[emotionalpond]

So I've been dealing with symptoms for a long time.  A few months ago my PTH was very high and my Vit D was very low.  I'm in a bunch of pain so the my reg doc thought it was Hyperparathyroidism.  I've been having huge choking issues as well.  I am also pcos and insulin resistant and am on Metformin 2000 mg per day and Victoza 1.2 mg per day.  Hasti's runs in my family large. I do have a 5mm by 5mm nodule on my right lobe.  Anyways, I just got my test results back since my endo tested my thyroid.  She also put me on 1000 units of vit d daily since she thinks it's the cause of the PTH being so high since my calcium is normal, execpt in my urine.  

TSH - 5.22 (July 2011 3.38, July 2010 3.28)
PSH - 7.7 (started at 12.6, went down to 9.6)
Vitamin D, 25-Hydroxy 69 (was 48 before taking vit d for the last month)

So I guess after all this my question is, my endo wants to wait until after feb to do any more testing. Should it not be sooner?  I don't want to continue living with the choking and the constant pain in my stomach or being tired.   My endo says she's only treating the tireness.  The choking is not related or is the pain in my stomach.  

[emotionalpond]

Yes that's what they thought my mom had was Thyroid Cancer cause all her test results came back normal and she had a goiter the size of a golf ball. But long behold it was Hashitomo.  Very strange case my moms was.

[gimel]

The best tests for Hashi's are the TPO ab and TG ab.   I suspect the fine needle biopsy was for the possibility of cancer, not Hashi's.

[emotionalpond]

I have asked my GP for a new Endo as I don't think she listens to me.  As far as I'm concerned we should be testing me right away for antibodies.  The only way the diagnosed my mom with Hashitomo's is a fine needle biopsy.  I've told the endo that too.  

[gimel]

Personally I think your doctor is grasping when she ignores the TSH test result, and your many hypo symptoms and says it can be explained by PCOS, or the low Vitamin D.  

I would go back and insist on being tested for Hashimoto's, ( TPO ab and TG ab tests), and also Free T3 and Free T4 (not the same as Total T3 and T4).  Remember, if the doctor resists, you should insist and don't take no for an answer.  If your Free T3 and Free T4 results fall in the lower half of their range, that is frequently associated with being hypothyroid.

Seriously, why do you need to wait for three months?  I would not wait for three months.  I'd find another doctor if need be.  Why wait to start feeling better.  You need a good thyroid doctor that will treat you clinically.

I think you can get some good insight from reading this letter written by a good thyroid doctor for patients that he consults with from a distance.  The letter is sent to the PCP of the patient to help guide treatment.  Note what he says about TSH and clinical treatment.

http://hormonerestoration.com/files/ThyroidPMD.pdf

[emotionalpond]

Yes I do have symtoms of hypo but can be explained by the PCOS or the low vit d.  At least that's what my Endo says.

- Tired
- Losing hair
- Emotional problems
- Weight Gain (24 pounds in two months, that's why the Vicoza)
- Frequent sinus infections
- Choking
- Brain Fog!

I know there is more but I can't think of them now.
Thanks
Jenn

[gimel]

You did not reply about the hypo symptoms question.

If you are having hypo symptoms, and since your TSH is somewhat indicative of the possibility of being hypo, then I don't know why the doctor wants to wait for 3 months to even do more testing.  

If you do have the hypo symptoms, I would suggest that you go back and request to be tested for the biologically active thyroid hormones, Free T3 and Free T4 (not the same as Total T3 and T4).  If the doctor resists then you should insist on it and don't take no for an answer.  

You should also be aware that many of our members report that hypo symptom relief for them required that Free T3 was adjusted into the upper third of its range and Free T4 adjusted to around the middle of its range.    Symptom relief should be all important, not just test results.

[emotionalpond]

Hi Yes sorry I meant PTH.

I know the reference range for PTH is 1.6 - 6.9.  

The endo thinks the PTH is too high because my vid D is insuffienct.  

She is testing me for Hashimoto's in three months.  Which is my biggest problems.  I think it should be done sooner.  

[gimel]

Sorry, forgot the link.

http://endocrine-system.emedtv.com/hypothyroidism/hypothyroidism-symptoms-and-signs.html

[gimel]

Are you talking about hypothyroid symptoms?  If you look at this list of 26 typical hypothyroid symptoms, which ones do you have?  

Has your doctor ever expressed any concern that you might be hypothyroid, based on your TSH tests?

Did you mean PTH instead of PSH?  Do you have a reference range for that test?  What was the doctor's reaction to that test result?

Sorry to ask all these questions, but need to know more.