Thyroid Disorders Community
Tired, Tired
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Tired, Tired

I have been feeling so tired, not sleeping through the night.  The tiredness as silly as it sounds is right under my skin and right in the front of my forehead.  I am also having swelling in both of my legs and ankles.  I have gained some weight (could be the holidays).  I am waiting for my appointment with my new doctor,one that will treat me for my symptoms.  I am better than I was after going off of my meds for 6 weeks.  I don't know what my blood is now but will be tested when I go to the new doctor.  I guess I am just asking has anyone had these symptoms.  They are common symptoms I guess. You are my old friends and I think I am just looking for some encouragement.  This is an ongoing fight for me to get stabile.  I don't know if these things are thyroid related or not.  When I was hyperthyroid my legs swelled but haven't since.  My old endo said my symptoms were more hyper than hypo and that can't be as my tsh is or was 12.  Is it possible to have hyper symptoms when you are hypo.  I am getting better on my knowledge of the thyroid but I only know how I feel.  I don't know how long it will take for my tsh to come down.  I know my T4free was low according to her.  She didn't test my T3.  Because of her comments to me and her refusal to treat according to symptoms, I am going to a new doctor but that isn't until the 27th of Jan. I think.  Thanks
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649848_tn?1357751184
Quite a few of the symptoms can "cross over", meaning they can be associated with either hyper or hypo.  I've had the swelling a lot, when hypo.  I think you're doing the right thing by going to  a different doctor.  The one you've been seeing goes way too much by TSH and not enough by FT's and symptoms.

Symptoms are always the bottom line and if she believes your symptoms aren't caused by thyroid, she should be looking for something else, which she's not doing.

Hang in there and stay on your med.
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649848_tn?1357751184
Quite a few of the symptoms can "cross over", meaning they can be associated with either hyper or hypo.  I've had the swelling a lot, when hypo.  I think you're doing the right thing by going to  a different doctor.  The one you've been seeing goes way too much by TSH and not enough by FT's and symptoms.

Symptoms are always the bottom line and if she believes your symptoms aren't caused by thyroid, she should be looking for something else, which she's not doing.

Hang in there and stay on your med.
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200220_tn?1361955154
That is exactly what I think.  Instead of telling me she thinks something else is causing it why didn't she say something before I said what I said to her.  I can't help how I feel even if it is supposedly hyper symptoms.  I don't remember ever feeling this tired in the way I feel it.  It is really weird.  I read somewhere that the cholesterol med that I am taking Crestor can cause extreme tiredness.  I sure hate it when you don't know exactly what to do.  My cholesterol is high and I need to take the med.  I am taking 2000 mg Niacin also - don't know if that has any side effects.  Thanks for your encouragement
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1756321_tn?1377771734
Statins are often associated with side effects including nausea, headaches, dizziness, sleep disturbances, sexual dysfunction, fatigue, shortness of breath, memory loss, liver problems, muscle weakness, muscle pain, peripheral neuropathy and cardiomyopathy (heart muscle disease) due to a depletion of Coenzyme Q10.  

My ex neighbours mother ended up in a wheelchair taking a statin drug (lack of CoQ10 causing rhabdomyolysis-  breakdown of muscle fibers).

"Most people taking statins are taking something with no chance of benefit and a risk of harm." - Professor James Wright from the University of British Columbia.  Couldn't of said it better myself.
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Avatar_m_tn
I have been on Lipitor for over 20 years, only 10mg, but I quit taking them a month ago, I have sever nerve damage and muscle atrophy, but it is a toss up if it was caused by Post Polio Syndrome or Statins?  Dr. OZ had a Cardiologist as guest on his show and stated that only people with severe blockage issues should take Statins. Would have been nice if they would have said this 30 years ago when the whole medical profession was pushing Statins like Heroin Dealers.   FTB4
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1756321_tn?1377771734
Cholesterol, vitamin B1, vitamin B9, vitamin B12, omega 3 fatty acids and iodine are essential for healthy myelin (covers and protect the nerves). I have permanent nerve damage and muscle atrophy due to vitamin B12 deficiency.  

"Post-polio syndrome is a new condition that affects the survivors of polio decades after the acute illness of poliomyelitis. The major symptoms are pain, fatigue and weakness. New weakness is considered the hallmark of post-polio syndrome. Less commonly, survivors may have new sleep/breathing/swallowing problems and some survivors may also experience muscle atrophy or muscle wasting."

The medical industry has a vast precedence of getting it wrong.  9 out of 10 doctors recommended camel cigarettes in 1949. Now it's 0 out of 10. :)


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Avatar_m_tn
I have been diagnosed with PPS, and also Demyelinating Neuropathy, supposedly caused by PPS,  My EMG and Nerve Conduction Study test points all came out abnormal, They did a few tests to eliminate other causes of the damge to the Myelin Sheath, such as Vit B12 Deficiency, Lyme Disease, Rhumatoid Artheritis, Diabetes, Lupus and a half dozen Auti-Immune antibody tests and all came out negative, so far they have not been able to control my pain. I had started Neurontin at 100mg 3x a day, 200 and now 300 3x a day and 600 at night. I know the Max Dosage for Neuronyin is pretty High, so I wish this Neuro would get to it and stop playing around with the dribs and drabs. I am aware of the progressive ways of PPS, since being diagnosed two months ago, I have been doing a little reading.lol.  And to make matters worse, I had Bulbar Polio at age 7, and Bulbar controls all motor Neuron Functions including the breathing and swallowing issues. I remeber those advertisements about doctors and the camels lol.   Thanks for the response.  FTB4
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200220_tn?1361955154
I am taking CoQ10.  I stopped taking the Crestor tonight to see if maybe I will be less fatigued.  I don't know what to do about the high cholesterol.  There are things I should be doing like exercising and eating a low fat diet and losing weight.  I have join curves but haven't been able to get there for a few months.  Part of it is my responsibilities as a care provider and how busy I am but also because I have been so exhausted and I must take care of my people.  It was a holistic MD that told me to take the 5mg of Crestor and I trusted him that it was ok.  I am going to a new doctor the end of the month and he is a internist, so maybe he will give me some advice along with helping me with my thyroid symptoms.  Thanks for the comment.
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1756321_tn?1377771734
FTB4 - I can recommend high dose vitamin B12 at the very least. My preferred method is sublingual spray but any form of sublingual is fine.  My nerve pain has improved a lot and i am only taking cyanocobalamin form of vitamin B12.  Methylcobalamin is the form of vitamin B12 which has the greatest effect on nerve regeneration as shown in studies.

Applecore - After a poor diet, untreated or non optimally treated hypothroidism is the second most common cause of high cholesterol.

In 1953. Ancel Keys, an American scientist, published a paper titled "Atherosclerosis, a Problem in Newer Public Health". His findings supported his hypothesis that there was a correlation between high dietary fat intake and death rates from cardiovascular disease.  BUT it was found Ancel Keys excluded data from any country that didn't support his theories.  After looking at all the data available for 22 countries, there was found to be no relationship between dietary fat consumption, high cholesterol levels and heart disease.

"The great tragedy of Science - the slaying of a beautiful hypothesis by an ugly fact." - Thomas Huxley :)
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649848_tn?1357751184
Studies have shown that taking statins to lower cholesterol levels have little impact on whether or not one will have a heart attack.  In other words, even though they may lower cholesterol levels, they won't keep you from having a heart attack.

I had a doctor that insisted that I take Crestor and I refused it, because I know hypothyroidism causes high cholesterol.  My belief was that once I got my thyroid hormones under control, my cholesterol would come down.  I was partially right......... it did come down, but didn't get into the actual "normal" range until I added an hour of brisk walking, every day.

For me, as with many others, exercise is essential AND it can often make you feel more energized.  You don't have to do a full  hour.... start with 10 minutes and work up gradually.
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200220_tn?1361955154
As usual you have great advice.  I actually stopped the Crestor last night.  I did seem to be a little less tired.  I intend to start walking again.  I used to walk 2 miles a day but haven't done it for a couple years.  Thanks for your input.  I am getting nervous about my appointment.  I know I need it but it is still scary.  My emotions are up and down.  I wish I knew what my numbers are.  I don't feel like they have come down yet and if he treats me for my symptoms then I should feel lots better. I hope I hope.   God works everything for good.    
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649848_tn?1357751184
Don't try to start the walking at a full 2 miles/day, right off the bat....... since you haven't been doing it, you need to work back up.  Start with 1/2 mile (or less) for a week or so, then gradually increase.  Exercise is a lot like thyroid medication........ trying to go too quickly brings adverse effects.

Don't be nervous about the appointment....

Make sure you get copies of all lab reports and note on them what med/dosage you're on and what symptoms you have........

It'll all be fine......new year, new doctor, new outlook.  
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200220_tn?1361955154
thanks Barb -  I will take the blood tests that I have and mark on them what meds i was on.  I have never done that.  I think I actually was not proactive in the war on the thyroid.  I have always allowed others to take it for me.  It is time I stood on my own two feet and I am beginning to understand more and more about what is going on.  I will do this from now on.  I will try to do it on my past tests.  I still don't know whether to call my old doctor and get what she has about me.  I could write more but I am so tired.  My legs are really swollen.  I am looking forward to getting on with this.  
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649848_tn?1357751184
I don't really think you'll need anymore than the information you already have.  If you can remember meds/symptoms, etc to add to past reports, fine, but even that isn't necessary, if you start doing it forward.  I don't know about you, but my memory wouldn't begin to let accurately record something from even a year ago.

If you note on your labs, what med you were on and what symptoms you had at the time of the blood draw, it becomes your own running record and when you hit that spot, at which there are no thyroid symptoms, you'll know what "numbers" to target.

Yes, I learned the hard way, not to depend on my doctors to resolve my thyroid issues.  It's necessary to learn all we can can and be our own advocate.

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200220_tn?1361955154
thanks,  I guess I can't say thanks enough to all of you that answer me and even the ones who ask questions that all of us benefit from.  I stopped the Crestor and I don't feel quite as tired.  Also I didn't attribute the muscle pain and back pain I was having to it.  It has mostly stopped also.  I do have leg cramps but they were worse on the Crestor.  I am going to get some Magnesium that was suggested by someone else.  I wonder if I am converting the t4 to t3 correctly.  If I post my last blood test that had the t3free test on it could you tell by that.  The holistic MD that I went to did that test.  I will be glad to find out what is causing the swelling though.  
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649848_tn?1357751184
Drinking plenty of fluids can also help with the cramping and the swelling.  

Yes, if you have a blood test with an FT3 and FT4, we can tell pretty well, whether or not you are converting.
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200220_tn?1361955154
I will post my test results.  I have two very sick ladies that I am presently taking care of and don't the time to look them up but I will do it today or tomorrow.  Thanks for your help.  Linda
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