Thyroid Disorders Community
Tired of feeling like crap!!!
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Tired of feeling like crap!!!

Hi, I am feeling so helpless and frustrated and i hope someone can help me.3 years ago i became sick with severe muscle aches,fatigue,sweating alot then i gained a 100 pounds in less than 6 months. I went to dr after dr who couldn't find anything wrong untill after 2 years of these symptoms i thougt i was having a heart attack and went to heart dr. who then found my thyroid level was so low almost ready to shut down.Was put on thryoid medicine which helped with my muscle aches but i still get days that i am so weak and tired and have alot of headaches and heart palpations and sweating. I started being very thristy and going to the bathroom alot and back aches so i went to urologiest who did a ct scan of my stomache and found a mass on my pancreas and one on my left adreneal gland. He sent me to a endocrinology who tested my cortisol level and said it was fine and he would recheck and do another ct scan in 6 months to see if  mass has grown. I told him how could the cortisol level be fine when there is still days i feel terrible and overwieght still? Rember i only weighed 105 at the most untill i turned 48 with all those symptoms? He said to continue my anti deppressants and see me in 6 months! I am sorry but yes i take anti deppressants and have for along time because of deppresion and missed periods but they havent relieved my deppression and now i have all these other symptoms too. I do not sit around and feel sorry for my self and i try to keep active and alot of poeple dont even know how bad i feel but i cant go on like this
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Avatar_n_tn
Have they checked for Cushing's disease.  I saw this show on the Discovery Health Channel and a lady went years with the exact thing you described and finally found out she had Cushing's.  She was thin all her life and then out of the blue she gained over 100 lbs in a very short time.  She exercised and ate healthy too....ask your endo doctor about this.
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Avatar_n_tn
HI,SDP4314 yes they have checked for that but the dr. said my cortisol level was fine. But there is still days that i feel awfull and days that are better. So i read about cortisol levels and they can and do sometimes give false readings and that it is hard to test your cortisol level. I just dont know what to do and where to find a good dr.Thank you for your input.
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Avatar_f_tn
Sorry you are feeling so sick - most of us know how you feel thyroid wise.
If you haven't been to doctors for another thyroid test in the last 3 months after starting thyroid meds, its suggested that you do so. Your levels might not be right for you or they might be out again, and be the reason for feeling bad and/or weight issue. Plus there are different thyroid meds as well, that might make a person feel better - we are not all alike, therefore we all will not feel the same at the same levels nor same meds. Thyroid needs to be checked every three months until  levels are stabilized  When stabilized for a year with no med dose change, then we go every 6 month for a year and if levels remain stable then once a year thereafter for life because thyroid levels can change and we will need dose changes from time to time.  Plus there are many reasons for levels to change such as, stress and illnesses, diet and weight,  seasons, aging, etc. Have TSH, FT-4 and FT-3 done and if they warrant have all 5 thyroid  antibodies done as well.  Get copies of your test results with Labs reference range(s), this will help you follow your progress. If you have questions about your levels, you can post them here, some of us can help lead you in the right direction.  
Nothing wrong with taking antidepressants.  There are a lot of brands out there so if one doesn't work another one can always be tried, plus sometimes a combo of two different ones might work better for some. Some times its a trial and error where we have to try several before finding the right one that works for us.  I take Lorazepam as needed and after the first 6 yr with suffering from sleep disturbance I took prescription sleeping aid as needed.
Some physicians are using salivary cortisol to diagnose or evaluate possible stress-related disorders when usually blood and urine are tested, but still requires specialized expertise to perform and is not yet widely available. Hyperthyroidism or obesity and  number of drugs can  increase cortisol levels, while Hypothyroidism and Drugs such as steroid hormones, may decrease cortisol levels. Good luck on the other two issues, the mass on the pancreas and one on you left adrenal gland.
Hope you feel better soon.

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158939_tn?1274918797
Sorry for all you are going through.

Have they been checking your blood sugar levels?  You sound like you may be diabetic.  It's frustrating when you get "clusters" of problems happening all at once (for me it was thyroid cancer and diabetes) and it can run the doctor's crazy trying to figure it out but be persistent!

Good luck and keep us posted.
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Avatar_f_tn
You can request copies of last monts test - hopefully they did all three.  "What is good"?  What is good for them might not be good for you, what is good for you might not be good for me. What I am saying is we are not all alike and will not feel the same at the same level - one shoe does not fit all. They also might be using old TSH reference range where it is too high for most of us/general population - that is why it was changed to lower level. However you have a lot on your plate right now that needs taken care of as soon as possible and thats your pancreas and  adrenal gland.  Good luck with the ultra sound - make it soon. Let us know how it went and the results.
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Avatar_n_tn
Hi Thanks for all your information and i will get all my lab work and post it, but they have and just got tested last month and said was good i still take levoxyl 50mg daily. thank you so much have a good day..........
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Avatar_n_tn
Hi,just got home from another dr.appt.and she wants to send me to KU in Kansas City for test,Wichita doesn't have this certain ultra sound machine that they need to ran on my pancreas to see exactly where the mass is so i guess this might be a start. But yes i wonder about thyroid cancer because my little sister had that last year and had her thyroid removed and found out she had this gene that is inheritable by our parents or by one of our parents and my other sister had breast cancer.So i really dont want to wait another 6 months to have another ct scan on my adreneal gland.I really appreciate everyones input and they have checked me for diabetes too and it was fine.
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Avatar_n_tn
Thank you for the comment about what is good for them may not be good for you.  I might post my results and symptoms to see if you guys can help.  My docs are not helping.  Plus, the last one in town doesn't want to see me because I switched docs.  Sorry but sometimes you have to, especially when your doctor passes away.  And I hear you on the anti-depressants.  I got the same treatment.  Out of curiosity, which anti-depressant?  I want to know, because I have taken most of them.  Some can cause palpitations and did for me.  I have similar problems and am frustrated with my health.

Cheryl
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Avatar_f_tn
I felt so horrible and week most the time I was becoming severely deppressed. I have no energy. I eat extremly healthy a d take vitamins. I feel dehydrated alot. My mouth is always dry and I pee alot. Went to the doctor but I'm not diabetic they say. This was when I had insurance which now I dont. Took hydroxicutt hardcore and alli for over a year and dropped  60 pounds like it was nothing til my stools were light yellow from liver damage. Now my liver is ok. I do not want to go on this way either! I never feel good. But I'm "normal" and nothing is wrong says the doctor. Getting angry.
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Avatar_m_tn
What are your symptoms other than tired and depressed?

What makes you believe that you have a Thyroid problem?

This is a 4 year old thread you are re-opening!

Understand that with Thyroid, you can have all your blood labs within the "normal range" and that doesn't mean that you are not having a Thyroid problem.

Have you had your TSH, Free T3 and Free T4 blood tests done?  If so please post the results along with the reference ranges.  Then we might be able to help you determine what is going on.

you would not be the first patient to be told they are "normal" and that nothing is wrong, yet the Dr's have never tested anything beyond TSH and also to get relief, many people have to be mid range or above.  So if you are within range but towards the lower end, you may very well feel like crap and need medication. Yet many Dr's are  happy to leave you alone and feeling like crap!
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