I saw my endo (this is 2nd visit in two months) this week. He had a look at all the results from the blood tests that were taken 2 months ago. La la la chat chat chat..oh you are Hyper drop the dose, keep up the calcium, see you in 4 months.....WHAT???? I reminded him he had asked me to drop the dose which I had done, and showed him MY blood tests which I had requested myself. He looked and said...Oh! Well, that's good the new dose is working!
My TSH was 0.05 now it is 0.14 whoop de bleeping do! The Free T4 dropped from 24.7 to 19.7 so that is a good drop but not enough. I told him these were done 25 days ago and shouldn't we get new tests now, as I am starting to notice the hypo symptoms starting again..especially depression...BIG depression. He said, oh no we'll just see how you go along for the next 3 to 4 months...I was astounded. I had warned him that I didn't want to go down to 100 mcgs as I go too hypo, but obviously 114.3mcgs makes me HYPER. He said that was the better dose for me. I did mention maybe going to 105mcgs but he dismissed that. I mentioned perhaps some T3 was needed, no no that is not necessary at all. Just stay on the lower dose and see him in 3 to 4 months.
I had no morning cortisol results to show him, when they took the blood they put a note for pathology, PM draw follow up this afternoon...so they forgot to actually process the morning vial of blood and only did the afternoon one. Which as he said was a complete waste of time, as the morning one could be super high or super low and the pm one normal. So he gave me a jug to pee in over the 24 hours...what he failed to remember was that the next day to take it to pathology was Christmas day. So that was a waste of time too.
He said it was a slim chance there could be an adrenal problem, and was ruling out what he felt endocrinology wise could be the problem of my exhaustion, chronic nausea etc. He asked me how did I feel about that, I said You know, I have every blood tests taken every 6 weeks but no one is looking for something else, only the obvious, so I really don't care any more...I will stay in my little house with no life and no job and no friends, and I will just exist. He shot me a look, and got quite upset. He said he was not sure it was an endocrinology problem and it could well be an immunology problem, especially since my teeth constantly get infections with no obvious sign of damage or point of entry to the roots. He said the white blood cell counts showed no infection... I said in total frustration and probably a bit angrily...Look at the date the WBC was done..NOVEMBER..when did I have the tooth out and the infection???? TWO WEEKS AGO of course it won't show up I am sick of this!!!! I told him You guys just don't get it do you! and started to leave... He told me he was sorry but he still couldn't think what else to do for me.
So see him in 3 to 4 months after explaining the frustration and tiredness and no life and total depression? It is coming into our summer here 40c (101F) a lot of the time..I have no air con, I know if I stay like this I will end up either in a psych ward or emergency department (which by the way is over a 40 minute drive and even then they can't always see you!)
So that's it for the moment, the depression hit BIG time last night (our Christmas day) and I ended up on the phone for 3 hours bawling my head off at my darling man to come take me away. He agrees the medication is too low as he has seen me at the start of this year the very same. He noticed it starting a few weeks ago. So now he's worried about me!
Oh well, that's all for now...just wanted to update those who follow my story!
Merry Christmas all!