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499534 tn?1328704178

Update on starting Tirosint! Barb are you in too??

Hi ALL!  I am starting my 6th week of Tirosint.  I have to say that I feel great and no longer have that foggy feeling I use to get about 2 hrs after taking my synthroid.  I will be going in at the end of this week for labs to see how they look.  I feel pretty darn good!  I am working ....going to college full time....raising my daughter....etc....etc!
All I can say is how THANKFUL I am to feel good again!!  
I am on 125 mcg Tirosint and 20 mcg Cytomel.

Barb- How are you doing on this med??
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649848 tn?1534633700
COMMUNITY LEADER
I agree with your doctor that your FT3 was too high and FT4 was too low... it would have been very simple to lower your WP dosage and add a bit of T4 vs starting all over, but you're into this regimen now, so I do hope it works for you.  

The advantage of taking synthetics is that you can adjust them individually, whereas with desiccated hormones, you can't.

You said you'd been on 100 mcg levothyroxine... is that the same dose of tirosint she put you on?
Helpful - 0
Avatar universal
My apologies. I had my labs drawn at Quest and their reference ranges are as follows:

T4 Free: 0.8-1.8 (ng/dL)
T3 Free: 2.3-4.2 (pg/mL)
TSH: 0.40-4.5 mIU/L

Yes, you are correct,the labs were posted while I was still on WP. I discontinued WP and switched over to the synthetics on 11/14. I am hoping in combo with the Cytomel that I can find a balance because dealing with the symptoms is affecting me in all areas of my life. I have a 5 year old son to chase after, so I'd love to be more of an active participant  in activities with him than being an observer. That's how tired I've been for awhile now, especially before my Hashimoto's diagnosis in August 2013 :(
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
What are the reference ranges for your FT4 and FT3?  Reference ranges vary from lab to lab and have to come from your own reports.  

These labs posted are when you were taking the WP?  

We've had some members that have reactions to fillers/dyes in the meds, but that's really quite rare.

Most people tolerate Tirosint quite well, because there's really nothing in it to be allergic to - that's why it's considered hypoallergenic.  The biggest problem with Tirosint is that Tirosint is better absorbed than other T4 typr meds, and doctors often try to start patients on too high a dose. Another problem is that many patients don't stick with it long enough for it to work.  

I was on it from the time it came on the market in 2009 until August of 2014 and I did great on it.  I hope you do, also...
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Avatar universal
I was off generic levothyroxine for nearly two months and switched to WP THYROID 65 MG. I felt better than I had in years and then some symptoms returned. I no longer had body aches and pains, eye problems, fatigue issue, insomnia and actually dropped a few pounds. And then my labs came back, so my doctor took me off of WP and put me on Cytomel 5mg and Levothyroxine 100 mcg. Within a day, the brain fog returned, fatigue, eye problems and body pain were present again.

My brand of generic Levothyroxine is made by Lannett, so I checked the inactive ingredients. I have Hashimoto's, so two ingredients caught my attention: corn starch and a form of potato starch. I am highly intolerant to corn in particular and learned that corn, rice and sesame is cross reactive which causes the body to trigger an immune response as if one consumed gluten.

I called my doctor and waited a day for a call back. I explained to her I suspect that the corn and potato starches (potato being in the nightshade family) is triggering an immune response and that I must get off this stuff pronto. She said I could try compounding my medication but was open to my suggestion of trying Tirosint before going that route.

I loved WP Thyroid and felt good, not perfect, but bearable, however my doctor was not happy with how my numbers changed so dramatically. She said I was getting too much T3 and my T4 was way too low. She did not want to lower the dosage on WP, so here I am. Below are my latest lab results from my WP Thyroid trial (6 week period) reported on 10/31/15:

TSH 2.79 (was 3.36 on 9/5/15)
T4 Free: 0.09 (was 1.3 on 9/5/15)
T3 Free: 4.5 (was 2.7 on 9/5/15)
B12: 1419 (was 332 on 9/5/15) - now I take my B12 every other day to lower this number

I hope that I tolerate Tirosint. I adjust to medication very quickly and rarely have side affects. I just wish as a Hashimoto's patient that I knew that the levothyroxine that I was on for the last 5 years was doing more harm that good due to the fillers by contributing to my symptoms and exacerbating my disease state. I would have had better results prior to finding my current provider had I known,

Did not make the connection until trying both synthetic and natural desiccated medications. I am curious to know if other Hashimoto's sufferers have made a connection with medication fillers aggravating their symptoms.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
Yes, the tread is still active as long as someone posts on it.

You went off thyroid med, after you had a thyroidectomy?  

It's not unusual for symptoms to worsen when starting a new med or when adjusting dosages.

Were those T3 and T4 tests, Free T3 and Free T4 or were they Total T3 and Total T4? They aren't the same tests... Can you please post the results, with reference ranges so we can better assess your situation?
Helpful - 0
Avatar universal
Hi, is this thread still active? I just started Tirosint a week ago and was on Levothyroxine(137mcg). I started having carpal tunnel, tarsal tunnel, joint pain, and muscle aches 4 months ago(the muscle pain a year ago.) Had thyroidectomy 20 years ago and did well on Levoxyl. I did go off all medicine for a year a couple years ago(financial problems.) My symptoms are worse on Tirosint and my doctor didn't do a complete thyroid blood work, just TSH, T3, T4. What blood work do I need and should I demand to try a T3 medication?
Helpful - 0
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