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Uterine didelphys and hypothyroidism
Hi,
Posting again here.
I am a mother of an 18 yr. old daughter, who just found out that she has 2 uteruses. I had posted about a month ago on here about her, thinking it was related to her thyroid. We dont know the extent yet as for: If she has 1 kidney or 2 cervixes etc., as we will go in for a future MRI to determine on the 15th of Nov.
I was curious if anyone having U.D. has ever been misdiagnosed for mental disorders? I know she has had U.T.I infections along the way and I heard that sometimes they (U.T.I's) can pose as a mental disorder if the infection has gotten bad. Apparently 1 kidney and hypothyroidism can go hand in hand with this Uterine Didelphys.
Now if you put 1 kidney in the picture? I am not a doc but boy it seems to make sense here. I dont yet know if she does have one kidney yet, but from what I have been reading... it seems pretty common with this disorder.
Anyways, we have had a long battle of not understanding what is exactly wrong with my daughter. It seems after her given meds back in last Feb. she has never been the same, and for six months since those meds ( Almost like it pushed her over the edge or to extremes: (albuteral, birth control, flagyl)
In which from it, have noted extreme mood/emotional changes right before her period every other month. ( Which would also makes sense with 2 uteruses.right?)
It's very frustrating because to see who she was and where she is now, well she just isn't her. She has compulsive, split personalities, voices, mania's etc and it always seems to be extreme right before her period epsecially every other month. I know this sounds crazy but am praying for a miracle here and process of elimination....
Does this relate to anyone or make sense to anyone???
Posting again here.
I am a mother of an 18 yr. old daughter, who just found out that she has 2 uteruses. I had posted about a month ago on here about her, thinking it was related to her thyroid. We dont know the extent yet as for: If she has 1 kidney or 2 cervixes etc., as we will go in for a future MRI to determine on the 15th of Nov.
I was curious if anyone having U.D. has ever been misdiagnosed for mental disorders? I know she has had U.T.I infections along the way and I heard that sometimes they (U.T.I's) can pose as a mental disorder if the infection has gotten bad. Apparently 1 kidney and hypothyroidism can go hand in hand with this Uterine Didelphys.
Now if you put 1 kidney in the picture? I am not a doc but boy it seems to make sense here. I dont yet know if she does have one kidney yet, but from what I have been reading... it seems pretty common with this disorder.
Anyways, we have had a long battle of not understanding what is exactly wrong with my daughter. It seems after her given meds back in last Feb. she has never been the same, and for six months since those meds ( Almost like it pushed her over the edge or to extremes: (albuteral, birth control, flagyl)
In which from it, have noted extreme mood/emotional changes right before her period every other month. ( Which would also makes sense with 2 uteruses.right?)
It's very frustrating because to see who she was and where she is now, well she just isn't her. She has compulsive, split personalities, voices, mania's etc and it always seems to be extreme right before her period epsecially every other month. I know this sounds crazy but am praying for a miracle here and process of elimination....
Does this relate to anyone or make sense to anyone???
I also wanted to mention that a thyroid problem was also thought to be a problem for me as well. However, my father believes, after doing much research and talking with colleagues that the test for a thyrois problem can be inaccurate. It was read that many doctors to not test for the right thing and can cause a false reading. This is just something that I wanted to note. ( I am sorry to say that I am unsure of what it was he said needed to be tested for to get a more accurate reading.) Also, you may have a doctor that knows exactly what he's doing but just keep in mind, if you are ever unsatisfied with an answer.....get a second opinion!
I also wanted to apologize for all of my errors with spelling and such. It is extremely late when I am right now but I hope that this does not cause too many problems while reading my post. Good luck!
I also wanted to apologize for all of my errors with spelling and such. It is extremely late when I am right now but I hope that this does not cause too many problems while reading my post. Good luck!
Hello cin_68,
I was diagnosed with uterus didelphys in my senior year of high school when I was about 18 (fall 2004). I had been under the care of a gyno. for about two years already at that point for odd symptoms that I was having. Such as the fact that I would have to use 2 tampons for each side also that I would get bacterial infections almost every month. I was distraught about this because I was on antibiotics all of the time (I later talked to a different doctor that suggested I try Acidophilus for this problem and it changed my life, in case this ever happens for your daughter. This is a vitamin that regulates the bacteria in the body. This is almost an equivalent to eating yogurt, so drections recommend staying away from yogurt while taking these pills so as to not get too much of it at once) The only reason that found out about my condition was when a a new doctor filled in for the day while my regular gyno. was out of town. To say the least, it had become a really big shock to me and was not told to me in the best of ways. I felt like a freak and was completely emarassed about it, when I became older I as very self-conscious about having sex with my partner although it was only painful in certain positions. It has taken reading blogs from other people that have helped me feel a bit more normal because there are more people like me.
I wanted to write to you because I share the concern for your daughter. Something that I had to keep telling myself was that it could always be worse and at least my problem was on the inside and not apparent to everyone, just people that I wanted to know.
I did much research on this condition and even written a few papers in college about it. This is definitely a rarer condition but not life-threatening luckily. When I found out about my condition I found a new gyno. and was properly diagnosed. I did ask him questions about this condition such as, "could I get pregnant in both uterine?" He responded no but I have read that yes, this is possible. This is kind of cool if you think about it. Some of the information that I have found out is that although there is no real evidence as to why this happens to some, it is because the Mullerian duts did not fuse properly while in the womb. I atually hate when people refer to me as having 2 of all of these parts. I will correct them and say, "No, I have one with a wall down the middle. Everyone starts out this way, I was just not quite done when I came out :) "
When I finally told my 3 sisters about my condition ( my parents were already informed but I needed time to tell others.) they were very supportive. My sisters and I are close and all three have offered to carry my children for me if I am not able to carry a baby to full term. Make sure to keep being supportive of your daughter, it is a lot to take at 18 when all you want to do is be like everyone else. It is now a joke between us that when God was handing out body parts, I went back for seconds. This was just something that made us all laugh and may help for your daughter.
It is important to know the exact anomaly that your daughter has, there are a few different kinds of uterine anomolies and uterus didelphys is just one of them. Luckily, I have read that UD is one of the best to have because the percentage of having children is greater, I have read about 60%. However, do keep in mind that this may not be an easy road. There is definitely the chance that she may not be able to carry a child fore preterm labor is a big possibility. Good news is that although these are more high-risk pregnancies there are things that can be done. Bedrest early will be likely but also because the cervices are so weak( if she has 2, which causes the preterm labor and or miscarriages) doctors are able to help the cervix to stay closed with a band. However, I am almost 23 now and while I am close to settling down with my soon to be fiance, it was important for me to make sure that he understood that we may never be able to have children together (although surrogates are an option).
I know that this is a long message but I wanted you to get an idea of how someone else with this condition has dealt with it. I have read past blogs where people who do not have this condition do not understand and are naive about how a girl can go so long and not realize that she may have 2 vaginas or that she is different. Blow them off because when you are young you are just starting to get to know your body and even if you see a diagram of the human body a girl can't really be sure that what she has is not normal. For me, the second cervix is farther back which is why it was not found sooner and the reason for the infections. LIke I said, sorry that this post is so long but I also wanted to write because I too have had some ongoing battles emotionally. I did have my kidneys checked which turned out to be fine (since they develop at the same time) and though my doctor says that these emotional problems are probably not related, I am not convinced along with my parents. I have been battling depression for years though I was only recently diagnosed. However, after trying many many different medications for depression nothign has seemed to work. I too have these extreme mood swings. My father is in the medical profession and has done much research on my behalf. Things had become so bad that I have taken time off of school in order to get to the bottom of my problems. My father feels that I need to see an endocrinologist. After thinking that I was only suffering from depression, I had gotten worse and he now feels that depression is only one symptom of a problem that I have. It is felt that I have some sort of chenical imbalance (which could make sense because of the double uterus, who knows what levels of hormones are being released due to this?) This theory has been discredited by some doctors but honestly, doctors DO NOT know all! I feel that this makes perfect sense. The manias that you say your daughter has seems to fit a profile of a manic depressive person a.k.a Bipolar, which my father also researched thinking that I may have. Now this was not thought to be the case by my psychiatrist since my drastic mood changes were "not as serious as a Bipolar person, they tend to do irrational things and i do not quite fit the profile". However, I am not convinced about his reasonings.
I am telling you all of this because I along with my family feel that there may be a direct correlation between my double uterus and my emotions. We think that there could be too much of one hormone to handle the two sides or maybe not enough of a hormone that is needed to compensate of the "extra parts". I do not think that it would be a bad idea to do to seek the help of a psychiatrist or endocrinologist for your daughter and have a full workup done like I me. Now, I am no doctor and this is not my father's medical field but it can't hurt to try. After all, I was a straight A student and very involved. Then all of a sudden my grades dropped and I started to lose control of myself and not care anymore about much and for years have never been quite able to get it back together. Though many times I thought I was "cured", I always seemed to go back. I do want to be clear that I have had a good life but who knows what treatments could have done, if they'd been found sooner. I am hoping that this is my answer.
I hope that my story may help you and your daughter ( if you make it through my book, haha). There will be an answer for you somewhere just keep looking and hang in there! P.s. keeping track of the mood swings and descriptions of problems that your daughter encounters may help to locate the problem faster. Happy Holidays and I hope things get better for you soon!
I was diagnosed with uterus didelphys in my senior year of high school when I was about 18 (fall 2004). I had been under the care of a gyno. for about two years already at that point for odd symptoms that I was having. Such as the fact that I would have to use 2 tampons for each side also that I would get bacterial infections almost every month. I was distraught about this because I was on antibiotics all of the time (I later talked to a different doctor that suggested I try Acidophilus for this problem and it changed my life, in case this ever happens for your daughter. This is a vitamin that regulates the bacteria in the body. This is almost an equivalent to eating yogurt, so drections recommend staying away from yogurt while taking these pills so as to not get too much of it at once) The only reason that found out about my condition was when a a new doctor filled in for the day while my regular gyno. was out of town. To say the least, it had become a really big shock to me and was not told to me in the best of ways. I felt like a freak and was completely emarassed about it, when I became older I as very self-conscious about having sex with my partner although it was only painful in certain positions. It has taken reading blogs from other people that have helped me feel a bit more normal because there are more people like me.
I wanted to write to you because I share the concern for your daughter. Something that I had to keep telling myself was that it could always be worse and at least my problem was on the inside and not apparent to everyone, just people that I wanted to know.
I did much research on this condition and even written a few papers in college about it. This is definitely a rarer condition but not life-threatening luckily. When I found out about my condition I found a new gyno. and was properly diagnosed. I did ask him questions about this condition such as, "could I get pregnant in both uterine?" He responded no but I have read that yes, this is possible. This is kind of cool if you think about it. Some of the information that I have found out is that although there is no real evidence as to why this happens to some, it is because the Mullerian duts did not fuse properly while in the womb. I atually hate when people refer to me as having 2 of all of these parts. I will correct them and say, "No, I have one with a wall down the middle. Everyone starts out this way, I was just not quite done when I came out :) "
When I finally told my 3 sisters about my condition ( my parents were already informed but I needed time to tell others.) they were very supportive. My sisters and I are close and all three have offered to carry my children for me if I am not able to carry a baby to full term. Make sure to keep being supportive of your daughter, it is a lot to take at 18 when all you want to do is be like everyone else. It is now a joke between us that when God was handing out body parts, I went back for seconds. This was just something that made us all laugh and may help for your daughter.
It is important to know the exact anomaly that your daughter has, there are a few different kinds of uterine anomolies and uterus didelphys is just one of them. Luckily, I have read that UD is one of the best to have because the percentage of having children is greater, I have read about 60%. However, do keep in mind that this may not be an easy road. There is definitely the chance that she may not be able to carry a child fore preterm labor is a big possibility. Good news is that although these are more high-risk pregnancies there are things that can be done. Bedrest early will be likely but also because the cervices are so weak( if she has 2, which causes the preterm labor and or miscarriages) doctors are able to help the cervix to stay closed with a band. However, I am almost 23 now and while I am close to settling down with my soon to be fiance, it was important for me to make sure that he understood that we may never be able to have children together (although surrogates are an option).
I know that this is a long message but I wanted you to get an idea of how someone else with this condition has dealt with it. I have read past blogs where people who do not have this condition do not understand and are naive about how a girl can go so long and not realize that she may have 2 vaginas or that she is different. Blow them off because when you are young you are just starting to get to know your body and even if you see a diagram of the human body a girl can't really be sure that what she has is not normal. For me, the second cervix is farther back which is why it was not found sooner and the reason for the infections. LIke I said, sorry that this post is so long but I also wanted to write because I too have had some ongoing battles emotionally. I did have my kidneys checked which turned out to be fine (since they develop at the same time) and though my doctor says that these emotional problems are probably not related, I am not convinced along with my parents. I have been battling depression for years though I was only recently diagnosed. However, after trying many many different medications for depression nothign has seemed to work. I too have these extreme mood swings. My father is in the medical profession and has done much research on my behalf. Things had become so bad that I have taken time off of school in order to get to the bottom of my problems. My father feels that I need to see an endocrinologist. After thinking that I was only suffering from depression, I had gotten worse and he now feels that depression is only one symptom of a problem that I have. It is felt that I have some sort of chenical imbalance (which could make sense because of the double uterus, who knows what levels of hormones are being released due to this?) This theory has been discredited by some doctors but honestly, doctors DO NOT know all! I feel that this makes perfect sense. The manias that you say your daughter has seems to fit a profile of a manic depressive person a.k.a Bipolar, which my father also researched thinking that I may have. Now this was not thought to be the case by my psychiatrist since my drastic mood changes were "not as serious as a Bipolar person, they tend to do irrational things and i do not quite fit the profile". However, I am not convinced about his reasonings.
I am telling you all of this because I along with my family feel that there may be a direct correlation between my double uterus and my emotions. We think that there could be too much of one hormone to handle the two sides or maybe not enough of a hormone that is needed to compensate of the "extra parts". I do not think that it would be a bad idea to do to seek the help of a psychiatrist or endocrinologist for your daughter and have a full workup done like I me. Now, I am no doctor and this is not my father's medical field but it can't hurt to try. After all, I was a straight A student and very involved. Then all of a sudden my grades dropped and I started to lose control of myself and not care anymore about much and for years have never been quite able to get it back together. Though many times I thought I was "cured", I always seemed to go back. I do want to be clear that I have had a good life but who knows what treatments could have done, if they'd been found sooner. I am hoping that this is my answer.
I hope that my story may help you and your daughter ( if you make it through my book, haha). There will be an answer for you somewhere just keep looking and hang in there! P.s. keeping track of the mood swings and descriptions of problems that your daughter encounters may help to locate the problem faster. Happy Holidays and I hope things get better for you soon!
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