Aa
Was my initial dose too high, now I'm Hyperthyroid
On 4/8/10, I was diagnosed with Hyperthyroidism:
Ref.range
TSH 0.020 L 0.340-5.600
T4 Free 3.20 H 0.53-1.26
T3 Free 8.75 H 2.50-3.90
Started taking:
50mg MMI/day
50mg Metoprolol/day
On 6/25/10, I am now Hypo:
TSH 9.230 H 0.340-5.600
T4 Free <0.15 L 0.53-1.26
T3 Free 2.46 L 2.50-3.90
Adjusted meds:
20mg MMI/day
25mg Metoprolol/day for a week, then discontinue
1/ Does the initial dose of MMI seem a little high?
2/ Is the MMI the cause of my 35lb weight gain in 2 months, or me going from hyper to hypo, or both?
3/ Should I ask to have my blood work done every 2 or 3 wks., rather than a month?
4/ Should I be on MMI for the entire 4 wks until my next lab work?
Thank you!
This discussion is related to Can't Lose Weight.
Ref.range
TSH 0.020 L 0.340-5.600
T4 Free 3.20 H 0.53-1.26
T3 Free 8.75 H 2.50-3.90
Started taking:
50mg MMI/day
50mg Metoprolol/day
On 6/25/10, I am now Hypo:
TSH 9.230 H 0.340-5.600
T4 Free <0.15 L 0.53-1.26
T3 Free 2.46 L 2.50-3.90
Adjusted meds:
20mg MMI/day
25mg Metoprolol/day for a week, then discontinue
1/ Does the initial dose of MMI seem a little high?
2/ Is the MMI the cause of my 35lb weight gain in 2 months, or me going from hyper to hypo, or both?
3/ Should I ask to have my blood work done every 2 or 3 wks., rather than a month?
4/ Should I be on MMI for the entire 4 wks until my next lab work?
Thank you!
This discussion is related to Can't Lose Weight.
Laptops do the same too....my M sticks on my lappy and yet I still manage to type faster than the brain can function lol.
Amazing how DYYSLEXIA is also a side effect of thyroid issues too lol.....
Anyone notice how many times the word THYROID is spelt thryoid?? lol
You would think we would have THAT WORD spelt down to a fine art by now hehehehe
Amazing how DYYSLEXIA is also a side effect of thyroid issues too lol.....
Anyone notice how many times the word THYROID is spelt thryoid?? lol
You would think we would have THAT WORD spelt down to a fine art by now hehehehe
One thing, I knew as soon as I entered the title of this that it should have read "Was my initial dose too high, now I'm Hypo," but I couldn't go back and change it. So anyone who was reading this probably thought "What is she talking about!"
That happens to me; I have so many things running through my head and my fingers get ahead of the brain!
That happens to me; I have so many things running through my head and my fingers get ahead of the brain!
I just lost my response to your response! Grrrrrrrrr ! ! ! Time for bed, will write in AM.
Now I'm really Cranky, ha ha
Good night !
Now I'm really Cranky, ha ha
Good night !
Your comment of "coming out of my skin" sounds exactly like what my daughter said at 17 (3 years ago) when she was suffering Grave's disease symptoms. She was crying herselft to sleep and said almost those same words!
It is a VERY tough disease. I thought I understood it 3 years ago, but now it seems I have more questions than answers about my daughter's thyorid.
Here are some things to keep in mind as you work with your current endo (or another one if you need to switch docs):
1) Is it appropriate to have an uptake scan done? My daughter never had this test, and I've read from some posters that she should have had it done. Perhaps others can chime in on the importance of this diagnostic test.
2) Your anti-thyroid meds are undoubtedly part of your treatment, but be sure to research and/or ask for research material on the specific med you are taking. I read research that in my daughter's case, she only had a 20-30% chance of achieving remission on anti-thyroid meds only. We asked the docs, and they agreed that RAI would be a good treatment choice. HOWEVER, neither RAI nor surgery are "done deals' either. It turns out that my daughter still has significant thyroid tissue. We are still awaiting more diagnostic tests to see what the course of future treatment should be.
3) As long as you are being tested for Grave's antibodies, you could go ahead and ask to be tested for Hashi's antibodies (I think the tests are TGab and TPO). Some people are positive for BOTH autoimmune conditions. It is better to know now and see if it affects the treatment plan than to find out later. It looks like my daughter never was tested for Hashi's, and it looks like she has it as well (although I haven't yet had a chance to see the test results).
4) Your doctor should run regular liver function tests, since anti-thyroid drugs are very hard on the liver. Also, ask if you are taking the type of anti-thyroid drug that can have the rare but serious side effect of suppressing your T cells. If that is the case, if you run a fever for any reason you need to go immediately to the ER.
5) If you are ever considered for RAI, you can research and ask questions about the dosage. I have heard that there is some research that can predict if Grave's recurs after RAI or if there is very little thyroid function afterwards, but I have not read this research.
6) "Grave's rage" is a very real thing! I don't know how much it will affect you, but I have heard stories of people feeling suddenly overcome with frustration. Just be sure to prepare yourself and your family for responses like this, and try to get the support that you need.
You sound like you are already ahead of the game by asking all of these questions. Pamper yourself, do the things that help you feel calm and peaceful, and hope for the best as you progress in your treatment. I wish you well!
It is a VERY tough disease. I thought I understood it 3 years ago, but now it seems I have more questions than answers about my daughter's thyorid.
Here are some things to keep in mind as you work with your current endo (or another one if you need to switch docs):
1) Is it appropriate to have an uptake scan done? My daughter never had this test, and I've read from some posters that she should have had it done. Perhaps others can chime in on the importance of this diagnostic test.
2) Your anti-thyroid meds are undoubtedly part of your treatment, but be sure to research and/or ask for research material on the specific med you are taking. I read research that in my daughter's case, she only had a 20-30% chance of achieving remission on anti-thyroid meds only. We asked the docs, and they agreed that RAI would be a good treatment choice. HOWEVER, neither RAI nor surgery are "done deals' either. It turns out that my daughter still has significant thyroid tissue. We are still awaiting more diagnostic tests to see what the course of future treatment should be.
3) As long as you are being tested for Grave's antibodies, you could go ahead and ask to be tested for Hashi's antibodies (I think the tests are TGab and TPO). Some people are positive for BOTH autoimmune conditions. It is better to know now and see if it affects the treatment plan than to find out later. It looks like my daughter never was tested for Hashi's, and it looks like she has it as well (although I haven't yet had a chance to see the test results).
4) Your doctor should run regular liver function tests, since anti-thyroid drugs are very hard on the liver. Also, ask if you are taking the type of anti-thyroid drug that can have the rare but serious side effect of suppressing your T cells. If that is the case, if you run a fever for any reason you need to go immediately to the ER.
5) If you are ever considered for RAI, you can research and ask questions about the dosage. I have heard that there is some research that can predict if Grave's recurs after RAI or if there is very little thyroid function afterwards, but I have not read this research.
6) "Grave's rage" is a very real thing! I don't know how much it will affect you, but I have heard stories of people feeling suddenly overcome with frustration. Just be sure to prepare yourself and your family for responses like this, and try to get the support that you need.
You sound like you are already ahead of the game by asking all of these questions. Pamper yourself, do the things that help you feel calm and peaceful, and hope for the best as you progress in your treatment. I wish you well!
Please check out my blood work & meds in my journal for July13, 2010.
Any comments on my progress is greatly appreciated!
***HUGS***
Cranky with Graves
Diagnosed 4/8/10
Any comments on my progress is greatly appreciated!
***HUGS***
Cranky with Graves
Diagnosed 4/8/10
Hi Thyroid Buddies,
This is a great 1st read on the disease:
A Simple Guide to Thyroid Disorders
Also, check this out:
www.medlineplus.gov
This is a great 1st read on the disease:
A Simple Guide to Thyroid Disorders
Also, check this out:
www.medlineplus.gov
9 out of 10 people have RAI or TT if their levels cannot be controlled by anti-thyroid meds within 12 months.
Research...as that is how I learnt all about it.
Research...as that is how I learnt all about it.
I think it's too late, Deb........I'm hyper already. So we'll see what the plan is tommorrow. He will probably increase the meth again, right? This is so much fun......I gotta laugh.....ha ha.
Thank you for all your insight and for caring. You are a wonderful person with a big heart and Barry said to thank you, also. He said it seems like I'm learning more from you than my Endo. I am!
****HUGS**** : )
Thank you for all your insight and for caring. You are a wonderful person with a big heart and Barry said to thank you, also. He said it seems like I'm learning more from you than my Endo. I am!
****HUGS**** : )
Ok, good questions. I won't stop the MMI. I feel like I'm speeding my butt off. I have the bulging eyes again, my thyroid is swollen, and I'm not hungry AT ALL. In fact, I didn't eat supper the last two nights. I feel like I need a xanax! Although this is probably going to take some of this weight off, it's not a very good feeling. I feel like I'm coming out of my skin, ya know? Barry and other family members and friends are questioning this Dr.s ethics.
TSI means Thyroid Stimulating Immuniglobulins.
They are the Graves antibodies.
1. I would just come straight out and ask why he didnt inform you that he tested for Graves Disease?
2. Ask what he plans for you in the way of treatment?
3. Ask him why he left it TOO LONG to do your Labs when Methimazole can make you from hyper to hypo very quick if not monitored 2-3 weekly.
4. Ask him if he is prepared to work WITH you on this and not treat you like a number?
Whatever you do...DO NOT STOP the MMI as you will go hyper very quick.
They are the Graves antibodies.
1. I would just come straight out and ask why he didnt inform you that he tested for Graves Disease?
2. Ask what he plans for you in the way of treatment?
3. Ask him why he left it TOO LONG to do your Labs when Methimazole can make you from hyper to hypo very quick if not monitored 2-3 weekly.
4. Ask him if he is prepared to work WITH you on this and not treat you like a number?
Whatever you do...DO NOT STOP the MMI as you will go hyper very quick.
Hey Deb,
I remembered you asking me if I had been tested for Graves and that it would be the TSI on my blood work. So, when I got the report yesterday, I was glad to see he tested me. Did he just not want to worry me? Is this something I'll have for life? I know this would be down the road, but would he even consider RAI for me because I had cancer before and been through radiation and chemo? This sure explains alot about how I was feeling during my cancer treatment. Grrrrrrrrrr...... Research here I come.
I remembered you asking me if I had been tested for Graves and that it would be the TSI on my blood work. So, when I got the report yesterday, I was glad to see he tested me. Did he just not want to worry me? Is this something I'll have for life? I know this would be down the road, but would he even consider RAI for me because I had cancer before and been through radiation and chemo? This sure explains alot about how I was feeling during my cancer treatment. Grrrrrrrrrr...... Research here I come.
Now that just ____ me off ! ! Why didn't he tell me he tested me for graves? The only way I knew I was tested, was because the lab gave me this report yesterday when I asked for copies, but my endo's nurse only gave me my results for TSH, FT4, FT3 on 4/28/10 (my initial bloodwork with my endo.) Kind of an important thing to leave out, no?
Any suggestions on how to handle this with my Dr. tomorrow? I feel let down. : (
Any suggestions on how to handle this with my Dr. tomorrow? I feel let down. : (
Forgot to mention....your last lot of labs was HYPO...not HYPER.
You would be feeling like cr@p at present.
You would be feeling like cr@p at present.
You have Graves Disease Cranky.
The TSI test is the Graves Marker ...yours is over the reference range.
My TSI was 4000 (yesfour thousand) when I was diagnosed and 6 months after RAI and TT, it was under 30 (<30) under the range.
I had it done again a year later (6 mths ago) and I am still in remission.
Your TSI is 370....you take the decimal point out.
My TSI was 400.0 which is 4000 without the decimal point.
Thats the way they calculate it here in Australia.
But remember that my Graves was traced back to 1985 and I was diagnosed in 2007 (22 years later). In 1985 it was thought I had Cushings Syndrome...that come back negative and I never followed up on it.
I just thought I was suffering Post Traumatic Stress Disorder.
Let me know what yr labs are when you get them.
The TSI test is the Graves Marker ...yours is over the reference range.
My TSI was 4000 (yesfour thousand) when I was diagnosed and 6 months after RAI and TT, it was under 30 (<30) under the range.
I had it done again a year later (6 mths ago) and I am still in remission.
Your TSI is 370....you take the decimal point out.
My TSI was 400.0 which is 4000 without the decimal point.
Thats the way they calculate it here in Australia.
But remember that my Graves was traced back to 1985 and I was diagnosed in 2007 (22 years later). In 1985 it was thought I had Cushings Syndrome...that come back negative and I never followed up on it.
I just thought I was suffering Post Traumatic Stress Disorder.
Let me know what yr labs are when you get them.
I started being treated with meds for hyper on 4/16/10 not 4/28/10.
Goodnight!
Goodnight!
I keep pressing the enter key by mistake, before I want to finish. Time for bed.
HUGS back at you, Deb
HUGS back at you, Deb
I WAS tested for graves,but the Doc never told me. I got addtl. copies of my bloodwork in between the dates above:
4/28/10
FT4, FT3, TSH were the same as 4/08/10. I started being treated for hyper with meds on 4/28/10.
TSI 3.7 H Ref.range < 1.31 Should my endo have gone over this with me? I would have liked to have known I was tested. Is this on the high end? How does this compare to when you were diagnosed with Graves? Such a long road you were on.
Do you have your TSI results from when you were diagnosed with Graves? Is this in your journals?
5/19/10
TSH 0.050 L Ref. range 0.340-5.600
FT4 1.05 0.53-1.26
FT3 6.10 H 2.50-3.90
We were on the right track, but then he told me to come back in 4 wks. If I had done the 2-3 wk visit, I think I would have been ok.
I went to the library and got 2 books on this disease, which I should have done 2 months ago, but better late than ever. Most of the books were out. Can you recommend any good readings?
I'm determined to learn as much as I can and be able to work closely with my Dr.
4/28/10
FT4, FT3, TSH were the same as 4/08/10. I started being treated for hyper with meds on 4/28/10.
TSI 3.7 H Ref.range < 1.31 Should my endo have gone over this with me? I would have liked to have known I was tested. Is this on the high end? How does this compare to when you were diagnosed with Graves? Such a long road you were on.
Do you have your TSI results from when you were diagnosed with Graves? Is this in your journals?
5/19/10
TSH 0.050 L Ref. range 0.340-5.600
FT4 1.05 0.53-1.26
FT3 6.10 H 2.50-3.90
We were on the right track, but then he told me to come back in 4 wks. If I had done the 2-3 wk visit, I think I would have been ok.
I went to the library and got 2 books on this disease, which I should have done 2 months ago, but better late than ever. Most of the books were out. Can you recommend any good readings?
I'm determined to learn as much as I can and be able to work closely with my Dr.
I went and had my blood work done and made an appt. for Monday afternoon with my endo. Maybe he doesn't need to see me, we can go over my blood work over the phone. Have you done that before?
Just remember that hypo and hyper symptoms can 'mimic' each other.
You can get fast heartrate and anxiety at BOTH ends of the scale.
I would go from Hyper to Hypo in 2 weeks flat with MMI....it depends on how drug sensitive you are with the med. I was super sensitive and the Hyperthyroidism couldnt be controlled because of the high Graves antibodies.
In regards to the beta blocker...you must wean off these, dont stop cold turkey. I started by going down a 1/4 of a tablet every week...as the fast heartrate can return if stopped too fast.
And I guess I do know a lot about Graves and Hyperthyroidism as many here do ...as we lived through it and survived ! lol
Hugs Cranky ...let me know how you go. x
You can get fast heartrate and anxiety at BOTH ends of the scale.
I would go from Hyper to Hypo in 2 weeks flat with MMI....it depends on how drug sensitive you are with the med. I was super sensitive and the Hyperthyroidism couldnt be controlled because of the high Graves antibodies.
In regards to the beta blocker...you must wean off these, dont stop cold turkey. I started by going down a 1/4 of a tablet every week...as the fast heartrate can return if stopped too fast.
And I guess I do know a lot about Graves and Hyperthyroidism as many here do ...as we lived through it and survived ! lol
Hugs Cranky ...let me know how you go. x
W O W ! ! Do you ever know this disease. Every single word you write makes so much sense to me and I can totally relate. Thank you so much, Deb, for taking the time to write. I know that you are not feeling so good, and I really appreciate it. Know that you are in my thoughts AND prayers for a speedy recovery.
To refresh, I do not have graves, I still have my thyroid, and Doc has me on the "4 week rule." I am a cancer survivor of 19 months and doc knows that and works closely with my oncologists. They all belong to the same medical group.
You responded to my "Push yourself?" post yesterday, where I didn't feel just right...... I even put a call into the Endo's office, but he and his nurse were both off.....do you know it's two weeks today that he lowered my meds, I woke up this morning, and knew "something" was happening to me, but I was already feeling "weird" yesterday .......my thyroid is very swollen today and I'm feeling very anxious.....just like I did when I was hypEr back in Apr and May 2010. I sure hope he is not on vacation next week. Monday morning, I'm going right to the lab to have my blood work done. You Have probably saved me from going hypEr again. Actually, you know, they are opened today. I'm going to go over right now. I will keep you posted. Thanks again Deb. Have a great weekend!
Cranky
To refresh, I do not have graves, I still have my thyroid, and Doc has me on the "4 week rule." I am a cancer survivor of 19 months and doc knows that and works closely with my oncologists. They all belong to the same medical group.
You responded to my "Push yourself?" post yesterday, where I didn't feel just right...... I even put a call into the Endo's office, but he and his nurse were both off.....do you know it's two weeks today that he lowered my meds, I woke up this morning, and knew "something" was happening to me, but I was already feeling "weird" yesterday .......my thyroid is very swollen today and I'm feeling very anxious.....just like I did when I was hypEr back in Apr and May 2010. I sure hope he is not on vacation next week. Monday morning, I'm going right to the lab to have my blood work done. You Have probably saved me from going hypEr again. Actually, you know, they are opened today. I'm going to go over right now. I will keep you posted. Thanks again Deb. Have a great weekend!
Cranky
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