What is wrong with me?

[k2626]

For 3 months I have been having the following-burning feeling sometimes in parts of my body (thought I was bit by a scorpion when I was in AZ, was not), migratory joint/bone pain--sometimes it stabs very quickly, othertimes it lingers--sometimes it feels (when it hits my ankles) like my ankles are going to snap, lower back pain, deep pains in my spine, extreme joint cracking everywhere (never had this till I started to get pains), feet buzzing from time to time, little muscle twitches all over my body. I now also have beaus lines (horizontal ridges) on all of my nails.  I am very fatigued.

Do I possibly have a hyperparathyroid? I have had my TSH, T4 and calcium checked once-all okay, sed rate, RA, lupus,ana etc all okay. I have had a full body bone scan, ultra sound of abdominal organs, brain and lower spine MRI-okay. I have not had my calcium retested and just got my PT tested and awaiting results

I have had GERD for 2 yrs., have low blood pressure.

Any clue what is wrong with me?

[stella5349]

Geez - if you pick apart all your symptoms it could be an aray of things that could be the cause.

I think your doctor may also be lost in really knowing what is up

What were your labs numbers on all the tests.

Why do you suspect hyperparathyroidism?  What were the calcium counts?

[k2626]

I dont know why I suspect this, I guess because I have symptoms> I had my calcium checked once and it was normal. I have had so many tests done, bone scan full body, ultra sound, MRI of head and lower spine, loads of blood work. Just have no clue what is wrong...

Just had my PT tested, waiting results.

[kitty9309]

Have you been tested for Lyme Disease?

[stella5349]

Sorry about all the stuff going on.

Kitty brings up a huge point too. But that brings on more testing.

It sounds you are in the pile of lab work stuff now - seeing what comes up.

So frustrating - but keep it up - there is an answer why this is like this.

[k2626]

I was tested through Labcorp-was fine, waiting on results from Igenex. However, I live in SF so unlikely I have lyme.

Does it sound like I have a parathryoid issue? If these two tests come back clear, think they will dx me with fibro--though I feel its something in my system vs fibro. Also, I now have beaus lines on nails which I read is caused by a metabolic disorder.

[kitty9309]

Let me know how the Igenex test turns out. My Quest labs have all been neg for Lyme. I just rec'd the kit from Igenex and will ask the endo about it.

[k2626]

What have your symptoms been? Have you been dx with a thryoid issue or are you in the midst of finding out?

[kitty9309]

I have Hashimoto's hypothyroidism. Undiagnosed (except by me!) for several years, at least.

My main symptom is dizziness- like a dysequalibrium. I also have muscle/joint pain, muscle twitching all over, fatigue and hair loss. I had a bulls eye rash in 1994 (July) and the first vertigo spell was in November of that same year. Maybe a coincidence???

My mom is also hypo with dizziness. My dizziness was almost gone when my TSH was 1.4, then it went back to 5.1 and the dizziness became worse again. I just got retested after an increase and will soon find out if it helped. I still am very dizzy and fatigued, so I don't think my TSH changed too much for the better.

My endo suggested untreated Neurological Lyme after reviwing my symptom history. He is really good at thinking beyond endocrinology. A keeper! He said if I still feel unwell then we need to find out why. No other doctor has ever said that to me!

Keep me posted, if you want. I am very curious. I also posted on the Lyme Forum on MedHelp.

[k2626]

Your lyme must be involved in this. It must be so refreshing to have a good dr, they are hard to come by. I finally just found one myself.

Is it normal for TSH to flucuate? I just pulled labs from some of my old drs and see it is all over the place. My most recent labs are at home..

11/06  4.84
3/08   3.26
7/08   2.83

[kitty9309]

I do and I don't hope part of my symptoms are from Lyme. I will be glad to have an answer, but I am unsure with all the contraversy regarding treatment.

The TSH should not fluctuate by more then 0.75 betweeen tests. Mine was always between 3.5 and 4.7 for years that I know of. It went to 5.96 last summer and I was finally "offered" treatment by my old endo. She even said this has been going on for years!

My new endo said it should have been treated years ago!

Are your thyroid antibodies positive? (I don't remember if you mentioned it and I am too lazy to go look. Sad, sorry. :(

Your levels look like mine used to. Treatment helped until the TSH went back up, so I am still hopeful.

Personally, I think you need treatment. My endo would agree!!

[k2626]

Kitty thank you for your addvise. BTW my TSH  two wks after the July one noted above was 2.31 My calciums over the yrs seem normal

I just cant help but think I have cancer or something like that in my body. My dad just passed from pc, he was dx 3 months ago. AND I just found out I have basal skin cancer which I just had removed yesterday--supposadly it does not met but someone at the gym tonight told me it does, so I am back on the train being PARANOID that it has spread and hence all my pains.

Okay, deep breath--I guess its hard NOT to think its a bunch of things when you have odd things going on and no dx....

[kitty9309]

I understand paranoid! It's ok. I have been called a challenge and an enigma over the years. Only my new endo works hard to fighure me out.
I answered about your TSH in the new post.
There is no reason to link this to cancer- really.
Sorry to hear about your dad- that was fast.
Research the basal skin cancer for yourself so you are sure. Some people don't have a clue, but still spout off!

Deep breath.....

[bncrump]

I just wanted to say that I read your post where you listed your symptoms and oh my goodness. That is me....except I am only 29! I do not ever recall having a bulls-eye rash but I bet it is possible to have one and not know it, right? You could have it one your head, under your hair I guess.

Anyway, I just wanted to say that I have the same problems you do...exactly!

[kitty9309]

Oh, no! Are you also "dizzy"?

Many people never recall a tick bite or rash. My symptoms began when I was 27. I am now almost 41!

Have YOU had Lyme testing? I don't fully trust it, but it is a start. I do know several people who did test positive, but of course they are normal and I am not! I have been called a challenge and an enigma by previous (good) doctors. They were Top Docs, actually, and couldn't figure me out.

I am putting all my eggs in my endo's basket. He seems to be my last hope, unless he can refer me to another specialist.

[bncrump]

Yes, I am dizzy too! I have had a lyme test but just the standard test. Nothing other than that....not western blot or anything.

I too am putting all my eggs in the endo basket and hoping this new one will come threw. I don't know if I really think I have lyme (although I have lived in the woods all  my life) I think it's my thyroid/antibodies/autoimmune stuff. Grandmother had lupus...sometimes I think it's that even though the rheum says NO.

Feel better and good luck. Sorry you have been suffering for so long!

[kitty9309]

I think my dizzies are hypo, mostly. My mom is hypo and has had dizziness. Of course she is not pro-active enough to get her TSH low enough.....

Good luck to you too. This needs to end. I just told my husband that I would keep all of my other symptoms if I could just get rid of the dizziness. It is truly disabling.