Who are you with THYROID???

[stella5349]

As a refresher for members and an invitation to ALL -

How did you come to the thyroid board here at Med Help?  Let us know what conditions you have and what you went through so far.

Do you have a parathyroid disorder? Do you - or did you - have cancer and have had your thyroid removed? Are you autoimmune and struggling?

So many - visit here and a thread like this is so important to know what's up.

We as Leaders and members would like to know what has brought you to this board so we and others can direct you to the best resources available.

Thanks and Happy Health!

[Janet25]

I came to MedHelp when I was dx w/PCOS and hypothyroidism in late 2007. I have been struggling with hair loss and weight problems.  I love this forum as it brings so much knowledge about different things. Hope everything goes back to normal. I dont even want to be seen outside my home, I feel like everyone is looking at me.  My husband is very supportive, but I just feel that he would not want to be with someone struggling with hair loss.  I dunno.  Hopefully my hair grows back where it has thinned out.

Thanks for putting this ? out there.

[FTB4]

I was just bumming around the web looking for info on Hashimoto's and on the muscle aches I was having and found this forum, after following the advice of some of the members, my condition has improved, so now I visit each day, If I can offer some help I try, I think it is a great place to chat with folks who have the same problems and rids you of the feeling that your alone with these symptoms. Thank You FTB4

[Cynnieb4]

I was dx'd with hashis, hypot, and pcos. I am flip flopping probably due to stress. I am doing much better with a 1.0 Tsh. Thanks for all your help Stella:)  I remember up to 2006, and finally making progress. Hoping I can land a better job now.

[ChitChatNine]

I did a search for thyroid nodule and FNA biopsy.  I went for a routine physical and they found 2 nodules by chance .. the rest is history for now after a partial thyroidectomy with two benign nodules removed and then finding two very small micro papillary cancers elsewhere in the gland that are now gone.  The other side never began to work again, so I'm on Synthroid for the cancer supression as well as to live.  It took a good 10mos to get the meds sorted out and then just this Winter I had a severe Vit D deficiency which is doing much better now.  I'm feel well now and have 1/2 the other side of the thyroid intact and ultrasounded routinely and all is stable.

This is a wonderful community ................. I don't know what I would have done without it.  My diagnosis to surgery date was 9 weeks .. and those were longest 9 weeks in my life.

C~

[christine21628]

I was Googling for calcium in urine and it brought me to this forum and what's coincidental is that I use the Tracker for Fibromyalgia and and autoimmune disease I have. Right now I have Hyperparathyroidism and will probably be having a parathyroidectomy in about 3 weeks.   I have heart disease which resulted in a triple bypass in 07, hypothyroidism, CREST(a less aggressive form of scleroderma), fibromyalgia, controlled hypertension and thats the bulk of it.
I use the trackers here and am just getting used to using the forums.

[redheadaussie]

I had looked at a few thyroid forums, but found nothing for Australia. Did a google on my condition and saw MedHelp.
  I do have issues with parathyroids.
Had Follicular Adenoma in left lobe, removed May 07
Hurthle cell Adenoma with changes in right lobe, removed Dec 07.
I have Hashimoto's even though I had my thyroid removed totally.
I am happy to be alive though, and that's the main thing.

[nanca]

After being told by my diet doctor I was hyperthyroid and needed to follow up with my primary doctor,Came to Medhelp to see what it could possible be.  Found out I was graves with two nodules 1 solid and 1 too small to tell.
2 fna's inconclusive results. I had right side of thyroid removed 22 years ago due to 3 benign nodules. Now Im left with the option to get a core biopsy or thyroidectomy of my left thyroid. And after being denied by my medical insurance of a second  opinion for a core biopsy . I am being referred to an Endocrinologist at the UCLA Medical Center  which I am so happy about! Im hoping if I have to have surgery again it will be the Minimally invasive thyroidectomy. I also think that they dont wait  until your hypo to give you replacement thyroid medication . So thankful to this forum, Its been so helpful for me.....

So Thank you all.............

[Barb135]

I was dx'd with hypothyroidism in June 08 and found MH while searching for info that might help me feel better because my pcp was just NOT getting it.  He even refused to do some of the necessary testing because he insisted it wasn't needed and that synthroid was going to make everything "all better".  Also battling weight issues and again, no help from pcp.

Long story short - Using info found here, I managed to get a referral to an ENT who suspected Hashi's, in Oct 08 did further testing to confirm; with US uncovering multinodular goiter.  ENT ultimately referred me to endo, who changed my med.  I'm now taking generic levothyroxine and he added 10 mcg cytomel daily.  

I also have pernicious anemia so as long as I get my B12 shot every 2 weeks and take my thyroid meds, I'm feeling better than I have for years, in spite of still struggling with the weight issues.

Thanks to everyone here who did and still does provide such a lot of information for me to be able to get the treatment I needed/deserved.  

[stella5349]

I found med help on a search too. I was already RAI's for Graves disease back in 2004 and I struggled trying to find out answers why I felt so ill after it. I was googling "burning tongue" and thyroid and found Med Help. I lurked for many months before posting for help. Two members step up and gave me my first clue that this was all realated to thyroid. That started my endless search for answers.

At this time I am grateful that 100% of my hypo symptoms are gone. Even though I became OCD on Thyroid research for myself I learned so much about all the hormones connected together and my health has never been better.

I too thank everyone for being a support for me. And I hope I can return all help back for many years to come.

This is what is about for me now, not letting others suffer as long as I did - not being alone and not knowing why I was so ill.

Maybe even save some patients a bit of cash too and not go through all the expense I did - when simple testing was what I needed to steer me correctly for better health.

[Super_sally888]

I was diagnosed with PCOS and hypothyroid in 2000 & parathyroid issues.  No known cause, but possibly autoimmune (though antibodies were low I do have other autoimmune stuff going on).  Possible pituitary involvement (pituitary adenoma). After a few years on rocaltrol (bioactive vit D) the parathroid stuff settled down on it's own.

Just had a baby 2 months ago.  She is very healthy - thank goodness after a difficult pregnancy, which included a laparatomy for what turned out to be appendicits at 3 months followed by (but probably caused by) amoebiasis.  I also had gestational diabetes.  Been hanging around medhelp for a couple of years now.  Like the support and I like to give advice when i can.

When i got treated for thyroid it's like the lights came on again. When I added dessicated (armor) it was like the world had color again.  it took me 2 years of feeling terrible and gaining weight before I got diagnosed.  After about 3 years my doctor left and I had to find a new doctor.  She said she didn't think I had hypothyroid and cut my meds.  WHen my TSH skyrocketed she had to admit she was wrong.  Anyway, I didn't hang around and found my current doctor of about 5 years who is competent and caring and knows my history.... though there are ups and downs... but he handled my pregnancy superbly and I have my beautiful baby girl as a result.

Anyway, I hate to think of others suffering from what is normally a very treatable condition.... and hope my experiences can help someone....

[selmaS]

Hi...I was researching info on another condition I was dx with and joined bcuz I could also get info on Hashimoto's which was dx shortly after my other one.

There are so many forums out there, but everyone here is so helpful and friendly.

And like I said there are so many forums within this site that I can look up info on my father's condition, or my mom's ect.

With my hashi's I was dx'd but not put on meds and it was the member's here that got me on the right track for testing and I was able to get my PCP to redo labs and finally after a yr and a few months was placed on meds.

Thanks!!  : )
"selma"

[hope4thegoodstuff]

I found this site thru the help of my daughter.  She's an x-ray tech/massage therapist.  I have just had my thryoidectomy a week ago.  My thyroid was in disgusting shape apparently, per the surgeon, due to Hashimoto's thyroidits.  I had a nodule that was cancerous though not as bad as the Dr expected.  He did, however, remove a lot of lymph nodes.  That made me nervous, but they all came back as reactive to the Hashi's and not cancerous.  At this point they do not believe that the cancer has gone very far.  He took my thymus as well.  That was ok, I guess, as I didn't even know that I had one of those.  : )  So I am 10 days in to having no thyroid and I am not on any meds.  I go to see the surgeon again on Thursday for a follow up and then go the endocrinologist to discuss radio active iodine therapy.  I am more uptight and worried about that than I was the surgery.  Gosh I just want to get thru this and get it over with.  Though to be honest, I have yet to really hit Hypo hell.  I thought I'd be well on my way and I really don't feel much other than getting tired easily.  I had that with the Hashi's.  Anyway, being able to come in and read other peoples stories helped get me thru the surgery.  It went well.  Incision is healing and I don't have a lot of other issues at this point. Thanks to all of you.  The support on this site is amazing.

[skeeterknitwit]

I stumbled on this board while looking for answers.  A random blood test showed I was severly hyperthyroid, but I had no symptoms.  Is there any other part of the body that Drs. feel the need to kill because it is working too well?  Several months later, I began having symptoms of T3 toxicosis.  I was finally diagnosed with toxic adenoma by a process of elimination.  Not Hashi's, not Graves', not multinodular goiter, so it must be a big hot nodule.  I had RAI 12/08, finally went hypo 3/09.  I'm doing well on low dose Levoxyl.  So I guess the RAI killed the nodule, but not the suppressed thyroid tissue and it has started working again.
To all members  - Thank you!  You have been a lifeline for me to hang onto!

[pep88]

I guess now I'll always be described as "hypothroid".  But I don't like that term... not even one little bit!  I have NO thyroid and it's very different (at least in my estimation).  My thyroid happened to have cancer and I had to let go of it.  I let a surgeon cut it out.  It was an accidental dx and a quick thyroidectomy with little complication.  

I barely even have a scar.  And it's easier to forget that way.  I choose not to dwell on the cancer or its treatment.  I'm clean and that's that.  A speed bump at best.  I don't even like to acknowledge that it truely is a reality on a medical form...  And if pressed, (in real life...) I'm uncomfortable with it, but I'll talk about it... Especially if I like you.

But don't call me hypothroid, because I'm not.  I'm thyroid-less.  And I think there's a major difference.  I'd finally call me "stable" on meds now, but it was a long journey.  And there's no book about living without a thyroid.  I know of several here on the board and others in my life that have gotten on meds and "hopped" (pardon the Easter pun) away very happily with little or no adjustment to those meds...  Regretfully, I was not one of those.  I spent over a year switching from dosage to dosage, med to med, looking for the correct one for me.  I've been to H-E-double toothpicks and back, and have come out on the other side.  FINALLY!

I check in here once in a while to see if I can help someone else, give a few words of comfort, and maybe remember, in even just a small way, how lucky I am.

Because here I found real help and answers to questions I found too silly or scary for me to write (out loud) about.  But others did.  And it really helped me when I really needed it.

I thank all of you for that.

[bhoysbabe]

I found this site after doing a search on symptoms I had been having for ages
and very very glad I did as truly thought I was losing it!
Docs had told me it was basically depression that was the problem though
now been told have T3 toxicosis? (am I right that this is hyper?) I have hypo
symptoms and last test came back with antibodies elevated, I see endo next
week and am hoping to be put on some form of meds as still not had anything
despite being hospitalised 2wks ago thinking I was having a heart attack.

This site has been great and everyone friendly.

Thanks again

[BB8911]

I came to this site by accident when trying to find information on thyroid nodules.  I was told I had to have a FNA on one of 2 nodules I have. Which scared the heck out of me. Just reading some of the post from others that had already gone through the process helped calm me down and to know what questions I should ask at the time.  I don't do a lot of postings, but I come on here everyday to learn!!  Thanks to all of you!

BB8911

[KB1205]

This site has been a wonderful source of information, thank you!
I came across the site when trying to find information about the link between adrenals and thyroid. I have had symptoms of Hypothyroidism from childhood and have a family history of both Hashimotos and Graves. Even with the family history of thyroid disease
(of the 5 female children of both my grans all five have thyroid disease, and of their children 3 of us have been tested and have thyroid disease) I have been battling to get treatment by doctors. I live in South Africa and the laboratories have only recently revised the reference ranges to 0.4 - 4.0 uIU/ml. My biggest frustration is with doctors,
my doctor barely even glanced at my tests, only looked at reference ranges - if the lab said its high or low he discussed it with me. He didn't look at what was in the high limit or low limit, didn't ask how far I was in my cycle ... O.K enough ranting. The strange thing about the reference ranges is that if you are hyper you get treatment straight away but if you are hypo you have to be over 5 for them to treat, another interesting tidbit is that Hypothyroidism is considered as a chronic disease and has to be treated as such according to our medical aids... yet here I sit can't see an endocrinologist without a doctor referral and the doctor won't treat even though I have High Thyroid Antimicrosomal Antibodies because my reference range has dropped to 2.76 (which I think is because of my adrenals) ... All I can do is sit and wait for that sunny day when a doctor takes my problems seriously.

[mtgoat911]

diagnoses with hypo after chemo, i thought i would get better after i stopped the meds, but i am still having to take eletroxin and i feel horrible and tired all the time, i was on another medhelp forum for another problem, i will read threads over here, but i never post, i am still learning about this illness, i do not have much experience to share

[mags59]

I found this website in 2006 while searching for symptoms of something else.  When I was diagnosed with hyperthyroidism and had then the resulting surgery, this community helped me more than anything else!  I was scared because I live alone and was so sick from the hyperT, and so many of you sent me messages to let me know I was not alone.  MedHelp has been a godsend in more ways than I can count.  I find that the community forums are better than the expert forums because you get to hear what others with your condition go through and what to expect.  Thank you to all the wonderful and brave people here.

[choirgirl]

I found this site the day I came home from the hospital after my TT.  I was looking for info on the bandaging of my scar and received great advice.  When I found out I had cancer (really surprised me), this was a great resource and support group.  I have had such great advice and help.  Now I am dealing with cysts and have found medhelp to be so awesome in my questions.  I find it so comforting to know that "I am not alone."  The stories and assistance that everyone shares have really made me feel like I have friends who know what I'm going through.  Thanks guys!!  Love ya tons!

[swithy]

Now going to look on the site for other peoples experiences swithy

[Eliza150]

I was searching for someone that had RAI for Graves disease about the same time I did. Sure enough my search came to Medhelp, and a post made by Stella.  

[SassyLassie]

I found this site through your profile. I have been told by some docs that my thyroid is fine and by others, that is low, so, I don't know, tests do not show anything, but, taking my temperature under my arm first thing in the morning shows a very low number, so, I say I have hypo.

I am in to natural medicine and do so much research, I could write a book, but, it is an area of interest to me, and I feel that if we do not take care of our own health, no one will.

I look forward to sharing with everyone here and learning ways to help my thyroid.

Have a wonderful day.
Susie

[Eviegee]

I came here initialy due to Graves Disease.

I came back because I had RAI 11 days ago and I feel so hyper it's unreal - I thought this stuff was supposed to make you hypo.

I have lost over half a stone in weight in the past week, can't sleep, had a panic attack, got the frequent bowel movements again, can't stand the heat and I'm itching all over.

I left a mesage with the receptionist at my doctor's surgery this morning but the doc didn't get back to me - surgery now closed.

[mtkst13]

i have autoimmune thyroiditis.

i found this site when i was googling information on thyroid problems in april 2008.  i've been hooked ever since.  

it's comforting knowing that others understand and are going through similar trials.  even though family and friends try to be supportive, they don't understand the roller coaster that thyroid issues can cause physically and emotionally.  i find that they unintentionally minimize and dismiss symptoms and think you're exaggerating or making things up.

thanks!

[tedgirl]

Just curious if you're a doctor, gp, endo, etc.

[brandi0785]

I found this place looking for a forum to ask questions about treatments for hypothyroidism. My pcp is seemigly reluctant to up my dose or change my meds at all even though I have told her I still have the symptoms. My TSH is "normal" right now so she thinks it will all just go away. I have read too much to believe her. SO I am waiting on the help this site will hopefully bring. :)

[daem0n]

I just randomly found this site after looking up thyroid information/forums, wondering if anyone else has the same symptoms/side-effects.

I was diagnosed back in 2004 aged 15 and started on 25mcg of Eltroxin.. I hated the meds so I stopped taking them and got rebound-hypothyroidism, now on 50mcg of Eltroxin. Side-effects are more annoying this time around, urgh, so I basically ended up making myself sicker. I'm an idiot :)

[peterpop]

Hi I am new tonight.  I was looking on the Internet for my symtoms and it brought me to you.  I have struggled with my Thyroide for the last six years,  I have now been diagnosed with Thyroid Antibodies and to be honest do not really know what all this is about.  I have had my thyroxine upped from 225 to 250 due to my TSH level shooting up to 18.  I have also been told that I have very little hope of getting pregnant, I have been trying for over two years now.

[frootbar]

Male, diagnosed about 15 years ago.
Autoimmune/Hashimoto's, extremely high antibodies,
bad symptoms, came here to see what others on
this site were experiencing, learning about, etc.
No history of autoimmune disease in my family.
No explanation as to why/how I got it.  Fascinating.
But it's a real pain in the butt disease.

[Cloulou]

I found the site after a positive FNA and prior to TT in Nov 2007. The site gave me great comfort and support during recovery from surgery and after a high dose of RAI which I was sure based on how I felt had killed me but I just hadn't laid down yet! I also found others who had also had a high dose of RAI and had Salivary Gland damage so this site has been a wonderful resource for that as well. And by the way, once the salivary glands stop working, they no longer hurt as much, the fluid no longer backs up into face near the ears and most, not all but most of the pain subsides and honestly I think I can live very nicely without spit, you just learn to compensate. I was given the option of a procedure that "temporarily" may reopen the ducts and get the glands working again but is not permanent. I opted to just live without the saliva because it was months of inflammation, heavy duty antiobiotics, hot compresses and lots of pain and I am here to tell you, once they stop working it is quite lovely to not deal with that anymore. I did have a clean scan in February this year, it was the day after my father passed away so it was bittersweet. Still not feeling good yet, still trying to tweek the meds, am up to 134mcg synthroid with minimal palpitations so am hoping to be able to get up higher soon before I fall asleep in my cornflakes with a nearly bald head! haha. You guys are the greatest and I feel very blessed to have this resource with all of you and I wish you all the best of health.

[hsum4]

I was referred by a member of the community.  I'm glad I joined because my internal doctor doesn't seem to understand what is causing my problems.  You have to wait a month to speak with a specialist after you are referred.  Meanwhile I'm "stewing in my own juice" so to speak.

Thank you
hsum4

[77Bella77]

I was seaching the internet and came here. I am curious to know as I was recently diagosed for hyperthyroid.  What is Anti-TPO means ? (227.6) readings. Plus what is TSH Receptor  Ab (Positive) -3.31 .

[77Bella77]

I was seaching the internet and came here. I am curious to know as I was recently diagosed for hyperthyroid.  What is Anti-TPO means ? (227.6) readings. Plus what is TSH Receptor  Ab (Positive) -3.31 .

[Rachel4]

I'm 26. I have hypothyroidism since my teens probably but it wasn't diagnosed until Nov 2008. I spent 10+ years being sick but with no appropriate treatment until I started supplements for vitamin deficiencies and hypothyroidism.

Just last week a probable parathyroid tumor was found and I'm getting more blood work next week to confirm. I hope treatment goes swiftly because I start graduate school in August.

Last November I vowed to myself (and my husband) to get to the bottom of my health concern once and for all. I've been taking health science classes in preparation for graduate school and felt for certain that there was a simple solution to these symptoms. I've told myself I wouldn't give up at feeling 80% better this time. I'm shooting for how I'm really supposed to feel.

[evabrown]

After reading these posts, I am so encouraged--I see light at the end of the tunnel!! I can get over this. I am so ill today still ( this is the worst I have ever been--I dont know what struck it off however ) I have seen my thyroid condition as sort of benign, clearly this is not going away on its own...

I have nodules as well, I am so dizzy--
my vision is disturbed, I cant swallow & when I do I am fighting the food or drink back to my throat, from going into my sinus..
my throat looks like a bullfrog for the second day.

What tripped this off??

[josie1970]

i was recently diagnosed and found this forum whilst researching hypothyroidism online. im in the early stages of diagnosis and have not seen all the specialist that i need to yet. this forum is great for airing views and finding out about this condition. new test results TSH 11.82 T4 15.2 the doctor didn't screen for T3

[kidsnchicks]

I am new here.  I have been researching hyperthyroidism for about a month now.  My blood work, ultrasound, scan, and uptakes are all giving results of hyperthyroidism.  I will see the specialism in about three weeks.  The unknown is making me very curious.  Since going on BP meds, some of my symptoms are easier to live with.  I still have trouble sleeping and with the heat.  The other issue that goes against the tests results is that I am not losing weight.  I'm confused.  Any advice?

[midwestfey]

I just joined tonight. Found this site after trying to find information about hyperthryoidism. I have been thinking that I am crazy but being here shows me that I am not crazy at all. Thanks.

[vermonter16]

I just joined this site yesterday.  I was diagnosed with Hashimoto's a little over 2 years ago.  It has been a struggle and I am still looking for a doctor who will help me.  I'm hoping this site will help me!

[champagnedrmz]

I am also a new member. I just got back this morning from my thyroid scan and looked online to see about my regular ultrasound report. My PCP will not do the blood tests I ask for. I have a goiter which was felt 2 yrs ago but confimed on  Feb 14th of this year when I thought I was having a hear attack but it ended up being a gall bladder attack. They did a CAT scan of my heart and found the gall stones but all the doctor could say at that time was did you know you have an enlarged thyroid? I looked at him and said "Well Duhh!" like I couldn't feel that. I decided I better get it checked and my PCP did a feel check and TSH test which came back with .79. To her no problems here. I pushed it and told her there had to be a reason for the enlargement so she set up the ultrasound. The results were mildly enlarged thyroid on both lobes, solid nodule on the rt lobe and 2 solid nodules on the isthmus. Hence the thyroid scan yesterday and today.
She won't do any other blood tests which makes no sense to me. Living in this town though good doctors are almost impossible to find and if I have to go to an Endo here god help me.

[clairebb]

I was googling something about hyperthyrosis, then found the forum.

I was hyperthyrosis for one month, and taking medicines. I am in China, and i want to learn more about my disease.

[magpieannie]

My 8 year old daughter was born without a thyroid. Would love to find other parents who have a child born with Congenital Hypothyroidism. I found this sight when she began having PVC's this year in her right ventrical (felt as a VERY rapid beat during mild exertion). I was looking for answers as to if others who are hypothyroid and on Synthroid that might be experiencig the same thing? The Pediatric Endo's. simple answer that"the two were not related due to her levels being in" normal range " just did not fly with this mama bird! To make a long story short, I got on the band wagon with reading, research,and discussions with other healthcare professionals. I discovered so much that her endo. never revealed to me!  (LIKE FREE t3 LEVELS!!!) She did not like it, but this is my child. I found a new doctor, a family practice MD, highly recommended by my compounding pharmacist who is not afraid to deal with her conversion issues head on, and can think beyond the synthroid box! She has been on Armour thyroid for 6 weeks now, and OH THE DIFFERENCE  in her attitude, energy level, skin, hair, happiness, body temp., hunger, bloating,constipation, and her ability to function in the morning with a smile! The heart palps are still an issue, but don't seem to happen as often!  I'm hoping that with weight loss and a better hormonal balance within her, that they will end as quickly as they began. We have began a good suppliment routine as I also discovered that she was below level on vitamin D. She is taking  ORTHOMOLECULAR brand and she is on the multi w/out iron,vitamin d, magnisium, calcium,fish oil, and c. If anyone thinks I am missing one that would be beneficial to her, please speak up. This sight has given me the first hand adult perspective that I have needed to fill in the dots, as I am dealing with a child who does not know any better then the way she has always been! Thank you all, and keep it up. If I can be of any help out there to any parent who may be freaking out over a hypothyroid child please get in touch. I have been walking these shoes for awhile now, and you may be just beginning! Support and a shoulder can help so much. God Bless

[rose2425]

Hi. I just posted for the first time today regarding low levels of prolactin.

However, my grandmother had her thyroid removed when she was 35 and her mother died at age 38 while having her thyroid removed. My Grandmother was one of 7 children and each one had some sort of thyroid disorder or cancer. My Aunt takes thyroid meds, in fact my mother is the only one who is not on medication.

I am undiagnosed and have been ill for quite a while.

Latest blood work up showed a low level of prolactin. I am not pregnant. My youngest is five - though I did have congestive heart failure 8 days after her birth. No definitive cause. Have never been quite the same since. But Really started to decline about two years ago. Strong history of Thyroid disease in my family, but my tsh levels are o.k.

Can low prolactin alone indicate a pit tumor? Does it suggest any other conditions?

Fever of Unknown Origin since July

45 lb weight loss (105 lbs. 5'4")

painful, terrible headaches behind my eyes, particularly right side

Very heavy periods

Mentle Fog

terrible joint pain, lower back pain, abdominal pain

right sided weakness and pain in arm, hip leg

tingling numbing of hands and feet, Reynaud's Phen.

Levido Reticularis in legs

Dizzy upon standing

Facial Flushing

Neg. ANA and SED rate- Mostly CBC within normal limits, though often anemic

Thank you for your time.

Rose

[crystalthegr8est]

I found this site a few months ago after I had an ultrasound on my neck that came back as multiple nodules. I googled some of the words from the report and found this site. I lurked for quite a bit reading up on everything before I posted a question of my own. Now, three months later I have been diagnosed with papillary carcinoma of my thyroid and surrounding lymph nodes. I am nine days post op from a total thyroidectomy and worried about what my chances are of having to go through external beam radiation. I am currently on 100mcg of Synthroid, as well as 3000mg of calcium. I have an appointment to see my endo on Wednesday of next week and that's when we'll talk about the radioactive iodine treatment and anything else. This site has been a wealth of information and I am truly grateful to the people who have taken the time to post, respond, and offer support and help. Thank you!

[acrogirl]

I was dx with hypothyroidism Jan 08 after dealing with extreme fatigue, was put on 88mcg Synthroid after working with an endo and then sent to a rheumatologist who dx with fibromyalgia.  Was put on Meloxicam, Soma and Elavil to help with "fibro symptoms."   Starting feeling much better for about 6+ months until "crashing" with severe fatigue plus a new symptom - lacation- Dec 08.   Gynocologist sent me to have MRI to look at pituitary even though prolactin levels were normal.  Found macroadenoma (pituitary tumor) and hormone panel showed my growth hormone and IGF-1 were through the roof with a resulting dx of acromegaly.   Had tumor removed Feb 09 at Emory in Atlanta and am 6+ weeks post op now with still severe fatigue.  Blood tests showed a vitamin D deficiency and I have taken my first dose of 1.25mg of Vitamin D per my endo.  I am desperately waiting for it to "kick in" and my energy level to get back to normal.  

[graveswoman]

I stumbled as well on to this site and it has been a blessing. So many questions...

history: 47-year-old female, graves, goiter, pernecious anemia, meniere's disease, raynauds, GED, fibromyalgia, vitamin D deficient, restless legs, heart murmur, previous lyme diagnosis

I am now in the process of being tested for celiac as well, blood work on the 29th. will know results may 4. could all of this have stemmed from celiac? will probably never know, i do feel as though i am in autoimmune hell.!!!

may have RAI in december, doc in boston will not consider it until i have been on meds at least 1.5 years, going on 1 year in june, if no remission then RAI it is. at first hoping for it, to just get it over with, but then you start battling the hypo end of it, so ...

it is helpful to know others feel the same way you do, when your family can't understand sometimes, it has been going on for 15 years now and they are just use to me being tired etc...so they take advantage of it.

[bebehoward]

Did a google search on thyroid and found this site.  I was excited to find it but quickly got discouraged because no one seemed to answer my questions after the first 2 days.
I just came back today after months of being gone out of desparation.  I have had struggles with thyroid for 37 years.  I had radiation treatments as a child, as did my brother, he developed thyroid cancer and I developed a nodule 27 years after the radiation.  My surgeon told me he would remove my thyroid because of the radiation treatment, as a precaution.  After I was asleep he turned me over to an intern who did not understand what he was to do.  He removed the nodule, left the thyroid intact.  I now have to have my TSH surpressed which must be a foreign thing to Drs. today because they argue with me everytime it gets really low.  They are more concerned that I will get osteoperosis than cancer.  So far no signs of either but  have to get into very tense conversations with my Dr. overy surpressing my TSH.  Need to ask another question but that is not what you want in reply to the above info regarding this site.

[blksapphire]

I did a search for thyroid nodules.  I went for a routine physical and my TSH was 0.06 and a second set of blood work was 0.07 .. .  Went to an ENDO, did the scan and uptake and  ultrasound.. found out I had hot nodules. Treated with RAI treatment in December '07, started on synthroid100, now on Synthroid 112. Still trying to get my numbers right.  Lost my voice/hoarseness/scratchy, went to speech thearpy by way of the ENT and no one can tell me what happened to my voice 16 months later.

[Terri627]

Hello. I was diagnosed with follicular thyroid cancer in Jan 2004, after a partial
thyroidectomy <~~~~why does that word come up as misspelled? Anyway,
went in 2 weeks after 1st surgery to remove the other lobe and 1 parathyroid
gland to check for spread. So, I am hypothyroid for 5 years. I forget to take my
calcium more often than I remember. I gained 35 pounds (I'm 5' tall) and after
3 years of begging to be switched to armour thyroid, I switched endocrinologists
and talked the new one into a trial. I subsequently lost 30 pounds and have
managed to keep it off. I am now 122 pounds. I still have almost no energy,
getting through my work week takes so much out of me that I usually have
none for the weekend.
I found this site after putting my latest tsh levels in the search bar. I am so
happy I did! I feel like I've finally found people who get it! I've found a new
family, mostly sisters it seems, just like my real family of 2 brothers and 6
sisters. I am the only one among the siblings to have thyroid issues at this
point.
But, thank you so much Med Help for this opportunity to vent, seek support,
and offer what I can to others.

[stayinalive52]

Had hypothyroidism for a year now. The lithium chemically destroyed my thyroid. currently taking Levothyroxine, .05mg. I have little if no side effects or symptoms. My hair is not falling out, and I have no weight gain. I think my muscles are weak, especially in the legs around the ankles. But I do not know if that is from the lithium, it's hard to say. Anyway, this site is very helpful and thanks for being there.

[stayinalive52]

I forgot to mention,  I have vit D deficiency also. I have to take 50,000 IU once a week for 3 months, then 1,000 a day after. Do not what caused that.

[tiggyG]

I found this on a search for more info on Hypothyroidism after a daughter practically self diagnosed. She was right, it made me look at myself and I got a diagnosis from the doctor. My two other daughters are hypo but one has a low TSH and can't get treatment from her doctor. Without Levothyroxine she is very sick. There are going to be a lot of really sick people out there if the TSH is raised higher which will cause people to self diagnose and get their treatment via the internet. Out of necessity! Did you notice this became a rant??!! Sorry. Yes, really helpful, informative site.

[shaybe]

wow, i'm not alone . I've been in denial for awhile thinking it was all related to menapause, well it's not and it's time for me to find some answers with solutions. I have realized there are so many future health problems that I am not going to skate on by without them finding me!  I searched hyperthyroidism causes and it lead me to this forum. wish you all well and looking forward to the chance to live learn and care and share with all of you.

[poppy1958]

Apparently there are a lot of people walking around getting on with their daily lives who do not realise they have a thyroid problem my GP told me that.
But then there are good GP,s and not so good GP,s my GP told me that people should not wait till they have a hoarse voice.
Before i ever knew i was suffering from hypothyroidism which was January 2005 i had been suffering from  deteriorating health since 1997.
I kept getting coughs, colds, chest infections you name it i got it my health effected my performance at work to the point were i had to resign from my work because i was always going off sick.
I started piling on the weight and got very lethargic until i decided i need help so i went to a sureslim centre that helps you manage your weight control with one of their weight loss plans.
The 6 month course costs £460 but before you can start the course they send you off to have a full blood test that requires you to not eat or drink anything except water for 12 hrs.
My test came back with low thyroid levels so i had to go to my GP at that time ( i have since moved address so my GP changed ).
My GP informed me that i had hypothroidism and the bad news was i was going to be taking medication for the rest of my living life and the good news was it was FREE YIPeee !!!!.
She also advised me not to participate in the sureslim weightloss plan and to find an alternate way to lose weight like go to the gym and follow my own diet.
I was not very happy with her statement as you can imagine as i was doing the plan for the support i so needed.
I had to claim back my money minus the bolld test which costed £60 then

[poppy1958]

I was sooo rudely cut off......

Yes well i had to claim my money back but in order to get my money back i needed my GP to inform them that she had advised me to not participate in the sureslim plan as she had diagnosed me with hypothyroidism.
So i literally stumbled on my condition by accident i would probably be dead now or almost .
I take my wee tablet everyday but i am still over weight.....)-:

[carolbear1515]

I came too this forum a few days ago, was gogeling Graves.....I need to educate myself to get the best care I can.....Thank you all for sharing.Cara

[Ariom63]

Hi...

I was diagnosed with Hyperthyrpoidism back in 2001....they found a tumor in my left thyroid gland and on April 16th, 2002 had it removed.  Been on medication 50mcg ever since.  

[sjboo]

Hi, I found this site when having a look around before my surgery - I have not been on medication or since the surgery been given any.......My symptoms started approx 5yrs ago but blood test came out normal - I ended up in hospital after having a few panic attacks one day - I was kept in for a week and had all sorts of Brain scans, ECG'S, Echoes, and was sent on my way being told that I was either, Just after a virus, Experiencing Stress and Anxiety or .... had something yet to be diagnosed ! - when I came home and I now look back and think this only added to the anxiety !  (So I went on my way thinking I was getting panic attacks and this was causing my nervous anxious behavior and the symptoms were part of this..  I have also decided that I have been very passive in my own handling of this situation - I read other post and you are all so aware and knowledgeable regarding your bloods - I am ashamed to admit that I have never even questioned my results and could not tell you what they were! - I need to open my eyes and take more control.) Then in October 08 I found a lump on my thyroid.......FNA inconslusive, Surgery was on 17th April (Left lobe & Isthmus) Results from the Pathology due in on 13th May. Sorry for the rant - I have been lurking around plucking up the courage to post for a while now. x x x

[lilclar]

Stumbled on this while perusing the net for info on Hashis.  It helped me, even though an RN myself, to become more knowledgable when going into the practioner.  I have changed physicians and now know a therapeutic range that is good for me, and is way lower than what they say is normal.  Hypo for me is a TSH of  1.2 or 1.3 or greater.  I feel comfortable going into my appointments with lists in hand and questions.  I feel the best I have felt now in 6 months.  Hair loss has haulted, and weight is leveling off.  I am still fatiqued but feel that may take some time.  I am on top of things now and it is because of this site that has helped me last year.  Now I get on when I can to check in, with 3 busy kids it gets hard.  But I learn something new every time.  Keep up the good work and thank you.

[pooh103]

I found this website through many days of searching for what is going on with my body....very frustrated and researching for answers :)

I have been hypo for a little under a year and still have yet to feel good.  I made my GP at the time do bloodwork and with a TSH of 4.11 and a family history of thyroid issues, I decided to go to an Endo for treatment.  6 months later and feeling like I was like a piece of paper rather than a person, I asked my GP to treat me.  He at least knows me and my history and I trust him.  Now I cannot change to an Endo because my insurance changed and it would cost me $75 each time (plus $75 for blood work) to go.  

I am very glad to find this site!!!  I am big on finding things out on my own and then asking my doctor :)

[GrandmaLinda]

I also found this website after days of searching.  My 13-year-old granddaughter has been diagnosed with multi-nodular goiter.  Specifics are "complex nodule involving the left mid-thyroid lobe measuring approximately 2.2 x 2.2 cm in size.  Small solid noduoles are seen raning 2-6mm in sizes bilaterally.  Multiple solid hypoechoic nodules bilaterally largest one demonstrating complex characteristics involving the left mid thyroid lobe."

My daughter and I are desperately searching for more information before we take her to the endocrinologist on May 29.  We want to ask intelligent questions and not forget to ask about things we should.  I am so glad to see this website.  The local doc just kind of patted us on the head, said he's sure it's not cancer (how he knows this I don't know), told us not to worry.  The local docs REALLY don't like us using the internet.

Thanks to everyone for being here!

[tenish205]

I found this site while looking for info a adrenal fatigue. I've had geavrs for 15 yeard. Just learning about antibodies nad cortisol adreanls,...after reading info unti l the sun came up it seems to make a little since to me. So now I may have hashis, and adrenal fatigue. Anyway new here. Glad to be here...  

[sdhunt]

I found this site because I'm gaining weight again, hair is thinning, and I'm wondering if taking my Levoxyl with my morning latte is the culprit.  I've been looking for more hypothyroid support; it looks like I might have just found it.
Am glad I found this site.  

[stayinalive52]

i take my syntroid every morning with a full glass of water, then drink my coffe, I hve no problem with this and I just got my 4 month check up. Maybe it is something else causing your weight gain. Do you have your hormone levels checked regularly?? Also, meds could be causing your hair to thin a bit. It;s usually tempory, how long have you been taking it??  

[HeloMcD]

Some weeks ago I felt a lump on the front part of my neck. So far, I had a blood test that came positive for hyperthyroid and an ultrasound showing what looks like 2 cysts. So far, I have no concrete answer, so I started looking for some answers and informations on Google and found this site. I decided to join because it seems to have a lot of people here with the same problems that already went through everything I'm going through and I'm sure I'll find some help here...mainly to try to remain calm until I know for sure what's going on. Right  now I'm so nervous and very scared...
The ultrasound tecnitian said she shouldn't say anything but she saw I was so nervous that she said for me don't worry because it didn't look anything bad. She had seen lots and lots of cases llike mine and in 99% of the cases it was nothing serious. I'm trying hard to keep my mind in what she said, but sometimes I lose control and get REALLY scared. Hopefully she is right...
Thanks to all.

[MyBestAlways]

I found this by googling Post Thyroidectomy.  Starting looking around and was really pleased with what I found here.
I have a multi nodular goiter, hoshimotos, hypothyroid, T3 insufficiency, abnormal nodule on the Isthmus (via biopsy) slated for a total thyroidectomy later in July.

[ANGIEPRNLL]

I know I have hypo- but that's about it.  I was just diagnosed a few weeks ago, but have been taken off my meds until I can get a nuclear test done on my thyroid.  I have 4 more weeks to wait.  My TSH is at almost 15, so I googled to see what the numbers meant and ran across this site!  So glad to have found it!

[maribodm]

Hi,
Found you on the Web.  I have Hashi's and I want to feel better.  Have had it for at least 7 years.  Also want to bring my antibodies down.  I am trying to conceive.
Thank You!

[loonette]

I found this site when I googled follicular lesion.  I was diagnosed with Hashimoto's about a year ago but I've had a goiter for about 5 years now.  A big one everyone keeps telling me.  It is not a great feeling having something foreign growing inside your body.  I have had 3 FNAs and several ultrasounds.  The last FNA showed a follicular lesion.  Needless to say I am not happy with even the slightest hint of cancer.  Total thyroidectomy seems to be the way I am going.  The medical jargon is really scary and I needed some reassurance, so I went to the internet and found you guys.  I intend to visit from time to time.  Thank you for having such a forum for this kind of discussion!!

[asamom]

I just found this site today when looking for info Armour. I had a my thyroid removed back in 2008 after being diagnosed with Papillary Carcinoma. My whole body scan showed no tissue remaining and so my Endo said I didn't need the RAI therapy. Since then seen a new Edno who said I probably still should have had it but, they are going to watch my Thyglob Ab levels and go from there. I am having a hard time getting my doctor to treat me the person, and not my lab results. I have been Hypo for 12 years  gained 80 pounds and just cannot lose it. Everything I have read makes Armour seem like a wonder drug, I would love to try it but can't get the Dr on my side. I am sick and tired of feeling sick and tired, the brain fog is unbelievable and the inability loose weight is really irritating. I feel a sense of  peace reading all of your stories and not feeling quite so alone in this. Thank you to everyone for sharing their stories.

[Rawbun]

Visited Dr. in August 08 complaining of fatigue. He felt a thyroid lump and sent me to get an ultrasound. Ultrasound found multiple (2 big, and a number of small) nodules. Endocrinologist then was referred and I was sent out for a Fine Needle Biopsy which  came out inconclusive. Did another FNB in January with diagnos of "possible follicular cells." Total thyroidectomy recommended based on the number of nodules I had on both lobes. Biopsy of nodules came back with follicular variant papillary cancer. Although the doctor felt the thyroidectomy "basically" cured me, it was recommended that I receive Radio-iodine isolation treatment. Being a teacher I waited until summer to get it done, only to find my thyroglobulin cells increase. I had the RAI with 150 millicuries last week. It was rough: extreme fatigue and nausea. I had my body scan last night and don't see the doctor for another month. Doctor assured me that this was just preventative, but the nurse who did my body scan said that this was just baseline data for the NEXT time I have RAI.
Geez, I can't even imagine having to go through it again...

[underinformed35]

I found through a google search also. I have been hypo for about ten years or so. I have taken synthroid, levothroxen, synthroid and cytomel and now just four days ago started Armour. I have not felt right since I was diagnosed. I would just love to feel like my old self again and have a little energy! I am 36 year old female with four kids and need the energy. I still have all the hypo symptoms and really just hope that Armour helps. I am hopeful and feel like this is my last chance at help!!

[TamraW]

I have parathyroid disease. I also have three nodules on my thyroid which came back benign with FNA. I found this group via Google. I love the trackers! I am hoping to have these nodules (which I do feel like a pinching sensation) and my bad parathyroid removed soon.
T.

[languageladki]

I just found this website by searching information about toddlers and thyroid. I have just discovered that I might have low thyroid and it seems my almost two year old son might too. I hope to find some good information so that he and I might start to feel better soon. I am 42 and he is my only child; when he was born (3 weeks early) they said he might have trouble with temperature regulation for a little while--well he still has a pretty hard time with temperature--his hands and feet are either freezing, or he is very red faced with red spots on the back of his neck and sweating in his hair. Let's hope we find out what this is all about.

[ThyroidFoods]

my mom and my grandpa have hypothyroidism and both been diagnosed in their 50's.

so I've always been reading here and there on how to keep my thyroid healthy

[kimmie1981]

I went to the docs on June 9th because I was severe muscle pain, more than normal.  My numbers were off some, but I then discovered another test then was done that the doc did not mention which was sent out and I do not know if she just hadn't gotten it back yet as it needed to be sent out.  Anyhow I am not sure if it has anything to do with my thyroid or not, but either way, I don't know what it's for or what the results mean.  The test is Parvovirus B19 IgG Antibodies  -  Result 5.2 HIGH.  Normal Range 0.9 - 1.1
Does anyone know what this means?

[medicmommy]

I've been floating around Medhelp for almost two years now...I have experienced hyperparathyroidism (had a chicken-egg sized tumor removed and felt MUCH better!), chemotherapy that gave me thyroiditis and went hyperthyroid, had a thyroid storm (Inderal was my best friend!!!) and then "flipped" to hypothyroid. My thy levels have finally returned to normal ranges and I am completely off of thyroid meds now. It's been a bumpy road, and things are still being closely monitored, but I feel pretty good! The chemo/ interferon treatment was successful (6 months of it for hepatitis C) and I am finally growing towards good health again! I'm a Paramedic and have a good medical knowledge base and am happy to answer the questions that I can, and offer advice based on my personal experiences. I have experienced the Dr "blow-off" and it makes me angry to see when it happens to others, so I strongly encourage everyone to be an advocate for themselves and I will rally behind them to help! Thanks LL for doing this thread now and then! There have been so many newcomers since I began visiting here...((((((((((((((((((((HUGZ))))))))))))))))))~Melinda

[3UnderThree]

I found this through a google search.  I developed headaches recently. My PCP sent me for bloodwork to check for anemia and lyme disease.  As an afterthought, he added on TSH and T4 levels.  My TSH came back high and T4 low.  My thyroid ultrasound showed multiple nodules. I am now awaiting my thyroid uptake scan to get more info about these nodules.  I joined to seek knowledge from others who have been through this before.  

[North48]

I found this site after I was dx with a pituitary tumor in April 08 and in my research I found Med Help. I have not felt well for yrs but the drs keep saying all my labs are "normal" so I've been trying to do research so when I have my appts I know what to ask for and what kind of questions to ask. My son has Hashimoto so this has been a very resourceful place for me to visit.

Thank you for your time and help over the past few months!

[stayinalive52]

All I know, is that I am on syntroid for hypothyroid, and my muscles are sore and ache, and I am tired a lot. So, does anyone else have these side effects??

[katebrunk]

Hi!  I found this board via Google and am quite pleased I did!  I am looking for some experienced support!   I am three weeks away from a total thyroidectomy after a first diagnosis of a multi-nodular goiter in October of last year.  I have quite a few nodules but, only 1 dominant 2cm one was biopsied in the left lobe about 8 months ago.  The results were benign with a recommendation to meet with an endo  and do another sonogram in 6 months.  I work overseas in Azerbaijan and rotate home every 2 months so, I was a little late in my follow up visit.  I remain euthyroid but, the sono showed growth of the 2 cm nodule to 3 cm and growth of two small nodules in the right lobe - 4mm and 8mm just 8 months ago now 1.4 cm and 2 cm respectively. I also have new nodules on my isthmus and overall growth of the goiter.  Apparently that is considered rapid growth?  By the time all of this was revealed in the States, I had to head back to Azerbaijan; where I am today dreading my next trip home in 3 weeks.  The Endo recommended surgery for my next trip home rather than doing any more biopsies.  I didn't know if that was a rash conclusion because I am working overseas or if it is a legitimate conclusion.  To be truthful, the goiter feels like it is growing a little everyday so...I think I will take his advisement.  The surgeon does 5 TT's a week and is also a plastic surgeon, so I am optimistic about scarring.  However, I am worried about the first few post op months.
Biggest concern is I will need to return just 11 days post surgery.  There is a clinic here just for Ex Pats that have German physicians of some caliber but, I am concerned about access to legitimate prescriptions as there is no FDA around here and many prescriptions are made in China.  Has anyone had to deal with post operative support far away from the US?  My biggest concern is becoming majorly hypothyroid, this is not an easy country to get around.  What happens if the doseage I am given is too low and I don't have immediate access to higher doseage?  What happens if I simply up my own dose before I get back to the States.  Unless it is an emergency, I won't be back in the US for 3 months post op.  It takes at least three plane flights and over 30 hours to return so....I need to arm myself with everything I  might need before I return to Baku.  Would love to hear insights, concerns etc.  Of course all of this is contingent on a benign diagnosis!  Can anyone give me insights into time line and constraints if there is malignancy?

[rebel5]

I was already on this site due to Endometriosis and Cfs and a few other immune problems, we have a history of Thyroid problems in the family both Graves and Hashimotos and thyroid cancer most fo my relatives have had their thyroids removed.
I was put on a hromone that induced menopause when i was 29 to help my severe endometriosis and i became violently ill couldnt sleep, heart palpitations ect, i went back to my gyno and did blood tests, my levels were off the charts and i was sent immediately to an endocronlogist, i was in a thyroid storm, he diagnosed Inderel to slow down my heart which im still on, he diagnosed thyroiditus and finally i was diagnosed with graves disease. He said i was extremyl thyroid toxic and thinks i have been for a long time, he believes i was predisposed to get Graves but the hormones for my endometriosis pushed my body over the limit.

Still trying to contorl it and its getting better day by day but im extremly tired and worn out after all the misdiagnosis.

[sarahbanana]

I found it through Google looking for unbiased info on RAI and surgery. It's a wonderful community by the looks of it.

I have had Graves since 2002 controlled with Carbimozole. But Drs still pushing for permanent solution.Plus, I would like to have children some day and that is not possible on Carbimozole. (Drs never mentioed any other ATI drugs exist like the ones in the US, so i am not sure if they are available here)

It's all pretty scary. DR says I have a major chance of Oestoe and heart abnormalities as I have not been treated permanantly. But in the last seven years ATIs have controlled the condition pretty well so I am not sure if that is right.

Except for the thyroid storm I had in April. Ended up in A&E. I didn't even want to go to the hospital but my BF made me and I said OK but lets go to the cinema after! Pretty silly, eh? I was kept in for two days on Oxygen and ECG. Haven't really felt well since despite being on 40mg on Carbimozole still getting racing heart, palps, very teary! Poor BF, he really is patient. I started crying the other day because I got home from work and the bin wasn't emptied.

He is all for just doing just what the DR says and that is quite annoying! I am scared that HYPO is just as problematic as HYPER and there is no going back! I phoned the British Thyroid Foundation as I was really scared and spoke to three women all who had graves then RAI and are now U. They gave me some hope as they said they feel great and none of them regretted their decision. I think that the BFT is funded by DRs though so I am not sure if people with negative experiences would be allowed to give phone support. I told one lady that I was concerned about a thyroid storm after RAI, and she said that was not possible. Then she asked me "who told you that" about four times. WEIRD. On the whole though the ladies were really nice and helpful and did offer some help.

Maybe I am being paranoid. But the evangelical zeal with which Drs have pushed RAI right from the start as a cure makes me really suspicious! Is something else going on? Is there a conflict of interest? I really wish I knew! They never mention any of the problems and all hail it as a cure! What does anyone else think? Why are they all so in love with RAI and so antI-ATIS?

I was told I was almost certainly going to develop a low white blood cell count if I stayed on them by one DR? What's it all about!? Do they have targets to meet on the number of "CURES". Also in the UK thyroxine is offered free on the NHS whereas you have to pay for ATIS. I really don't get it.

Does anyone? Sorry to ramble!

Sarah

[Jroxy10]

Hi All
   Found this site doing a google search. Had total thyroidectomy in 1993 due to cancer. Went thru the whole radio active iodine therapy following surgery and have been hormone replacment therapy since. Just looking to share stories and the awful rollercoaster ride with weight and tsh.

[Cynnieb4]

I am currently at 50 micrograms of Synthroid. My weight is holding steady and I am happy, although I am catching a cold LOLOLOLOL My tsh is under a 1.0 or the levels are maintaining to my liking:)

[sweetnsassie74]

I have had hives for 5 months and they are driving me crazy. My Doctor gave me a steroid injection and a steroid pak. It helped a little then did the same treatment again. He told me to go see an allergist. The allergist ordered a bunch of bloodwork. My WBC was high along with the thryglobulin antibodies &  thyroid peroxidase. The thryglobulin antibody result is supposed to be less than 20 and mine was 2499. Two years ago I was sent to a cancer specialist due to my WBC being high, they thought I had Leukemia or Lymphoma. I had a bone marrow biopsy that came back negative. I am now told I have Hashhmoto's disease and that it has been going on for years. If they would fo found it 2 years ago, I wouldnt of had to go thru the cancer testing, which was not fun. I am 35. I have been on Armour Thyroid for 2 weeks now. A few days after I started it my hives went away. I was so happy and thought they were gone. Not, They started up again a few days ago. I take Atarax 50 mg every 6 hours and take Benadryl in between. When I go to bed I also take 3 Benadryl so I can sleep. I take alot of hot, hot showers. It really helps them.
I am very discouraged in reading everyones comments that the hives last for along time and are recurrent. There has got to be something out there to help with the hives.  

[kiddo311]

I found this site just by searching the web.  I had a partial thyroidectomy back in 04. I was found to have hyperthyroid when my son was about 6 months.  I had a large goiter on the left side of my thyroid causing it not to function properly. The goiter and that part of the thyroid was removed.  Over the last couple years I have struggled with depression, anxiety, insomnia, exhaustion, intolerance to cold (feet and hands), my hair has been falling out, I am moody and irritable for no apparent reason.  I have been getting labs done for the last 5 years every three months.....however after reading some of these posts, I believe my doctors were not testing everything they needed to test.  The last year has been the worst, my pcp put me on antidepressents and told me to get counseling!!  I decided to switch pcp's and recently had some different labs done.  I am seeing an endo for the first time in 5 years ...finally someone who might be able to shed some light on my symptoms and the labs!  I see this forum seems great from what I have read so far.  I am excited to get to know some of you.  

Julie

[franzxiya]

i came up to this forum because i was searching about thyroid glands.... and i think this form can help me..

i have a lump in my left side in my neck.. so i had it check in EENT specialist.. the doc told me to get T-scan and t3 t4 test.. so i got the results... my t3 test resulted to 1.9 nmol/L and my t4 resulted to 77nmol/L TSH resulted to 0.9 ** the doc said its normal... but when the doc checked my Tscan result, he said my thyroid does not function normal.. (ill describe the image taken ---- the left lobe is darker than the right one... base on the thyroid scintigraphy test..) what does that mean..??

to add up: i dont experience any of the symptoms for hypo and hyper thyroid..
so what is this???

anyone concern... please msg me... thanks..

[cruisinggirl]

I came here because I've been on thyroid medicine since I was 7 and am now 50.  I have horrible swelling of my hands which drives me crazy.  I also have adrenal disfunction and was a growth hormone kid.  
:) mary

[gardenfairy]

I found this site by doing a google  for my medication dose.
I am now hypo. Found out in 1997 that I had Graves Disease, goiter and all. In Nov. of 97 I took Iodine and they zapped my thyroid.

After not seeing a Dr. for many years I have gone back and my levels are a little low. Last month she started me on 50  MCG of Levothroxin, today she upped it to 100 MCG.
I still have many of the symptoms except for the weight loss ( now i have weight gain).

I am really hoping that this helps and I can get my life on track.

[healthy2009]

When I was diagnosed and getting treatment for the hypothyroidism and when I did not even feel better I was browsing to get educated about the thyroid then I was presented with this nice site.

Hope I will get some help/advice.

Thank you

[rmpc98]

I was googling thyroid nodules when I came upon this site.  I was looking for information and support.  I was recently diagnosed with a thyroid nodule and since that time my world has been turned upside down.  It's been a mix of emotions and I'm currently waiting for a biopsy.  But I'm glad to have found this site as I don't feel so alone. Hoping things will turn out okay for me and in the meantime reading about other peoples experiences is really helpful.

[colingam]

I actually found this site when I found out I had a few nodules on my thyroid back in March '08 and then later found that they were growing very rapidly -to the point where you could see the largest one through the front of my neck.
I had a fine needle biopsy done and was told the nodule in the front of my neck was still pretty big ,but benign .
My dr kept an eye on it and it was still growing ,he felt like he should remove it ,so we scheduled surgery for May 11th .I was told after waking up from surgery,that the nodules that were growing behind the large one were cancerous !, but not large enough for me to get RAI treatment .
I started on Levoxyl on May 28 (-just so ya know,I pitched a fit about Synthroid because of all the things I had read -) so my endo asked me to try the Levoxyl and see how it goes,because he was dead set AGAINST Armour ,...I felt ok on the Levoxyl for the month of June ,but in July ,I went back to wrk and started falling asleep at my desk .
I called my endo and once again asked for Armour he sd,NO WAY ,I went to get labs done on July 6 and my tsh was 4.5 and I needed at be at 1.0 or lower ,..he sd , I was on too much Levoxyl 150mcgs ?????? and wanted to lower it to 137mcgs .I sd absolutely not ,because of all the research I had done I knew he didn't know what he was talking about .BTW he told mr my tiredness had NOTHING to do with my thyroid !!!!!
I knew then ,he had no idea what he was he was doing and I took it upon myself to get another dr .I later learned my PCP also treats thryoid patients ,I expressed my frustration to her ,had my medical records transferred &she GLADLY wrote me script for Armour 120mgs- (60mgs per day ).SHE IS THE BEST !,
...I started the Armour on 07/17 and I have been feeling pretty good ,..but still a little sleepy in the afternoons ,..she recently wrote me script for Cortef and I felt the difference in 2 days ,I am no longer tired or falling asleep ay my desk ,If it weren't for this forum I would have no idea what was going with my body and I would probaly be MISERABLE BY NOW !-
I LOVE YOU GUYS !

[shrekson]

Hi im a 35 year old male from South Africa

Ive always been into sports and hit the gym about 4 times a week .
I started to become very lazy and wanted to sleep all the time and also put on alot of wieght inspite of gym.
My eyebrows thinned out and i was very moody .My mom hads been told by her doctor that she was hypo and been put on eltroxin.She asked me to be tested .
I was tested in the begining of this month and my TSH 13 and was told i have hypo .
In looking for answers about hypo i found this web sight and because i know very little about thyroid im gratefull i did and look foward to being part of this .
It scares me that there might be more to this than hypo and that i might need surgery.
I look foward to learning from all here and hopefully i can assist to

thanks

[kateebeth]

Hi.  I was googling for side effects of levothyroxine and came across this site.  I went to the doctor 2 weeks ago thinking I was just exhausted because it is summer time and I have 5 children but since I was also experiencing what seemed lower than typical temperatures in the am (we were trying for #6), I wanted to just get bloodwork done to eliminate any medical issues.  Well, I was diagnosed with hypothyroidism ~ my hormone levels were off, my vitamin D levels were low, my cholesterol is very high (and has not been before and I run 4 days a week and eat fairly well).  After reading, I realized that my miscarriage earlier this year (my first) may also have been a result of this too.  I started medication five days ago and just feel kind of in a fog, though that may be more mental than a side effect because I have never had to take medication for anything before and because this (along with my age) may be the end of us trying for another child.  I also am all of a sudden having hot spells and I did not have them before starting the medication.  I am hoping to better understand my diagnosis by reading here.

[TamraW]

I need to edit my previous post. I DO NOT have parathyroid disease. My PTH had only spiked a few times in reaction to my low Vitamin D. I have just learned my low D was caused by Hashimoto's. My peroxidase is a 221 and anything above 35 indicates Hashi's.

Take care everyone...
:) Tamra

[TiffanyP32]

I found this site while researching Graves.  My Endo suspects Graves, due to the many symptoms that I have, Weight loss(25lbs), hair loss, trembling, insomnia, fatigue, blood work, etc.  I just finished up the RAIU scans yesterday, results should be in Monday.   Thyroid disorders run in my maternal side of the family, grandmother had throid cancer, mom is hypo, uncle and 2 counsins are hyper.  Playing the waiting game now....

Tiffany

[jenger]

I had a large nodule that was causing me to choke on food and cough any time I laid down. Also my allergies were horrible. My voice was hoarse too.

My ENT decided to take it out because my brother had thyroid cancer and thought it was best considering the other side effects of the growth. So they took it out and all was well.

I also have a cyst on the other side which they will watch. I no longer choke, I can talk, my allergies are basically gone, and i no longer cough at night!!

It has been 7 months...For 4 months after surgery  I felt ok. Then 2 months ago my feet started to hurt so bad I almost couldn't walk.  I got so  listless I didn't feel like doing ANYTHING. That was not like me. Then about once a week I started having chills and shaking and would have to go to bed with extra blankets and was in a coma-like state.

It has been over a 100 degrees here for 2 months so what am I doing needing two blankets, right? And hot flashes, night sweats, etc. I was about 20 lbs over weight and I lost 17 lbs right after surgery. I was so happy...then In the last 2 months I gained it all back.

So my Endo put me on 75 Synthroid. On the 5th day after taking it, I felt like my self again. Everyone says it takes weeks for it to work but I feel it now.

But last night, the hives showed up. I had to take Benadryl and was groggy all day. I am worried the synthroid caused the hives. My doc said I could take either synthroid or L-thyroxine.   I am taking all the synthroid first, since he gave me samples for a month.

He said all my symptoms especially the chills  were due to the 1/2 that is left cannot do the job anymore and I may have been hypo a long time.

So I am a new patient... I am thankful that I found this forum. I had googled Synthroid At Night? and I found MedHelp.

I was so scared I would  have cancer like my brother. He had a total T-dectomy when he was in med school and has never had a problem with Synthroid...

He told me to watch for all kinds of symptoms in the months after surgery since they did not start me on meds at that time. My doc said you wouldn't believe the symptoms people have after a partial before they are put on meds.

[dawnangela]

Hi, I found this site by chance, looking up nodules and Hashimoto disease...I have an 11mm nodual, waiting biopsy and dx hashi and hypo..

[Heatherm4]

I have had thyroid problems since I was about 16 or 17. I started out with hyperthyroidism. I constantly got nosebleeds and I couldn't sleep b/c all I could hear was my heartbeat! When I was about 19 I got the radiation treatment which didn't completely kill off my goiter. Just recently about 3 months ago I found out that my thyroid has had some lower levels but nothing to be concerned about (no meds). I notice the difference slightly but have been able to maintain things ok. I am still young and am trying to keep healthy to balance things out.

[tg372]

I stumbled across this forum when researching thyroid. I have had hypothyroid for 10 years with minor medication adjustments over the years. This past June my whole world turned upside down. I wasn't eating had terrible stomach problems was depressed, anxious and couldn't sleep at night. My doctors finally ran new thyroid panel and my TSH was 7 , t3 uptake 32, t4 free direct 59. I was upped to 150 mcg synthroid from 112. I have horrible symptoms . And come here looking for answers. Tracy

[stella5349]

I do check these posts and I appreciate all of you coming on board to tell your story.

[Tishyri]

I found this site when I was researching Thyroid information.  My primary care doctor noticed I had a High TSH in May 2009 and he put me on medication.  He's increased the dose twice since then and I've also seen a specialist.  I have one small nodule on my thyroid too but the specialist doesn't think its cancer.  I actually saw the specialist for the second time today and he said my TSH level is going down but he wants to increase my medication again to get it down into the 1-2 range.  My worst symptom is fatigue but I also get headaches, depression and some joint pain.  
Its great to see I'm not the only one struggling I wish there was some magic pill that just worked for everyone instead of all this dose changing.  :(

[DenMother84122]

Hi gang!

I have alot to share in the posting and hope that someone will be able to glean some information from it.  #1--You are not alone.  #2--Get the STRESS out of your life  #3--Find a doc/medical care team that you feel can answers your questions, ally your concerns and listen to you, thus getting you on a proper care and treatment plan.  #4--Listen to your body because you know it best.  #5--Educate yourself about the disease.

I actually found this site when I was dinking around with my Google Chrome account.  I've lived with thyroid disease in one form or another for 37 years.  Yep, a lifetime and to be very truthful its been a bit of a rough go at times--many times.

I was dxd with hyperthroidism, enlarged thyroid and chronic suppressed autoimmune system in 1972.  Then in 1988 I flip-flopped to hypothroidism, benign and early CA nodules, the gland was nuked and I was put on Synthroid for a number of years.  I developed severe migraines, taken off the Synthroid and I've been on T4/T3 natural Armour Thyroid since that time with dosages ranging from 60 mg/day to 180mg/day.  I am currently on 90 mg/daily and right on the cusp of 'normal.'

I sat at the 180 mg/day for many years due to a very high stress career despite being physically active; hence.  I loved my j-o-b and can now boast I am retired after 20+ years.  BUT the trade-off with the thyroid/stress issues took their toll on me at different levels of my professional and personal life.

I exhibit all of the common hypothyroid symptoms and charateristics plus thyroid disease runs in both sides of my parents families.  My struggles with weight, lethargy, foggy brain, depression and insomnia have been constant companions all through the past 21 years with hypothyroidism.  The autoimmune issues have been present for the past 37 years and finally in 2006 my doc told me that studies indicate the autoimmune problems might be attributed to the wacky thyroid versus congenital complications as dx'd in 1972.  

So, how and when do you take your thyroid medication?  I found I prefer to split my dosage up, say half at 7 a.m. and the other half at 1 p.m.  I generally dissolve the medication under my tongue versus gulping it down with a liquid.  After years of experimenting this method works well for me.  The Armour tastes like I would imagine cement would taste but I'm used to it now.  Whatever method works for you--be consistent in it.

Leg cramps?  Constipation?  Try a 300 mg magnesium supplement tablet or capsule but don't take over three at one time.  I take two at night because that's when I tend to get the worst muscle cramps.  Plus, I get regulated overnight versus racing to the can at some inopportune time during the day when the magnesium kicks in.  Also, are you getting enough fiber and fluids through your system?

Water retention?  Be a mover and a shaker to keep the juices flowing.  I find being sedentary or inactive is not a gooder and just makes me feel that much more sluggish.  Sit at a desk alot?  Get on the Internet and find some good isometric exercises to do in that "Cubicle-Sweet-Cubicle" of yours if you can't do a few laps around the parking lot or this is your week to do car pool.

The hair loss--what can I say--I tried all of the supplements, treatments, etc., etc., etc.  Now, I rely on a good hairdresser who can work miracles with highlights and good styling.  Believe it or not, I am showing sign of new hair growth after all of these years.

Weight??  Oh man!  This is an uphill battle with the thyroid AND my family gene pool.  I don't like living with a 'set point' because of having to be on the medication the rest of my life. Diet and Exercise--Three words that grate on my nerves and pysche' even after all  of these years.  The weight did not magically fall off with starting on or increased medication dosages nor did I have loads of energy and resistance to illness from the near-torture exercise programs.  I haven't given up, won't give up and I'm still working on dealing with weight gain or no weight change physically as well as emotionally.  

Call me vain but I refuse to 'let myself go' and dress-for-success with the added weight even on those "Dumpy Dolly Dimples" days.  My wardrobe fluctuates with the weight but you won't find me in sweats and XXL tee shirts any more.  I love to troll thrift stores and consignment shops to keep the cost of the wardrobe within reasonable bounds.   Also, I believe in  good skin care and keep cosmetics handy.  Yes, my evil twin is ever-present but I am in charge and I'm dealing with it!  

Eat a good balanced diet--ditch or tightly control the sweets and cheap carbs--the weight can be dealt with and you'll feel better just eating right.  Drink fluids and stay hydrated.  You might think you're hungry when you are actually thirsty.  This one took me alot of years to buy into and I actually like water these days.  

Also, get on a good multi-vitamin and make sure you get enough Vitamin C and D.  If you hadn't had your Vitamin D level checked lately this might be the time for a simple blood test.  I currently take one Centrum tablet each day.  I also take one Citracal with Vitamin D in the a.m. and one in the afternoon.  

I hate exercise, but found a good program at the Wellness Center at our local hospital and the machines are actually fun.  The cost is $17/mo and our medical insurance now has a 'wellness/gym' membership feature to offset the cost. The Wellness Center's motto is 'No Pain with Your Gain"  Works for me.

Ladies, how about 'meanopaws' thrown in for a bit of a twist?  Guys, "andropause"?  Find out what is symptomatic to thyroid and the other hormone changes you might be experiencing.   Always consult your medical care team plus there is lots of good, solid info available for you, too.

Gotta scoot.  Take care of yourselves.  Always remember this disease takes a team effort to keep it under control.  

Hugs. . . .DenMother84122

[mom4life23]

I was diagnosed with Hashimoto's by an ENT about 19 years ago following surgery to remove a thyroglossal duct remnant.  I was sent to an endo and prescribed with Synthroid about a year later.  My dosage has changed over the years and I have actually been through a bout of hyperthyroid levels for a short period of time.  I have had some difficulties over the last year or so some of which may have been a direct result of a Physician's Assitant deciding that I needed to be on Naturethroid rather than Synthroid. My antibody level was extraordinarily high when she changed my medication but my TSH jumped to an astronomical level until my doc put me back on Synthroid.  My PCP has left his practice to pursue outside interests so I am seeing a new doctor for the first time next week.

I have come across this website a couple of times this past year when I was looking for info about Hashi's and the treatment of choice.  I gained about 20 pounds in the 3 months I was on Naturethroid.  I went on a diet (extreme) and lost the first ten then I joined Weight Watchers and lost the second 10; unfortunately, I started gaining weight instead of losing these last two months even though I was following the program to the letter.  About this time, the hypo symptoms of fatigue, brain fog, waking up in the middle of the night, splitting nails, and hair loss began.  I have gained 8 of the last 10 pounds back and can't seem to get them back off.  When I was first diagnosed, it took about a year before my medication was totally regulated and there were days during this time when I could hardly function.  I am starting to feel this way again.  I'm desperate to find some answers.

[ki_chris]

I was getting really bad hives for 2 years after my son was born so my doctor tested my tsh and all that stuff and said I had some antibodies present and that I should have my thyroid checked every 6 months because I was at risk for developing thyroid disease.  I googled thyroid disease and came across this website.

The above was 2 years ago.  Now, I'm having symptoms like dizziness, high cholesterol, fatigue, really hungry all the time, anxiety, waking up at night, palpitations and just not feeling right,   So my most recent test my TSH is around .005 and T4 is 2.02 so now I will be seeing an Endo next week and find out what is next.  I really hope that its something as simple as taking a pill and all will be ok.  
Just would like to feel normal again.

Good luck to everyone else out there!

[stayinalive52]

I see that everybody here has different symptoms or side effects.I wonder why that is.

[LazyMoose]

I stumbled upon this forum while seeking information on 'continuing symptoms while on Synthroid'  around November '08. I noticed this forum seemed to be used more than some of the others and people got their questions answered in a fair amount of time.

Have learned a lot about Hoshimoto's from this place, which in turn can sometimes make for even more questions! I most likely had this condition since my teen years in the early 80's. Was not Dx'd with Hoshimoto's until around '98 after major Vertigo spells and an auto-immune skin condition called vitaligo in addition to my other more common hypo symptoms. I'm sure the fact that I was a young male delayed the thyroid test for years!

Symptoms got worse with only T4. My condition was affecting my everyday life so I went on a mission to seek answers. Also, once very athletic and a conscious eater, my over all health was declining from my thyroid (lack of in my case) treatment. Major fatigue, near crippling muscle and joint pain from head to toe, night time acid reflux, and of course hair loss. This was absolutely unacceptable to me!

Getting better, but bummed over the dessicated shortage in America. Time to start raising pigs on my friends land!

This site is an excellent informative tool for all of us.

Thanks you all.

[bryant12]

I found medhelp when trying to find others that had my symptoms , i posted on a few forums and was told by a couple of people i should have my thyroid checked my tests came back and my TSH was abnormal but my T3 T4 was normal , my doctor seems to not know whats wrong with me so I asked to be sent to a ENDO but she has not called back as of yet I don't think she will because my other labs were in normal range I will push on and get another doctor if needed I have only seen her once but once is enough to figure out if she wants to help or not time will tell.

[gakat61]

I did a search on thyroid and found this website. :)

I have had thyroid problems since I was born. I was born w/ a goiter, and I had surgery to partially move it when I was two days old.  I was placed on medicine when I was younger for hypothyroidism, but was taken off during my late teens. I kept noticing that I was sluggish and tired for many years, gaining weight slowly. I am 48 years old and have been diligently working out at the gym, not losing weight at all. I went to a new doctor who performed the full gamut of thyroid tests, and the results indicated that I was Reverse T3. I've been dealing w/ these problems for years, and I just kept being told I was in the normal range. I am taking Liothyronine, generic for cytomel. I've started off at 12.5 mg for weeks, and then I will go to 25 mg. I felt an nrg surge at first -- not I"m back to feeling the way I was.......sluggish. I think ti's time to call the doctor about going ahead and taking the 25 mg. Any advice is appreciated.

[Lynn1988]

I found med help recently while googling "symptoms of hypothyroidism".  I was recently diagnosed after having many of the symptoms and feeling absolutely "horrible" for about a month.  I was really concerned because I have the subclinical hypo and could not understand how my thyroid labs were not way off the scale with the way that I felt. I mean... THERE MUST BE SOMETHING ELSE WRONG, right?  The site has been very educational in explaining the "normal" lab values, along with the hypo/hyper symptoms.   Now, I'm adjusting to the medication and find the information about the side effects and different meds available very enlightening.
Thanks to all of you for sharing, it really helps!

[ckelly6156]

I found this web site doing a search on diseases related to hoshimotos hypothyroidism, which I have be dx with since the age of 11. I have not been properly treated until the last year or so. I did the same as most of you and went to a PCP and expected to take a synthroid once a day and be on with life. So far this has not worked well for me. Imagine that. Most doctors treat symptoms and do not try to find the illness. However, I have found a PCP who is great. And I am going to and endo very soon.

My symptoms have become much worse in the past two years. And my TSH levels are never the same. I cant ever stop thinking about it. I hate that it has consumed my mind. I have done extensive research to try to find out if I have some kind of underlying autoimmune disorder because I can be euthyroid for two years and still have the yucky symptoms of extreme fatuigue, hair loss, dry skin (with sores on hands) overall grumpyness, and well we will just call them bowel issues:)

I love the forums and the trackers on this web site!! I now come hear everyday! Although one day I hope I never feel the need to come back because I am magically a picture of perfect health:)

I worry about my three children inheriting this. Did you guys know that body produced TSH does not pass through the placenta, but your thyroid hormone substitute does?

Ok, I have wasted enough of your time. Thank you all for posting your stories.

Oh, one more question, I take 125 mcg of synthriod a day? What are your doses?

[bonjourno_chicka]

I found this website while searching for information about brand vs generic thyroid meds. I was diagnosed with cancer last year. One total thyroidectomy and radioactive iodine treatment/withdrawl scan later I've switched doctors and insurance. It seemed to take forever to find the right dosage and even then I had to alter my diet some and started jogging before I actually felt well. My insurance won't cover synthroid because I don't meet the "criteria." I'm trying to determine the degree of risk I am being asked to assume by switching to the generic.

[katf28]

hello! i was diagnosed with hyperthyroidism secondary to grave's disease.  I've had RAI last month ( Aug. 11, 2009 ). and after 2 weeks had a blood test for ft3 ft4.
here is the result:
FT3 1.72  ( 0.20-0.44ng/ml ) normal value
FT4 6.43  ( 0.93-1.71ng/dl ) normal value

Then, went back to recheck again the FT4 and the TSH levels last Sept 11, 2009 ( after a month )

FT4   7.77    ( 0.93-1.71 ng/dl )
TSH  0.005  ( 0.270-4.20 uIU/ml )

still, my results are way above normal. my question is for how long will it takes for your FT3 FT4 to go down to its normal level after RAI? pls help. thanks!

[Iako]

Hello Everyone

I  Do not remember exactly how I came to this wonderful forum, May be I was goggling Hashimoto. I very   thankful to all the members and leaders of this community for you help and great advice. I learned so much about my condition and way to Handel it starting form Selenium to T3 medicine and so on and so on. I do not leave In US; it is known that US doctors are the best! Especially Edo"s but when I read how many members are complaining and changing them I do not feel alone.  Since in My country (Georgia) Endo's are in a Dark Forest I mean Lab's here still measure THS till 5.5 , rarely checking FT3 and no way of getting T3 meds there is no such a thing ! I even got a doctor advice some ******** and expensive laser therapy for antibodies, when I posted here members and  Dr.Lupo saved me from that money making trap. So, without this forum I will be sitting in a dark forest as well

[Chooch09]

I just found this site and forum browsing the web to find out how long steri-strips have to stay on...they are stiff and uncomfortable and driving me nuts...so I googled and came across this forum.

Thanks to all who helped me with my question.

My Mom had thyroid cancer and last year I went to an ENT for an ear problem I was having and he said "I have good news and bad news... the good news is your ears are fine, the bad is that you have three lumps on your thyroid." Swell.

They tested and it was not cancer (Whew!) but one tumor had grown big enough to start pressing on my windpipe so they decided to remove it and half of my thyroid.

That was 6 months ago. Since then, I did not sleep through a single night without waking up every 45-60 minutes with pain shooting through my neck. The surgeon taped me up with my head in an awkward position and left me that way for the first week until the stitches came out. My head was looking down and to the left. My theory is that letting me heal in that position the muscle/tissue under neath healed tighter than it was supposed to because I lost a lot of range of motion in my neck and if I tipped my head back the muscle pulled across my throat and felt like I was being choked. My third strike was that the scar I had from the surgery (my primary care doctor called the surgeon 'Jack the Ripper') became hypersensitive to the point where even my hair touching it HURT like crazy!

Incredibly long story (and many months of sleepless nights) short, I saw a plastic surgeon who said he could revise the area, clean it out, redo the scar and probably fix it. I wanted ANYTHING but surgery again. But I had the surgery last Wednesday...

That night I slept until 9:30 in the morning and didn't wake up once. The next night I slept until 9:30 again. It almost scared me, I was so used to knowing what was going on hourly through the night because I kept waking up, now I was sleeping through the night...every night. I almost cried with the relief.

I am happy to report that it has been 8 days and I have full range of motion back, there is no pressure across my throat and the only annoying thing I have to complain about are these steri-strips. =) Everyone should have so little to complain about.

I feel like a new person and am so thankful that I kept pressing with my doctor to fix me because I KNEW that something wasn't right. They say that you are the only one who truly knows your body...listen to it.

Chooch

[fdmh]

I was a member first of the MS group, in limbo for dx of MS after parasthesias started last summer.  Don't happen long enough duration to get a dx thus far, which is good.  I saw my first MS Specialist who at the time being is blaming my sx on dx of positive antithyroid antibodies last summer.  I have had congenital hypothyroidism since birth, been on armour or now levothyroxine all my life.  I have been excellent about taking it but for some reason my TSH was just going in the wrong direction.  I was never sx to my knowledge, but went to endocrine just to figure out what wwas going on.  They ajusted my dose and it has been normal since about February I would say.  So my neuro said this could even cause the MRI changes.  So I thought I would join up to learn more about antithyroid antibodies.  

[Kristy2000]

I came to this forum after being diagnosed with Hashimoto's.  I also have air hunger that the Dr's can't explain.  I was hoping to maybe find some answers, or at least some information (and kind words from those who know how it feels :-).  For more details, you can see my post "Air hunger, Hashimotos' and other mysterious issues" that I posted today just a few minutes ago.  Thanks!

[Justi_has_a_booboo]

As a refresher for members and an invitation to ALL -

How did you come to the thyroid board here at Med Help?  Let us know what conditions you have and what you went through so far.

Do you have a parathyroid disorder? Do you - or did you - have cancer and have had your thyroid removed? Are you autoimmune and struggling?

I am being told currently, I have Hashimoto's and PCOS (Polycystic Ovarian Syndrome) AND I had four FNA that came back suspect for Hurthel(?) cancer.

So many - visit here and a thread like this is so important to know what's up.

We as Leaders and members would like to know what has brought you to this board so we and others can direct you to the best resources available.

Thanks and Happy Health!

[Katfalls]

I found this site when doing googling Hashi's and tachycardia. Just went through a month of four trips to the hospital thinking I was having a heart attack . . .I was diagnosed with Hashi's in 1990. Had a partial thyroidectomy in 1992. I felt a lump in my throat, found it a year after my Dad died of throat cancer and I was hysterical. So have been dealing with this for a long time, just a month ago started having the tachycardia. That is very scarey!!! Couldn't take the beta blockers, it caused heart attack symptoms.
The cadiologis sluffed off the idea that it could be my thyroid, til my Dr. ordered a cat scan of my heart. Then he called and said I have enlarged thyroid with nodule. Here we go again. I meet with him on Monday to talk about a strategy.  I deal with fatigue alot, but mostly the cold hands/feet, carpal tunnel, thin skin I've learned to live with. I am a photographer and I joke that after I photograph a baby, I'm the one that needs the nap! So I've learned alot already from this site and will be coming back often.
At least I found out my heart is in really good shape, have been dodging the diabetic bullet . . .need to lose about 50 lbs. but am determined to do it.  . . .
Sooooo, will get this conquered I hope. thanks for all the info and input.

[stella5349]

Justi

I am not sure what the copy and paste meant here off my original post, but Good Luck to you.

[barrettsark]

I was just searching the web last years about Hashimoto's  because I was very sick.  

[tkd4u2]

Hi, I'm new here to this forum and website. Just found it via another web search on Metformin and Diabetes the other day. Getting around to joining this evening.

I've had hypothyroidism for some 7 years now. I also have sleep apnea and now type 2 diabetes. The usual issues with being sick all the time and being overweight plagues me all the time. Just recently being diagnosed with type 2 diabetes I was put on Metformin to lower my blood glucose levels. This has also helped me with losing weight. 17 lbs. lost in the last 7 weeks. My TSH levels are currently around 2.00. Usually this is around .8 to 1.2.
For most the past 7 years its been a rollercoaster ride with my TSH levels. Every little change to my life seems to change that as well. Over time taking the thyroid meds I haven't noticed many affects. I don't get much boost from the meds in having more energy and such. I think this could have been a combination of thyroidism and diabetes. I am just starting to feel much better than a year ago for sure. Will see as time goes by and how I deal with diabetes and to see if that affects the thyroid issues.

[iunderstand69]

I initially came to the forum out of desperation to get better after thryoid surgery.  Not only did it educate me but I also made friends.  I visit periodically to speak with Nikki and on occasion will post.  I have been away because I was working so much, but that is changing so I plan on being back and communicating more:)

I have Hashimoto and Graves antibodies.  I was hyperthyroid and had to have thyroid removed due to being so sick.  I had major problems after surgery and constantly am trying new holistic approaches to getting better and feeling better.  I have been on armour thryroid and am in the process of changing to compounded T4/T3.  

Thank you!

[jokkejens]

Hi,
I'm new here, and while searching for thyroid and dizziness, I came across these good discussions and became a member.
I was diagnosed with a high TSH while doing tests for one other problem I had about one year ago. I had for 2 weeks problems walking, it felt like my right testicle or something higher up in the system around my left lower side was giving me pain that prevented me to walk properly, or without pain. Then I found out I had a high TSH, and doc put me on 50mg levothyroxin (levothyroxine). Continued the tests, only to get TSH down basically, as the other problem more or less went away. (It felt like some muscles problem, maybe related to ejaculation/masturbation, I have no idea. Can still feel some pain but not like it was.)
Increased dose to 75, then 112, now on 125, my last test with 112mg, my TSH was 5.
My major problem now, is that I wake up feeling fine, but after half a day, about lunchtime at 12, I start to get dizzyness, problems to focus, feeling strange generally the rest of the day. I am tired of this **** and want to find a solution.
Look forward to all help I can get.

[Glenda306]

Hi, I'm new to this page, but not new to Medhelp OR to hypothyroidism.  I have a huge family history of hypothyroidism on my mom's side.  My own "battle" with it began sometime around the birth of my 2nd child 8.5 years ago.  I was exhausted throughout my pregnancy, but just figured it was because I was pg.  Over the next 3 years my TSH crept up until I got pg with #3 and was put on synthroid.  I was fine for a long time until I tried to get pg again.  After taking 8m to get pg. I ended up m/c'ing.  My TSH was up to 3.77 at that time.  After much research and discussion w/my OB we increased my synthroid from 50 to 75 and then to 100.  The largest dose got my TSH down TOO low, so we backed off to 88mcg.  After #4 was born last April my TSH was fine at 6w postpartum and again 3w later (around 1.1 both times), but just last week I discovered my TSH has jumped up to 2.43.  I think I'm going to ask to see an endocrinologist.

[stayinalive52]

I do not understand half of what you said, but good luck.

[Sheila669]

Hello all, my story is much like everyone elses on here. I was searching for answers, cause my PCP as well as 2 different endos did not seem to think my " HASHIMOTOS" was causing me all the horrible symptoms I was having. I was and still do feel like life is a struggle and that is not the quality of life I want. I am trying to read everyones stories and and learn all I can. I thank everyone for sharing, if I did not stumble upon this site I do not know what I would do. I am very sick and do not get a lot of supposrt from Dr's nor family ( family only cause they do not have the knowledge of my disease ) so I guess to sum it up, I am a Hashi sufferer and pray that after reading all your stories and getting people who are like me to talk to and know I am not losing my mind helps more then anyone could possibly imagine. Thank You! GOOD HEALTH TO US ALL !!!!!!

[ann4512]

MY ENDO GAVE ME A FEW NAMES OF SITES TO LOOK UP AND I CAME ACROSS MED HELP & SO GLAD I DID.IT'S A WONDERFUL SITE WOULD BE LOST WITHOUT IT.SO MANY PEOPLE WILLING TO HELP WITH THYROID PROMBLEM'S,HOPE IT'S AROUND FOR A LONG TIME XXXX THANK YOU TO EVERYONE

[Enja1960]

I was searching on the net to try and learn more about living without a Thyroid, taking Levaxin and possible reactions, maybe to find better medication suggestions. It seems my local doctor here in Norway does not have so much experience with this. In fact it was me who told him maybe I have this problem after reading on the net. I had infections in my body that would not disappear, sleeping disorders, a running heart, stressed and worn out ++  it ended up with serious stomach problems, severe loss of blood and a week hospital visit last autumn. My Thyroid was growing and it was annoying when eating and swallowing.  At the Hospital I was told to make a decision if I wanted to remove it or not , so I took the choice to remove it.

Now I am struggling to find the correct dose of Levaxin so I can feel ok, go to work and get a normal life again.

Happy to find this pages, Thank you !

[will2shine]

I was doing my pre-op for my hysterectomy when I was hit with the word hyperthyroidism.  My heartbeat was 110 and my doctor thought I was really nervous, but I was excited about having my surgery.  I have dealing with the symptoms of fibroids for a very long time; so all this time I thought it was my anemia, i.e. extreme fatigue, short of breath, irritable and mental fog.  Hyperthyroidism - I was floored!  So internet research has led me to this forum.

[meems405]

confused and unable to sleep after being diagnosed with graves i was doing research like a mad man and stumbled across medhelp. so glad i did! reading everyones' experiences here has made me realize that i'm not alone and i don't have to be afraid. i was first diagnosed in april and my endo decided to start me off with 20mg of methimazole 2x a day. my muscles and joints ached but assumed it was due to the hyperthyroidism. a few months later we had it lowered to 10mg 2x a day. doing much better with this, but the endo was still wanting to push me to get rai done. i still refused, and we scheduled an appointment for 3 months later to see if i would reach a decision then. and now a few days after getting my lab results my endo wants to me to take 2.5mg 2x every 6th day? a little confused but either way very very glad that my thyroid seems to be getting under control. probably the fact that i gave up smoking (after 6 years, so difficult! the one thing i had to help keep the stress off while figuring out my thyroid, i had to give up) and started taking selenium and vitamin e supplements had a lot to do with the steady decrease in my need for the ATDs :) still hoping to tire every other option before i ever consider getting rai.

[meems405]

5mg 2x a day after 6 days*

[shan723]

I am 25 years old and was diagnosed with hypothyriodism two months ago.I came here with concerns about my TSH levels being119.7 and getting an ultrasound done of my goiter. Members of this community educated my with their experiences and knowledge on these subjects. I felt like I didnt know too much about this and know that there is a place I can get questions answered. I thank this community for easing my nerves!!!! I still have more tests and need to get a doctor monitering me. It sure is nice to have a place to get those our and not put it on family!

[Manda29]

I was diagnosed with Graves Disease in July 08. Developed severe Thyroid Eye Disease in Sept 08. My ophthalmologist had referred me for Orbital Radiation in June 09 and while I was researching that I came across this site! I have been on Tapazole since being diagnosed and still having a hard time keeping my T3 and T4 down. I should be having a Total Thyroidectomy in the next few weeks and can't wait! They thyroid issues I can deal with (even though its a battle everyday) but the eye symptoms are the hardest part for me. I've been on Prednisone and Methotrexate, and had horrible side effects from both.
Just trying very hard to stay positive! Thanks to everyone that has answered my questions and for all the info I have found here!

[FaithfulMom2]

Hi. I am new to this website. I have a hypothyroid and had surgery a few months ago (August). I am now on Synthroid 75mcg. I had several nodules on the right side and therefore had to have that side removed. I have not felt any different before and after surgery so I'm just on here to hear other stories and get help for myself. This is a great site!

[sleepyagain]

my son 23 has been unwell since he's about 3 with diagnoses of everything from add to hypersomnia, until he became severely allergic to the stimulant that was helping him function, and we had no choice but to begin exploring alternative treatments. we tried everything from naturopathy to accupuncture to craniosacral therapy and finally arrived a few months ago at thyroid/adrenal treatments.  
we are greatful to be able to look at these forums for support and information.   And we know that we have much information to share as well after 20 years of research.......
Let's hope that we all chat about our complete recoveries in the near future....

[Mathew456]

Hi, my name is Mathew and I am brand new to this site. What an excellent resource for hypothyroidism sufferer's. I notice that there are not too many men on the site - which makes sense seeing as how men are less likely to obtain this condition. I have recently (5 months) been diagnosed with hypothyroidism and have been going from Doctor to Doctor trying to find a cure or help with my lifestyle. I am not a fan of Western medicine so the Doctors recommednations of Levothyroxine and Liothyronine did not sit well with me and theres no way I am attempting surgery to cure this!

In my attempts to find a different option to help with this disease I found a website called http://www.nomorehypothyroid.com - I am contemplating purchasing this and probably since since it does come with a guaratnee but I am trying to find anyone else who has purchased this and can give some feedback about whether or not it worked for them. Seems to be an all-natural cure to hypothyroidism. Hopefully someone else here has read the book!

Either way, I will read the book over the next couple of days and give some feedback of my own. I would also love to hear if any of you have been trying any all natural treatments for your condition.

Thanks guys for reading my post and thankyou so much for creating this resourceful website!

[bigcat1980]

I am also new here. I've been struggling with symptoms of hypothyroidism since probably middle school. In 2007 I realized the lump above my collar bone was abnormal and asked my OBGYN about it in Jan of 2008. Since then, I have been admitted into a hospital clinic program for people without insurance. I knew that I was subclinical with every symptom in the book but I have been told I am wrong.

As of September 2009, my T4 has slipped below the normal level to join my T3. My Vitamin D is very low, 15.5, and I am on birth control for the horrible cramps I have had since the age of 12. I have 3 nodules, one of which is a  "hurthle cell adenoma" (Sep. 2009) and has grown from 2.2 cm in March 2009 to 2.5 cm in August.

My "Dr." (who is actually an intern Dr. in training through the University) has implied that my weight gain is due to my birth control, and asked me if I am a "fast food girl." As a vegeterian for over 17 years I found this insulting. The guy doesn't get it.

At this point, I decided to post on this forum because I'm really growing weary. The Dr. is waiting to send me to surgical because he says the growth in the adenoma could be "margin of error" from an ultrasound that a Dr. of Radiology took. I'm waiting until Dec. to have another ultrasound although everything I've read suggests that any Hurthle cells should be removed in order to fully reveal if cancer is present.

As for meds, they haven't even been mentioned. I try to ask questions and bring knowledge I've gotten from books, articles, and the net into conversations with the Dr. but he always says "Did you read that on the internet?" and tries to make me feel ignorant. I just need some wisdom thrown my way. I'm not really getting the support I need from my parents and I have a hard time convincing myself I'm not crazy sometimes. The Dr. told me he wanted me to see Psych. LOL. By the time he's through with me I probably will need to!

[Lucy1956]

Hi All,

I am Lucy. I am a 54yr old 40lb overweight female who has always been physically active untill I decided to take care of my dying father over the past year. For my 54th B-Day I decide to get a full physical. I mentioned that I was still very tired all the time even though my Dad passed in Januray. I felt there was something not right with me. I would go for a walk or try to run (which I was good at for a long time) I could feel my musceles and tendons thighten even when I would stretch. I attributed it to gettin old and kept trying, but always getting less distance and lost about 40% flexibility in both legs (knees) . It got so bad that I now am on tramadol and diflunisal. Oh ya, I am also diagnosed with hyperthyroidism. Doctor started me on 50 MCG Levothyroxine. Now I too am on the Journey. Loking forward to learning as much as I can about this issue and other like it.

[lovecake]

My sister recommended I check this out. I have suffered from uncontrollable thyroid problems for the last 6 years. I started out with graves disease..finally had rai about 3 or 4 years ago.  I really can't remember.  Since then I have had uncontrollable hypothyroidism.  No one can get me on a proper dose.  I've already gone through the hair loss. My hair is finally growing back. My primary complaints now are joint pain, swelling, edema, and weight gain. I am currently taking 200mcg of synthroid 4days a week and 225mcgs 3 days a week.  We shall see. I spent the entire summer not being able to wear shoes because my feet were so swollen.  I am hoping to get some good feedback on possible steps I might take, and just know that there are others out there with the same issues.  Hopefully we can help each other.

[Glenda306]

I'm sorry to hear you're having such trouble getting your dosage straight.  Are you taking the natural or synthetic hormones?  Generic or name brand?  Some people have to take name brand and/or natural hormones or it just doesn't work.  Good luck.

[mjmom69]

I joined the pregnancy 35+ community and had questions about thyroid also so I came here to ask some more Thyroid related questions. I have Hashimoto's and I am on Synthroid.

[Crochetya]

I made my appointment to see the surgeon today. My Endo, PCP, and OB/GYN suggested I remove the thyroid. I have had other surgeries in my lifetime, but this one I am just afraid. It's not about the surgery itself, it is post surgery. I just don't want to have worst than what I have now. I am going to go through it and hope & pray for the best.Hopefully I will be better than I am now.

Thanks for the vent.

[Glenda306]

You sound a lot like me.  Although no doctor has ever said I have Hashimoto's, my sister does and I too am hypothyroid & on synthroid.  I was also in the pregnancy 35+ community recently.  I'm guessing you were born in 1969 (by your screen name).  I was born in 1968 and my youngest child is now 7mos. old.

[MDeb50]

I was diagnosed as Hypothyroid in Aug 2009 and I am taking T3 T4.  I am looking for info related to ht and t3 t4

[MDeb50]

.....and to add to my above post last Monday I was in the ER with chest pain and palpitations.  My TSH was <0.004 and my Thyroxine was 3.76  
My t3 t4 is a compound of 1 grain.  My doctor took me off of the compound for 1 week and now I am back on every other day.
I get overheated at work, am losing hair and have lost 25 pounds.  I was looking around to find out more about t3 t4 and any food or additives that can affect it.

[Glenda306]

When my TSH went up recently, my dr asked if I was eating a lot of soy.  You may look up that connection and see if could make a difference.  I don't know of anything else (except NOT taking your meds on an empty stomach).

[SusanL33]

I am new to this board and to issues with my throid.
I was recently diagnosed with having several nodules on my thyroid.
I have had 1 ultrasound and meet with a specialist tomorrow afternoon.
My family internist, scheduled me for a FNA this tuesday.

The report from the US is scary and intimidating...seems one of my nodules, is larger than my thyroid is! I hae 1 isoechoic, and 2 hypoechoic, one of these, is solid.

It's a dangerous thing to have the little amount of knowledge i could cull from various internet studies. I have made myself stop doing this and just wait to hear what the experts say, based on solid diagnostic information....because I was driving myself crazy and convinced myself that i have cancer! When i know, realistically, the large % of thyroid tumors are benign.
I will say that if i get results that are wishy-washy...i am going to insist that they remove my entire thyroid. I dont like all of the false-negatives I am reading about and it is interfering with swallowing large vitamins and my sleep. I cannot sleep on my back anymore because the tumors press on my esophagus...oh, and I have the voice of a truck driver also lol (I am female so this isnt the best)

I'm so glad I found this group.
Susan