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Why am I being under medicated?

by cancertwins360, Jun 10, 2009 02:30AM
I had a thyroidectomy in 2001 due to Hashimoto's Disease w/goiter. I also had "bad" glands on either side of the thyroid that were also removed.  I am currently taking 150mcg of thyroid medication. My TSH blood test on 6/05/09 showed my level at 0.08.  The Kaiser lab uses a normal range of: 0.34-5.60 (ulU/mL).  After receiving a copy of my blood results my doctor wants to LOWER my medication to 137mcg.

Why am I being under medicated? My doctor has not said he is worried that the cancer will return. I am miserable!  I've been fighting to find a doctor that will increase my meds to alleviate the symptoms I am having and have had for the last 8 years!  

Does anyone have a suggestion as what to do?
Member Comments (1)

by gimel, Jun 10, 2009 08:34AM
To: cancertwins360
In my opinion hypo or hyper thyroidism should be defined mostly by symptoms, not strictly by results from blood tests.  This is especially true for TSH, which correlates very poorly to symptoms.  Unfortunately the medical community still clings to TSH as the predominant factor in deciding a patient's treatment.  Many doctors do not want TSH below the reference range, as if this automatically makes a patient hyper.  It does not, unless there are also hyper symptoms.  For Hashi's patients suppression of the TSH below the reference range is frequently necessary to alleviate symptoms.  
After symptoms, the most important factor is free T3, which is the most biologically active component of thyroid hormones. It is four times as potent as free T4. Scientific study has shown Free T3 has, by far, the best correlation with hypo symptoms, while TSH correlates very poorly.  I believe that the best overall result can be obtained by having a doctor that will listen to your symptoms and test and adjust your free T3 and free T4 levels as required to alleviate your symptoms and get you to the Euthyroid state, which means neither hypo nor hyper.
I suggest that you discuss all this with your doctor and request testing for free T3 and free T4, and ask that you be treated based on your symptoms and adjusting your free T3 and free T4 levels as required to relieve your symptoms.  If this doesn't  work with your current doctor you may have to find a good thyroid doctor.
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