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Why do I still feel so horrible?

I have been going through postpartum thyroiditis for the last 6 months.  My  tsh and t4 recently fell into the supposed  "normal range".  My last tsh was 3.7 and my t4 was 0.83.  The endo ( the 3rd one I have seen) that I saw a day after my test.  Said it was in the normal range and my symptoms should subside in the next 2 weeks.  Well its been 2 weeks and I still feel absolutely horrible.  Terrible brain fog, trouble concentrating, memory loss, irritability, headaches, weird tingly sensation in head, anxiety, fatigue, dry skin and constipation.  I have called several times trying to explain that I am still having symptoms ans still no one will return my calls.  I have been to 3 endos already and I dont know what else to do.  I want to feel better but it doesnt seem like anyone wants to help me or any of these things are an issue.  This is ruining my life and I can barely function. Thanks

p.s. I have been tested for antibodies and they were positive but they told me that they couldnt tell if the were hashimotos antibodies or the postpartum thyroidits antibodies.
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Avatar universal
Yes I am also very sensitive to synthroid.  I was on it for a month before my doc took me off saying that I was normalizing and i didnt need it but I still feel so terrible.  Im not sure what else to do.  Do you have all the same symptoms I described?  Particularly the brain fog?  Its nice to actually talk to someone who is suffering with the same thing because it seems like no one else understands
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Avatar universal
I had my son almost a year ago, hyper around 6 months postpartum, now hypo since around 8 months postpartum. I have been on Synthroid 12.5 mcg for a little over a month now. I actually just stopped taking it yesterday. At my last appt. My labs were in range, although the low end of the range. I have had an awful time with it. Also suffer from PPD.
I have had a terrible time with Synthroid, I'm very sensitive to it. Gives me fast heart rate and terrible anxiety and panic. Doc said if I continued having these I could try stopping the med. We will see how that goes.
I hope things get better for you soon, I know how bad it can be. Hang in there.
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Avatar universal

The doctor that i saw recently told me that there are antibodies present in postpartum thyroiditis and hashis so you cant tell the difference.  But I dont know what to believe I heard so many different things.  So are you feeling better yet?  If so how long did it take?  And what has your treatment been?
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Avatar universal
I am confused about what you said about antibodies. Antibodies are present during postpartum Thyroiditis. Postpartum Thyroiditis can resolve itself. But antibodies are not Always present during postpartum.
I too suffer from Hash 's or postpartum, mine went through hyper first, now hypo. I have high antibodies as well.
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Avatar universal
Did you not see my reply to your previous post.  If not, here it is again.

Over 8 years ago the AACE recommended that the range for TSH should be revised from .5 - 5.0 down to .3 - 3.0, so your TSH is over that range.  However, I have to add that TSH is a pituitary hormone that is affected by so many variables that it is totally inadequate as the sole diagnostic for thyroid.  At best it is an indicator to be considered along with more important indicators such as symptoms and also the levels of the biologically active thyroid hormones, Free T3 and Free T4.  Of these FT3 is the most important because it largely regulates metabolism and many other body functions.  Scientific studies have also shown that FT3 correlated best with hypo symptoms, while FT4 and TSH correlated very poorly.

Assuming that your T4 test is for Free T4, not Total T4, then .83 is in the lower end of the range, which is frequently associated with being hypo.  You could tell much more from a Free T3 test, so I highly suggest that you get that done.  I expect that you will find your FT3 to be in the lower part of its range as well.  Many of our members report that hypo symptom relief for them required that FT3 was adjusted into the upper part of its range and FT4 adjusted to around the midpoint of its range.


A good thyroid doctor will treat a hypo patient clinically by testing and adjusting FT3 and FT4 as necessary to relieve symptoms, without being constrained by resultant TSH levels.  Symptom relief should be all important, not just test results.  If you want to read more about clinical treatment, this is a good link.

http://hormonerestoration.com/files/ThyroidPMD.pdf

One more thing that came to mind is that rather than just assume that your hypothyroidism is postpartum related, perhaps you should request to be tested for the thyroid antibodies, TPO ab and TG ab, to determine if Hashimoto's Thyroiditis could be the cause.  
________________________

If you have been tested for thyroid antibodies and the tests were confirmation of Hashi's, then that is further evidence that you need thyroid medication.  By the way there are no lpostpartum thyroiditis antibodies.  I have read that the presence of Hashi's antibodies often causes postpartum thyroiditis, which can be a short term problem.  However, with Hashi's, your hypothyroidsymptoms are not going to go away without thyroid meds.

From your treatment so far, you definitely need to find a good thyroid doctor.  

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