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"Within normal parathyroid activity" but falling Calcium

by DMLee, Apr 09, 2007 12:00AM
OK, anyone else out there ever had so called normal parathyroid activity (bloodwork showed) but yet Calcium levels that continue to fall?????  Have tried all Calciums and now trying the chocolate chews.  It's been 6 months since my TT so I thought this would begin to resolve itself but obviously I am wrong.  Surgeon says that it is still too soon to say that they (parathyroids) aren't working but it is so confusing (and frustrating) when they show "within normal limits".  Trying to write in to the doctors forum but always full.
  I live on South Florida and hear that there is a Parathyroid Guru on Miami that works at Jackson Memorial.  Anyone from down here know of such a being???  Thanks for any thoughts...
Member Comments (4)

by hazelhurst, Apr 09, 2007 12:00AM
How much calcium are you now taking daily? And what are the calcium levels (before, and now)?

by DMLee, Apr 10, 2007 12:00AM
To: hazelhurst
Last Calcium was 7.0 if you can believe.  Dropped from 7.6.  I was testing a theory that I was actually taking too much Calcium and it was causing a reverse effect.  Guess I was wrong.  Talking double the Rocaltriol, normal Magnesium.  Though I had stopped the Magnesium all together cause those levels were too high.
Makes me a little nervous as I went into tetany after surgery when the Calcium dropped to 6.3.  But even with a level of 7 I have no symptoms.  Makes me wonder...

by MJ13, Apr 10, 2007 12:00AM
It took my calcium about 2 months after TT to get back in the normal range.  I was taking 6 x Oscal 500 +D.  My parathyroid came back normal right after surgery. I  also had no symptoms once I left the hospital.

by hazelhurst, Apr 10, 2007 12:00AM
To: DMLee
I wonder if certain conditions have to be present to go into tetany--I also had that experience a day after surgery. I started to hyperventilate, which made it much worse (the doctor surmises).  Also, the shock or trauma to the body after surgery might make the symtoms more pronounced, resulting in tetany? I think it's so rare that there are few studies on this. At any rate, the fact that you don't have the symptoms is good!  I just read somewhere that calcium is absorbed better taken with food, something I don't do currently. Worth a try.
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