Zero TSH

[ninja2horses]

I had my thyroid out a year ago and my TSH has remained at zero ever since. I have gone from 100 to 125 MCG of synthroid, then I went to a new doctor after my first doctor retired, he has taken me from 125 to 88 MCG and my TSH is always at 0.02, 0.01(basically at zero) it never moves. My doctor doesn't think it is odd. He just keeps lowering my dose and I keep feeling worse. My blood pressure has decreased to 105/? and I am putting on weight and feeling very, very tired. What could be going on?

[ninja2horses]

Since my last dose change I have been excessively weak and tired. I feel light-headed often when I stand up. I have gained 10lbs since he started reducing my doses each visit. I know that doesn't sound like a lot but I haven't changed my exercise or eating habits. I'm physically fit. I didn't get to see the lab results but in my doctor's notes he said my results were; FT4:1.06, TSH:<0.01, Total T3: 109, Vit D:23 ( He did give me a perscription for Ergocalciferal) What are some things I could ask or say to my doctor to get the help I need? He hasn't been very open to my comments on how I'm feeling. It seems he is only concerned with my TSH lab results.

[goolarra]

TSH is a pituitary hormone and is subject to many influences other than thyroid hormone levels.  Sometimes, when people start on thyroid meds, TSH goes to zero, never to come back up.  At that point, it obviously has to be ignored.  

Is your doctor testing FREE T3 and FREE T4 as well?  If so, please post those with reference ranges, which vary lab to lab and have to come from your own lab report.  

Your dose is being lowered and you keep feeling worse.  That's an indication that your doctor is doing the wrong thin by lowering it.  

[gimel]

What could be going on is that your doctor doesn't understand that hypo patients taking significant doses of thyroid med often find that their TSH becomes suppressed.  That does not automatically mean that you are then hyper, unless you do have hyper symptoms due to excessive levels of the biologically active thyroid hormones, Free T3 and Free T4.  Your dose of 125 mcg of T4 does not sound excessive for someone after a TT.   So please post your thyroid related test results and reference ranges shown on the lab report so that we can better assess your status.   Also, if tested for Vitamin D, B12 and ferritin, please post those as well.