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Ok for the sake of not hijacking the other thread on the subject of Erfa i had a couple questions.

For those of you who take Erfa,  do you take your entire daily dose at once or do you split dose?  There was a very defensive argument on the Erfa page a while back regarding multi dosing.  The head pharmacist said it was made to dose only once a day.  But we all know what is good for one, may not be good for another.

Also,  does anyone know the chemical compound of a 1 grain pill (t4 and t3)?
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1139187 tn?1355706647
NO   i am on naturethroid now.  year #2.    Erfa didnt do well for me thought i am not against trying it again one day.  
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Avatar universal
Hi Gimel,

I'm so sorry I forgot all about this thread, but hopefully you can still my answer helpful. These were my latest labs:

TSH <0.01
FT4 1.1 (ref 0.7-1.5)
FT3 4.2 (ref 1.7-3.7)

So slightly out-of-range FT3 levels, but feel great and would not want to lower my dosage.

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798555 tn?1292787551
Bruce, it might have been SHIPPED from Germany but ERFA is Canadian and sold in many places exept the USA.

They give me a choice from where its shipped. I always ask for shipping from a Canada pharmacy, its closest to me and quicker.
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1139187 tn?1355706647
its still there.  a drop better.  I had some pretty shocking test results this week so I'm in a state of confusion....

the ear ringing is better, or I'm more used to it.

By the way,   ERFA may have a canadian web site, but mine came from germany.
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Avatar universal
Please update your progress with Erfa? Is your ear ringing any better?
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535882 tn?1396576685
Terrific!!!!!!!!!!!!!
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1139187 tn?1355706647
what the hell is that?    My pharmacist told me she has one lady on 4 grains.  Im feeling much better now.   Last 3 days I've felt much better.   closest I've felt to normal in 3 years.

HAIL ERFA!  KING OF ALL HORMONES!      HAIL HAIL ERFA!!!!
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1 Comments
Bruce - are you still good with ERFA?
535882 tn?1396576685
you might need a heidelberg gastric analysis. see why you not absorbing that thyroid. med. ?? figure it out.
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535882 tn?1396576685
that's seem crazy high dose for a little person. . do you have diverticulitis? or a gastric problem.   have you had an digestive evaluation done? vitamin absorption?  
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535882 tn?1396576685
that's crazy your numbers were close to perfect last time!
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1139187 tn?1355706647
well kevin,  I had my thyroid out Feb 16.   Was chugging along on my 2 grains or whatever i was taking and doing just dandy.  30 days after the surgery we went to vacation in hawaii.  I started to feel pretty lousy and it just kept getting worse.   I came back home and my labs were a little off.  TSH was like 5.27 or something and the FT4 was low  and the FT3 was low mid.  So they bumped me a little bit.    Then i kept getting worse and got to a point where i was the worst I've ever felt.  So i went back in 6 weeks after my increase and my labs were

tsh 24.9
ft4 was .5   ranges 1.3 to 2.8
and the ft3  was 2.8      2.3 - 3.4

so that is why i felt so bad.  I must of crashed after surgery.   Im now at 3 grains, i think I'm on like day 4, feeling better than above but still way far away from acceptable.   I think when all is said and done ill probably be on 4 grains, at least 3.5 easily.   ear ringing all that crap.

Now my problem is i cant breathe at night.  Went and saw a specialist and he thinks my windpipe is out of sorts from the TT so I'm snoring now.   loud breathing, sound like a sucker fish at night LOL

I think I'm on a lot of meds for my size.  I'm 5'10 174.  she wants to spot check me in 3 weeks and retest in 6.  Joy!
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535882 tn?1396576685
you were close what happened????
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Avatar universal
What were your labs and what are you aiming for?
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535882 tn?1396576685
I thought you were fabulous??? what happened??
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1139187 tn?1355706647
still *****.   no help just yet...   but my labs were way off.  I cant complain until i have perfect labs (or near perfect) and its still there. ..
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Avatar universal
How the ear ringing? Is it getting better with erfa compared to other medications for Hypo?
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1139187 tn?1355706647
Question - for those on erfa - I just saw they only make a 30,60, and 125 MG pill.  I was hoping they made a 2 or 3 grain pill so I'm not having to take so many.  For those of you on 3 grains - are you taking 3 pills at a time or am i missing something.

Im currently on 2.5 grains but having a feeling i will be bumped to 3 grains.  SO assuming i will take 3 @ 60 mg ?   (there is no 120 mg pill ?)

I think its very odd that they make it 30, 60 and 125 (not 120)?
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1139187 tn?1355706647
I just want to say something as an observation.   I know I am still hypo, But to ensure that i get accurate test results, I am going to wait until april 24  which is 5 weeks after they tried to add t4 into my system to make sure i am getting an accurate reading.

Someone suggested that I try not multi dosing so now I take my entire 2.5 grains in the morning.  I feel much better doing this.   The ears ring but not as bad, i am able to wind down a little more at night, overall i feel much better.

So my point is - for me single dosing seems to work much better than multi dosing.
Helpful - 0
1139187 tn?1355706647
i have taken HC as well.  that helped me with the motion sickness.   Question - did you need a script for the erfa?  If Not will you email me privately please i have a buddy who is having a hard time getting it.

it probably won't take 3 weeks.  If its from canada, sometimes its faster than US mail.   Im not a doctor but be very careful with the HC.  there is a chance you only need a tiny bit and a lot of those WHACK BOARDS like STTM will tell you its okay to take up to .25 HC with no hassles, i do not think this is a good idea.   I am speaking first hand.  
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2100513 tn?1333472958
I ordered Erfa from a "PLACE" on the net and I am so excited, even if it doesn't help, or change my symptoms, I am just relieved to finally get to try anything but the same old synthroid/t3 combo...it will take like 3 weeks to get because it is overseas but whats 3 weeks after wasting a year and a half on synthroid/T3....I also ordered a hc pill for adrenal fatigue....I too have life halting anxiety and anger....Erfa helped make yours better??? Please explain
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1139187 tn?1355706647
LOL


first of all,  don't believe everything you read on all those "other sites"   where the preachers try to find other things and little secrets to charge you for to understand....  

I had horrible horrible anxiety.   After about 2 months on armour erfra this went away.  I feel more relaxed now.  Still feel horrible but not as bad.

I added in some t4  and was taking it for 2 weeks.  never felt worse in my life.  Today the dr.'s took me off the synthroid addition (i didnt take it today) and my body is P I S S E D.  The ringing is nuts today but i don't have that awful synthroid headache i had for 2 weeks...  
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2100513 tn?1333472958
RIGHT ON BRUCE!!!!! You just keep right on fighting for your life....I lost my life to the "ringing in the ears and every other HYPO symptom in full force a year and a half ago, after suffering with undiagnosed Hypothyroidism for 25 yrs...(I'm now 33 yrs old) I have been to dozens of QUACKS who worship the Synthroid DEVIL and now have to self medicate because I go to bed every night hoping I will not wake up tomorrow...(I am on synthroid/T3 combo with NO relief of symptoms). I am having a blood test done tomorrow and will start my own unprescribed meds since I cannot get any doc to give me a script for desiccated thyroid...I don't want to hear how "that's so dangerous", I HAVE NOTHING LEFT TO LOSE, this disease has already taken EVERYTHING FROM ME!!!! So thank you Bruce, I feel a little less alone with my desperation...Also, can you tell me more about the " Less agitated"? That really got my attention, I am filled w/rage (apparently my adrenal issues)....
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1139187 tn?1355706647
This is an old post but there is a lady on FB who takes 6 grains.  3 in the AM and 3 in the afternoon.   crazy
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Avatar universal
Yours is one of the highest doses of thyroid med that I have run across.  Not saying that it it too much, understand.  I firmly believe that dosage is irrelevant, that the only thing that matters is the clinical response.  I just wondered if you would please share with us your thyroid test results and their reference ranges.  I think it would be of interest and value for us to see the effects on your test results, knowing that your are feeling well.
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