getting rid of muscle & joint pain

[jojo449152]

has anyone with muscle and joint pain found a solution.  With a tsh in the normal range on synthroid what else is there to try?

[matschca]

I haven't but I'd be willing to pay lots of money to find the answer to this - or even a doctor willing to listen!  My TSH is 3.75 so by new standards i'm hypothyroid (had a TT in 5/08) - on 1.12 Synthroid - and wake up every single day with pain in my hands, my knee, my arm and my hip.  

[Nikki333]

I am so glad to hear your comments!  I was recently diagnosed with Hashi, and I was hoping to hear that the joint pain would go away once on the medicine.  I also was checked with an ANA screen which was positive before I was diagnosed with Hashi because of the joint pain.  Life is like a jig saw puzzle isn't it?  My worst joint is my index finger, I don't have full movement anymore.

[Dani0526]

I am so glad that I found this post because I truly felt like I was going crazy or going to die from blood clots in my legs! I have Graves, treated with RAI last July, became hypo in September, started on levothroid, am stable now. My last TSH was 1.95 and free t4 was 1.4. Both of my legs and feet are killing me! I went to the doc and there were no visible signs of blood clots, so she said she thinks its due to PMS.I have noticed that the week before my period my legs and joints tend to ache more, but I'm still convinced it has to do with my thyroid. Before any of this, my legs only ached the first day of my period, not a whole week in advance, and not my joints!I'm relatively young, 29. My doctor checked me for rheumatoid arthritis and any other thing she could think of that would lead to sore joints and achy legs....all were negative. So, since my thyroid is stable and all tests came back negative, I must be crazy, right? Doctors will make you feel like you're going crazy. I understand what you're going through and as soona as I find an answer to your question I will let you know! Until then, make sure your calcium and vitamin D levels are ok. Take care!!

[mimisandy]

well jojo, sorry your only 29 and feeling like this im 53. i have the same symptoms as you, i was diagnosed with fybromayalgia in 1995, sounds like this could be you also, but, i think they diagnose everyone women with aches and pains with fibromysalgia. now everytime i go to the dr, any dr., they see that on my record and think im crazy. i just started thyroid med 2 weeks ago, after demanding a blood test for my thyroid. i am in the process of going to physical therapy for my hip, back ,lower leg pain,,,,, after i finish therapy then they will give me an mri, i think they think im making this all up I work at the post office and do alot of lifting, standing on cement ect., but my dr. just thinks im overstressed, and "excitable", i get excited when he just throws pain pills and wants to put me on anitdepressents....i have every syptom (symptom) of hashimoto, or whatever that is, when i go back i am insisting on a test for that. in this day and age you have to be your own advocate, the problem is then dr.s think you r not respecting them by being an informed patient. you listen to t.v. shows or read how dr.'s like you to be informed and to bring all your questions or whatever...... well, i think thats bull, i had one dr. several years ago that i loved, he went into another specialty and i have not found one that doesnt have an ego, or who has a snitty nurse. you need to keep pushing your dr. and find out what s wrong with you,,,,, dont waiste good years feeling like ****,,,,, read, do everything you can. dont just live with it. I do know when i first got all the aches and pains what did help (i was around 40),,,,,, sleep, lots of water, good vitamins, excersise. force yourself to exercise. water, lots of it (but be sure to keep your electrolites high, i accidently got mine off with to much water, my potasium plummeted, that causes aches and dizzyness and nervousness) drink v8 juice, i am telling you that helped me so much , kept my potassium up ect(low potasiumm causes more pains then people realize).    ..... now im having other symptoms and my own remedies are not working, so try these and dont give up. your to young to feel so bad. by the way, i had the same exact symptoms as you when i was still having periods. i think its a hormone imbalance or something. im in menopause and actually told my dr. i have the same sympons as when i was having periods. im in the searching stage right now of why i feel even crappier, i was hoping starting thryoid meds would help, well , not yet, i think i have just begun another long road of searching for answers.

[CatieC]

I am 50 and feel like 80. I too have joint pain. I am taking Synthroid for HypoT and Hashimoto's. My ANA was checked which was negative. I just recently had a venous doppler to check for blood clots which was negative. My Vitamin D is low, I am taking supplements which hasn't helped the joint pain.

I asked my doctor if my thyroid issues or the low vitamin D would cause my joint pain. She said "no" in a sarcastic tone. She put her hands in the air and said I don't know why you have joint pain. Maybe you have fibromyalgia or it's because you're in menopause. I wanted to scream. I still feel it's my thyroid issues but I can't find a doctor who will take me seriously and not get offended because maybe I possibly know more than they do.

[Liz94]

Get the Vitamin D checked.  I'm on prescription vitamin D and it's made a world of difference in my aches and pains.  

[Barb135]

Has anyone tried magnesium?  I'm 59, have both hypo T and Hashi's.  I'm on levothyroxine and cytomel.  Some aches if I sit in one spot for too long but as soon as I get up and get moving I do ok.  

Magnesium might be worth a try.  Magnesium citrate is easiest to absorb.  

[Totie]

I had graves disease 14yrs ago. I had TT for it. Long story. But I do get the muscle/bone pain & aches. I have only had them the last 2-3yrs. My TSH is still here and there. Still trying to regulate the dosage for the last two. She wants my TSH level at 1.0 or below.

I do notice that my ahces are worse before the periods, usually two weeks before and during. I get the night sweats as well for two weeks straight before and a week after. I am 38 so maybe it is perimenopaus..I have had an ovary and cyst removed.

Do get your B12, potassium, Vit D checked.

[Smilerdeb]

I get the aches and pains in the hip and left leg when my TSH is a little too hihg.
Thats how I know I need a dosage increase.
I am also on calcium/D combined 1000mg daily because of my age (big 50 next year lol).
Anyway...I WAS low on Vitamin D after RAI  even though I am outside a lot.
I always say the body takes a beating where thyroid treatment is involved.
Get Vitamin deficiency tests done but my guess is your thyroid levels are a little 'off'.
Hope that helps.

[stella5349]

I agree with Deb - You can have deficiencies in minerals and Vit's with hypothyroid

You say you are still up and down on your meds so it sounds you are not stable at this time. This definately could be causing these pains. It's your body signaling there's an upset in balance for you.

[ram381]

hypo DOES cause joint pain....go to about.com and look up undertreated hypo...it's one of the symptoms. i have it and also have carpal tunnel and just recently added a new one to the list...tendonitis in my left shoulder...real bad. What i'm going to do, since tsh is "normal" i'm asking for some t3. i was on cytomal yrs ago, and felt great, but can't find a doc on my insurance who prescribes it. i read a lot on about.com. u should, too.

[livelifeabundantly]

I have had a complete thyroidectomy and high dose radioactive iodine ablation therapy. I was extremely hypothyroid TSH 58!  Had a LOT of shoulder pain and nerve pain (carpal tunnel and ulnar nerve). Very tired! Lots of side effects. I really believe that once the radiation decreases and once the levythyroxine does it job that I will feel better. I have great docs but they were NOT aware of the side effects of the radioactive iodine AND the hypothyroidism. They are very compassionate but they did not know.

[stella5349]

Google up magnesium depletion and hypothyroidism

You can find a wealth of information

[LazyMoose]

Sometimes proper thyroid meds and vitamins alone are not enough to fully reverse the damage done if you are in a lot of muscle pain caused by hypothyroidism. And a lot of joint pain can be really tight nearby muscles trying to pull on joints, so you feel it in the joint. There are blood test for rumatiod Arthritis which is real joint pain, and that, of course is a different subject. Some of you in MAJOR pain that answered this question might want to read the Corky21 posting if you are seeking solutions. It may sound new to some but it works for a lot of people that tried everything else.