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150794 tn?1242048511

hypoparathyridism and exercise

Does anyone have a good solution on trying to keep your calcium levels normal while exercising?  I am a hypoparathyriod patient and so far I am guessing 400mg extra calcium for every 20 minutes of aerobic activity.  Any other experiance would be helpful.  There is just so little info. on this crappy disease.
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150794 tn?1242048511
Don't depend on anything giving someone in an emergency room the idea that you may have a calcium problem.  I have gone in telling the Dr. that I had a problem with Ca while on vacation in Daytona.  The guy never got it!!! Some of the guys have never seen a parathyroid patient before and don't have a clue as to how serious and how quick we can have serious problems.  Sometimes I think I want to tatoo my forehead with the words..."CHECK MY CALCIUM NOW"
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150794 tn?1242048511
I have had my thyroid removed also. That was the beginning of my parathyroid problem.  I didn't put anything about it on my bracelet as I have never had an acute problem with my thyroid level.  Some people depend on the scar to give the message of a thyroid issue.  I barely have one due to good closure.  
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168348 tn?1379357075
I've wondered on the bracelet, too, since my daughter has a Medic Alert tag for allergies I'm really familiar with how it works, etc.

When I thought about the medic tag I said, hmmmmmmmmmmm they'll see the scar and start asking questions and/or think there may be calcium, meds needed, etc.

C~
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Avatar universal
I don’t know about anyone else but if you ask me, on the subject of low calcium there seems to be no good solution, frankly.

On exercise and activity, there’s no rhythm or reason for me - sometimes I buzz doing very little; sometimes I don’t buzz at all doing a lot.  Too, it’s a fine line between catering to my bones/blood verses saving my kidneys from damage.

I saw on the other thread where you mentioned that not all drs test PTH levels along with calcium.  Yikes – that’s a scary indiscretion!

Also, I saw where you mentioned the wording on a bracelet.  Do you have an opinion of the wording for someone who has had his or her thyroid completely removed?  May I ask, is that your own experience?
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