Aa
medicated for hypo,yet still have symptoms of undiagnosed
I was diagnosed hypothyroid at 20 yrs old. Completely shut down, was on 400mg synthroid for cpl yrs. Then down to 200mg cpl yrs. Then on 110-125 for at least 10 yrs. Now past 5-6 yrs on 225mg. Have gained excessive weight in past 5 yrs as i used to weigh 145lbs..now up to 240lbs, tired,cold,anxiety,heart palpitations,dry skin,no libido, TTC with no luck, low BBT constantly,sleep 10 hrs & still tired..yet any tests come back "normal" Endo said with newest dose of 225mg,as i was concerned its a high dose, she says its fine, considering my weight. Im in Canada, so drs & testing readilly available.
WHY do i feel & have all the symptoms as someone that is undiagnosed with hypothyroid? I feel the meds arent working, as i fit 99% of the symptoms of someone that isnt on medication...anyone else have this issue?? Thanks
WHY do i feel & have all the symptoms as someone that is undiagnosed with hypothyroid? I feel the meds arent working, as i fit 99% of the symptoms of someone that isnt on medication...anyone else have this issue?? Thanks
COMMUNITY LEADER
Be careful about sharing links - any site that has its own forum is not allowed to be linked here, even if you're not linking directly to the forum.
Some individuals have used their illness to make money for themselves, by selling books and other programs that don't have scientific basis.
Some people find that eating less bread and other items containing white flour, sugar, etc does make them feel better because they're eliminating the simple carbohydrates, not because they're eliminating the gluten.
By all means, one should give up anything that doesn't help them feel better, but if one gives up gluten just to help their thyroid, they will be disappointed.
Some individuals have used their illness to make money for themselves, by selling books and other programs that don't have scientific basis.
Some people find that eating less bread and other items containing white flour, sugar, etc does make them feel better because they're eliminating the simple carbohydrates, not because they're eliminating the gluten.
By all means, one should give up anything that doesn't help them feel better, but if one gives up gluten just to help their thyroid, they will be disappointed.
ill for sure be getting my results next time i can get to my dr...its a 3 hr one way trip (6hr return trip) as i live in a very rural community...this is one of the websites that ive been reading about gluten not being good for thyroid people
http://hypothyroidmom.com/gluten-why-hypothyroidism-patients-often-fail-to-get-better/
may have to copy/paste...this among other sites ive been reading up on it..
Have found many other sites, more from peoples experiences..but when i come across a scientifically proven one, i will share the link as well :) Cheers
http://hypothyroidmom.com/gluten-why-hypothyroidism-patients-often-fail-to-get-better/
may have to copy/paste...this among other sites ive been reading up on it..
Have found many other sites, more from peoples experiences..but when i come across a scientifically proven one, i will share the link as well :) Cheers
COMMUNITY LEADER
I'd sure like to see your thyroid results, as it certainly sounds as though your medication needs to be adjusted, or you're not converting the FT4 to FT3 adequately.
I'm not sure where you heard that hypothyroid patients should be gluten free, but it's not true unless there's a specific reason for you to be, such as an intolerance or insensitivity. There's no scientific evidence that proves gluten does anything adverse to your thyroid. Neither does coffee prevent absorption of synthroid, though you shouldn't actually take your pill with it.
The instructions for taking synthroid (and other T4 meds) say to take it first thing in the morning on and empty stomach, with a full glass of water, then wait 30 to 60 minutes before eating or drinking anything else.
I do take my pill with water, then I wait about 10-15 minutes (only because that's about how long it takes my coffee pot to finish dripping) before I have a cup of coffee... but I can kill that time brushing my teeth and doing other things to get ready for the day.
I'm not sure where you heard that hypothyroid patients should be gluten free, but it's not true unless there's a specific reason for you to be, such as an intolerance or insensitivity. There's no scientific evidence that proves gluten does anything adverse to your thyroid. Neither does coffee prevent absorption of synthroid, though you shouldn't actually take your pill with it.
The instructions for taking synthroid (and other T4 meds) say to take it first thing in the morning on and empty stomach, with a full glass of water, then wait 30 to 60 minutes before eating or drinking anything else.
I do take my pill with water, then I wait about 10-15 minutes (only because that's about how long it takes my coffee pot to finish dripping) before I have a cup of coffee... but I can kill that time brushing my teeth and doing other things to get ready for the day.
ya, i just turned 39 last month..just frustrating having most all symptoms as if im not on synthroid...heart palpitations, tired, no libido, weight gain & cant lose weight,cold feet & hands, low body temp. In the very near future i will be deleting bread from my diet, then eventually most wheat products, as i find every time i eat any of that, i cant keep my eyes open. Have also learned that hypothyroid patients should be gluten free, as gluten can have adverse reactions on thyroid..same as dont drink coffee as it can prevent absorption of the synthroid. I am a big coffee drinker, even take my pill with it, so unsure if maybe my body hasnt been absorbing the meds properly all these years..i guess anything health wise is worth a try :)
COMMUNITY LEADER
You're much younger than oldie, so it's okay for you to be put on a higher dose, though I find it hard to believe that any doctor would put anyone on 400 mcg immediately - that's outrageous... At any rate, oldie is 86 yrs old and has heart issues already, so even getting to 400 mcg could be very dangerous for him.
i was put on 400 mg imediatly when i was first diagnosed..the specialist i saw back then also stuck a needle into my thyroid to do a biopsy..i think he said a goiter or hashimotos?? cant recall..as my neck was huge. I was on that high dose for quite some time before it got lowered
COMMUNITY LEADER
I don't know what "expert community" you're referring to, but I'd hate to have any of doctor who would try to increase my dosage by 125 mcg at one time, especially if I were your age and with your medical issues.
While there may be recordings of people taking up to 1000 mcg, I've never heard of that and it would be extremely rare... Even 400 mcg is rare.
It's true that 25 mcg is a tiny amount, but when we get older, and when we have heart issues, like you do, that's exactly the way we're supposed to increase thyroid medication.
Increasing your dosage to 400 mcg could very easily kill you.
While there may be recordings of people taking up to 1000 mcg, I've never heard of that and it would be extremely rare... Even 400 mcg is rare.
It's true that 25 mcg is a tiny amount, but when we get older, and when we have heart issues, like you do, that's exactly the way we're supposed to increase thyroid medication.
Increasing your dosage to 400 mcg could very easily kill you.
COMMUNITY LEADER
In the United States, doctors are required, by law, to provide you with copies of your lab reports, upon request.
Just because test results are in the "normal" range, doesn't mean they are normal for you. We're all different and we all need different levels. Your doctor sounds like one of those that tends to keep patients ill for very long periods of time by chasing TSH, which is affected by many variables and can change by as much as 75% over the course, of a day.
Ask for the Free T3 and Free T4 and if he refuses, it's time to find another doctor.
Just because test results are in the "normal" range, doesn't mean they are normal for you. We're all different and we all need different levels. Your doctor sounds like one of those that tends to keep patients ill for very long periods of time by chasing TSH, which is affected by many variables and can change by as much as 75% over the course, of a day.
Ask for the Free T3 and Free T4 and if he refuses, it's time to find another doctor.
how quickly did you get up to 400 mcg synthroid and by what size increases- 25, 50?
I am advised by experienced sources that increases of 25mcg are the norm.
But two doctors in the expert commumity say 25 is tiny and that doses of more than1000 mcg daily have been recorded. At 86 I'm tempted follow a new doctor's instructions for a 125mcg increase from current 75 to 400 to get out of my problems quickly but I also value the personal experiences of the wise posters in the community. Any advice?
I am advised by experienced sources that increases of 25mcg are the norm.
But two doctors in the expert commumity say 25 is tiny and that doses of more than1000 mcg daily have been recorded. At 86 I'm tempted follow a new doctor's instructions for a 125mcg increase from current 75 to 400 to get out of my problems quickly but I also value the personal experiences of the wise posters in the community. Any advice?
i never get to see my results...next time at dr will have to ask for them...i usually get TSH done..according to my lab sheet..but i never get the results..the doc just says everything is "normal" & to stay on same dose...will post once i ever get the results
COMMUNITY LEADER
Please post your thyroid hormone levels as listed on your most recent lab report. Be sure to include reference ranges, since range vary from lab to lab and have to come from your own report.
You symptoms certainly sound like under/mistreated hypothyroidism and the fact that your medications have been changed so drastically over the years really makes me wonder.
Once we see what your actual hormone levels are we'll be able to better tell what's going on.
We do find that a lot of people in Canada have a hard time getting the proper testing and treatment due to the guidelines of the national health care system.
You symptoms certainly sound like under/mistreated hypothyroidism and the fact that your medications have been changed so drastically over the years really makes me wonder.
Once we see what your actual hormone levels are we'll be able to better tell what's going on.
We do find that a lot of people in Canada have a hard time getting the proper testing and treatment due to the guidelines of the national health care system.
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