After RAI and TT, I came good until Xmas 2009....started to feel 'different'.
They found a tumour on the Pituitary gland and is being removed next week.
I have gone a little towards the top of the range a couple of time with the T4 meds but no way as bad as what I was.
I only had to take the beta blocker once after RAI.
None since then.
Look at my pics ......the first pic to look at is me in a PINK top...then look at recent ones.
All good!
And you are right ..propanol shouldnt be stopped but weaned off it.
I'm wondering whether you need an increase in ATD's.
I was on 40mg daily at the start , got down to 30mg and wham...just uncontrollable from then on.
I was on Carbimazole which is the same as Methimazole.
The brand name was Neomercazole.....maybe ask your Doc for that instead of Tazapole or PTU.
I know PTU gave me hives bad.
What were yr last labs?
The range here for FT3 is 3.0 -6.5 and when first diagnosed mine was at 18.0!
And the range for FT4 was 10.0 -19.0 and mine was 27.
Its the FT3 that makes the heart race.....and the beta blockers help to reduce both the FT3 level and also the heart palps.
It may be worth asking your Doc for Carbimazole.
Personally I wouldnt stop either.......post yr labs here.
Thanks all for your kind reply.
I'm still on PTU and haven't stopped Propo yet. I thought I listen to some opinions before stopping completely. But is there any where to stop the hives and itch? I'm still hyper and increased the propo last week to 2 tablets instead of the prescribed 1 tablet because I felt light and had irregular heart beats. When my doc phoned up to say that I should stop the propo (since switching from Tapazole to PTU didn't amke the hives go away) this week to see if the hives will go away, I switched back to 1 tablet of propo per day. Now I'm wondering when if I should stop it or just continue with it, I;ve read from the net that you can't just stop propo suddenly, it has to be tapered off.
How's you're hyper now by the way?
Sorry...fortgot to mention...I have Graves and had hyperthyroidism.
Eventually after 12 months of uncontrollable levels and thyroid storms, I was given RAI and TT.
Propanonol is a beta blocker and shouldnt be stopped while taking anti-thyroid meds.
It is the anti-thyroid meds causing the hives and NOT the Propanonol (otherwise known as Inderal).
PTU caused hives for me.
The beta blocker also helps to keep the FT3 down....which is the level that causes the palps and thyroid storm.
If I was in your shoes....I would not stop the propanonol.
I would ask about the anti-thyroid meds.