reposting a ?? since lost the response post on it somehow

[ytr]

don't know what to do, nobody listens to my sypmtoms
Dx in 01 with hashimotos. tried a variety of meds , nothing works, severe heat intolarance from even 1/4 of the smallest dosage along with severe flushing and accesivly hungry, weight gain, feels angry, jump out of skin, facial hair and some on neck/throat. voice changes, and voice sound angry when not.  ear aches, sore troat.  my latest thyroid tests are T4 free 0.8, t3 free 264. TSH 17.35.  have been in 35 TSH before.  feel best when sick, body temp' goes up from 96-97 to 98 which feels like a fever to me.  have been off meds for 2 yrs or so and taking vitamines, iron, fish oil and niacine (colestrol high).  got my first ultrasound of thyroid gland in 09,finding are: in inferolateral thyroid lobe, a hypoechoic nonecalcified noudle (7x7x8)w/out calcification w/ mild peripheral vascularity. In the inferior right thyroid lobe also a hypoechoic nonecalcified, sharply circumscribed (6x7x9) noudule w/ mild peripheral vascularity.  no fluid or perithyroid lymphadenopathy. =benign adenomas.  
my doc, internal med, said to take meds to supress growth of noudle otherwise it will lead to surgery.  however since unable to tolarate meds what to do? my endocronologist gave up, she said I don't know what to do with you and that maybe I have a sleeping disorder and is aware of my intolrance to meds/hives from it.  was at er due to severe side effects from meds yet thyroid level was still low.
Also have ITP, enlarged spleen,off and on, low platlate count and elvated lever enzym.  
my lips, and hands are dry as well as my eyes and throat, sometimes have a burst of energy and can't stop and my speech will become fast and sometimes speech is slurry, or I can't speak like I don't even want to speak or no energy to speak.  I am trying varoise meds from the health food store and haven't found the right one for me yet, though just started.  
What does my test results mean on the blood work and my thyroid ultrasound? nobody explain nothing to me.    

p.s. ear ach.
        feeling tired out of the eye, energy draining of body out of eyes. like air is kiterally coming out odf the eye, I am not crazy but I don't know what it means?
        or
        that my eyes can't keep up with the rest of my body is looking    at.
        dislike bright colors, look at colors-shopping.        
funny fatigue that I can't find things when I am looking for something and its right in front of me. hard to look up.
head want to tilt back sometimes/spasm in back of the head and /or legs and or cramps.  
the only thing holding me is multi vitamine and l-throsine but doesn't quiet fix my fatigue.  but my hands and feet don't feel/get cold in ac since taking l-throsine.  can't tolarare full dosage or any herbal stuff at all.
tried cytomel, feel funny.
BEEN off meds for 2 years and doing somewhat better.  looking for alternative meds?
one internalist said I need progestrone, cream?
anybody out there have funny stuff like me?
Sometimes I fall into fatigue so severe that I sleep 12-16 hours straight and either sweat at night than freeze off and on.  
Been sweating like crazy lately, don't know why?
Things change, my symptom change.

Anybody can relate?

[loonette]

I have Hashimoto's too and experience some of the same symptoms.  However, I am concerned that you have been off meds for 2 years.  How long did you take thyroid medication in the first place?  Perhaps you did not allow it time to take effect (most say 6 weeks)?  The extreme fatigue you are experiencing now tells me that you haven't gotten rid of the Hashimoto's and you won't.  What kind of thyroid meds were you on?  Maybe you didn't find the right kind.  I take levoxyl 75 mcg. and I am doing okay on it, others take Armour, Synthroid, etc.  Perhaps other members can speak to shopping around for the right meds.  I have been okay with my meds so far.  I did not get treated for Hashimoto's until I found a goiter which is now continuing to grow.  I will need to get surgery pretty soon.  Please check with your doctor again so surgery won't need to be an option with you.  Take care.

[redheadaussie]

Sounds like your Hashimoto's is in attack mode. I had all and then some more symptoms the same as yours for over 15 years till I was diagnosed!
  Have you had the antibodies test done recently? This will give a true indicator if the Hashi's has flared up.
The only really good thing to do with Hashimoto's when severe is thyroid removal. It is the thyroid that it is attakcing and it makes the thyroid go into a tail spin trying to adjust its own hormones, but always failing. I believe you may be at end stage of the thyroid giving up. Which is what Hashi does. It kills the thyroid!
  I believe if you have the thyroid out you will find you will tolerate the medication better. The thing is you have to be patient on them and give them time to work. 6 weeks each dosage change is a long time but the only way to let it get into the body to work!
Hasmimoto's often interferes with the medication in the first place. So by having the thyroid removed may be the solution to your problem, with medication of course, as you won't be able to avoid that!
I suggest you find a new endo and the sooner the better!
Cheers!

[ytr]

thanks for your response.  my thyroid test came back at the minimum 0.8 (t4)and 264 t3. which never happened before. I started to take L-thyrosine and the doc added Iodoral which equalls thyroid meds a 3 to 1 ratio, that's what the doc said.  anyhow, I take niacin for the cholestrol but the doc said to take 6 cause it's no flush.  the doc said my adrenal is also a problem.  When I was on meds in the beginingI was doing okay.  it took me 3-4 months to fully adjust but than it went down hill.  e how, the doc is checking my hormone level and will take it from there.