Hi SicknTired!
Sorry to hear ur in the same horrible situation..I know how frustrating and ugly it is! My life has virtually stopped for the whole 1 year I have had this disease and I want it back! I seriously cant concentrate on anything else except my anxiety, palps and all the rest of it.
So you have had tachy, palps before the thyroid problems?
Yeah I dont think I even want to try armour. It sounds very powerful.
How long have to been hypo?
I have had my anti bodies checked they are THROGLOBULIN Ab 227 (0-40) and THYROID PEROXIDASE Ab 1000 (0-35)- these ones were 1500 about 6 months ago so they have come down.
So you have a solid family history, I have no family history and when I first got this my thyroid was extremly overactive, fighting back i guess. The panic attacks were so severe I thought I was dieing! I would be on the floor sometimes kicking and hyperventilating uncontrollably! This was nearly everyday!
Well good luck hun and thanks for ur post.
Keep me updated :)
I also forgot to mention- I am on a low dose betablocker to help the tachycardia after a complete cardiac workup.
Good luck.
Hi! I am very similar situation to you. I tried armour- cutting 1/2 grain in half to start. I have a history of tachycardia, heart palps so my endo was very hesitant to try armour in place of synthryoid. I took the armour for a total of 5 days... could not tolerate the constant tachycardia.
I really wanted to be on a natural thyroid med,,but not possible for me.
I am now on synthyroid 37.5 mg daily and still have many hypo symptoms along with the sometimes tachycardia and shaking/trembling which is a hyper symptoms. Bizarre.... but my endo has a few patients similar to my case.
Have you had your antibodies checked??? Mine are negative ,but she feels there is a possiblity I have hashimotos ( some people test negative). I have a mother, sister with hashimotos/thyroid disease.
I too am unsure what to do to improve my health.
Good luck to you
Thank you so much for sharing your experience with me and what a wonderful ending for your daughter! So happy to hear shes better now.
I wish for me it was just a conversion issue too but I don't think it is. U see I am very sensitive to thyroxine. When I was on 50 mcg I went very hyper with tachycardia at its worst. Thumping violently. But my TSH was only 3.1 (0.5-4.5) my FT4 was 20 (10-20) and FT3 was 5.0 (3.5-6.0).
I went off the medication cause I couldn't take it any longer. My TSH went back up to 11.7. FT4 was now 14.6 and FT3 was now 3.7 with the same ref ranges. The tachycardia stopped but not the palpitations.
My last test on 25 mcg every 2nd day was TSH 8.22 FT4 13.2 and FT3 3.6. I still felt hypo at this stage and am now currently on 25 mcg everyday but still having all day palps and tachy when I exercise. I don't think these results indicate conversion problem and I'm terrified to over medicate again. But I will still speak to my gp about additional T3. Don't know what to do :(
Thanks again for sharing ur success story and god bless u and ur daughter.
Just wanted you to know that my daughter (almost 10), who was born without a thyroid gland and on t4 only medication (Synthroid) for the first 8 years of her life, began to have issues with her heart 2 years ago when she would do any type of exercise. She would feel this as a rapid beat and would begin breathing hard. When she began doing this for even the littlest activity like running up the stairs or jumping up and down, I knew this wasn't normal. Went to a pediatric cardiologist who ran all the test and her heart was fine, but he did see a PVC(premature right ventricle contraction) happening on the EKG while on the treadmill. We then did a 20 day heart study with the halter moniter and she had 83 PVC's revealed in the study. I felt it was thyroid related, he couldn't say. Her endo. wouldn't agree to test her freet3 level and her TSH was over 3.0(close to 4) and her freet4 was at the top of the range. I found a doctor who did test her freet3 and it was low in the range. The imbalance between the freet3 and freet4 is what showed that she had a conversion issue. She was not converting enough of the storage hormone t4 (Synthroid) into enough of the biologically active t3. The t3 is what makes everything work correctly at the cellular level, and this can have an affect on the heart and many other organs and areas of the body. If the body can convert enough of the t4 into t3 then a t4 only med is fine. However, if it cannot then t3 must be supplimented with either the addition of synthetic t3 Cytomel to your t4 treatment, or can be gotten through desiccated thyroid hormone which has t3 in it. There are also compounded t3 medications that can be made. 1 1/2 years ago we choose to change directions and gave desiccated thyroid a try as it is more like human thyroid just at different levels/amounts. It has t4, t3 t2, t1 selinium and calcitonan in it. She now gets the t3 she needed and it is kept higher in the range with her t4 around mid range and her TSH is well under 1. She is not hyper in anyway, and her heart issue almost immediatly went away after the change in her medication.Plus many other hypothyroid issues are also no longer a problem like they were for her on synthetic t4 only all those years. The only problem is that the desiccated world is not an easy one to manuver in. Lots of issues with getting meds in America and then the meds keep getting changed (FDA). So if you try t3 due to it being too low in the range or due to an issue with conversion (t4 too high t3 too low-polar opposites ), then I'd suggest trying it synthetically (in addition to youir t4 treatment) with the Cytomel first. Doctors are usually more open/agreeable to this method of t3 treatment then desiccated. In our situation the low level of available t3 and the high level of t4 was definitly causing the heart palps. I hope our experience can help you in some way. Good luck and God Bless.
Thanks for the info guys:) Last night I woke up in the middle of the night feeling so weird, weak, slightly racing heartbeat, very cold and,trembling and panicky. I had to eat something..so I did. And then I felt better. I had a very early dinner and nothing after..making sense now.
Is it common for people who are hypo to have hypoglycemia?
My doctor was just using the ''pacemaker'' comment as a figure of speech I guess. He said if I was getting something more near the 50,000 extra beats some people have then I should start to worry..but seriously I don't think I'm suppose to be getting any extra beats! :( And that 24hrs I had that monitor on was a good 24hrs! I only felt like 3 extra beats that day. Usually its a lot more.
Will the palps ever stop once I'm balanced?
blsdnsvd, I am definitely stressed, still have anxiety so I think that with the thyroid is the cause.
Cant wait to get that glucose meter!
Thanks again and take care.
Stress can cause issues with the heart rhythm as well, and being that you have had testing to rule out any abnormalties, it's more than likely due to the thyroid issue. Be sure to continue monitoring and report any other changes as well.
An A1c test is a test which tells how your blood sugar have run for the previous 3 months or so - it's usually reported in terms such as the test you mentioned, which is why I thought that might be it. Hypoglycemia is the opposite of diabetes; hypoglycemia is when your blood sugar is too low, diabetes is when it's too high. You should be able to get more information on that on the diabetes forum, if you'd like to research it further. According to what my doctors have told me, there's no treatment for hypoglycemia other than making sure you eat often enough to keep your blood sugar up.
The meter I referring to is a glucose meter that you can get a most discount stores relatively inexpensively. It will measure your blood sugar, so you'll know if it's too low. Talk to your doctor about it.
You said: "I had around 150 extra beats from my pacemaker being overactive...?" I don't understand that. You have a pacemaker? Or he was using that as a figure of speech?
You can check into T3 med, but it should not be used if there may be heart issues. You said your tests came back normal, but I'm concerned about your "pacemaker" comment.
Sorry it is mcg not mgs. Yes 50 was way to high and made me feel worse. I wanted to start on 25mcg but my doctor and endo said no that wont have any effect. I new it was going to be to high. I was having every hyper symptom before I went on medication and I think it was still burning itself out. All that med just made it worse.
I don't know what an A1c test is? I was just tested when I went for my 6 week routine blood test for my thyroid. It just says random glucose, I didn't fast or anything. So if I have hypoglycemia am I at risk of type 1 diabetes? I will definitely eat more, smaller meals to keep my blood sugar steady..sometime I would exercise on an almost empty stomach. So I think u have hit the nail right on the head Barb. Also what is a meter? I think I'm gonna have to get 1 of those!
I will definitely post up my new test results in a week I know they are still off and probably a contributing factor in palpitations/dizziness. I will speak to my doc about the addition of t3 too.
blsdnsvd, I have visited a cardiologist. I had an ultrasound done and the 24hr halter monitor done as well. And apparently all was fine. I had around 150 extra beats from my pacemaker being overactive...? He said probably caused by stress. That's all they found. Do I need additional tests?? Thanks a million for the advice :)
Have you vistited a Cardiologist so that they can run specific tests to be sure that nothing else is going on??? The dizziness along with the heart palps should be checked out. As I mentioned in my earlier post, I also have issues with my heartbeats and i even had an abnormal stress test due to it...I started seeing a cardiologist due to this..but i still workout and stay active....
My TSH was 8.22 (0.40-3.50)
FT4 13.2 (9.0-19.0)
FT3 3.6 (2.6-6.0) I am due for another test in a week on a higher dose of med.
I am extremely sensitive to thyroxine. I started on 50mgs a day but that was way to high, went hyper after 3 weeks. Then I was only on 25mgs every 2nd day. But that was too low. I'm now on 25 mgs everyday and feeling alot better, however I'm still having palpitations.
I know that the heart rate naturally increases during exercise but this is abnormal. I've exercised most my life. I exercise with my sister and we do the same exercises in turns and after a few sets my heart is thumping, dizzy, we can see it thumping through my top! And she is fine.? But I do think my blood sugar may be dropping, thanks for pointing that out Barb. Last time I tested my glucose random was 3.1 (3.6-7.8).
I take beta blocker everyday but usually only 10mgs twice a day...unless I'm at the gym and i start having these episodes. Thanks for all ur time :)
It's not unusual for your heart rate to increase when you are exercising. Are you making sure you eat a light snack prior to exercise to make sure your blood sugar level stays even? If not, that could cause the dizziness.
I would ask the same questions goolarra did.
Do you have thyroid blood work results and ranges?
Do you only take beta blockers on an "as needed" basis? What thyroid meds are you on?
I had an episode with having a very fast heart rate at one time while hypo and high blood pressure. I have issues with my beats and I workout constantly at the gym. I seem to notice a faster rate when doing cardo.
Also, on the glucose: are you referring to an A1c test being at 3.1 (3.6-7.8)? That would indicate that you also have hypoglycemia (low blood sugar), which can cause the symptoms you describe. You should make sure that you eat several small meals each day in order to keep your blood sugar steady (protein and complex carbs will help), particularly prior to exercising, since greater activity will decrease your blood sugar even further. It might be helpful if you had a meter to check your actual blood sugar level when this happens to see if it's dropped too far.
In addition, your TSH, at 8.22, is too high, indicating that you are hypo. The new range for TSH is 0.3-3.0; however, most labs and doctors are still using old ranges.
Even though your FT3 and FT4 are in the normal range, they have room to go up. Will be interested in seeing your new blood work on a higher dosage.
Have either you or your doctor considered adding a small amount of T3 med with the T4? This is not recommended for anyone with heart issues, but since you said your cardiac tests came back okay, it might be an option.