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thyroid medicine after surgery

I had surgery for medullary thyroid carcanoma in October just went back to the Mayo clinic the cancer has not spread anywhere else but my neck which I am happy for but my medicine   levothyroxin is to high I quess I do not sleep and have chest pains  and just do not feel well also really bad headachesI am taking 136mcg so we are going to change the dose is it really that hard to find the right doseage? My TSH he said was undetectable but since medullary is in the C cells we could have a little Tsh in my system.
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427555 tn?1267553158
It takes about 6 weeks for changes to show when meds are adjusted. Thyroid cancer patients are aiming for a TSH of less than 0.1.  Sometimes after a clean Whole Body Scan and Thyroglobulin testing after 1 year from treatment, they will allow the TSH  to rise slightly to between 0.1 - 0.5. This is where I am right now.  
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231441 tn?1333892766
Hi,

did they test FT3 and FT4?  THey should have.  What were those levels and the reference range.  TSH is an indicator of the other thyroid hormones, but to be accurate particularly in adjusting meds I think they need to look at the active thyroid hormones as well.

I think they'd like to keep your levels at the high end of the reference range for FT3 and FT4.

Adjust slowly.  Can also alternate between 136 and 125 on consecutive days.  It takes time to get all right, so be patient.
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