Hi FTB4,
Thank you very much for your reply.
I'm on Synthroid. My endo believes this is Hashi's, because my mom and all of her siblings have it. However, I don't have the antibodies to thyroid/adrenals, and I've never had a biopsy...but, I have every manifestation of Autoimmune Polyglandular Syndrome type 1 (Addison's, hypothyroidism, chronic pancreatitis, malabsorption, atrophic gastritis/pernicious anemia, Celiac and other food allergies, etc). I have an enlarged thymus, which is what, to my doctors, indicates that this is autoimmune in the absence of antibodies.
My TSH has never been through the roof. The highest it's ever been was 6.0. My T4 is always at the very bottom of the range. My old endo said Synthroid wouldn't shrink the thyroid, but my new endo said many of his patients have experienced relief after finally finding the right dose.
Anyway, thanks again. Glad I found this forum, and I'm looking forward to more replies! Hope your pain improves with treatment. Hang in there.
I have an enlarged thyroid also, although I have pain on the right side from the ear down to the collar bone, I am also on Synthroid, I questioned my Endo about how long the medication would take to reduce the size of my thyroid, he said it may not because I have Hashimoto's and my immune system keeps my thyroid inflamed by attacking it, Are you already taking Synthroid? If you do not have nodules and you do not have an Auto Immune problem (Hashimoto's or Graves), it is possible your thyroid could shrink when your levels are back to normal. You could post your Free T3, T4 and TSH with references for members to explain and comment. Good Luck FTB4